Young adult cancer survivors’ experiences with a mindful self-compassion (MSC) video-chat intervention: A qualitative analysis

References

• Allen, A. B., & Leary, M. R. (2010). Self-Compassion, Stress, and Coping. Social and Personality Psychology Compass, 2(2), 107–118.10.1111/spco.2010.4.issue-2
   Google Scholar
• Barnett, M., McDonnell, G., DeRosa, A., Schuler, T., Philip, E., Peterson, L., … Mcdonnell, K. (2016). Psychosocial outcomes and interventions among cancer survivors diagnosed during adolescence and young adulthood (AYA): A systematic review. Journal of Cancer Survivorship, 10, 814–831. doi:10.1007/s11764-016-0527-6
   PubMed Web of Science ®Google Scholar
• Bluth, K., & Eisenlohr-Moul, T. A. (2017). Response to a mindful self-compassion intervention in teens: A within-person association of mindfulness, self-compassion, and emotional well-being outcomes. Journal of Adolescence, 57, 108–118. doi:10.1016/j.adolescence.2017.04.001
   PubMed Web of Science ®Google Scholar
• Bluth, K., Gaylord, S. A., Campo, R. A., Mullarkey, M. C., & Hobbs, L. (2016). Making friends with yourself: A mixed methods pilot study of a mindful self-compassion program for adolescents. Mindfulness, 7(2), 479–492.10.1007/s12671-015-0476-6
   PubMed Web of Science ®Google Scholar
• Boyle, C. C., Stanton, A. L., Ganz, P. A., Crespi, C. M., & Bower, J. E. (2017). Improvements in emotion regulation following mindfulness meditation: Effects on depressive symptoms and perceived stress in younger breast cancer survivors. Journal of Consulting and Clinical Psychology, 85(4), 397–402. doi:10.1037/ccp0000186
   PubMed Web of Science ®Google Scholar
• Braun, T. D., Park, C. L., & Gorin, A. (2016). Self-compassion, body image, and disordered eating: A review of the literature. Body Image, 17, 117–131. doi:10.1016/j.bodyim.2016.03.003
   PubMed Web of Science ®Google Scholar
• Brion, J. M., Leary, M. R., & Drabkin, A. S. (2014). Self-compassion and reactions to serious illness: The case of HIV. Journal of Health Psychology, 19(2), 218–229. doi:10.1177/1359105312467391
   PubMed Web of Science ®Google Scholar
• Campo, R. A., Bluth, K., Santacroce, S. J., Knapik, S., Tan, J., Gold, S., … Asher, G. N. (2017). A mindful self-compassion videoconference intervention for nationally recruited posttreatment young adult cancer survivors : Feasibility, acceptability, and psychosocial outcomes. Supportive Care in Cancer, 25(6), 1759–1768. doi:10.1007/s00520-017-3586-y
   PubMed Web of Science ®Google Scholar
• Desrosiers, A., Vine, V., Klemanski, D., & Nolen-Hoesksema, S. (2013). Mindfulness and emotion regulation in depression and anxiety: Common and distinct mechanisms of action. Depression and Anxiety, 30(7), 654–661. doi:10.1007/s11103-011-9767-z.Plastid
   PubMed Web of Science ®Google Scholar
• DiNapoli, P. P., & Murphy, D. (2002). The marginalization of chronically ill adolescents. Nursing Clinics of North America, 37(3), 565–572. doi:10.1016/S0029-6465(02)00012-9
   PubMed Web of Science ®Google Scholar
• Dowd, A. J., & Jung, M. E. (2017). Self-compassion directly and indirectly predicts dietary adherence and quality of life among adults with celiac disease. Appetite, 113, 293–300. doi:10.1016/j.appet.2017.02.023
   PubMed Web of Science ®Google Scholar
• Dunne, S., Sheffield, D., & Chilcot, J. (2016). Brief report: Self-compassion, physical health and the mediating role of health-promoting behaviours. Journal of Health Psychology, 1–7. doi:10.1177/1359105316643377
   Web of Science ®Google Scholar
• Evan, E. E., Kaufman, M., Cook, A. B., & Zeltzer, L. K. (2006). Sexual health and self-esteem in adolescents and young adults with cancer. Cancer, 107(7 SUPPL.), 1672–1679. doi:10.1002/cncr.22101
   PubMed Web of Science ®Google Scholar
• Eyles, C., Leydon, G. M., Hoffman, C. J., Copson, E. R., Prescott, P., Chorozoglou, M., & Lewith, G. (2015). Mindfulness for the self-management of fatigue, anxiety, and depression in women with metastatic breast cancer: A mixed methods feasibility study. Integrative Cancer Therapies, 14(1), 42–56. doi:10.1177/1534735414546567
   PubMed Web of Science ®Google Scholar
