506
Views
0
CrossRef citations to date
0
Altmetric
Original Article

Adults’ recollections of discussions with their audiologist: a qualitative study of what was and was not successfully communicated about listening difficulties

ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Received 20 Oct 2023, Accepted 26 Apr 2024, Published online: 13 May 2024

References

  • Backenroth, G. A., and B. H. Ahlner. 2000. “Quality of Life of Hearing-Impaired Persons Who Have Participated in Audiological Rehabilitation Counselling.” International Journal for the Advancement of Counselling 22 (3):225–240. https://doi.org/10.1023/A:1005655017175.
  • Barker, A. B., P. Leighton, and M. A. Ferguson. 2017. “Coping Together with Hearing Loss: A Qualitative Meta-Synthesis of the Psychosocial Experiences of People With Hearing Loss and Their Communication Partners.” International Journal of Audiology 56 (5):297–305. https://doi.org/10.1080/14992027.2017.1286695.
  • Beck, R. S., R. Daughtridge, and P. D. Sloane. 2002. “Physician-Patient Communication in the Primary Care Office: A Systematic Review.” The Journal of the American Board of Family Practice 15 (1):25–38.
  • Bennett, R. J., L. Saulsman, R. H. Eikelboom, and M. Olaithe. 2022. “Coping with The Social Challenges and Emotional Distress Associated with Hearing Loss: A Qualitative Investigation using Leventhal’s Self-Regulation Theory.” International Journal of Audiology 61 (5):353–364. https://doi.org/10.1080/14992027.2021.1933620.
  • Bergey, C. 2017. “The Patient’s Narrative is a Part of Medicine.” The ASHA Leader 22 (4):38–39. https://doi.org/10.1044/leader.OTP.22042017.38.
  • Boothroyd, A. 2007. “Adult Aural Rehabilitation: What Is It and Does It Work?” Trends in Amplification 11 (2):63–71. https://doi.org/10.1177/1084713807301073.
  • Brooks, J., S. McCluskey, E. Turley, and N. King. 2015. “The Utility of Template Analysis in Qualitative Psychology Research.” Qualitative Research in Psychology 12 (2):202–222. https://doi.org/10.1080/14780887.2014.955224.
  • Bushnell, J., D. McLeod, A. Dowell, C. Salmond, S. Ramage, S. Collings, P. Ellis, M. Kljakovic, and L. McBain. 2005. “Do Patients Want to Disclose Psychological Problems to GPs?” Family Practice 22 (6):631–637. https://doi.org/10.1093/fampra/cmi080.
  • Cassarly, C., L. J. Matthews, A. N. Simpson, and J. R. Dubno. 2020. “The Revised Hearing Handicap Inventory and Screening Tool Based on Psychometric Reevaluation of the Hearing Handicap Inventories for the Elderly and Adults.” Ear and Hearing 41 (1):95–105. https://doi.org/10.1097/AUD.0000000000000746.
  • Caswell-Midwinter, B., and W. M. Whitmer. 2021. “The Perceptual Limitations of Troubleshooting Hearing-Aids Based on Patients’ Descriptions.” International Journal of Audiology 60 (6):427–437. https://doi.org/10.1080/14992027.2020.1839679.
  • Chia, E.‑M., J. J. Wang, E. Rochtchina, R. R. Cumming, P. Newall, and P. Mitchell. 2007. “Hearing Impairment and Health-Related Quality of Life: The Blue Mountains Hearing Study.” Ear and Hearing 28 (2):187–195. https://doi.org/10.1097/AUD.0b013e31803126b6.
  • Chisolm, T. H., C. E. Johnson, J. L. Danhauer, L. J. P. Portz, H. B. Abrams, S. Lesner, P. A. McCarthy, and C. W. Newman. 2007. “A Systematic Review of Health-Related Quality of Life and Hearing Aids: Final Report of the American Academy of Audiology Task Force On the Health-Related Quality of Life Benefits of Amplification in Adults.” Journal of the American Academy of Audiology 18 (2):151–183. https://doi.org/10.3766/jaaa.18.2.7.
