The parents’ perspective of the early diagnostic period of their child with hearing loss: information and support

References

• Arango, P. 2011. Family-centered care. Acad Pediatr, 11, 97.
   PubMed Web of Science ®Google Scholar
• Archbold, S.M., Lutman, M.E., Gregory, S., O'Neill, C. & Nikolopoulos, T.P. 2002. Parents and their deaf child: Their perceptions three years after cochlear implantation. Deaf Educ Int, 4, 12–40.
   Google Scholar
• Australian Hearing. 2014. What support does Australian Hearing provide hearing impaired children? Retrieved September 24, 2015: https://www.hearing.com.au/milestone/what-support-does-australian-hearing-provide-hearing-impaired-children/.
   Google Scholar
• Babbie, E.R. 2010. The Practice of Social Research. Belmont (CA): Wadsworth Cengage.
   Google Scholar
• Bekker, H., Thornton, J.G., Airey, C.M., Connelly, J.B., Hewison, J., et al. 1999. Informed decision making: An annotated biography and systematic review. Health Technol Assess, 3, 39–32.
   Google Scholar
• Bleich, S.N., Özaltin, E. & Murray, C.J.L. 2009. How does satisfaction with the health-care system relate to patient experience? Bull World Health Org, 87, 271–278.
   PubMed Web of Science ®Google Scholar
• Braun, V. & Clarke, V. 2006. Using thematic analysis in psychology. Qual Res Psychol, 3, 77–101.
   Google Scholar
• Centers for Disease Control and Prevention. 2009. Simply Put: A Guide for Creating Easy-To-Understand Materials. Retrieved November 26, 2015: www.cdc.gov/healthmarketing/pdf/Simply_Put_082010.pdf.
   Google Scholar
• Ching, T.Y.C., Leigh, G. & Dillon, H. 2013. Introduction to the Longitudinal Outcomes of Children with Hearing Impairment (LOCHI) study: Background, design, sample characteristics. Int J Audiol, 52, 54–59.
   Web of Science ®Google Scholar
• Creswell, J.W. & Plano Clark, V.L. 2011. Designing and Conducting Mixed Methods Research. Thousand Oaks: SAGE Publications.
   Google Scholar
• Crowe, K., Fordham, L., McLeod, S. & Ching, T.Y.C. 2014a. ‘Part of our world’: Influences on caregiver decisions about communication choices for children with hearing loss. Deafness Educ Int, 16, 61–85.
   PubMedGoogle Scholar
• Crowe, K., McLeod, S., McKinnon, D.H., Ching, T.Y.C., Nippold, M., et al. 2014b. Speech, sign, or multilingualism for children with hearing loss: Quantitative insights into caregivers' decision making. Lang Speech Hear Ser, 45, 234–247.
   PubMed Web of Science ®Google Scholar
• Decker, K.B., Vallotton, C.D. & Johnson, H.A. 2012. Parents' communication decision for children with hearing loss: Sources of information and influence. Am Ann Deaf, 157, 326–339.
   PubMed Web of Science ®Google Scholar
• DiCicco-Bloom, B. & Crabtree, B.F. 2006. The qualitative research interview. Med Educ, 40, 314–321.
   PubMed Web of Science ®Google Scholar
• Duncan, J. 2009. Parental readiness for cochlear implant decision-making. Cochlear Implants Int, 10, 38–42.
   PubMedGoogle Scholar
• Eleweke, C.J. & Rodda, M. 2000. Factors contributing to parents' selection of a communication mode to use with their deaf children. Am Ann Deaf, 145, 375–383.
   PubMed Web of Science ®Google Scholar
• Eleweke, C.J., Gilbert, S., Bays, D. & Austin, E. 2008. Information about support services for families of young children with hearing loss: A review of some useful outcomes and challenges. Deaf Educ Int, 10, 190–212.
   Google Scholar
• Epley, P., Summers, J.A. & Turnbull, A. 2010. Characteristics and trends in family-centred conceptualizations. J Fam Soc Work, 13, 269–285.
   Google Scholar
• Erbasi, E., Scarinci, N., Hickson, L. & Ching, T.Y.C. 2016. Parental involvement in the care and intervention of children with hearing loss. Int J Audiol. [Epub ahead of print].
   Google Scholar
• Fitzpatrick, E., Angus, D., Durieux-Smith, A., Graham, I.D. & Coyle, D. 2008. Parents' needs following identification of childhood hearing loss. Am J Audiol, 17, 38–49.
   PubMed Web of Science ®Google Scholar
• Gilliver, M., Ching, T.Y.C. & Sjahalam-King, J. 2013. When expectation meets experience: Parents’ recollections of and experiences with a child diagnosed with hearing loss soon after birth. Int J Audiol, 52, S10–S16.
   PubMed Web of Science ®Google Scholar
• Gravel, J.S. & O'Gara, J. 2003. Communication options for children with hearing loss. Ment Retard Dev Disabil Res Rev, 9, 243–251.
   PubMedGoogle Scholar
• Gummesson, E. 1988. Qualitative Methods in Management Research. Lund, Norway: Studentlitteratur, Chartwell-Bratt.
   Google Scholar
• Hsieh, H. & Shannon, S.E. 2005. Three approaches to qualitative content analysis. Qual Health Res, 15, 1277–1288.
   PubMed Web of Science ®Google Scholar
• Hyde, M., Punch, R. & Komesaroff, L. 2010. Coming to a decision about cochlear implantation: Parents making choices for their deaf children. J Deaf Stud Deaf Educ, 15, 162.
