REFERENCES
- Angrist, M. 2009. Eyes wide open: The personal genome project, citizen science and veracity in informed consent. Personalized Medicine 6(6): 691–699.
- Beskow, L. M., C. B. Dombeck, C. P. Thompson, J. K. Watson-Ormond, and K. P. Weinfurt. 2015. Informed consent for biobanking: Consensus-based guidelines for adequate comprehension. Genetics in Medicine 17(3): 226–233. doi: 10.1038/gim.2014.102.
- Beskow, L. M., and K. P. Weinfurt. 2019. Exploring understanding of ‘understanding’: The paradigm case of biobank consent comprehension. American Journal of Bioethics 19(5): 6–18.
- Clayton, E. W. 2006. The web of relations: Thinking about physicians and patients. Yale Journal of Health Policy, Law, and Ethics 6(2): 465–477.
- Clayton, E. W., and B. A. Malin. 2017. Assessing risks to privacy in biospecimen research. In Specimen science: Ethical and policy implications, ed. B. A. Bierer, H. F. Lynch, I. Glenn Cohen, and S. M. Rivera, 143–157. Boston, MA: MIT Press.
- Faden, R. R., T. L. Beauchamp, and N. E. Kass. 2011. Learning health care systems and justice. The Hastings Center Report 41(4): 3.
- Katz, J. 2002. The silent world of doctor and patient. Baltimore, MD: JHU Press.