  • Choi, J. S., K. S. Shim, K. Kim, C. L. Nieman, S. K. Mamo, F. R. Lin, and H. ‑R. Han. 2018. “Understanding Hearing Loss and Barriers to Hearing Health Care among Korean American Older Adults: A Focus Group Study.” Journal of Applied Gerontology 37 (11):1344–1367. https://doi.org/10.1177/0733464816663554.
  • Claesen, E., and H. Pryce. 2012. “An Exploration of the Perspectives of Help-Seekers Prescribed Hearing Aids.” Primary Health Care Research & Development 13 (3):279–284. https://doi.org/10.1017/S1463423611000570.
  • Ekberg, K., C. Grenness, and L. Hickson. 2014. “Addressing Patients’ Psychosocial Concerns Regarding Hearing aids within Audiology Appointments for Older Adults.” American Journal of Audiology 23 (3):337–350. https://doi.org/10.1044/2014_AJA-14-0011.
  • Ekberg, K., C. Meyer, N. Scarinci, C. Grenness, and L. Hickson. 2015. “Family Member Involvement in Audiology Appointments With Older People with Hearing Impairment.” International Journal of Audiology 54 (2):70–76. https://doi.org/10.3109/14992027.2014.948218.
  • Galvin, K., D. Tomlin, B. H. Timmer, Z. McNeice, N. Mount, K. Gray, and C. Short. 2023. “A qualitative study of consumer perspectives for a future mobile app to document real-world listening difficulties (Preprint)”. JMIR Formative Research. https://doi.org/10.2196/47578.
  • Gobat, N., P. Kinnersley, J. W. Gregory, and M. Robling. 2015. “What is Agenda Setting in the Clinical Encounter? Consensus from Literature Review and Expert Consultation.” Patient Education and Counseling 98 (7):822–829. https://doi.org/10.1016/j.pec.2015.03.024.
  • Grenness, C., L. Hickson, A. Laplante-Lévesque, and B. Davidson. 2014. “Patient-centred audiological rehabilitation: Perspectives of older adults who own hearing aids.” International Journal of Audiology 53(sup1):S68–S75. https://doi.org/10.3109/14992027.2013.866280.
  • Grenness, C., L. Hickson, A. Laplante-Lévesque, C. Meyer, and B. Davidson. 2015a. “Communication Patterns in Audiologic Rehabilitation History-Taking.” Ear and Hearing 36 (2):191–204. https://doi.org/10.1097/AUD.0000000000000100.
  • Grenness, C., L. Hickson, A. Laplante-Lévesque, C. Meyer, and B. Davidson. 2015b. “The Nature of Communication Throughout Diagnosis and Management Planning in Initial Audiologic Rehabilitation Consultations.” Journal of the American Academy of Audiology 26 (1):36–50. https://doi.org/10.3766/jaaa.26.1.5.
  • Hallberg, L. R., and M. L. Barrenäs. 1995. “Coping with Noise-Induced Hearing Loss: Experiences from the Perspective of Middle-Aged Male Victims.” British Journal of Audiology 29 (4):219–230. https://doi.org/10.3109/03005369509086600.
  • Hass-Slavin, L., M. A. McColl, and W. Pickett. 2005. “Challenges and Strategies Related to Hearing Loss Among Dairy Farmers.” The Journal of Rural Health 21 (4):329–336. https://doi.org/10.1111/j.1748-0361.2005.tb00103.x.
  • Heffernan, E., N. S. Coulson, H. Henshaw, J. G. Barry, and M. A. Ferguson. 2016. “Understanding the Psychosocial Experiences of Adults with Mild-Moderate Hearing Loss: An Application of Leventhal’s Self-Regulatory Model.” International Journal of Audiology 55(Suppl 3):S3–S12. https://doi.org/10.3109/14992027.2015.1117663.
  • Heffernan, E., C. M. Withanachchi, and M. A. Ferguson. 2022. “The Worse my Hearing Got, The Less Sociable I Got’: A Qualitative Study of Patient and Professional Views of the Management of Social Isolation and Hearing Loss.” Age and Ageing 51 (2):afac019. https://doi.org/10.1093/ageing/afac019.