• Ferrari, M., Dal Cin, M., & Steele, M. (2017). Self-compassion is associated with optimum self-care behaviour, medical outcomes and psychological well-being in a cross-sectional sample of adults with diabetes. Diabetic Medicine, 34(11), 1546–1553. doi:10.1111/dme.13451
   PubMed Web of Science ®Google Scholar
• Friis, A. M., Johnson, M. H., Cutfield, R. G., & Consedine, N. S. (2016). Kindness matters: A randomized controlled trial of a mindful self-compassion intervention improves depression, distress, and HbA1c among patients with diabetes. Diabetes Care, 39(11), 1963–1971. doi:10.2337/dc16-0416
   PubMed Web of Science ®Google Scholar
• Geue, K., Schmidt, R., Sender, A., Sauter, S., & Friedrich, M. (2015). Sexuality and romantic relationships in young adult cancer survivors: Satisfaction and supportive care needs. Psycho-Oncology, 24(11), 1368–1376. doi:10.1002/pon.3805
   PubMed Web of Science ®Google Scholar
• Gorman, J. R., Su, H. I., Roberts, S. C., Dominick, S. A., & Malcarne, V. L. (2015). Experiencing reproductive concerns as a female cancer survivor is associated with depression. Cancer, 121(6), 935–942. doi:10.1002/cncr.29133
   PubMed Web of Science ®Google Scholar
• Iannarino, N. T., Scott, A. M., & Shaunfield, S. L. (2017). Normative social support in young adult cancer survivors. Qualitative Health Research, 27(2), 271–284. doi:10.1177/1049732315627645
   PubMed Web of Science ®Google Scholar
• Keegan, T. H. M., Lichtensztajn, D. Y., Kato, I., Kent, E. E., Wu, X.-C., West, M. M., … Bellizzi, K. M. (2012). Unmet adolescent and young adult cancer survivors information and service needs: A population-based cancer registry study. Journal of Cancer Survivorship, 6(3), 239–250. doi:10.1007/s11764-012-0219-9
   PubMed Web of Science ®Google Scholar
• Kent, E. E., Parry, C., Montoya, M., Sender, L., Morris, R., & Anton-Culver, H. (2012). “You’re too young for this”: adolescent and young adults’ perspectives on cancer suriviorship. Journal of Psychosocial Oncology, 30(2), 260–279. doi:10.1080/07347332.2011.644396
   PubMed Web of Science ®Google Scholar
• Kuyken, W., Nuthall, E., Byford, S., Crane, C., Dalgleish, T., Ford, T., … Williams, J. M. G. (2017). The effectiveness and cost-effectiveness of a mindfulness training programme in schools compared with normal school provision (MYRIAD): Study protocol for a randomised controlled trial. Trials, 18(1), 194. doi:10.1186/s13063-017-1917-4
   PubMedGoogle Scholar
• Kvillemo, P., & Bränström, R. (2011). Experiences of a mindfulness-based stress-reduction intervention among patients with cancer. Cancer Nursing, 34(1), 24–31. doi:10.1097/NCC.0b013e3181e2d0df
   PubMed Web of Science ®Google Scholar
• Kwak, M., Zebrack, B., Meeske, K., Embry, L., Aguilar, C., Block, R., … Butler, B. (2013). Prevalence and predictors of post-traumatic stress symptoms in adolescent and young adult cancer survivors: A 1-year follow-up study. Psycho-Oncology, 22(8), 1798–1806. doi:10.1002/pon.3217
   PubMed Web of Science ®Google Scholar
• L’Estrange, K., Timulak, L., Kinsella, L., & D’Alton, P. (2016). Experiences of changes in self-compassion following mindfulness-based intervention with a cancer population. Mindfulness, 7(3), 734–744. doi:10.1007/s12671-016-0513-0
   Web of Science ®Google Scholar
• Lehmann, V., Grönqvist, H., Engvall, G., Ander, M., Tuinman, M. A., Hagedoorn, M., … Von Essen, R. (2014). Negative and positive consequences of adolescent cancer 10 years after diagnosis: An interview-Based longitudinal study in sweden. Psycho-Oncology, 23(11), 1229–1235. doi:10.1002/pon.3549
   PubMed Web of Science ®Google Scholar
• Lu, D., Fall, K., Sparén, P., Ye, W., Adami, H. O., Valdimarsdóttir, U., & Fang, F. (2013). Suicide and suicide attempt after a cancer diagnosis among young individuals. Annals of Oncology, 24(12), 3112–3117. doi:10.1093/annonc/mdt415
   PubMed Web of Science ®Google Scholar
• Mattsson, E., Ringnér, A., Ljungman, G., & von Essen, L. (2007). Positive and negative consequences with regard to cancer during adolescence. Experiences two years after diagnosis. Psychooncology, 16(11), 1003–1009.
