REFERENCES
- Department of Health and Human Services (HHS) of the United States of America. 2021. Know the rights that protect individuals with disabilities from discrimination. Accessed August 3, 2021. https://www.hhs.gov/sites/default/files/knowyourrights504adafactsheet.pdf
- Department of Health and Human Services (HHS). 2018. Code of Federal Regulations. 45 Part 46. Protection of Human Subjects. Accessed August 25, 2021. https://www.hhs.gov/ohrp/regulations-and-policy/regulations/45-cfr-46/revised-common-rule-regulatory-text/index.html#46.116
- Feldman, M. A., J. Bosett, C. Collet, and P. Burnham‐Riosa. 2014. Where are persons with intellectual disabilities in medical research? A survey of published clinical trials. Journal of Intellectual Disability Research 58 (9):800–9. doi: https://doi.org/10.1111/jir.12091.
- McDonald, K. E., N. E. Conroy, and R. S. Olick. 2016. Is it worth it? Benefits in research with adults with intellectual disability. Intellectual and Developmental Disabilities 54 (6):440–53. doi: https://doi.org/10.1352/1934-9556-54.6.440.
- McDonald, K. E., and C. A. Kidney. 2012. What is right? Ethics in intellectual disabilities research. Journal of Policy and Practice in Intellectual Disabilities 9 (1):27–39. doi: https://doi.org/10.1111/j.1741-1130.2011.00319.x.
- Peterson, A., J. Karlawish, and E. Largent, 2021. Supported decision making with people at the margins of autonomy. The American Journal of Bioethics 21 (11):4–18. doi:https://doi.org/10.1080/15265161.2020.1863507.
- Spatz, E. S., H. M. Krumholz, and B. W. Moulton. 2017. Prime time for shared decision making. Jama 317 (13):1309–10. doi: https://doi.org/10.1001/jama.2017.0616.
- Spaul, S. W., R. Hudson, C. Harvey, H. Macdonald, and J. Perez. 2020. Exclusion criterion: Learning disability. The Lancet 395 (10223):e29. doi: https://doi.org/10.1016/S0140-6736(20)30051-9.
- Van Spall, H. G., A. Toren, A. Kiss, and R. A. Fowler. 2007. Eligibility criteria of randomized controlled trials published in high-impact general medical journals: A systematic sampling review. JAMA 297 (11):1233–40. doi: https://doi.org/10.1001/jama.297.11.1233.