480
Views
11
CrossRef citations to date
0
Altmetric
ARTICLES

Perinatal care experiences of mothers living with HIV in Ontario, Canada

, , , , , , , , & show all
Pages 180-201 | Received 17 Oct 2014, Accepted 21 Nov 2015, Published online: 04 May 2016

References

  • Bal, M. (1997). Narratology: Introduction to the theory of narrative. Toronto, ON, Canada: University of Toronto Press.
  • Burdge, D. R., Money, D. M., Forbes, J. C., Walmsley, S. L., Smaill, F. M., Boucher, M., … Canadian HIV Trials Network Working Group on Vertical Transmission. (2003). Canadian consensus guidelines for the management of pregnancy, labour and delivery and for postpartum care in HIV-positive pregnant women and their offspring (summary of 2002 guidelines), CMAJ, 168, 1671.
  • Canadian Public Health Association. (2005). Leading together: Canada takes action on HIV/AIDS, 2005–2010. Retrieved from www.leadingtogether.ca
  • Canadian Public Health Association. (2006). Canadian strategy on HIV/AIDS: Moving forward together. Retrieved from http://www.phac-aspc.gc.ca/aids-sida/fi-if/monitoring/can_strat-eng.php
  • Carter, A. J., Bourgeois, S., O’Brien, N., Abelsohn, K., Tharao, W., Greene, S., … CHIWOS Research Team. (2013). Women-specific HIV/AIDS services: Identifying and defining the components of holistic service delivery for women living with HIV/AIDS. Journal of the International AIDS Society, 16, 17433. doi:10.7448/ias.16.1.17433
  • Chen, H., Phillips, K. A., Kanouse, D. E., Collins, R. L., & Miu, A. (2001). Fertility desires and intentions of HIV positive men and women. Family Planning Perspectives, 33(4), 144. doi:10.2307/2673717
  • Ciesla, J. A., & Roberts, J. E. (2001). Meta-analysis of the relationship between HIV infection and risk for depressive disorders. American Journal of Psychiatry, 158(5), 725–730. doi:10.1176/appi.ajp.158.5.725
  • Connelly, F. M., & Clandinin, D. J. (2006). Narrative inquiry. In J. Green, G. Camilli, & P. Elmore (Eds.), Handbook of complementary methods in education research (pp. 375–385). Mahwah, NJ: Lawrence Erlbaum.
  • Cook, J. A., Grey, D., Burke, J., Cohen, M. H., Gurlman, A. C., Richardson, J. L., … Hessol, N. A. (2004). Depressive symptoms and AIDS-related mortality among a multi-site cohort of HIV-positive women. American Journal of Public Health, 94, 1133–1140. doi:10.2105/ajph.94.7.1133
  • Cooper, E. R., Charurat, M., Mofenson, L., Hanson, I. C., Pitt, J., Diaz, C., … Women, and Infants’ Transmission Study Group. (2002). Combination antiretroviral strategies for the treatment of pregnant HIV-1-infected women and prevention of perinatal HIV-1 transmission. J Acquir Immune Defic Syndr, 29(5), 484–494. doi:10.1097/00042560-200204150-00009
  • Cunningham, W. E., Mosen, D. M., Hays, R. D., Andersen, R. M., & Shapiro, M. F. (1996). Access to community-based medical services and number of hospitalizations among patients with HIV disease: are they related? Journal of acquired immune deficiency syndromes and human retrovirology, 13(4), 327–335. doi:10.1097/00042560-199612010-00005
  • Ellis, W. L. (2011). The interplay between HIV/AIDS-infected mothers’ depression and their children’s behavioral crises in school. Social Work in Mental Health, 9, 379–394. doi:10.1080/15332985.2011.589771
  • Forbes, J. C., Alimenti, A. M., Singer, J., Brophy, J. C., Bitnun, A., Samson, L. M., … Canadian Pediatric AIDS Research Group (CPARG). (2012). A national review of vertical HIV transmission. AIDS, 26(6), 757–763. doi:10.1097/qad.0b013e328350995c
  • Greene, S., Ion, A., Elston, D., Kwaramba, G., Smith, S., Carvalhal, A., & Loutfy, M. (2014). Why aren’t you breastfeeding? How HIV-positive mothers talk about infant feeding in a ‘breast is best’ world. Healthcare for Women International, 36(8), 883–901. doi:10.1080/07399332.2014.888720
  • Greene, S., Ion, A., Elston, D., Kwaramba, G., Smith, S., & Loutfy, M. (2015). (M)othering with HIV: Resisting and reconstructing experiences of health and social surveillance. In B. Hogeveen & J. Minaker (Eds), Criminalized mothers, criminalizing motherhood (pp. 231–263). Toronto, ON: Demeter Press.
