281
Views
2
CrossRef citations to date
0
Altmetric
OPEN PEER COMMENTARIES

Patient Representation: Mind the Gap Between Individual and Collective Claims

ORCID Icon &

REFERENCES

  • Fricker, M. 2007. Epistemic injustice: Power & the ethics of knowing. New York, NY: Oxford University Press.
  • Jongsma, K. R., N. Rimon-Zarfaty, A. Raz, and S. Schicktanz. 2018. One for all, all for one? Collective representation in health policy. Journal of Bioethical Inquiry 15 (3):337–340. doi: 10.1007/s11673-018-9870-9.
  • Jongsma, K., E. Spaeth, and S. Schicktanz. 2017. Epistemic injustice in dementia and autism patient organizations – An empirical analysis. The American Journal of Bioethics: Empirical Bioethics 8 (4):221–233. doi: 10.1080/23294515.2017.1402833.
  • McCoy, M., E. Y. Liu, A. S. F. Lutz, and D. Sisti. 2020. Ethical advocacy across the autism spectrum: Beyond partial representation. The American Journal of Bioethics 20(4):13–24.
  • Orsini, M., and M. Smith. 2010. Social movements, knowledge and public policy: The case of autism activism in Canada and the US. Critical Policy Studies 4 (1):38–57. doi: 10.1080/19460171003714989.
  • Raz, A., K. R. Jongsma, N. Rimon-Zarfaty, E. Späth, B. Bar-Nadav, E. Vaintropov, and S. Schicktanz. 2018. Representing autism: Challenges of collective representation in German and Israeli associations for and of autistic people. Social Science & Medicine (1982) 200:65–72. doi: 10.1016/j.socscimed.2018.01.024.
  • Schicktanz, S. 2015. The ethical legitimacy of patients’ organizations involvement in politics and knowledge production: Epistemic justice as basis. In The public shaping of medical research, ed. P. Wehling, W. Viehöver, and S. Koenen, 246–264. London, UK: Routledge.
  • Waltz, M., K. Van den Bosch, H. Ebben, L. Van Hal, and A. Schippers. 2015. Autism self-advocacy in the Netherlands: Past, present and future. Disability & Society 30 (8):1174–1191. doi: 10.1080/09687599.2015.1090954.
  • Williams, M. S. 1998. Voice trust and memory. Princeton, NJ: Princeton University Press.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.