Empowerment and personal assistance – resistance, consumer choice, partnership or discipline?

References

• Alford, J. 2009. Engaging Public Sector Clients: From Service-Delivery to Co-Production. London: Palgrave Macmillan.
   Google Scholar
• Andersen, J., O. P. Askheim, I. S. Begg, and I. og Guldvik. 2006. Brukerstyrt personlig assistanse. Kunnskap og praksis [Personal Assistance: Knowledge and Practice]. Oslo: Gyldendal Akademisk.
   Google Scholar
• Askheim, O. P. 2001. Personlig assistanse for funksjonshemmede i Norden. Forskningsrapport nr. 61 [Personal Assistance for Disabled People in the Nordic Countries]. Lillehammer: Høgskolen i Lillehammer.
   Google Scholar
• Askheim, O. P. 2012. Empowerment i helse- og sosialfaglig arbeid [Empowerment in Health- and Social Professional Work]. Oslo: Gyldendal Akademisk.
   Google Scholar
• Barber, R. B. 2007. Consumed. New York: W.W. Norton & Company.
   Google Scholar
• Barnes, C., G. Mercer, and T. Shakespeare. 1999. Exploring Disability. Cambridge: Polity Press.
   Google Scholar
• Barron, K., D. Michailakis, and M. Söder. 2000. “Funktionshindrade och den offentliga hjälpapparaten [People with Disabilities and the Public Services].” In Välfärd, vård och omsorg [Welfare, Health and Social Care], edited by M. Szebehely, 38, 137–170. Stockholm: SOU.
   Google Scholar
• Barry, A., T. Osbourne, and N. Rose. 2001. “Introduction.” In Foucault and Political Reason – Liberalism, Neo-Liberalism and Rationalities of Government. London: Routledge UCL-press.
   Google Scholar
• Benjamin, A. E., R. Matthias, and T. M. Franke. 2000. “Comparing Consumer-directed and Agency Models for Providing Supportive Services at Home.” HSR: Health Services Research 35 (1): Part II: 351–366.
   PubMed Web of Science ®Google Scholar
• Beresford, P., and S. Croft. 1995. “Whose Empowerment? Equalising the Competing Discourses in Community Care.” In Empowerment in Community Care, edited by R. Jack, 59–76. London: Chapman and Hall.
   Google Scholar
• Bonfils, I. S. 2006. “Den handikappolitiske aktør [Disabled People as Political Actors].” PhD Thesis, Copenhagen University.
   Google Scholar
• Bovaird, T., and E. Löffler. 2003. Public Management and Governance. London: Routledge.
   Google Scholar
• Bovaird, T., and E. Löffler 2012. “From Engagement to Co-production.” In New Public Governance, the Third Sector and Co-production, edited by V. Pestoff, T. Brandensen, and B. Verschuere, 35–60. New York, London: Routledge.
   Google Scholar
• Braye, S. 2000. “Participation and Involvement in Social Care: An Overview.” In User Involvement and Participation in Social Care: Research Informing Practice, edited by H. Kemshall and R. Littlechild, 9–28. London: Jessica Kingsley.
   Google Scholar
• Campbell, J., and M. Oliver. 1996. Disability Politics. Understanding Our Past, Changing Our Future. London: Routledge.
   Google Scholar
• Carr, S. 2012. “Participation, Resistance and Change”. In Social Care, Service Users and User Involvement. Research Highlights in Social Work, edited by P. Beresford and S. Carr, 37–51. London: Jessica Kingsley.
   Google Scholar
• Cottam, H., and C. Leadbeater. 2004. Health – Co-Creating Services. RED Paper 01. Kent: Design Council. http://www.design-council.info/RED/.
   Google Scholar
• Cruikshank, B. 1999. The Will to Empower: Democratic Citizens and Other Subjects. Ithaca: Cornell University Press.
   Google Scholar
• Dean, M. 1999. Governmentality: Power and Rule in Modern Society. London: Sage.
   Google Scholar
• DeJong, G. 1983. “Defining and Implementing the Independent Living Concept.” In Independent Living for Physically Disabled People, edited by N. M. Crewe and I. K. Zola, 4–27. San Francisco, CA: Jossey-Bass.
