The American Journal of Bioethics, Volume 19, Issue 4 (2019)

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The American Journal of Bioethics, Volume 19, Issue 4 (2019)

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Guest Editorials

Editorial
How Conducting “Usual Care” Research Might Affect Obtaining Consent
Jerry Menikoff
Pages: 1-3
Published online: 17 Apr 2019
First Page PreviewforHow Conducting “Usual Care” Research Might Affect Obtaining Consent | Full Text | References | PDF (61.7 KB) | EPUB
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Editorial
What Is a Clinical Ethicist?
Jonathan D. Moreno
Pages: 4-5
Published online: 17 Apr 2019
CitationforWhat Is a Clinical Ethicist? | Full Text | PDF (50.9 KB) | EPUB
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Editorial
The DNA Test Results That Uncovered a Family Secret
Dani Shapiro
Pages: 6-7
Published online: 17 Apr 2019
CitationforThe DNA Test Results That Uncovered a Family Secret | Full Text | PDF (51.2 KB) | EPUB
  • 1364 Views
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Editorial
Why Insurance Companies Should Pay for Medical Cannabis
David Casarett & Donald I. Abrams
Pages: 8-10
Published online: 17 Apr 2019
First Page PreviewforWhy Insurance Companies Should Pay for Medical Cannabis | Full Text | References | PDF (66.5 KB) | EPUB
  • 3025 Views
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Target Article

Article
When Is It Ethical for Physician-Investigators to Seek Consent From Their Own Patients?
Stephanie R. Morain, Steven Joffe & Emily A. Largent
Pages: 11-18
Published online: 17 Apr 2019
AbstractforWhen Is It Ethical for Physician-Investigators to Seek Consent From Their Own Patients? | Full Text | References | PDF (108.3 KB) | EPUB
  • 1256 Views
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Open Peer Commentaries

Article Commentary
Consent for Research Participation in Practice
Robert M. Califf
Pages: 19-21
Published online: 17 Apr 2019
First Page PreviewforConsent for Research Participation in Practice | Full Text | References | PDF (154.7 KB) | EPUB
  • 188 Views
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Article Commentary
Clinical Research Is a Team Sport
Ross E. McKinney
Pages: 22-23
Published online: 17 Apr 2019
CitationforClinical Research Is a Team Sport | Full Text | References | PDF (218 KB) | EPUB
  • 103 Views
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Article Commentary
The Importance of Listening to Patients and to Evidence Regarding Consent for Research
Neal W. Dickert
Pages: 23-25
Published online: 17 Apr 2019
First Page PreviewforThe Importance of Listening to Patients and to Evidence Regarding Consent for Research | Full Text | References | PDF (173.5 KB) | EPUB
  • 476 Views
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Article Commentary
Justifying Investigator/Clinician Consent When The Physician-Patient Relationship Can Support Better Research Decision-Making
Benjamin S. Wilfond & Kathryn M. Porter
Pages: 26-28
Published online: 17 Apr 2019
First Page PreviewforJustifying Investigator/Clinician Consent When The Physician-Patient Relationship Can Support Better Research Decision-Making | Full Text | References | PDF (123.5 KB) | EPUB
  • 207 Views
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Article Commentary
A Hybrid Approach to Obtaining Research Consent
Christine Grady
Pages: 28-30
Published online: 17 Apr 2019
First Page PreviewforA Hybrid Approach to Obtaining Research Consent | Full Text | References | PDF (123.5 KB) | EPUB
  • 244 Views
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Article Commentary
Mitigating Challenges in Dual-Role Consent: Honoring Patient Preferences to Discuss Research Participation With Someone They Know
Akshay Sharma & Liza-Marie Johnson
Pages: 30-32
Published online: 17 Apr 2019
First Page PreviewforMitigating Challenges in Dual-Role Consent: Honoring Patient Preferences to Discuss Research Participation With Someone They Know | Full Text | References | PDF (127.1 KB) | EPUB
  • 191 Views
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Article Commentary
Voluntary Informed Consent Is Not Risk Dependent
Sara A. S. Dekking, Rieke van der Graaf, C. Michel Zwaan & Johannes J. M. van Delden
Pages: 33-35
Published online: 17 Apr 2019
First Page PreviewforVoluntary Informed Consent Is Not Risk Dependent | Full Text | References | PDF (236.1 KB) | EPUB
  • 241 Views
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Article Commentary
Everything in Moderation: Dual Role Consent and State Law Mandates
Valerie Gutmann Koch & Nadia N. Sawicki
Pages: 35-37
Published online: 17 Apr 2019
First Page PreviewforEverything in Moderation: Dual Role Consent and State Law Mandates | Full Text | References | PDF (390.7 KB) | EPUB
  • 95 Views
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Article Commentary
Place, Virtue Ethics and Physician-Researcher Dual-Role Consent in Clinical Research
Andrew Crowden & Matthew Gildersleeve
Pages: 37-39
Published online: 17 Apr 2019
First Page PreviewforPlace, Virtue Ethics and Physician-Researcher Dual-Role Consent in Clinical Research | Full Text | References | PDF (284.5 KB) | EPUB
  • 355 Views
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Article Commentary
A Neuroethical Analysis of Physicians’ Dual Obligations in Clinical Research
Michael O. S. Afolabi
Pages: 39-42
Published online: 17 Apr 2019
First Page PreviewforA Neuroethical Analysis of Physicians’ Dual Obligations in Clinical Research | Full Text | References | PDF (298.4 KB) | EPUB
  • 95 Views
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Article Commentary
Role Synergy Versus Role Conflict in Dual-Role Consent in Usual Care Trials
Elizabeth A. Kitsis
Pages: 42-43
Published online: 17 Apr 2019
CitationforRole Synergy Versus Role Conflict in Dual-Role Consent in Usual Care Trials | Full Text | References | PDF (121.7 KB) | EPUB
  • 93 Views
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Article Commentary
An Ethical Case for Dual-Role Consent: Increasing Research Diversity as a Matter of Respect and Justice
Stephanie A. Kraft & Nanibaa’ A. Garrison
Pages: 44-46
Published online: 17 Apr 2019
First Page PreviewforAn Ethical Case for Dual-Role Consent: Increasing Research Diversity as a Matter of Respect and Justice | Full Text | References | PDF (389.9 KB) | EPUB
  • 261 Views
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Article Commentary
Dual-Role Research and Consent by Unique Specialists
Michael Da Silva, Randi Zlotnik Shaul, Christy Simpson & Katherine Boydell
Pages: 46-48
Published online: 17 Apr 2019
First Page PreviewforDual-Role Research and Consent by Unique Specialists | Full Text | References | PDF (333.6 KB) | EPUB
  • 178 Views
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Article Commentary
Revising Our Standards on Dual-Role Physicians: Proceed, but Proceed With Caution
Stephen A. Berman & Luciana Garbayo
Pages: 49-50
Published online: 17 Apr 2019
CitationforRevising Our Standards on Dual-Role Physicians: Proceed, but Proceed With Caution | Full Text | References | PDF (121.7 KB) | EPUB
  • 94 Views
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Target Article

