References
- Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. https://doi.org/https://doi.org/10.1080/1364557032000119616
- Bedi, H., Andermann, L., Chow, W., & Law, S. (2015). Assessment of caregiver experiences and psychoeducational needs of Chinese families for patients with chronic mental illnesses: A pilot study. University of Toronto Medical Journal, 92(3), 66–71. https://utmj.org/index.php/UTMJ/article/view/207/323
- Chan, R. C., Austin, J. C., Pearson, V. J., Gong, Q.-Y., & Honer, W. G. (2011). Translating genomic research into care for people with schizophrenia in China. Schizophrenia Research, 131(1–3), 31–34. https://doi.org/https://doi.org/10.1016/j.schres.2011.05.008
- Chan, S. K., Tse, S., Sit, H. L. T., Hui, C. L., Lee, E. H., Chang, W. C., & Chen, E. Y. (2016). Web-based psychoeducation program for caregivers of first-episode of psychosis: An experience of Chinese population in Hong Kong. Frontiers in Psychology, 7, 2006. https://doi.org/https://doi.org/10.3389/fpsyg.2016.02006
- Chan, S. W.-C., Yip, B., Tso, S., Cheng, B. S., & Tam, W. (2009). Evaluation of a psychoeducation program for Chinese clients with schizophrenia and their family caregivers. Patient Education & Counseling, 75(1), 67–76. https://doi.org/https://doi.org/10.1016/j.pec.2008.08.028
- Chen, E. S., Chang, W. C., Hui, C. L., Chan, S. K., Lee, E. H. M., & Chen, E. Y. (2016). Self-stigma and affiliate stigma in first-episode psychosis patients and their caregivers. Social Psychiatry and Psychiatric Epidemiology, 51(9), 1225–1231. https://doi.org/https://doi.org/10.1007/s00127-016-1221-8
- Chen, S., Wu, Q., Qi, C., Deng, H., Wang, X., He, H., Long, J., Xiong, Y., & Liu, T. (2017). Mental health literacy about schizophrenia and depression: A survey among Chinese caregivers of patients with mental disorder. BMC Psychiatry, 17(1), 89. https://doi.org/https://doi.org/10.1186/s12888-017-1245-y
- Chen, X., Mao, Y., Kong, L., Li, G., Xin, M., Lou, F., & Li, P. (2016). Resilience moderates the association between stigma and psychological distress among family caregivers of patients with schizophrenia. Personality and Individual Differences, 96, 78–82. https://doi.org/https://doi.org/10.1016/j.paid.2016.02.062
- Chien, W. T., & Chan, S. W. (2013). The effectiveness of mutual support group intervention for Chinese families of people with schizophrenia: A randomised controlled trial with 24-month follow-up. International Journal of Nursing Studies, 50(10), 1326–1340. https://doi.org/https://doi.org/10.1016/j.ijnurstu.2013.01.004
- Chien, W. T., & Lee, I. Y. (2010). The schizophrenia care management program for family caregivers of Chinese patients with schizophrenia. Psychiatric Services, 61(3), 317–320. https://doi.org/https://doi.org/10.1176/ps.2010.61.3.317
- Chien, W. T., & Thompson, D. R. (2013). An RCT with three-year follow-up of peer support groups for Chinese families of persons with schizophrenia. Psychiatric Services, 64(10), 997–1005. https://doi.org/https://doi.org/10.1176/appi.ps.201200243
- Chien, W. T., Thompson, D. R., Lubman, D. I., & McCann, T. V. (2016). A randomized controlled trial of clinician-supported problem-solving bibliotherapy for family caregivers of people with first-episode psychosis. Schizophrenia Bulletin, 42(6), 1457–1466. https://doi.org/https://doi.org/10.1093/schbul/sbw054
- Chien, W. T., Thompson, D. R., & Norman, I. (2008). Evaluation of a peer-led mutual support group for Chinese families of people with schizophrenia. American Journal of Community Psychology, 42(1–2), 122–134. https://doi.org/https://doi.org/10.1007/s10464-008-9178-8
- Chien, W. T., Yeung, F. K., & Chan, A. H. (2014). Perceived stigma of patients with severe mental illness in Hong Kong: Relationships with patients’ psychosocial conditions and attitudes of family caregivers and health professionals. Administration and Policy in Mental Health and Mental Health Services Research, 41(2), 237–251. https://doi.org/https://doi.org/10.1007/s10488-012-0463-3
- Chien, W. T., Yip, A. L., Liu, J. Y., & McMaster, T. W. (2016). The effectiveness of manual-guided, problem-solving-based self-learning programme for family caregivers of people with recent-onset psychosis: A randomised controlled trial with 6-month follow-up. International Journal of Nursing Studies, 59, 141–155. https://doi.org/https://doi.org/10.1016/j.ijnurstu.2016.03.018