  • Greene, S., Ion, A., Kwaramba, G., Smith, S., & Loutfy, M. R. (2016). Why are you pregnant? What were you thinking? How women navigate experiences of HIV-related stigma in medical settings during pregnancy and birth. Social Work in Health Care, 55(2), 161–179. doi:10.1080/00981389.2015.1081665
  • Greene, S., Kwaramba, G., Ion, A., Smith, S., Desbiens, M., Barry, F., … for the HIV Mothering Study Group. (2011). “It’s a normal pregnancy, other than the HIV thing”: HIV-related stigma and the social construction of HIV-positive women during pregnancy [oral presentation]. Ontario HIV Treatment Network Research Conference, Toronto, ON, November 14–15, 2011.
  • Hankins, C. (2008). Gender, sex and HIV: How well are we addressing the imbalance? Current Opinion in HIV and AIDS, 3(4), 514–520. doi:10.1097/coh.0b013e32830136b4
  • Hendry, P. M. (2007). The future of narrative. Qualitative Inquiry, 13, 487–498.
  • Hodgson, I. (2006). Empathy, inclusion and enclaves: The culture of care of people with HIV/AIDS and nursing implications. Journal of Advanced Nursing, 55(3), 283–290. doi:10.1111/j.1365-2648.2006.03913.x
  • Ickovics, J., Hamburger, M., Vlahov, D., Schoenbaum, E., Schuman, P., Boland, R., & Moore, J. (2008). Mortality, CD4 cell count decline and depressive symptoms among HIV-seropositive women. Journal of the American Medical Association, 285, 1466–1474. doi:10.1001/jama.285.11.1466
  • Ion, A., & Elston, D. (2015). Examining the healthcare experiences of women living with HIV and perceived HIV-related stigma. Women’s Health Issues, 25(4), 410–419. doi:10.1016/j.whi.2015.03.012
  • Ion, A., Greene, S., Elston, D., Kwaramba, G., Smith, S., Barry, F., Carvalhal, A., & Loutfy, M. R. (2012). “We are getting along”: Important sources of support for HIV-positive women during pregnancy [oral presentation]. Canadian Association for HIV Research Conference, Montreal, QC, April 19–22, 2012.
  • Knussen, C., & Niven, C. A. (1999). HIV/AIDS and health care workers: Contact with patients and attitudes towards them. Psychology Health, 14(3), 367–378. doi:10.1080/08870449908407334
  • Koricho, A. T., Moland, K. M., & Blystad, A. (2010). Poisonous milk and sinful mothers: The changing meaning of breastfeeding in the wake of the HIV epidemic in Addis Ababa, Ethiopia. International Breastfeeding Journal, 5, 12. doi:10.1186/1746-4358-5-12
  • Krentz, H. B., Dean, S., & Gill, M. J. (2006). Longitudinal assessment (1995–2003) of hospitalizations of HIV-infected patients within a geographical population in Canada, HIV Medicine, 7, 457–466. doi:10.1111/j.1468-1293.2006.00408.x
  • Loutfy, M. R., Hart, T. A., Mohammed, S. S., Su D., Ralph, E. D., Walmsley, S. L., … Ontario HIV Fertility Research Team. (2009). Fertility desires and intentions of HIV-positive women of reproductive age in Ontario, Canada: A cross-sectional study. PLoS One, 412, e7925. doi:10.1371/journal.pone.0007925
  • MacCarthy, S., Rasanathan, J. J. K., Nunn, A., & Dourado, I. (2013). “I did not feel like a mother”: The success and remaining challenges to exclusive formula feeding among HIV-positive women in Brazil. AIDS Care, 25(6), 726–731. doi:10.1080/09540121.2013.793274
  • Malee, K. M., Mellins, C. A., Huo, Y., Tassiopoulos, K., Smith, R., Sirois, P. A., … Pediatric HIV/AIDS Cohort Study (PHACS). (2014). Prevalence, incidence, and persistence of psychiatric and substance use disorders among mothers living with HIV. Journal of Acquired Immune Deficiency Syndrome, 65(5), 526–534. doi:10.1097/qai.0000000000000070
  • Margolese, S. (2003). Women and depression. Nellysford, VA: The Well Project, Inc.