  • Heffernan, E., D. W. Maidment, and M. A. Ferguson. 2023. “A Qualitative Study Showing that a Telecare Tool Can Have Benefits Before and during the Initial Hearing Assessment Appointment.” International Journal of Audiology 62 (4):295–303. https://doi.org/10.1080/14992027.2022.2041740.
  • Henriksen, M. G., M. Englander, and J. Nordgaard. 2022. “Methods of Data Collection in Psychopathology: The Role of Semi-Structured, Phenomenological Interviews.” Phenomenology and the Cognitive Sciences 21 (1):9–30. https://doi.org/10.1007/s11097-021-09730-5.
  • Holman, J. A., Y. H. Ali, and G. Naylor. 2023. “A Qualitative Investigation of the Hearing and Hearing-Aid Related Emotional States Experienced by Adults with Hearing Loss.” International Journal of Audiology 62 (10):973–982. https://doi.org/10.1080/14992027.2022.2111373.
  • Jenstad, L. M., D. J. Van Tasell, and C. Ewert. 2003. “Hearing Aid Troubleshooting Based on Patients’ Descriptions.” Journal of the American Academy of Audiology 14 (07):347–360. https://doi.org/10.1055/s-0040-1715754.
  • King, N. 2012. “Doing Template Analysis.” In Qualitative Organizational Research: Core Methods and Current Challenges, edited by G. Symon, and C. Cassell, 426–450. Los Angeles: SAGE Publications.
  • Knoetze, M., V. Manchaiah, B. Mothemela, and D. W. Swanepoel. 2023. “Factors Influencing Hearing Help-Seeking and Hearing aid Uptake in Adults: A Systematic Review of the Past Decade.” Trends in Hearing 27:23312165231157255. https://doi.org/10.1177/23312165231157255.
  • Knudsen, L. V., A. Laplante-Lévesque, L. Jones, J. E. Preminger, C. Nielsen, T. Lunner, L. Hickson, G. Naylor, and S. E. Kramer. 2012. “Conducting Qualitative Research in Audiology: A Tutorial.” International Journal of Audiology 51 (2):83–92. https://doi.org/10.3109/14992027.2011.606283.
  • Laird, E. C., C. A. Bryant, C. M. Barr, and R. J. Bennett. 2023. “Conversations about Mental Illness and Health in Adult Audiological Rehabilitation.” International Journal of Audiology 62 (3):253–260. https://doi.org/10.1080/14992027.2022.2034060.
  • Laplante-Lévesque, A., L. Dons Jensen, P. Dawes, and C. Nielsen. 2013. “Optimal Hearing aid Use: Focus Groups with Hearing Aid Clients and Audiologists.” Ear and Hearing 34 (2):193–202. https://doi.org/10.1097/AUD.0b013e31826a8ecd.
  • Laplante-Lévesque, A., L. Hickson, and L. Worrall. 2010. “A Qualitative Study of Shared Decision Making in Rehabilitative Audiology.” Journal of the Academy of Rehabilitative Audiology 43:27–43.
  • Laplante-Lévesque, A., L. Hickson, and C. Grenness. 2014. “An Australian Survey of Audiologists’ Preferences for Patient-Centredness.” International Journal of Audiology 53(sup1):S76–S82. https://doi.org/10.3109/14992027.2013.832418.
  • Levy, A. G., A. M. Scherer, B. J. Zikmund-Fisher, K. Larkin, G. D. Barnes, and A. Fagerlin. 2018. “Prevalence of and Factors Associated With Patient Nondisclosure of Medically Relevant Information to Clinicians.” JAMA Network Open 1 (7):e185293. https://doi.org/10.1001/jamanetworkopen.2018.5293.
  • Lim, C., A. B. L. Berry, T. Hirsch, A. L. Hartzler, E. H. Wagner, E. Ludman, and J. D. Ralston. 2016. “It Just Seems Outside My Health: How Patients with Chronic Conditions Perceive Communication Boundaries with Providers.” DIS. Designing Interactive Systems 2016:1172–1184. https://doi.org/10.1145/2901790.2901866.