Article
Clinical Ethicists Awakened: Addressing Two Generations of Clinical Ethics Issues Involving Undocumented Patients
Mark Kuczewski
Pages: 51-57
Published online: 17 Apr 2019
AbstractforClinical Ethicists Awakened: Addressing Two Generations of Clinical Ethics Issues Involving Undocumented Patients | Full Text | References | PDF (111.2 KB) | EPUB
  • 1360 Views
  • 7 CrossRef citations
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Open Peer Commentaries

Article Commentary
Undocumented Migration and Evolving Health Care Ethical Issues
Nestor Rodriguez
Pages: 58-60
Published online: 17 Apr 2019
First Page PreviewforUndocumented Migration and Evolving Health Care Ethical Issues | Full Text | References | PDF (102.8 KB) | EPUB
  • 748 Views
  • 1 CrossRef citations
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Article Commentary
Caring for the Undocumented: A View From the Safety Net
Marc Tunzi
Pages: 60-62
Published online: 17 Apr 2019
First Page PreviewforCaring for the Undocumented: A View From the Safety Net | Full Text | References | PDF (81.5 KB) | EPUB
  • 416 Views
  • 1 CrossRef citations
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Article Commentary
The United States as an Isolationist in Global Biomedical Ethics and Human Rights
Gregory J. Dober
Pages: 62-64
Published online: 17 Apr 2019
First Page PreviewforThe United States as an Isolationist in Global Biomedical Ethics and Human Rights | Full Text | References | PDF (84.3 KB) | EPUB
  • 297 Views
  • 1 CrossRef citations
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Article Commentary
The New Colossus: Clinical Ethics, Empathy, and Grace
Bryn S. Esplin & Monica Sosa
Pages: 64-66
Published online: 17 Apr 2019
First Page PreviewforThe New Colossus: Clinical Ethics, Empathy, and Grace | Full Text | References | PDF (86 KB) | EPUB
  • 315 Views
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Article Commentary
Moving Beyond Moral Revulsion: A Deeper Analysis of Social Justice Within Clinical Ethics Training
Julie Aultman & Andrew J. Whipkey
Pages: 67-69
Published online: 17 Apr 2019
First Page PreviewforMoving Beyond Moral Revulsion: A Deeper Analysis of Social Justice Within Clinical Ethics Training | Full Text | References | PDF (78.4 KB) | EPUB
  • 293 Views
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Article Commentary
Pediatricians Awakened: Addressing Family Immigration Status as a Critical and Intersectional Social Determinant of Health
Julie M. Linton, Nusheen Ameenuddin & Olanrewaju Falusi
Pages: 69-72
Published online: 17 Apr 2019
First Page PreviewforPediatricians Awakened: Addressing Family Immigration Status as a Critical and Intersectional Social Determinant of Health | Full Text | References | PDF (92.4 KB) | EPUB
  • 669 Views
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Case Report

