REFERENCES
- Baker, J. N., A. C. Leek, H. S. Salas, et al. 2013. Suggestions from adolescents, young adults, and parents for improving informed consent in phase 1 pediatric oncology trials. Cancer 119(23): 4154–4161. doi: 10.1002/cncr.28335.
- Czoli, C., M. Da Silva, R. Z. Shaul, et al. 2011. Accountability and pediatric physician-researchers: Are theoretical models compatible with Canadian lived experience? Philosophy, Ethics, and Humanities in Medicine 6(1): 15. doi: 10.1186/1747-5341-6-15.
- Henderson, G. E., L. R. Churchill, A. M. Davis, et al. 2007. Clinical trials and medical care: Defining the therapeutic misconception. PLoS Medicine 4(11): e324. doi: 10.1371/journal.pmed.0040324.
- Johnson, L. M., A. C. Leek, D. Drotar, et al. 2015. Practical communication guidance to improve phase 1 informed consent conversations and decision-making in pediatric oncology. Cancer 121(14): 2439–2448. doi: 10.1002/cncr.29354.
- Johnson, L. M., and Y. Unguru. 2015. Recruiting children for clinical trials: Lessons from pediatric oncology. The American Journal of Bioethics 15(11): 24–26. 5161.2015.1088980. doi: 10.1080/15265161.2015.1088980.
- Kelly, S. E., T. D. Spector, L. F. Cherkas, B. Prainsack, and J. M. Harris. 2015. Evaluating the consent preferences of UK research volunteers for genetic and clinical studies. PLoS One 10(3): e0118027. doi: 10.1371/journal.pone.0118027.
- Kim, S. Y., R. De Vries, S. Parnami, et al. 2015. Are therapeutic motivation and having one's own doctor as researcher sources of therapeutic misconception? Journal of Medical Ethics 41(5): 391–397. doi: 10.1136/medethics-2013-101987.
- Lantos, J. 1994. Ethical issues. How can we distinguish clinical research from innovative therapy? The American Journal of Pediatric Hematology/Oncology 16(1): 72–75.
- Loewenstein, G., S. Sah, and D. M. Cain. 2012. The unintended consequences of conflict of interest disclosure. JAMA 307(7): 669–670. doi: 10.1001/jama.2012.154.
- Mandrell, B., A. Ouma, L. Harrison, et al. 2018. Change in genetic knowledge of parents consenting to clinical genomic sequencing for their child with cancer following a two-phase consent. SIOP, Kyoto, Japan, 2018.
- Miller, F. G., D. L. Rosenstein, and E. G. DeRenzo. 1998. Professional integrity in clinical research. JAMA 280(16): 1449–1454.
- Morain, S. R., S. Joffe, and E. A. Largent. 2019. When is it ethical for physician-investigators to seek consent from their own patients? American Journal of Bioethics 19(4): 11–18.
- Smith, M. A., S. F. Altekruse, P. C. Adamson, G. H. Reaman, and N. L. Seibel. 2014. Declining childhood and adolescent cancer mortality. Cancer 120(16): 2497–2506. doi: 10.1002/cncr.28748.