Three Kinds of Decision-Making Capacity for Refusing Medical Interventions

REFERENCES

• AAP Committee on Bioethics. 2016. Informed Consent in Decision-Making in Pediatric Practice. Pediatrics 138 (2):e20161484. doi: 10.1542/peds.2016-1484.
   PubMed Web of Science ®Google Scholar
• Appelbaum, P. S. 2007. Clinical practice. Assessment of patients’ competence to consent to treatment. The New England Journal of Medicine 357 (18):1834–40. doi: 10.1056/NEJMcp074045.
   PubMed Web of Science ®Google Scholar
• Bentham, J. 1996. The Collected Works of Jeremy Bentham: An Introduction to the Principles of Morals and Legislation. Oxford, UK: Clarendon Press.
   Google Scholar
• Berlinger, N., B. Jennings, and S. M. Wolf. 2013. The Hastings Center Guidelines for Decisions on Life-Sustaining Treatment and Care near the End of Life: Revised and Expanded Second Edition. New York: Oxford University Press.
   Google Scholar
• Bruce, C. R., G. E. Hardart, L. Wocial, S. Finder, B. Huberman, J. Jankowski, A. L. Katz, et al. 2017. Addressing Patient-Centered Ethical Issues in Health Care: A Case-Based Study Guide. Chicago, IL: American Society for Bioethics and Humanities.
   Google Scholar
• Buchanan, A. E., and D. W. Brock. 1989. Deciding for Others: The Ethics of Surrogate Decision Making. Cambridge, UK: Cambridge University Press.
   Google Scholar
• Davis, D. S. 2018. Advance directives and Alzheimer’s disease. The Journal of Law, Medicine & Ethics 46 (3): 744–48.
   Google Scholar
• Drane, J. F. 1985. The many faces of competency. The Hastings Center Report 15 (2):17–21. doi:10.2307/3560639.
   PubMed Web of Science ®Google Scholar
• Dresser, R. 1995. Dworkin on dementia: elegant theory, questionable policy. Hastings Center Report 25 (6): 32–38.
   Google Scholar
• Feinberg, J. 1980. The child’s right to an open future. In Whose Child? Children’s Rights, Parental Authority and State Power, ed. William Aiken and Hugh La Follette, 124–153. Totowa, NJ: Rowman and Littlefield.
   Google Scholar
• Grisso, T., and P. S. Appelbaum. 1998. Assessing Competence to Consent to Treatment: A Guide for Physicians and Other Health Professionals. New York: Oxford University Press.
   Google Scholar
• Hein, I. M., M. C. De Vries, P. W. Troost, G. Meynen, J. B. Van Goudoever, and R. J. L. Lindauer. 2015. Informed consent instead of assent is appropriate in children from the age of twelve: Policy Implications of New Findings on children’s competence to consent to clinical research. BMC Medical Ethics 16 (1):76. doi:10.1186/s12910-015-0067-z.
   PubMed Web of Science ®Google Scholar
• Hope, T., J. Tan, A. Stewart, and R. Fitzpatrick. 2011. Anorexia nervosa and the language of authenticity. Hastings Center Report 41 (6): 19–29.
   Google Scholar
• Joosten, E. A., L. DeFuentes-Merillas, G. H. De Weert, T. Sensky, C. P. F. Van Der Staak, and C. A. de Jong. 2008. Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status. Psychotherapy and Psychosomatics 77 (4):219–26. doi:10.1159/000126073.
   PubMed Web of Science ®Google Scholar
• Koppelman, E. R. 2002. Dementia and dignity: Towards a new method of surrogate decision making. The Journal of Medicine and Philosophy 27 (1):65–85. doi:10.1076/jmep.27.1.65.2971.
   PubMed Web of Science ®Google Scholar
• Lo, B. 2015. Resolving Ethical Dilemmas: A Guide for Clinicians. 5th ed. Philadelphia, PA: Wolters Kluwer.
   Google Scholar
• Navin, M. C., J. A. Wasserman, D. Stahl, and T. Tomlinson. 2021. The capacity to designate a surrogate is distinct from decisional capacity: Normative and empirical considerations. Journal of Medical Ethics. Published Online First: 19 February 2021. doi:10.1136/medethics-2020-107078.
   PubMed Web of Science ®Google Scholar
• Navin, M. C., and J. A. Wasserman. 2019. Capacity for preferences and pediatric assent implications for pediatric practice. The Hastings Center Report 49 (1):43–51. doi:10.1002/hast.980.
   PubMed Web of Science ®Google Scholar
• Navin, M. C., J. A. Wasserman, and M. H. Haimann. 2019. Treatment over objection-moral reasons for reluctance. Mayo Clinic Proceedings 94 (10):1936–8. doi:10.1016/j.mayocp.2019.08.011.
   PubMed Web of Science ®Google Scholar
• Parfit, D. 1984. Reasons and Persons. Oxford: Oxford University Press.
   Google Scholar
• Partridge, B. 2014. Adolescent pediatric decision-making: A critical reconsideration in the light of the data. HEC Forum : An Interdisciplinary Journal on Hospitals’ Ethical and Legal Issues 26 (4):299–308. doi:10.1007/s10730-014-9250-8.
   PubMedGoogle Scholar
• Peterson, A., J. Karlawish, and E. Largent. 2020. Supported decision making with people at the margins of autonomy. The American Journal of Bioethics. doi:10.1080/15265161.2020.1863507.
   PubMed Web of Science ®Google Scholar
• Pope, T. M. 2013. Making medical decisions for patients without surrogates. The New England Journal of Medicine 369 (21):1976–8. doi:10.1056/NEJMp1308197.
   PubMed Web of Science ®Google Scholar
• Rawls, J. 1999. A Theory of Justice. Rev. ed. Cambridge, MA: Belknap Press of Harvard University Press.
   Google Scholar
• Rubin, J., and K. M. Prager. 2018. Guide to considering nonpsychiatric medical intervention over objection for the patient without decisional capacity. Mayo Clinic Proceedings 93 (7):826–9. doi:10.1016/j.mayocp.2018.04.005.
   PubMed Web of Science ®Google Scholar
• Salter, E. K. 2017. Conflating capacity & authority: Why we’re asking the wrong question in the adolescent decision-making debate. The Hastings Center Report 47 (1):32–41. doi:10.1002/hast.666.
   PubMed Web of Science ®Google Scholar
• Shay, L. A., and J. E. Lafata. 2015. Where is the evidence? A systematic review of shared decision making and patient outcomes. Medical Decision Making: An International Journal of the Society for Medical Decision Making 35 (1):114–31. doi:10.1177/0272989X14551638.
   PubMed Web of Science ®Google Scholar
• Wasserman, J. A., and M. C. Navin. 2018. Capacity for preferences: Respecting patients with compromised decision-making. The Hastings Center Report 48 (3):31–9. doi:10.1002/hast.853.
   PubMed Web of Science ®Google Scholar
• Wasserman, J. A., M. C. Navin, and C. J. Vercler. 2019. Pediatric assent and treating children over objection. Pediatrics 144 (5):e20190382. doi:10.1542/peds.2019-0382.
   PubMed Web of Science ®Google Scholar