Case Report
Should Research Participants Be Notified About Results of Currently Unknown but Potential Significance?
Liza-Marie Johnson, Jennifer Zabrowski & Benjamin S. Wilfond
Pages: 73-74
Published online: 17 Apr 2019
CitationforShould Research Participants Be Notified About Results of Currently Unknown but Potential Significance? | Full Text | References | PDF (51.2 KB) | EPUB
  • 122 Views
  • 3 CrossRef citations
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Case Commentaries

Article Commentary
The Need for National Guidance Around Informed Consent About GBCA Safety
Stephen D. Brown
Pages: 75-77
Published online: 17 Apr 2019
First Page PreviewforThe Need for National Guidance Around Informed Consent About GBCA Safety | Full Text | References | PDF (81.5 KB) | EPUB
  • 92 Views
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Article Commentary
Returning Individual Research Results Regarding Gadolinium Deposition in the Brain Is the Preferable Choice
Caroline J. Huang, W. Patricia Bandettini & Marion Danis
Pages: 77-78
Published online: 17 Apr 2019
CitationforReturning Individual Research Results Regarding Gadolinium Deposition in the Brain Is the Preferable Choice | Full Text | References | PDF (51.9 KB) | EPUB
  • 81 Views
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Article Commentary
Research Participants Should Have the Option to Be Notified of Results of Unknown but Potential Significance
Nora Hutchinson, Alexander Capron & Adélaïde Doussau
Pages: 78-80
Published online: 17 Apr 2019
First Page PreviewforResearch Participants Should Have the Option to Be Notified of Results of Unknown but Potential Significance | Full Text | References | PDF (60.3 KB) | EPUB
  • 107 Views
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Case Report

Case Report
The Limitations of “Boilerplate” Language in Informed Consent: Single IRB Review of Multisite Genetic Research in Military Personnel
Benjamin S. Wilfond, Jennifer Zabrowski & Liza M. Johnson
Pages: 81-82
Published online: 17 Apr 2019
CitationforThe Limitations of “Boilerplate” Language in Informed Consent: Single IRB Review of Multisite Genetic Research in Military Personnel | Full Text | PDF (49.4 KB) | EPUB
  • 172 Views
  • 4 CrossRef citations
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Case Commentaries

Article Commentary
The Bane of “Boilerplate” Language in Research Consent Forms: Ensuring Consent Forms Promote Autonomous Authorization
Jeffrey R. Botkin
Pages: 83-84
Published online: 17 Apr 2019
CitationforThe Bane of “Boilerplate” Language in Research Consent Forms: Ensuring Consent Forms Promote Autonomous Authorization | Full Text | References | PDF (72.5 KB) | EPUB
  • 120 Views
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Article Commentary
Single IRBs Are Responsible to Ensure Consent Language Effectively Conveys the Local Context
Sara Chandros Hull & Adam I. Schiffenbauer
Pages: 85-86
Published online: 17 Apr 2019
CitationforSingle IRBs Are Responsible to Ensure Consent Language Effectively Conveys the Local Context | Full Text | References | PDF (47.3 KB) | EPUB
  • 82 Views
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Article Commentary
Solving the Single IRB/Boilerplate Bind: Establishing Institutional Guidelines
Melissa E. Abraham, Elizabeth Hohmann & Megan Morash
Pages: 87-88
Published online: 17 Apr 2019
CitationforSolving the Single IRB/Boilerplate Bind: Establishing Institutional Guidelines | Full Text | References | PDF (48.8 KB) | EPUB
  • 104 Views
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Correspondence

Broadening the Conversation About Intersectionality in Clinical Medicine
Yolonda Wilson, Amina White, Akilah Jefferson & Marion Danis
Pages: W1-W5
Published online: 17 Apr 2019
First Page PreviewforBroadening the Conversation About Intersectionality in Clinical Medicine | Full Text | References | PDF (392.4 KB) | EPUB
  • 564 Views
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The Equivalence Thesis: Why Timers Do Not Successfully Resuscitate the Acts/Omissions and Withdrawal/Withholding Debate
Dominic Wilkinson, Ella Butcherine & Julian Savulescu
Pages: W6-W9
Published online: 17 Apr 2019
First Page PreviewforThe Equivalence Thesis: Why Timers Do Not Successfully Resuscitate the Acts/Omissions and Withdrawal/Withholding Debate | Full Text | References | PDF (64.7 KB) | EPUB
  • 207 Views
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Don’t We Need Something More in These Extraordinary Times? Response to the Commentaries
Mark Kuczewski
Pages: W10-W12
Published online: 17 Apr 2019
First Page PreviewforDon’t We Need Something More in These Extraordinary Times? Response to the Commentaries | Full Text | References | PDF (63.6 KB) | EPUB
  • 98 Views
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