   Google Scholar
• Dwyer, P. 2000. Welfare Rights and Responsibilities. Bristol: Policy Press.
   Google Scholar
• Ferguson, I. 2007. “Increasing User Choice or Privatizing Risk? The Antinomies of Personalization.” British Journal of Social Work 37: 387–403. doi:10.1093/bjsw/bcm016.
   Web of Science ®Google Scholar
• Fleming, J., and D. Ward. 1999. “Research as Empowerment: The Social Action Approach.” In Empowerment Practice in Social Work, edited by W. Shera and L. M. Wells, 370–389. Toronto, ON: Canadian Scholars’ Press.
   Google Scholar
• Foucault, M. 1980. The History of Sexuality. New York: Vintage.
   Google Scholar
• Foucault, M. 2002. “Governmentality.” In Power: Essential Works of Foucault 1954–1984, Vol. 3, edited by James D. Faubion, 201–222. London: Penguin Books.
   Google Scholar
• Fraser, N. 1997. Justice Interruptus: Critical Reflections on the ‘Postsocialist’ Condition. London: Routledge.
   Google Scholar
• Freire, P. 1993. Pedagogy of the Oppressed. New York: Continuum.
   Google Scholar
• Glasby, J., and R. Littlechild. 2009. Direct Payments and Personal Budgets. Bristol: Policy Press.
   Google Scholar
• Glendinning, C. 2009. “The Consumer in Social Care.” In The Consumer in Public Services, edited by R. Simmons, M. Powell, and I. Greener, 177–196. Bristol: The Policy Press.
   Google Scholar
• Guldvik, I. 2003. Selvstyrt og velstyrt? Brukernes erfaringer med brukerstyrt personlig assistanse. ØF-rapport nr. 03/2003 [Self-directed and Well-Managed? Users Experiences with Personal Assistance]. Lillehammer: Østlandsforskning.
   Google Scholar
• Guldvik, I., and J. og Andersen. 2013. BPA – trekk ved kommunal saksbehandling, arbeidsgivernes tilrettelegging og assistentenes arbeidsbetingelser. Forskningsrapport nr. 156 [PA – Aspects of Municipal Administration, Employers' Facilitation and Assistant's Working Condition. Research Report nr. 156]. Lillehammer: Høgskolen i Lillehammer.
   Google Scholar
• Häggroth, S. 2005. Staten och kommunerna [The Government and the Municipalities]. Stockholm: Ansvarskommitténs skriftserie 2005.
   Google Scholar
• Hall, E. 2009. “Being in Control: Personal Budgets and the New Landscape of Care for People with Learning Disabilities.” Mental Health Review Journal 14 (2): 44–53. doi:10.1108/13619322200900014.
   Google Scholar
• Hardy, C., and S. Leiba-O'Sullivan. 1998. “The Power behind Empowerment: Implications for Research and Practice.” Human Relations 51 (4): 451–483.
   Web of Science ®Google Scholar
• Helse- og omsorgsdepartementet. 2013. Endring i pasient- og brukerettighetsoven – rett til BPA [Changes in Patients and Users Rights Act – The Right to PA]. Oslo: Helse- og omsorgsdepartementet.
   Google Scholar
• Hugemark, A., and C. Roman. 2012. Kamper i handikaprörelsen [Struggles in the Disability Movement]. Umeå: Borea bokförlag.
   Google Scholar
• Hugemark, A., and K. og Wahlström. 2002. Personlig assistans i olika former – mål, resurser och organisatoriska gränser [Personal Assistance in Various Forms – Goals, Resources and Organisational Boundaries]. Stockholm stad FoU-rapport. Socialtjänstförvaltningen.
   Google Scholar
• Hughes, B. 2005. “What Can a Foucauldian Analysis Contribute to Disability Theory?” In Foucault and the Government of Disability, edited by S. Tremain, 78–92. Ann Arbor: The University of Michigan Press.