   Google Scholar
• Nass, S., Beaupin, L., Denmark-Wahnefried, W., Fasciano, K., Ganz, P., Hayes-Lattin, B., … Smith, A. (2015). Identifying and addressing the needs of adolescents and young adults with cancer : Summary of an institute of medicine workshop. The Oncologist, 20, 186–195.10.1634/theoncologist.2014-0265
   PubMed Web of Science ®Google Scholar
• Neff, K. (2003). Self-compassion: An alternative conceptualization of a healthy attitude toward oneself. Self and Identity, 2, 85–101.
   Web of Science ®Google Scholar
• Neff, K. D., & Germer, C. K. (2013). A pilot study and randomized controlled trial of the mindful self-compassion program. Journal of Clinical Psychology, 69(1), 28–44.10.1002/jclp.21923
   PubMed Web of Science ®Google Scholar
• Nery-Hurwit, M., Yun, J., & Ebbeck, V. (2017). Examining the roles of self-compassion and resilience on health-related quality of life for individuals with Multiple Sclerosis. Disability and Health Journal. doi:10.1016/j.dhjo.2017.10.010
   PubMed Web of Science ®Google Scholar
• Parsons, H. M., Harlan, L. C., Lynch, C. F., Hamilton, A. S., Wu, X. C., Kato, I., … Keegan, T. H. M. (2012). Impact of cancer on work and education among adolescent and young adult cancer survivors. Journal of Clinical Oncology, 30(19), 2393–2400. doi:10.1200/JCO.2011.39.6333
   PubMed Web of Science ®Google Scholar
• Pauley, G., & McPherson, S. (2010). The experience and meaning of compassion and self-compassion for individuals with depression or anxiety. Psychology and Psychotherapy: Theory, Research and Practice, 83(2), 129–143. doi:10.1348/147608309X471000
   PubMed Web of Science ®Google Scholar
• Pinquart, M. (2013). Body image of children and adolescents with chronic illness: A meta-analytic comparison with healthy peers. Body Image, 10(2), 141–148. doi:10.1016/j.bodyim.2012.10.008
   PubMed Web of Science ®Google Scholar
• Pinto-Gouveia, J., Duarte, C., Matos, M., & Fraguas, S. (2014). The protective role of self-compassion in relation to psychopathology symptoms and quality of life in chronic and in cancer patients. Clinical Psychology and Psychotherapy, 21, 311–323. doi:10.1002/cpp.1838
   PubMed Web of Science ®Google Scholar
• Przezdziecki, A., Sherman, K. A., Baillie, A., Taylor, A., Foley, E., & Stalgis-Bilinski, K. (2012). My changed body : Breast cancer, body image, distress and self-compassion. Psycho-Oncology, 22(8), 1872–1879.
   PubMed Web of Science ®Google Scholar
• Rosedale, M. (2009). Survivor Loneliness of women following breast cancer. Oncology Nursing Forum, 36, 175–183. doi:10.1188/09.ONF.175-183
   PubMed Web of Science ®Google Scholar
• Rouleau, C., Garland, S. N., & Carlson, L. E. (2015). The impact of mindfulness-based interventions on symptom burden, positive psychological outcomes, and biomarkers in cancer patients. Cancer Management and Research, 7, 121–131.
