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The American Journal of Bioethics Volume 19, 2019 - Issue 5
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Open Peer Commentaries

Being Polite: Why Biobank Consent Comprehension Is Neither a Requirement nor an Aspiration

Berge SolbergThe Norwegian University of Science and Technology Correspondence[email protected]
&
Lars UrsinThe Norwegian University of Science and Technology ORCID Iconhttp://orcid.org/0000-0001-5892-2823
ORCID Icon
Pages 31-33 | Published online: 08 May 2019

References

  • Allen, J., and B. Mcnamara. 2011. Reconsidering the value of consent in biobank research. Bioethics 25(3): 155–166. doi: 10.1111/j.1467-8519.2009.01749.x.
  • Beskow, L. M., and K. P. Weinfurt. 2019. Exploring understanding of ‘understanding’: The paradigm case of biobank consent comprehension. American Journal of Bioethics 19(5): 6–18.
  • Clayton, E. 2005. Informed consent and biobanks. The Journal of Law, Medicine & Ethics 33(1): 15–21. doi: 10.1111/j.1748-720X.2005.tb00206.x.
  • McGuire, A., and L. Beskow. 2010. Informed consent in genomics and genetic research. Annual Review of Genomics and Human Genetics 11: 361–381. doi: 10.1146/annurev-genom-082509-141711.
  • Steinsbekk, K., B. K. Myskja, and B. Solberg. 2013. Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem? European Journal of Human Genetics 21(9): 897–902.
  • Ursin, L., K. Hoeyer, and J. A. Skolbekken. 2008. The informed consenters: Governing Biobanks in Scandinavia. In Biobanks: Governance in comparative perspective, eds. H. Gottweis and A. Petersen. Abingdon, Oxon; New York, NY: Routledge, 177–193.
  • Ursin, L., and B. Solberg. 2008. When is normative recruitment legitimate? Etikk i Praksis - Nordic Journal of Applied Ethics 2(2): 93–113. doi: 10.5324/eip.v2i2.1697.

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