   Google Scholar
• Hultqvist, S., and T. Salonen. 2011. “Brukardelaktighet i välfärdsstaten [User Participation in the Welfare State].” In Social mobilisering: En utmaning för socialt arbete [Social Mobilization. A Challenge for Social Work], edited by V. Denvall, C. Heule, and A. Kristiansen, 43–56. Malmö: Gleerups.
   Google Scholar
• Hunter, S., and P. Ritchie, eds. 2007. Co-Production and Personalisation in Social Care. London: Jessica Kingsley.
   Google Scholar
• Institut for samfund and globalisering. 2012. En innovativ offentlig sektor, der skaber kvalitet og fælles ansvar [An Innovative Public Sector, that Creates Quality and Shared Responsibility]. http://www.forvaltningspolitik.dk.
   Google Scholar
• Jensen, B. B., and N. Evans. 2005. Hjælperordningen – en brugerundersøgelse [Personal Assistance – A User Study]. Århus: Videnscenter for Bevægelseshandicap, MarselisborgCentret.
   Google Scholar
• Johansen, V., O. P. Askheim, J. Andersen, and I. Guldvik. 2010. Stabilitet og endring – Utvikling av brukerstyrt personlig assistanse. Forskningsrapport nr. 143/2010 [Stability and Change. Development of Personal Assistance. Research Report no.143/2010]. Lillehammer: Høgskolen i Lillehammer.
   Google Scholar
• Klausen, K. K., and K. Ståhlberg, eds. 1998. New Public Management i Norden [New Public Management in the Nordic Countries]. Odense: Odense Universitetsforlag.
   Google Scholar
• Leece, J., and J. Bornat, eds. 2006. Developments in Direct Payments. Bristol: The Policy Press.
   Google Scholar
• Lewin, B. 1998. Funktionshinder och medborgarskap [Disability and Citizenship]. Uppsala: Socialmedicinsk skriftserie 55.
   Google Scholar
• Liggett, H. 1988. “Stars Are Not Born: An Interpretive Approach to the Politics of Disability.” Disability, Handicap & Society 3 (3): 263–275. doi:10.1080/02674648866780261.
   Google Scholar
• Manthorpe, J., J. Rapaport, D. Challis, S. Jacobs, A. Netten, K. Jones, M. Knapp, M. Wilberforce, and C. Glendinning. 2010. “Individual Budgets and Adult Safeguarding: Parallel or Converging Tracks.” Journal of Social Work 11 (4): 422–438. doi:10.1177/1468017310379452.
   Web of Science ®Google Scholar
• Murray, R., C. Burns, C. Vanstone, and J. Winhall. 2006. Open Health. RED Report 01. Kent: Design Council. http://www.designcouncil.info/RED/.
   Google Scholar
• Needham, C., and S. Carr. 2009. “Co-Production: An Emerging Evidence Base for Adult Social Care Transformation.” SCIE Research Briefing 31. London: Social Care Institute for Excellence.
   Google Scholar
• Netten, A., K. Jones, M. Knapp, J. L. Fernandez, D. Challis, C. Glendinning, S. Jacobs, et al. 2012. “Personalisation through Individual Budgets: Does It Work and for Whom?” British Journal of Social Work 42: 1556–1573.
   Google Scholar
• Newman, J. 2001. Modernising Governance: New Labour, Policy and Society. London: Sage.
   Google Scholar
• NOU 2011. 11 Innovajon i omsorg [Innovation in Care]. Departementenes servicesenter. Informasjonsforvaltning. Norge.
   Google Scholar
• Oliver, M. 1996. Understanding Disability: From Theory to Practice. Hampshire: Macmillan.
   Google Scholar
• Oliver, M., and C. Barnes. 1998. Disabled People and Social Policy. London: Longman.
   Google Scholar
• Oliver, M., and C. Barnes. 2012. The New Politics of Disablement. Tavistock: Palgrave Macmillan.
   Google Scholar
• Ot.prp. nr. 8. 1999–2000. Om lov om endring i lov av 13. desember 1991 nr. 81 om sosiale tjenester mv. (brukerstyrt personlig assistanse) [About the Law amending the Law of December 13.1991. No 81 relating to Social Services etc. (Personal Assistance)]. Oslo: Helse- og omsorgsdepartementet.