   PubMed Web of Science ®Google Scholar
• Sandelowski, M. (2010). What’s in a name? Qualitative description revisited. Research in Nursing and Health, 33(1), 77–84. doi:10.1002/nur.20362
   PubMed Web of Science ®Google Scholar
• Sandelowski, M. (2000). Focus on research methods whatever happened to qualitative description? Research in Nursing & Health, 23, 334–340. doi:10.1002/1098-240x(200008)23:4<334::aid-nur9>3.0.co;2-g
   PubMed Web of Science ®Google Scholar
• Sansom-Daly, U. M., Peate, M., Wakefield, C. E., Bryant, R. A., & Cohn, R. J. (2012). A systematic review of psychological interventions for adolescents and young adults living with chronic illness. Health Psychology, 31(3), 380–393. doi:10.1037/a0025977
   PubMed Web of Science ®Google Scholar
• Shenton, A. K. (2004). Strategies for ensuring trustworthiness in qualitative research projects. Education for Information, 22(2), 63–75. doi:10.1111/j.1744-618X.2000.tb00391.x
   Google Scholar
• Sherman, K. A., Woon, S., French, J., & Elder, E. (2017). Body image and psychological distress in nipple-sparing mastectomy: The roles of self-compassion and appearance investment. Psycho-Oncology, 26(3), 337–345. doi:10.1002/pon.4138
   PubMed Web of Science ®Google Scholar
• Simpson, R., Byrne, S., Wood, K., Mair, F. S., & Mercer, S. W. (2017). Optimising mindfulness-based stress reduction for people with multiple sclerosis. Chronic Illness, 174239531771550. doi:10.1177/1742395317715504
   Web of Science ®Google Scholar
• Sirois, F. M., Kitner, R., & Hirsch, J. K. (2015). Self-compassion, affect, and health-promoting behaviors. Health Psychology, 34(6), 661–669. doi:10.1037/hea0000158
   PubMed Web of Science ®Google Scholar
• Smith, A. W., Bellizzi, K. M., Keegan, T. H. M., Zebrack, B., Chen, V. W., Neale, A. V., … Lynch, C. F. (2013). Health-related quality of life of adolescent and young adult patients with cancer in the United States : The adolescent and young adult health outcomes and patient experience study. Journal of Clinical Oncology, 31(17), 2136–2145. doi:10.1200/JCO.2012.47.3173
   PubMed Web of Science ®Google Scholar
• Spathis, A., Booth, S., Grove, S., Hatcher, H., Kuhn, I., & Barclay, S. (2015). Teenage and young adult cancer-related fatigue is prevalent, distressing, and neglected: It is time to intervene. A systematic literature review and narrative synthesis. Journal of Adolescent and Young Adult Oncology, 4(1), 3–17. doi:10.1089/jayao.2014.0023
   PubMed Web of Science ®Google Scholar
• Van der Gucht, K., Takano, K., Labarque, V., Vandenabeele, K., Nolf, N., Kuylen, S., … Raes, V. (2017). A mindfulness-based intervention for adolescents and young adults after cancer treatment: Effects on quality of life, emotional distress and cognitive vulberability. Journal of Adolecent and Young Adult Oncology, 6(2), 307–317. doi:10.1089/jayao.2016.0070
   PubMed Web of Science ®Google Scholar
• Wong, A. W. K., Chang, T. T., Christopher, K., Lau, S. C. L., Beaupin, L. K., Love, B., … Feuerstein, M. (2017). Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: In their own words. Journal of Cancer Survivorship, 1–14. doi:10.1007/s11764-017-0613-4
   Web of Science ®Google Scholar
• Zebrack, B. J., Corbett, V., Embry, L., Aguilar, C., Meeske, K. A., Hayes-Lattin, B., … Cole, R. (2014). Psychological distress and unsatisfied need for psychosocial support in adolescent and young adult cancer patients during the fi rst year following diagnosis. Psycho-Oncology, 23(11), 1267–1275. doi:10.1002/pon.3533
   PubMed Web of Science ®Google Scholar
• Zhang, M. (2015). Effectiveness of mindfulness-based therapy for reducing anxiety and depression in patients with Cancer. Medicine, 94(45), 1–9. doi:10.1097/MD.0000000000000897
   Web of Science ®Google Scholar