  • McCoy, L. (2005). HIV-positive patients and the doctor-patient relationship: Perspectives from the margins. Qualitative Health Research, 15(6), 791–806. doi:10.1177/1049732305276752
  • Murphy, D. A., Marelich, W. D., Dello Stritto, M. E., Swendeman, D., & Witkin, A. (2002). Mothers living with HIV/AIDS: Mental, physical and family functioning. AIDS Care, 14(5), 633–644. doi:10.1080/0954012021000005461
  • OHTN Rapid Response Service. (2010, January). Rapid review: Knowledge and training needs of health professionals working with people with HIV: With considerations for mixed urban rural care settings. Toronto, ON: Ontario HIV Treatment Network.
  • Panel on Treatment of HIV-Infected Pregnant Women, & Prevention of Perinatal Transmission. (2012). Recommendations for use of antiretroviral drugs in pregnant HIV-1-infected women for maternal health and interventions to reduce perinatal HIV transmission in the United States. Department of Health and Human Services USA. Retrieved from http://aidsinfo.nih.gov/contentfiles/lvguidelines/PerinatalGL.pdf
  • Pryce, A. (2000). Frequent observation: Sexualities, self-surveillance, confession and the construction of the active patient. Nursing Inquiry, 7, 103–111. doi:10.1046/j.1440-1800.2000.00057.x
  • Public Health Agency of Canada. (PHAC). (2010). Chapter 7: Perinatal HIV transmission in Canada. Retrieved from http://www.phac-aspc.gc.ca/aids-sida/publication/epi/2010/7-eng.php
  • Public Health Agency of Canada. (PHA). (2013). At a glance - HIV and AIDS in Canada: Surveillance report to December 31st, 2012. Retrieved from http://www.phac-aspc.gc.ca/aids-sida/publication/survreport/2012/dec/index-eng.php
  • Public Health Agency of Canada. (PHAC). (2014). HIV and AIDS in Canada: Surveillance report to December 31, 2013. Minister of public works and government services Canada. Retrieved from http://www.phac-aspc.gc.ca/aids-sida/publication/survreport/2013/dec/index-eng.php
  • Rackal, J. M., Tynan, A. M., Handford, C. D., Rzeznikiewiz, D., Agha, A., & Glazier, R. (2011). Provider training and experience for people living with HIV/AIDS. Cochrane Database of Systematic Reviews, 6, Art. No.: CD003938. doi: 10.1002/14651858.CD003938.pub2. Retrieved from http://summaries.cochrane.org/CD003938/HIV_training-experience-and-volumes-on-outcomes-for-persons-living-with-hivaids-a-systematic-review
  • Remis, R. S., & Liu, J. (2013). HIV/AIDS in Ontario: Preliminary report, 2011. Retrieved from http://www.ohemu.utoronto.ca/doc/PHERO2011_report_preliminary.pdf
  • Riessman, C. K. (2001). Personal troubles as social issues: A narrative of infertility in context. In I. Shaw, & N. Gould (Eds.), Qualitative research in social work (pp. 73–83). London, England: Sage.
  • Riessman, C. K. (2002). Analysis of personal narratives. In J. F. Gubrium & J. A. Holstein (Eds.), Handbook of interview research (pp. 695–710). Thousand Oaks, CA: Sage.