- Fan, C. C., & Chen, -Y.-Y. (2011). Factors associated with care burden and quality of life among caregivers of the mentally ill in Chinese society. International Journal of Social Psychiatry, 57(2), 195–206. https://doi.org/https://doi.org/10.1177/0020764009348440
- Guan, L., Xiang, Y., Ma, X., Weng, Y., & Liang, W. (2016). Qualities of life of patients with psychotic disorders and their family caregivers: Comparison between hospitalised and community-based treatment in Beijing, China. PLoS One, 11(11), e0166811. https://doi.org/https://doi.org/10.1371/journal.pone.0166811
- Han, M., Diwan, S., & Sun, K. (2019). Exploring caregiving-related experiences among Chinese American and European American family caregivers of persons with mental illness. Transcultural Psychiatry, 56(3), 491–509. https://doi.org/https://doi.org/10.1177/1363461519827690
- Hou, S. Y., Ke, C. L. K., Su, Y. C., Lung, F. W., & Huang, C. J. (2008). Exploring the burden of the primary family caregivers of schizophrenia patients in Taiwan. Psychiatry And Clinical Neurosciences, 62(5), 508–514. https://doi.org/https://doi.org/10.1111/j.1440-1819.2008.01843.x
- Hsiao, C., & Van Riper, M. (2010). Research on caregiving in Chinese families living with mental illness: A critical review. Journal of Family Nursing, 16(1), 68–100. https://doi.org/https://doi.org/10.1177/1074840709358405
- Hsiao, C.-Y. (2010). Family demands, social support and caregiver burden in Taiwanese family caregivers living with mental illness: The role of family caregiver gender. Journal of Clinical Nursing, 19(23/24), 3494–3503. https://doi.org/https://doi.org/10.1111/j.1365-2702.2010.03315.x
- Hsiao, C.-Y., & Tsai, Y.-F. (2014). Caregiver burden and satisfaction in families of individuals with schizophrenia. Nursing Research, 63(4), 260–269. https://doi.org/https://doi.org/10.1097/NNR.0000000000000047
- Hsiao, C.-Y., & Tsai, Y.-F. (2015). Factors of caregiver burden and family functioning among Taiwanese family caregivers living with schizophrenia. Journal of Clinical Nursing, 24(11–12), 1546–1556. https://doi.org/https://doi.org/10.1111/jocn.12745
- Koo, K. (2012). Carers’ representations of affective mental disorders in British Chinese communities. Sociology of Health & Illness, 34(8), 1140–1155. https://doi.org/https://doi.org/10.1111/j.1467-9566.2012.01461.x
- Kung, W. (2016). Tangible needs and external stressors faced by Chinese American families with a member having schizophrenia. Social Work Research, 40(1), 53–63. https://doi.org/https://doi.org/10.1093/swr/svv047
- Kung, W. W. (2016). Culture- and immigration-related stress faced by Chinese families with a patient having schizophrenia. Journal Of Marital And Family Therapy, 42(3), 409–422. https://doi.org/https://doi.org/10.1111/jmft.12145
- Kung, W. W., Tseng, Y.-F., Wang, Y., Hsu, P.-C., & Chen, D. (2012). Pilot study of ethnically sensitive family psychoeducation for Chinese-American patients with schizophrenia. Social Work in Mental Health, 10(5), 384–408. https://doi.org/https://doi.org/10.1080/15332985.2012.678570
- Lam, P. C., Ng, P., Pan, J., & Young, D. K. (2015). Ways of coping of Chinese caregivers for family members with schizophrenia in two metropolitan cities: Guangzhou and Hong Kong, China. International Journal of Social Psychiatry, 61(6), 591–599. https://doi.org/https://doi.org/10.1177/0020764014565797
- Lam, P. C., Ng, P., & Tori, C. (2013). Burdens and psychological health of family caregivers of people with schizophrenia in two Chinese metropolitan cities: Hong Kong and Guangzhou. Community Mental Health Journal, 49(6), 841–846. https://doi.org/https://doi.org/10.1007/s10597-013-9622-6
- Lan, Y.-F. C., Zelman, D. C., & Chao, W.-T. (2018). Angry characters and frightened souls: Patients and family explanatory models of bipolar disorder in Taiwan. Transcultural Psychiatry, 55(3), 317–338. https://doi.org/https://doi.org/10.1177/1363461518761924
- Lee, H. J., Lin, E. C. L., Chen, M. B., Su, T. P., & Chiang, L. C. (2018). Randomized, controlled trial of a brief family‐centred care programme for hospitalized patients with bipolar disorder and their family caregivers. International Journal of Mental Health Nursing, 27(1), 61–71. https://doi.org/https://doi.org/10.1111/inm.12294
