REFERENCES

  • Beskow, L. M., and K. P. Weinfurt. 2019. Exploring understanding of “understanding”: The paradigm case of biobank consent comprehension. American Journal of Bioethics 19(5): 6–18.
  • Crawford, K., K. Miltner, and M. L. Gray. 2014. Critiquing big data: Politics, ethics, epistemology. International Journal of Communication 8: 1663–1672.
  • Demir, I., and M. J. Murtagh. 2013. Data sharing across biobanks: Epistemic values, data mutability and data incommensurability. New Genetics and Society 32(4): 350–365. doi: 10.1080/14636778.2013.846582.
  • Dive, L., P. H. Mason, E. Light, I. Kerridge, and W. Lipworth. 2017. Globalisation and the ethics of transnational biobank networks. Asian Bioethics Review 9(4): 201–310.
  • Goldenberg, A., and K. Brothers. 2018. Misplaced trust: Building research relationships in the age of biorepository networks. The American Journal of Bioethics 18(4): 21–23. doi: 10.1080/15265161.2018.1431330.
  • Lipworth, W., and I. Kerridge. 2015. Consent to biobank research: Facing up to the challenge of globalization. The American Journal of Bioethics : AJOB 15(9): 58–59. doi: 10.1080/15265161.2015.1062179.
  • Lipworth, W., P. H. Mason, I. Kerridge, and J. P. A. Ioannidis. 2017. Ethics and epistemology in big data research. Journal of Bioethical Inquiry 14(4): 489–500. doi: 10.1007/s11673-017-9771-3.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.