   PubMed Web of Science ®Google Scholar
• Joint Committee on Infant Hearing. 2007. Year 2007 position statement: Principles and guidelines for early hearing detection and intervention programs. Pediatrics, 120, 898–921.
   PubMed Web of Science ®Google Scholar
• Joint Committee on Infant Hearing. 2013. Supplement to the JCIH 2007 position statement: Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Pediatrics, 131, e1324.
   PubMed Web of Science ®Google Scholar
• Kampfe, C.M. 1989. Parental reaction to a child's hearing impairment. Am Ann Deaf, 134, 255–259.
   PubMed Web of Science ®Google Scholar
• Kessels, R.P.C. 2003. Patients' memory for medical information. J R Soc Med, 96, 219–222.
   PubMed Web of Science ®Google Scholar
• Kluwin, T.N. & Stewart, D.A. 2000. Cochlear implants for younger children: A preliminary description of the parental decision process and outcomes. Am Ann Deaf, 145, 26–32.
   PubMed Web of Science ®Google Scholar
• Kurtzer-White, E. & Luterman, D. 2003. Families and children with hearing loss: Grief and coping. Ment Retard Dev Disabil Res Rev, 9, 232–235.
   PubMedGoogle Scholar
• Kutner, M., Greenberg, E., Jin, Y. & Paulsen, C. 2006. The Health Literacy of America's Adults: Results from the 2003 National Assessment of Adult Literacy (NCES 2006-483). Washington (DC): US Department of Education.
   Google Scholar
• Li, Y., Bain, L. & Steinberg, A.G. 2003. Parental decision making and the choice of communication modality for the child who is deaf. Arch Pediatr Adolesc Med, 157, 162–168.
   PubMed Web of Science ®Google Scholar
• Luterman, D. & Kurtzer-White, E. 1999. Identifying hearing loss: Parents' needs. Am J Audiol, 8, 13–18.
   PubMedGoogle Scholar
• Marteau, T.M., Dormandy, E. & Michie, S. 2001. A measure of informed choice. Health Expect, 4, 99–108.
   PubMedGoogle Scholar
• Matthijs, L., Loots, G., Mouvet, K., Van herreweghe, M., Hardonk, S., et al. 2012. First information parents receive after UNHS detection of their baby's hearing loss. J Deaf Stud Deaf Educ, 17, 387–401.
   PubMed Web of Science ®Google Scholar
• Meyer, C. 2001. A case in case study methodology. Field Methods, 13, 329–352.
   Google Scholar
• Moeller, M.P., Carr, G., Seaver, L., Stredler-Brown, A. & Holzinger, D. 2013. Best practices in family-centered early intervention for children who are deaf or hard of hearing: An international consensus statement. J Deaf Stud Deaf Educ, 18, 429–445.
   PubMed Web of Science ®Google Scholar
• Patton, M.Q. 2002. Qualitative Research and Evaluation Methods. 3rd ed. Thousand Oaks (CA): Sage Publications.
   Google Scholar
• Ratzan, S.C. & Parker, R.M. 2000. Introduction. In: Selden, C.R., Zorn, M., Ratzan, S.C. & Parker, R.M. (eds.) National Library of Medicine Current Bibliographies in Medicine: Health Literacy (NLM Pub. No. CBM 2000-1). Bethesda (MD): National Institutes of Health.
   Google Scholar
• Rice, G.B. & Lenihan, S. 2005. Early intervention in auditory/oral deaf education: Parent and professional perspectives. Volta Rev, 105, 73–96.
   Google Scholar
• Roberts, R.M., Sands, F., Gannoni, G. & Marciano, T. 2015. Perceptions of the support that mothers and fathers of children with cochlear implants receive in South Australia: A qualitative study. Int J Audiol, 54, 942–950.
   PubMed Web of Science ®Google Scholar
• Russ, S.A., Kuo, A.A., Poulakis, Z., Barker, M., Rickards, F., et al. 2004. Qualitative analysis of parents' experience with early detection of hearing loss. Arch Dis Child, 89, 353–358.
   PubMed Web of Science ®Google Scholar
• Sass-Lehrer, M. 2004. Early detection of hearing loss: Maintaining a family-centered perspective. Semin Hear, 25, 295–307.
   Google Scholar
• Seligman, H.K., Wallace, A.S., DeWalt, D.A., Schillinger, D., Arnold, C.L., et al. 2007. Facilitating behavior change with low-literacy patient education materials. Am J Health Behav, 31, S69–S78.
   PubMed Web of Science ®Google Scholar
• Senghas, R.J. & Monaghan, L. 2002. Signs of their times: Deaf communities and the culture of language. Annu Rev Anthropol, 31, 69–97.
   Web of Science ®Google Scholar
• Shih, T.-H. & Fan, X. 2008. Comparing response rates from web and mail surveys: A meta-analysis. Field Methods, 20, 249–271.
   Web of Science ®Google Scholar
• Simons, H. 2009. Case Study Research in Practice. London; Los Angeles: SAGE.
   Google Scholar
• Sorkin, D. & Zwolan, T. 2008. Parental perspectives regarding early intervention and its role in cochlear implantation in children. Otol Neurotol, 29, 137–142.
   PubMed Web of Science ®Google Scholar
• Steinberg, A., Bain, L., Li, Y., Delgado, G. & Ruperto, V. 2003. Decisions Hispanic families make after the identification of deafness. J Deaf Stud Deaf Educ, 8, 291–314.
   PubMedGoogle Scholar
• Wechsler, D. & Naglieri, J.A. 2006. Wechsler Nonverbal Scale of Ability: Technical and Interpretive Manual. San Antonio (TX): The Psychological Corporation.
   Google Scholar