  • Rubin, L. H., Cook, J. A., Grey, D. D., Weber, K., Wells, C., Golub, E. T., … Maki, P. M. (2011). Perinatal depressive symptoms in HIV-infected versus HIV-uninfected women: A prospective study from preconception to postpartum. Journal of Women’s Health, 20(9), 1287–1295. doi:10.1089/jwh.2010.2485
  • Sandelowski, M., & Barroso, J. (2003). Motherhood in the context of maternal HIV infection. Research in nursing & health, 26, 470–482. doi:10.1002/nur.10109
  • Sandelowski, M., Lambe, C., & Barroso, J. (2004). Stigma in HIV-positive women. Journal of Nursing Scholarship, 36(2), 122–128. doi:10.1111/j.1547-5069.2004.04024.x
  • Santacroce, S. (2001). Measuring parental uncertainty during the diagnosis phase of serious illness in a child. Journal of Pediatric Nursing, 16(1), 3–12. doi:10.1053/jpdn.2001.20547
  • Schilder, A. J., Kennedy, C., Goldstone, I. L., Ogden, R. D., Hogg, R. S., & O’Shaughnessy, M. V. (2001). “Being dealt with as a whole person” - Care seeking and adherence: The benefits of culturally competent care. Social Science & Medicine, 52, 1643–1659. doi:10.1016/s0277-9536(00)00274-4
  • Shah, D. K. (2013). Is breast always best? A personal reflection on the challenges of breastfeeding. Obstetrics & Gynecology, 121(4), 869–871. doi:10.1097/aog.0b013e3182878246
  • Shannon, M., & Lee, K. (2008). HIV-infected mothers’ perceptions of uncertainty, stress, depression and social support during HIV viral testing of their infants. Archives of Womens Mental Health, 11, 259–267. doi:10.1007/s00737-008-0023-8
  • Shannon, M., Powell Kennedy, H., & Humphreys, J. (2008). HIV-Infected Mothers’ Foci of Concern During the Viral Testing of Their Infants. Journal of the Association of Nurses in AIDS Care, 19(2), 114–126. doi:10.1016/j.jana.2007.10.004
  • Sinding, C. (2010). Using institutional ethnography to understand the production of health care disparities. Qualitative Health Research, 20(12), 1656–1663. doi:10.1177/1049732310377452
  • Smith, D. E. (1987). The everyday world as problematic: A feminist sociology. Boston, MA: Northeastern University Press.
  • The Antiretroviral Therapy Cohort Collaboration (TATCC) (2008). Life expectancy of individuals on combination antiretroviral therapy in high-income countries a collaborative analysis of 14 cohort studies. Lancet, 372, 293–299. doi:10.1016/s0140-6736(08)61113-7
  • Van Den Tillaart, S., Kurtz, D., & Cash, P. (2009). Powerlessness, marginalized identity, and silencing of health concerns: Voiced realities of women living with a mental health diagnosis. International Journal of Mental Health Nursing, 18, 153–163. doi:10.1111/j.1447-0349.2009.00599.x
  • Walby, K. (2007). On the social relations of research: A critical assessment of institutional ethnography. Qualitative Inquiry, 13(7), 1008–1030. doi:10.1177/1077800407305809
  • Walby, K. (2013). Institutional ethnography and data analysis: Making sense of data dialogues. International Journal of Social Research Methodology, 16(2), 141–154. doi:10.1080/13645579.2012.661207
  • Wong-Wylie, G., & Jevne, R. F. (1997). Patient hope: Exploring the interactions between physicians and HIV seropositive individuals. Qualitative Health Research, 7, 32–56. doi:10.1177/104973239700700103
  • World Health Organization. (2010). Guidelines on HIV and infant feeding, 2010: Principles and recommendations for infant feeding in the context of HIV and a summary of evidence. Retrieved from http://www.who.int/maternal_child_adolescent/documents/9789241599535/en/
  • Worthington, C., & Myers, T. (2002). Desired elements of HIV testing services: Test recipient perspectives. AIDS Patient Care and STDs, 16, 537–548. doi:10.1089/108729102761041092

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.