Relationship-building to develop an Indigenous community-based epidemiological study investigating developmental resilience factors among children with prenatal substance exposure

References

• Burhansstipanov, L., Christopher, S., & Schumacher, S. A. (2005). Lessons learned from community-based participatory research in Indian country. Cancer Control, 12(4_suppl), 70–76. https://doi.org/10.1177/1073274805012004s10
   PubMedGoogle Scholar
• Christopher, S. (2005). Recommendations for conducting successful research with Native Americans. Journal of Cancer Education, 20(1 Suppl), 47–51. https://doi.org/10.1207/s15430154jce2001s_11
   PubMed Web of Science ®Google Scholar
• Christopher, S., Saha, R., Lachapelle, P., Jennings, D., Colclough, Y., Cooper, C., Cummins, C., Eggers, M. J., Fourstar, K., Harris, K., Kuntz, S. W., Lafromboise, V., Laveaux, D., McDonald, T., Bird, J. R., Rink, E., & Webster, L. (2011). Applying indigenous community-based participatory research principles to partnership development in health disparities research. Family & Community Health, 34(3), 246–255. https://doi.org/10.1097/FCH.0b013e318219606f
   PubMed Web of Science ®Google Scholar
• Crump, A. D., Etz, K., Arroyo, J. A., Hemberger, N., & Srinivasan, S. (2020). Accelerating and strengthening Native American health research through a collaborative NIH initiative. Prevention Science, 21(Suppl 1), 1–4. https://doi.org/10.1007/s11121-017-0854-5
   PubMedGoogle Scholar
• Dixon, M., & Roubideaux, Y. (2001). Promises to keep: Public health policy for American Indians and Alaska Natives in the 21st century. American Public Health Association.
   Google Scholar
• Gittelsohn, J., Belcourt, A., Magarati, M., Booth-LaForce, C., Duran, B., Mishra, S. I., Belone, L., & Jernigan, V. B. B. (2020). Building capacity for productive indigenous community-university partnerships. Prevention Science, 21(Suppl 1), 22–32. https://doi.org/10.1007/s11121-018-0949-7
   PubMedGoogle Scholar
• Goodman, A., Morgan, R., Kuehlke, R., Kastor, S., Fleming, K., Boyd, J., & Aboriginal Harm Reduction Society, W. (2018). “We’ve been researched to death”: Exploring the Research Experiences of Urban Indigenous Peoples in Vancouver. International Indigenous Policy Journal, 9(2), 1–20. https://doi.org/10.18584/iipj.2018.9.2.3
   Google Scholar
• Harding, A., Harper, B., Stone, D., O’Neill, C., Berger, P., Harris, S., & Donatuto, J. (2012). Conducting research with tribal communities: Sovereignty, ethics, and data-sharing issues. Environmental Health Perspectives, 120(1), 6–10. https://doi.org/10.1289/ehp.1103904
   PubMed Web of Science ®Google Scholar
• Hicks, S., Duran, B., Wallerstein, N., Avila, M., Belone, L., Lucero, J., Magarati, M., Mainer, E., Martin, D., Muhammad, M., Oetzel, J., Pearson, C., Sahota, P., Simonds, V., Sussman, A., Tafoya, G., & Hat, E. W. (2012). Evaluating community-based participatory research to improve community-partnered science and community health. Progress in Community Health Partnerships, 6(3), 289–299. https://doi.org/10.1353/cpr.2012.0049
   PubMedGoogle Scholar
• James, R., Tsosie, R., Sahota, P., Parker, M., Dillard, D., Sylvester, I., Lewis, J., Klejka, J., Muzquiz, L., Olsen, P., Whitener, R., & Burke, W. (2014). Exploring pathways to trust: A tribal perspective on data sharing. Genetics in Medicine, 16(11), 820–826. https://doi.org/10.1038/gim.2014.47
   PubMed Web of Science ®Google Scholar
• Lonczak, H. S. V., Thomas, L. R., Donovan, D., Austin, L., Sigo, R. L. W., & Lawrence, N. (2013). Navigating the tide together: Early collaboration between tribal and academic partners in a CBPR study. Pimatisiwin, 11(3), 395.
   PubMedGoogle Scholar
• Kovach, M. (2010). Indigenous methodologies: Characteristics, conversations, and contexts. University of Toronto Press.
   Google Scholar
• Nash, S. H., Peters, U., & Redwood, D. (2019). Developing an epidemiologic study to investigate risk factors for colorectal cancer among Alaska Native people. Journal of Public Health Management and Practice, 25, S54–S60. https://doi.org/10.1097/PHH.0000000000000994
   PubMed Web of Science ®Google Scholar
• Rasmus, S. M., Whitesell, N. R., Mousseau, A., & Allen, J. (2020). An intervention science to advance underrepresented perspectives and indigenous self-determination in health. Prevention Science, 21(Suppl 1), 83–92. https://doi.org/10.1007/s11121-019-01025-1
   PubMedGoogle Scholar
• Rhoades, E. R. (2001). American Indian health: Innovations in health care, promotion, and policy. JHU Press.
   Google Scholar
• Schultz, K., Walls, M., & Grana, S. J. (2021). Intimate partner violence and health: The roles of social support and communal mastery in five American Indian communities. Journal of Interpersonal Violence, 36(13–14), NP6725–NP6746. https://doi.org/10.1177/0886260518821463
   PubMed Web of Science ®Google Scholar
• Shahram, S. Z., Bottorff, J. L., Oelke, N. D., Dahlgren, L., Thomas, V., & Spittal, P. M. (2017). The Cedar Project: Using Indigenous-specific determinants of health to predict substance use among young pregnant-involved Indigenous women in Canada. BMC Women’s Health, 17(1), 84. https://doi.org/10.1186/s12905-017-0437-4
   PubMedGoogle Scholar
• Strommer, G. D., & Osborne, S. D. (2014). The history, status, and future of tribal self-governance under the Indian Self-Determination and Education Assistance Act. American Indian Law Review, 39(1), 1–75.
   Google Scholar
• Thomas, L. R., Rosa, C., Forcehimes, A., & Donovan, D. M. (2011). Research partnerships between academic institutions and American Indian and Alaska Native tribes and organizations: Effective strategies and lessons learned in a multisite CTN study. The American Journal of Drug and Alcohol Abuse, 37(5), 333–338. https://doi.org/10.3109/00952990.2011.596976
   PubMed Web of Science ®Google Scholar
• Wallerstein, N., Duran, B., Oetzel, J. G., & Minkler, M. (2017). Community-based participatory research for health: Advancing social and health equity. Wiley.
   Google Scholar
• Walls, M. L., Whitesell, N. R., Barlow, A., & Sarche, M. (2019). Research with American Indian and Alaska Native populations: Measurement matters. Journal of Ethnicity in Substance Abuse, 18(1), 129–149. https://doi.org/10.1080/15332640.2017.1310640
   PubMed Web of Science ®Google Scholar
• Whitesell, N. R., Mousseau, A., Parker, M., Rasmus, S., & Allen, J. (2020). Promising practices for promoting health equity through rigorous intervention science with indigenous communities. Prevention Science, 21(Suppl 1), 5–12. https://doi.org/10.1007/s11121-018-0954-x
   PubMedGoogle Scholar
• Yellow Horse Brave Heart, M. (2003). The historical trauma response among natives and its relationship with substance abuse: A Lakota illustration. Journal of Psychoactive Drugs, 35(1), 7–13. https://doi.org/10.1080/02791072.2003.10399988
   PubMed Web of Science ®Google Scholar