   Google Scholar
• Pearson, C. 2000. “Money Talks? Competing Discourses in the Implementation of Direct Payments.” Critical Social Policy 20 (4): 459–477. doi:10.1177/026101830002000403.
   Google Scholar
• Pestoff, V. 2006. “Citizens and Co-Production of Welfare Services.” Public Management Review 8 (4): 503–519. doi:10.1080/14719030601022882.
   Web of Science ®Google Scholar
• Peters, B. G. 2001. The Future of Governing. Lawrence: University Press of Kansas.
   Google Scholar
• Ratzka, A. 1996a. STIL, The Stockholm Cooperative for Independent Living. http://www.independentliving.org/docs3/stileng.html.
   Google Scholar
• Ratzka, A. 1996b. “STIL-modellen – vägen til oberoende [The STIL-Model – The Way to Independence].” Om brukerstyrt personlig assistanse [Personal Assistance] 1: 13–19.
   Google Scholar
• Realpe, A., and L. M. Wallace, 2010. What is Co-Production? London: The Health Foundation Inspiring Improvement.
   Google Scholar
• Regeringen. 2013. Handicappolitisk handlingsplan 2013. Et samfund for alle [Disability Policy Action Plan 2013. A Society for All]. Copenhagen: Social- Børne og Integrationsministeriet. Oktober 2013.
   Google Scholar
• Regeringens udvalg om psykiatri. 2013. En moderne, åben og inkluderende indsats for mennesker med psykiske lidelser [A Modern, Open and Inclusive Service for People with Mental Illness]. Rapport fra Regeringens udvalg om Psykiatri. Copenhagen: Ministeriet for Sundhed og Forebyggelse. Oktober 2013.
   Google Scholar
• Socialstyrelsen. 1999. Välfärd och valfrihe? Slutrapport från utvärderingen av 1995 års psykiatrireform [Welfare and Freedom of Choice? Final Report of the Evaluation of the 1995 Psychiatric Care Reform]. Stockholm: The Swedish National Board of Health and Welfare. Report No.: 1999.1.
   Google Scholar
• Socialstyrelsen and Deloitte 2012. Borgerstyret Personlig Assistance [Personal Assistance. Final Evaluation]. Afsluttende evalueringsrapport. København: Deloitte Consulting.
   Google Scholar
• Solomon, B. B. 1976. Black Empowerment: Social Work in Oppressed Communities. New York: Columbia University Press.
   Google Scholar
• Spandler, H. 2004. “Friend or Foe? Towards a Critical Assessment of Direct Payments.” Critical Social Policy 24 (2): 187–209. doi:10.1177/0261018304041950.
   Web of Science ®Google Scholar
• Statens offentliga utredningar. 2005. På den assistansberättigades uppdrag [On the Assignment of the Entitled to Assistance]. Stockholm: SOU.
   Google Scholar
• Statens offentliga utredningar. 2008. Möjlighet att leva som andra [Possibility to Live Like Other]. Stockholm: SOU.
   Google Scholar
• St. meld. nr. 29. 2012–2013. Morgendagens omsorg [The Care of Tomorrow]. Oslo: Helse- og omsorgsdepartementet.
   Google Scholar
• St. meld. nr. 34. 2012–2013. Folkehelsemeldingne. God helse – felles ansvar [Public Health Announcement. Good Health – Joint Responsibility], Oslo: Helse- og omsorgsdepartementet.
   Google Scholar
• Tremain, S. 2005. “Foucault, Governmentality and Critical Disability Theory.” In Foucault and the Government of Disability, edited by S. Tremain, 1–25. Ann Arbor: The University of Michigan Press.
   Google Scholar
• Wilberforce, M., C. Glendinning, D. Challis, J.-L. Fernandez, S. Jacobs, K. Jones, M. Knapp, et al. 2011. “Implementing Consumer Choice in Long-Term Care: The Impact of Individual Budgets on Social Care Providers in England.” Social Policy & Administration 45 (5): 593–612.
   Web of Science ®Google Scholar
• Yukl, G. 2007. Leadership in Organizations. Upper Saddle River, New Jersey: Pearson Prentice Hall.
   Google Scholar