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Social Work in Mental Health Volume 21, 2023 - Issue 6
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Research Article

A qualitative study exploring experiences of distressed family caregivers of people with dementia in the United States during the COVID-19 pandemic

Areum Hana Department of Occupational Therapy, University of Alabama at Birmingham, Birmingham, Alabama, USACorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0003-1369-9052View further author information
, PhD, OTR/LORCID Icon,
Hon K. Yuena Department of Occupational Therapy, University of Alabama at Birmingham, Birmingham, Alabama, USAORCID Iconhttps://orcid.org/0000-0001-5696-1845View further author information
, PhD, OTR/LORCID Icon &
Lauren Edwardsa Department of Occupational Therapy, University of Alabama at Birmingham, Birmingham, Alabama, USA;b Alys Stephens Center, University of Alabama at Birmingham, Birmingham, Alabama, USAORCID Iconhttps://orcid.org/0000-0002-8620-0972View further author information
, BAORCID Icon
Pages 606-621 | Published online: 17 Mar 2023

References

  • Alzheimer’s Association. (2022). 2022 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia, 18(4), 700–789. doi:10.1002/alz.12638
  • Antony, M. M., Bieling, P. J., Cox, B. J., Enns, M. W., & Swinson, R. P. (1998). Psychometric properties of the 42-item and 21-item versions of the Depression Anxiety Stress Scales in clinical groups and a community sample. Psychological Assessment, 10(2), 176–181. doi:10.1037/1040-3590.10.2.176
  • Bressan, V., Visintini, C., & Palese, A. (2020). What do family caregivers of people with dementia need? A mixed-method systematic review. Health & Social Care in the Community, 28(6), 1942–1960. doi:10.1111/hsc.13048
  • Bussè, C., Barnini, T., Zucca, M., Rainero, I., Mozzetta, S., Zangrossi, A., & Cagnin, A. (2022). Depression, anxiety and sleep alterations in caregivers of persons with dementia after 1-year of COVID-19 pandemic. Frontiers in Psychiatry, 13, 826371. doi:10.3389/fpsyt.2022.826371
  • Carbone, E. A., de Filippis, R., Roberti, R., Rania, M., Destefano, L., Russo, E. … De Fazio, P. (2021). The mental health of caregivers and their patients with dementia during the COVID-19 pandemic: A systematic review. Frontiers in Psychology, 12, 782833. doi:10.3389/fpsyg.2021.782833
  • Carter, N., Bryant-Lukosius, D., DiCenso, A., Blythe, J., & Neville, A. J. (2014). The use of triangulation in qualitative research. Oncology Nursing Forum, 41(5), 545–547. doi:10.1188/14.Onf.545-547
  • Cohen, G., Russo, M. J., Campos, J. A., & Allegri, R. F. (2020). Living with dementia: Increased level of caregiver stress in times of COVID-19. International Psychogeriatrics, 32(11), 1377–1381. doi:10.1017/s1041610220001593
  • Han, A., & Radel, J. (2016). Spousal caregiver perspectives on a person-centered social program for partners with dementia. American Journal of Alzheimer’s Disease & Other Dementias, 31(6), 465–473. doi:10.1177/1533317515619036
  • Han, A., Radel, J., McDowd, J. M., & Sabata, D. (2016). Perspectives of people with dementia about meaningful activities: A synthesis. American Journal of Alzheimer’s Disease & Other Dementias®, 31(2), 115–123. doi:10.1177/1533317515598857
  • Han, A., Yuen, H. K., & Jenkins, J. (2023). The feasibility and preliminary effects of a pilot randomized controlled trial: Videoconferencing acceptance and commitment therapy in distressed family caregivers of people with dementia. Journal of Health Psychology. Advance online publication. doi:10.1177/13591053221141131
  • Han, A., Yuen, H. K., Jenkins, J., & Lee, H. Y. (2022). Acceptance and commitment therapy (ACT) guided online for distressed caregivers of persons living with dementia. Clinical Gerontologist, 45(4), 927–938. doi:10.1080/07317115.2021.1908475
  • Losada, A., Vara-García, C., Romero-Moreno, R., Barrera-Caballero, S., Pedroso-Chaparro, M. D. S., Jiménez-Gonzalo, L. … Márquez-González, M. (2022). Caring for relatives with dementia in times of COVID-19: Impact on caregivers and care-recipients. Clinical Gerontologist, 45(1), 71–85. doi:10.1080/07317115.2021.1928356
  • Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International Journal of Qualitative Methods, 16(1), 1609406917733847. doi:10.1177/1609406917733847
  • Park, S. S. (2021). Caregivers’ mental health and somatic symptoms during Covid-19. Journals of Gerontology: Series B, Psychological Science and Social Sciences, 76(4), e235–240. doi:10.1093/geronb/gbaa121
  • Rajagopalan, J., Arshad, F., Hoskeri, R. M., Nair, V. S., Hurzuk, S., Annam, H. … Alladi, S. (2022). Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study. Dementia, 21(1), 214–235. doi:10.1177/14713012211035371
  • Rising, K. L., Salcedo, V. J., Amadio, G., Casten, R., Chang, A., Gentsch, A. … Gerolamo, A. M. (2022). Living through the pandemic: The voices of persons with dementia and their caregivers. Journal of Applied Gerontology, 41(1), 30–35. doi:10.1177/07334648211036399
  • Sallim, A. B., Sayampanathan, A. A., Cuttilan, A., & Ho, R. (2015). Prevalence of mental health disorders among caregivers of patients with Alzheimer disease. Journal of the American Medical Directors Association, 16(12), 1034–1041. doi:10.1016/j.jamda.2015.09.007
  • Smith, J., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method, and research. Sage Publications.
  • Xiong, J., Lipsitz, O., Nasri, F., Lui, L. M. W., Gill, H., Phan, L. … McIntyre, R. S. (2020). Impact of COVID-19 pandemic on mental health in the general population: A systematic review. Journal of Affective Disorders, 277, 55–64. doi:10.1016/j.jad.2020.08.001

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