  • Manchaiah, V., M. L. Bellon-Harn, A. L. Dockens, J. H. Azios, and W. E. Harn. 2019. “Communication between Audiologist, Patient, and Patient’s Family Members during Initial Audiology Consultation and Rehabilitation Planning Sessions: A Descriptive Review.” Journal of the American Academy of Audiology 30 (9):810–819. https://doi.org/10.3766/jaaa.18032.
  • Marino, L. V., N. Collaḉo, S. Coyne, M. Leppan, S. Ridgeway, T. Bharucha, C. Cochrane, C. Fandinga, K. Palframan, L. Rees, et al. 2023. “The Development of a Communication Tool to Aid Parent-Centered Communication between Parents and Healthcare Professionals: A Quality Improvement Project.” Healthcare 11 (20):2706. https://doi.org/10.3390/healthcare11202706.
  • McNeice, Z., D. Tomlin, B. Timmer, C. E. Short, G. Nixon, and K. Galvin. 2023. “A Scoping Review Exploring How Adults Self-Describe and Communicate about the Listening Difficulties They Experience.” International Journal of Audiology 63 (3):163–170. https://doi.org/10.1080/14992027.2023.2245136.
  • Mealings, K., I. Yeend, J. T. Valderrama, M. Gilliver, J. Pang, J. Heeris, and P. Jackson. 2020. “Discovering the Unmet Needs of People with Difficulties Understanding Speech in Noise and A Normal or Near-Normal Audiogram.” American Journal of Audiology 29 (3):329–355. https://doi.org/10.1044/2020_AJA-19-00093.
  • Meyer, C., L. Hickson, and A. Fletcher. 2014. “Identifying the Barriers and Facilitators to Optimal Hearing Aid Self-Efficacy.” International Journal of Audiology 53 (sup1):S28–S37. https://doi.org/10.3109/14992027.2013.832420.
  • Michie, S., J. Miles, and J. Weinman. 2003. “Patient-Centredness in Chronic Illness: What Is It and Does It Matter?” Patient Education and Counseling 51 (3):197–206. https://doi.org/10.1016/S0738-3991(02)00194-5.
  • Mummah, S. A., T. N. Robinson, A. C. King, C. D. Gardner, and S. Sutton. 2016. “IDEAS (Integrate, Design, Assess, and Share): A Framework and Toolkit of Strategies for The Development of More Effective Digital Interventions to Change Health Behaviour.” Journal of Medical Internet Research 18 (12):e317. https://doi.org/10.2196/jmir.5927.
  • National Institute on Deafness and Other Communication Disorders. 2021. “Statistics and Epidemiology: Hearing, Ear Infections and Deafness.” https://www.nidcd.nih.gov/health/statistics.
  • Oosthuizen, I., V. Manchaiah, S. Launer, and D. W. Swanepoel. 2022. “How to Improve Audiology Services: The Patient Perspective.” The Hearing Journal 75 (8):24–28. https://doi.org/10.1097/01.HJ.0000856020.46654.ec.
  • Pike, A., S. Moodie, K. Parsons, A. Griffin, J. Smith-Young, T. ‑L. Young, L. Mills, M. Barrett, L. Rowe, M. Parsons, et al. 2022. “Something is Just Not Right with My Hearing: Early Experiences of Adults Living with Hearing Loss.” International Journal of Audiology 61 (9):787–797. https://doi.org/10.1080/14992027.2021.1983656.
  • Poost-Foroosh, L., M. B. Jennings, L. Shaw, C. N. Meston, and M. F. Cheesman. 2011. “Factors in Client-Clinician Interaction that Influence Hearing Aid Adoption.” Trends in Amplification 15 (3):127–139. https://doi.org/10.1177/1084713811430217.
  • Preminger, J. E., and A. Laplante-Lévesque. 2014. “Perceptions of Age and Brain in Relation to Hearing Help-Seeking and Rehabilitation.” Ear and Hearing 35 (1):19–29. https://doi.org/10.1097/AUD.0b013e31829c065c.