- Lee, I. H., Chen, P. S., Yang, Y. K., Liao, Y. C., Lee, Y. D., Yeh, T. L., Yeh, L. L., Cheng, S. H., & Chu, C. L. (2008). The functionality and economic costs of outpatients with schizophrenia in Taiwan. Psychiatry Research, 158(3), 306–315. https://doi.org/https://doi.org/10.1016/j.psychres.2006.10.004
- Lin, L.-E., Lo, S.-C., Liu, C.-Y., Chen, S.-C., Wu, W.-C., & Liu, W.-I. (2018). Effectiveness of needs-oriented hospital discharge planning for caregivers of patients with schizophrenia. Archives of Psychiatric Nursing, 32(2), 180–187. https://doi.org/https://doi.org/10.1016/j.apnu.2017.10.013
- Mak, W. W. S., & Cheung, R. Y. M. (2012). Psychological distress and subjective burden of caregivers of people with mental illness: The role of affiliate stigma and face concern [journal article]. Community Mental Health Journal, 48(3), 270–274. https://doi.org/https://doi.org/10.1007/s10597-011-9422-9
- Mo, F. Y. M., Chung, W. S., Wong, S. W., Chun, D. Y. Y., Wong, K. S., & Chan, S. S. M. (2008). Experience of caregiving in caregivers of patients with first-episode psychosis. Hong Kong Journal of Psychiatry, 18(3), 101–106. https://www.easap.asia/index.php/find-issues/past-issue/item/378-0803-v18n3-p101-6
- Ng, P., Young, D. K., Pan, J., & Law, -K.-K. (2018). The effects of a community mental health intervention project upon family caregivers of persons with suspected mental illness in the Chinese cultural context. International Social Work, 61(6), 1067–1082. https://doi.org/https://doi.org/10.1177/0020872817695642
- Pai, S., & Kapur, R. (1981). The burden on the family of a psychiatric patient: Development of an interview schedule. The British Journal of Psychiatry, 138(4), 332–335. https://doi.org/https://doi.org/10.1192/bjp.138.4.332
- Pan, J. Y., Ng, Y. N. P., & Young, K. W. D. (2016). The impact of caregivers on the effectiveness of an early community mental health detection and intervention programme in Hong Kong. Early Intervention in Psychiatry, 10(6), 494–502. https://doi.org/https://doi.org/10.1111/eip.12200
- Platt, S. (1985). Measuring the burden of psychiatric illness on the family: An evaluation of some rating scales. Psychological Medicine, 15(2), 383–393. https://doi.org/https://doi.org/10.1017/S0033291700023680
- Poon, A. W. C., & Kung, W. W. (2020). Families in mental health. In R. Ow & A. W. C. Poon (Eds.), Mental health and social work (pp. 199–217). Springer. https://doi.org/https://doi.org/10.1007/978-981-13-0440-8_8-1
- Poon, W. C., Joubert, L., & Harvey, C. (2013). Experiences of Chinese migrants caring for family members with schizophrenia in Australia. Social Work In Health Care, 52(2–3), 144–165. https://doi.org/https://doi.org/10.1080/00981389.2012.737907
- Poston, D. L., Jr., & Wong, J. H. (2016). The Chinese diaspora: The current distribution of the overseas Chinese population. Chinese Journal of Sociology, 2(3), 348–373. https://doi.org/https://doi.org/10.1177/2057150X16655077
- Ran, M.-S., Chan, C.-W., Ng, S.-M., Guo, L.-T., & Xiang, M.-Z. (2015). The effectiveness of psychoeducational family intervention for patients with schizophrenia in a 14-year follow-up study in a Chinese rural area. Psychological Medicine, 45(10), 2197–2204. https://doi.org/https://doi.org/10.1017/S0033291715000197
- Siu, B. W., Lam, C.-L., & Chan, W.-C. (2012). Pattern and determinants of burden in Chinese families of adults with obsessive–compulsive disorder. Journal of Anxiety Disorders, 26(1), 252–257. https://doi.org/https://doi.org/10.1016/j.janxdis.2011.11.008
- Sun, G.-C., & Hsu, M.-C. (2016). Effects of nurse-led child-and parent-focused violence intervention on mentally ill adult patients and victimized parents: A randomized controlled trial. International Journal of Nursing Studies, 60, 79–90. https://doi.org/https://doi.org/10.1016/j.ijnurstu.2016.03.002
- Tang, V. W. K., Leung, S. K., & Lam, L. C.-W. (2008). Clinical correlates of the caregiving experience for Chinese caregivers of patients with schizophrenia. Social Psychiatry and Psychiatric Epidemiology, 43(9), 720–726. https://doi.org/https://doi.org/10.1007/s00127-008-0357-6
- Thorning, H., & Dixon, L. (2016). Caregiving for individuals with serious mental illness: A life cycle perspectuve. In L. D. Burgio, J. E. Gaugler, & M. M. Hilgeman (Eds.), The spectrum of family caregiving for adults and elders with chronic illness (pp. 173–211). Oxford University Press.
