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Ethics Corner

The Ethics of Life and Death: Advance Directives and End-of-Life Decision Making in Persons with Dementia

Pages 81-96 | Published online: 13 Jan 2012

REFERENCES

  • Agyeman , J. , Bullard , R. D. and Evans , B. 2003 . Just sustainabilities: Development in an unequal world , Cambridge , MA : MIT Press .
  • Amella , E. J. , Lawrence , J. F. and Gresle , S. O. 2005 . Tube feeding: Prolonging life or death in vulnerable populations? . Mortality , 10 ( 1 ) : 69 – 81 .
  • American Medical Association Council on Ethical and Judicial Affairs . 1998 . Optimal use of orders not to intervene and advance directives . Psychology, Public Policy and Law , 4 : 668 – 676 .
  • Appel , J. 2010 . When any answer is a good answer: A mandated-choice model for advance directives . Cambridge Quarterly of Healthcare Ethics , 19 : 417 – 421 .
  • Aristotle . 2000 . Nicomachean ethics , Edited by: Crisp , R. Cambridge , UK : Cambridge University Press . Original work composed 4th Century, BCE
  • Arrigo , B. A. , Bersot , H. Y. and Sellers , B. G. 2011 . The ethics of total confinement: A critique of madness, citizenship, and social justice , New York , NY : Oxford University Press .
  • Bergmann , S. and Sager , T. 2008 . The ethics of mobilities: Rethinking place, exclusion, freedom, and environment , Aldershot , UK : Ashgate .
  • Boylan , M. 2004 . Public health policy and ethics , Dordrecht , , The Netherlands : Kluwer Academic Publishers .
  • Brudney , D. 2009 . Choosing for another: Beyond autonomy and best interests . Hastings Center Report , 39 ( 2 ) : 31 – 37 .
  • Coll , P. 2010 . Legal and ethical issues at the end-of-life: Dementia . The Quinnipiac Probate Law Journal , 23 : 378 – 385 .
  • Cruzan and Director , v. 1990 . Missouri Department of Health , : 497 U.S. 261
  • de Boer , M. E. , Hertogh , C. M. P. M. , Dröes , R.-M. , Jonker , C. and Eefsting , J. A. 2010 . Advance directives in dementia: Issues of validity and effectiveness . International Psychgeriatirics , 22 ( 2 ) : 201 – 208 .
  • Ditto , P. H. and Hawkins , N. A. 2005 . Advance directives and cancer decision making near the end of life . Health Psychology , 24 ( 4 ) : S63 – S70 .
  • Dresser , R. 1995 . Dworkin on dementia: Elegant theory, questionable policy . Hastings Center Report, Nov–Dec , : 32 – 38 .
  • Dresser , R. 2009 . Substituting authenticity for autonomy . Hastings Center Report , 39 ( 2 ) : 3
  • Dworkin , R. 1993 . Life's dominion: An argument about abortion, euthanasia, and individual freedom , New York , NY : Vintage Books .
  • Gevers , S. 2006 . Dementia and the law . European Journal of Health Law , 13 : 209 – 217 .
  • Go , R. S. , Hammes , B. A. , Lee , J. A. and Mathiason , M. A. 2007 . Advance directives among health care professionals at a community-based cancer center . Mayo Clinic Proceedings , 82 : 1487 – 1490 .
  • Godwin , B. and Waters , H. 2009 . ‘In solitary confinement’: Planning end-of-life well-being with people with advanced dementia, their family and professional caregivers . Mortality , 14 ( 3 ) : 265 – 285 .
  • Goodman , K. W. 1998 . Commentary: End-of-life algorithms . Psychology, Public Policy and Law , 4 : 719 – 725 .
  • In re Quinlan , 335 A.2d 647 (N. J. 1976)
  • Kant , I. 2002 . Groundwork for the metaphysics of morals , Edited by: Hill , T. E. Jr. , Zweig , A. and Zweig , A. Oxford , UK : Oxford University Press . Original work published 1785
  • Mahon , M. M. 2011 . An advance directive in two questions . Journal of Pain and Symptom Management , 41 ( 4 ) : 801 – 807 .
  • Mill , J. S. 1957 . Utilitarianism , Edited by: Piest , O. Indianapolis , IN : Bobbs-Merrill Educational Publishing . Original work published 1861
  • Mitchell , S. L. , Berkowitz , R. E. , Lawson , F. M. E. and Lipsitz , L. A. 2000 . A cross-national survey of tube-feeding decisions in cognitively impaired older persons . Journal of the American Geriatrics Society , 48 : 391 – 397 .
  • Parfit , D. 1984 . Reasons and persons , New York , NY : Oxford University Press .
  • 1990 . Patient Self-Determination Act of 1990 , Pub. L. No. 101–508, 4206, 4751 of the Omnibus Reconciliation Act
  • Rich , B. A. 1998 . Personhood, patienthood, and clinical practice: Reassessing advance directives . Psychology, Public Policy and Law , 4 : 610 – 628 .
  • Sachs , G. A. 1994 . Increasing the prevalence of advance care planning . Hastings Center Report , 24 : S13 – S16 .
  • Schickedanz , A. D. , Schillinger , D. , Landefeld , C. S. , Knight , S. J. , Williams , B. A. and Sudore , R. L. 2009 . A clinical framework for improving the advance care planning process: Start with patients' self-identified barriers . Journal of the American Geriatrics Society , 57 ( 1 ) : 37 – 39 .
  • Schindler v. Schiavo . 2001 . (in Re Schiavo), Case No. 2D01–3626 640, COURT OF APPEAL OF FLORIDA, SECOND DISTRICT ,
  • Schulz , R. , O'Brien , A. , Bookwala , J. and Fleissner , K. 1995 . Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes . Gerontologist , 35 ( 6 ) : 771 – 791 .
  • Sharman , S. J. , Garry , M. , Jacobson , J. A. , Loftus , E. F. and Ditto , P. H. 2008 . False memories of end-of-life decisions . Health Psychology , 27 : 291 – 296 .
  • Time/SRBI Survey. (2005, March 22–24). Questions 13 & 15. http://www.srbi.com/TimePoll-Final_Report-2005-03-25.pdf (http://www.srbi.com/TimePoll-Final_Report-2005-03-25.pdf)
  • Torke , A. M. , Moloney , R. , Siegler , M. , Abalos , A. and Alexander , G. C. 2010 . Physicians' views on the importance of patient preferences in surrogate decision-making . Journal of the American Geriatrics Society , 58 : 533 – 538 .
  • Vitaliano , P. P. , Zhang , J. and Scanlan , J. M. 2003 . Is caregiving hazardous to one's physical health? A meta-analysis . Psychology Bulletin , 129 : 946 – 972 .
  • Williams , C. R. and Arrigo , B. A. 2008 . Ethics, crime, and criminal justice , Upper Saddle River , NJ : Pearson Prentice Hall .
  • Wilson , T. D. and Gilbert , D. T. 2003 . “ Affective forecasting ” . In Advances in experimental social psychology , Edited by: Zanna , M. Vol. 35 , 345 – 411 . New York , NY : Elsevier . vol

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