  • Preminger, J. E., M. Oxenbøll, M. B. Barnett, L. D. Jensen, and A. Laplante-Lévesque. 2015. “Perceptions of Adults with Hearing Impairment Regarding the Promotion of Trust in Hearing Healthcare Service Delivery.” International Journal of Audiology 54 (1):20–28. https://doi.org/10.3109/14992027.2014.939776.
  • Pronk, M., D. J. Deeg, N. J. Versfeld, M. W. Heymans, G. Naylor, and S. E. Kramer. 2017. “Predictors of Entering a Hearing Aid Evaluation Period: A Prospective Study in Older Hearing-Help Seekers.” Trends in Hearing 21:2331216517744915. https://doi.org/10.1177/2331216517744915.
  • Pryce, H. 2006. “The Process of Coping in King-Kopetzky Syndrome.” Audiological Medicine 4 (2):60–67. https://doi.org/10.1080/16513860600747813.
  • Pryce, H., and D. Wainwright. 2008. “Help-Seeking for Medically Unexplained Hearing Difficulties: A Qualitative Study.” International Journal of Therapy and Rehabilitation 15 (8):343–349. https://doi.org/10.12968/ijtr.2008.15.8.30818.
  • Pryce, H., A. Hall, A. Laplante-Lévesque, and E. Clark. 2016. “A Qualitative Investigation of Decision Making During Help-Seeking for Adult Hearing Loss.” International Journal of Audiology 55 (11):658–665. https://doi.org/10.1080/14992027.2016.1202455.
  • Roter, D., and J. A. Hall. 2006. Doctors Talking with Patients/Patients Talking with Doctors: Improving Communication in Medical Visits, edited by Debra L. Roter and Judith A. Hall. 2nd ed. Westport, CT: Praeger.
  • Shukla, A., M. Harper, E. Pedersen, A. Goman, J. J. Suen, C. Price, J. Applebaum, M. Hoyer, F. R. Lin, and N. S. Reed. 2020. “Hearing Loss, Loneliness, and Social Isolation: A Systematic Review.” Otolaryngology-Head and Neck Surgery 162 (5):622–633. https://doi.org/10.1177/0194599820910377.
  • Timmer, B. H. B., R. J. Bennett, J. Montano, L. Hickson, B. Weinstein, J. Wild, M. Ferguson, J. A. Holman, V. LeBeau, and L. Dyre. 2023. “Social-Emotional Well-Being and Adult Hearing Loss: Clinical Recommendations.” International Journal of Audiology 2023:1–12. https://doi.org/10.1080/14992027.2023.2190864.
  • Timmer, B. H. B., L. Hickson, and S. Launer. 2018. “The Use of Ecological Momentary Assessment in Hearing Research and Future Clinical Applications.” Hearing Research 369:24–28. https://doi.org/10.1016/j.heares.2018.06.012.
  • Vas, V., M. A. Akeroyd, and D. A. Hall. 2017. “A Data-Driven Synthesis of Research Evidence for Domains of Hearing Loss, as Reported by Adults with Hearing Loss and their Communication Partners.” Trends in Hearing 21:2331216517734088. https://doi.org/10.1177/2331216517734088.
  • Ventry, I. M., and B. E. Weinstein. 1982. “The Hearing Handicap Inventory for the Elderly: A New Tool.” Ear and Hearing 3 (3):128–134. https://doi.org/10.1097/00003446-198205000-00006.
  • Wänström, G., M. Öberg, E. Rydberg, T. Lunner, A. Laplante-Lévesque, and G. Andersson. 2014. “The Psychological Process from Avoidance to Acceptance in Adults with Acquired Hearing Impairment.” Hearing, Balance and Communication 12 (1):27–35. https://doi.org/10.3109/21695717.2013.875243.
  • World Health Organization (WHO). 2018. “Continuity and Coordination of Care: A Practice Brief to Support Implementation of the WHO Framework on Integrated People-Centred Health Services.” https://iris.who.int/bitstream/handle/10665/274628/9789241514033-eng.pdf?ua=1.