- van Wijngaarden, B., Schene, A., Koeter, M., Becker, T., Knapp, M., Knudsen, H. C., Tansella, M., Thornicroft, G., Vázquez-Barquero, J.-L., Lasalvia, A., & Leese, M., & Epsilon study group. (2003). People with Schizophrenia in five countries: Conceptual similarities and intercultural differences in family caregiving. Schizophrenia Bulletin, 29(3), 573–586. https://doi.org/https://doi.org/10.1093/oxfordjournals.schbul.a007029
- Waheed, W., Hughes-Morley, A., Woodham, A., Allen, G., & Bower, P. (2015). Overcoming barriers to recruiting ethnic minorities to mental health research: A typology of recruitment strategies. BMC Psychiatry, 15(1), 101. https://doi.org/https://doi.org/10.1186/s12888-015-0484-z
- Wong, D. F. K. (2007). Crucial individuals in the help-seeking pathway of Chinese caregivers of relatives with early psychosis in Hong Kong. Social Work, 52(2), 127–135. https://doi.org/https://doi.org/10.1093/sw/52.2.127
- Wong, D. F. K., Lam, A. Y. K., Chan, S. K., & Chan, S. F. (2012). Quality of life of caregivers with relatives suffering from mental illness in Hong Kong: Roles of caregiver characteristics, caregiving burdens, and satisfaction with psychiatric services. Health and Quality of Life Outcomes, 10(1), 15. https://doi.org/https://doi.org/10.1186/1477-7525-10-15
- Wong, Y.-L. I., Kong, D., Tu, L., & Frasso, R. (2018). “My bitterness is deeper than the ocean”: Understanding internalized stigma from the perspectives of persons with schizophrenia and their family caregivers. International Journal of Mental Health Systems, 12(1), 14. https://doi.org/https://doi.org/10.1186/s13033-018-0192-4
- Yang, C. I., Hsieh, M. Y., Lee, L. H., & Chen, S. L. (2017). Experiences of caring for a sibling with schizophrenia in a Chinese context: A neglected issue. International Journal of Mental Health Nursing, 26(4), 409–417. https://doi.org/https://doi.org/10.1111/inm.12269
- Yang, L. H., Lai, G. Y., Tu, M., Luo, M., Wonpat-Borja, A., Jackson, V. W., Lewis-Fernández, R., & Dixon, L. (2014). A brief anti-stigma intervention for Chinese immigrant caregivers of individuals with psychosis: Adaptation and initial findings. Transcultural Psychiatry, 51(2), 139–157. https://doi.org/https://doi.org/10.1177/1363461513512015
- Yang, L. H., Phillips, M. R., Lo, G., Chou, Y., Zhang, X., & Hopper, K. (2010). “Excessive thinking” as explanatory model for schizophrenia: Impacts on stigma and “moral” status in mainland China. Schizophrenia Bulletin, 36(4), 836–845. https://doi.org/https://doi.org/10.1093/schbul/sbn180
- Yang, L. H., & Wonpat-Borja, A. (2012). Causal beliefs and effects upon mental illness identification among Chinese immigrant relatives of individuals with psychosis. Community Mental Health Journal, 48(4), 471–476. https://doi.org/https://doi.org/10.1007/s10597-011-9464-z
- Yesufu-Udechuku, A., Harrison, B., Mayo-Wilson, E., Young, N., Woodhams, P., Shiers, D., Kuipers, E., & Kendall, T. (2015). Interventions to improve the experience of caring for people with severe mental illness: Systematic review and meta-analysis. The British Journal of Psychiatry, 206(4), 268–274. https://doi.org/https://doi.org/10.1192/bjp.bp.114.147561
- Yeung, E. Y.-W., Irvine, F., Ng, S.-M., & Tsang, S. K. (2012). Role of social networks in the help-seeking experiences among Chinese suffering from severe mental illness in England: A qualitative study. British Journal of Social Work, 43(3), 486–503. https://doi.org/https://doi.org/10.1093/bjsw/bcr199
- Zeng, Y., Zhou, Y., & Lin, J. (2017). Perceived burden and quality of life in Chinese caregivers of people with serious mental illness: A comparison cross‐sectional survey. Perspectives In Psychiatric Care, 53(3), 183–189. https://doi.org/https://doi.org/10.1111/ppc.12151
- Zhou, Y., Rosenheck, R., Mohamed, S., Ou, Y., Ning, Y., & He, H. (2016). Comparison of burden among family members of patients diagnosed with schizophrenia and bipolar disorder in a large acute psychiatric hospital in China. BMC Psychiatry, 16(1), 283. https://doi.org/https://doi.org/10.1186/s12888-016-0962-y