The Language of Type 1 Diabetes: Why It Matters in Online Patient Education

References

• Alnaim, L. 2019. Evaluation breast cancer information on the internet in Arabic. Journal of Cancer Education 34, no. 4: 810–818. doi:10.1007/s13187-018-1378-9.
   PubMed Web of Science ®Google Scholar
• Anderson, R.M., and M.M. Funnell. 2005. Patient empowerment: Reflections on the challenge of fostering the adoption of a new paradigm. Patient Education and Counseling 57, no. 2: 153–157. doi:10.1016/j.pec.2004.05.008.
   PubMed Web of Science ®Google Scholar
• Anderson, R.M., M.M. Funnell, P.A. Barr, R.F. Dedrick, and W.K. Davis. 1991. Learning to empower patients: Results of professional education program for diabetes educators. Diabetes Care 14, no. 7: 584–590. doi:10.2337/diacare.14.7.584.
   PubMed Web of Science ®Google Scholar
• Anderson, R.M., M.M. Funnell, J.T. Fitzgerald, and D.G. Marrero. 2000. The Diabetes Empowerment Scale: A measure of psychosocial self-efficacy. Diabetes Care 23, no. 6: 739–743. doi:10.2337/diacare.23.6.739.
   PubMed Web of Science ®Google Scholar
• Association of Diabetes Care and Education Specialists. n.d. Speaking the language of diabetes. https://www.diabeteseducator.org/practice/practice-tools/app-resources/diabetes-language-paper (accessed December 19, 2022).
   Google Scholar
• Baldoni, Nayara Ragi, Jéssica Azevedo Aquino, Cristina Sanches-Giraud, Cláudia Di Lorenzo Oliveira, Roberta Carvalho de Figueiredo, Clareci Silva Cardoso, Thiago Reis Santos, et al. 2017. Collective empowerment strategies for patients with diabetes mellitus: A systematic review and meta-analysis. Primary Care Diabetes 11, no. 2: 201–211. doi:10.1016/j.pcd.2016.09.006.
   PubMed Web of Science ®Google Scholar
• Banasiak, Krista, Devin Cleary, Virtue Bajurny, Pina Barbieri, Seema Nagpal, Michelle Sorensen, Nadia Tabiou, et al. 2020. Language matters – A diabetes Canada consensus statement. Canadian Journal of Diabetes 44, no. 5: 370–373. doi:10.1016/j.jcjd.2020.05.008.
   PubMed Web of Science ®Google Scholar
• Beaunoyer, E., M. Arsenault, A.M. Lomanowska, and M.J. Guitton. 2017. Understanding online health information: Evaluation, tools, and strategies. Patient Education and Counseling 100, no. 2: 183–189. doi:10.1016/j.pec.2016.08.028.
   PubMed Web of Science ®Google Scholar
• Beeney, L.J., and E.J. Fynes-Clinton. 2019. The language of diabetes complications: Communication and framing of risk messages in North American and Australasian diabetes-specific media. Clinical Diabetes 37, no. 2: 116–123. doi:10.2337/cd18-0024.
   PubMedGoogle Scholar
• Bell, T., S.M. Noar, and A.J. Lazard. 2021. Narrative vs. standard of care messages: Testing how communication can positively influence adolescents with type 1 diabetes. Journal of Health Communication 26, no. 9: 626–635. doi:10.1080/10810730.2021.1985657.
   PubMed Web of Science ®Google Scholar
• Blake, L., and A. Jaggers. 2019. Piloting a course to heighten awareness of consumer health resources to nurses and patient educators. Journal of Consumer Health on the Internet 23, no. 2: 178–186. doi:10.1080/15398285.2019.1614824.
   PubMed Web of Science ®Google Scholar
• Broom, D., and A. Whittaker. 2004. Controlling diabetes, controlling diabetics: Moral language in the management of diabetes type 2. Social Science & Medicine 58, no. 11: 2371–2382. doi:10.1016/j.socscimed.2003.09.002.
   PubMed Web of Science ®Google Scholar
• Browne, J.L., A.D. Ventura, K. Mosely, and J. Speight. 2017. Measuring type 1 diabetes stigma: Development and validation of the type 1 Diabetes Stigma Assessment Scale (DSAS-1). Diabetic Medicine 34, no. 12: 1773–1782. doi:10.1111/dme.13507.
   PubMed Web of Science ®Google Scholar
• Browne, J.L., A. Ventura, K. Mosely, and J. Speight. 2013. ‘I call it the blame and shame disease’: A qualitative study about perceptions of social stigma surrounding type 2 diabetes. BMJ Open 3, no. 11:e003384. doi:10.1136/bmjopen-2013-003384.
   PubMed Web of Science ®Google Scholar
• Browne, J.L., A. Ventura, K. Mosely, and J. Speight. 2014. ‘I’m not a druggie, I’m just a diabetic’: A qualitative study of stigma from the perspective of adults with type 1 diabetes. BMJ Open 4, no. 7:e005625. doi:10.1136/bmjopen-2014-005625.
   PubMed Web of Science ®Google Scholar
• Caballero, A. 2021. Addressing health literacy as a foundation for effective and equitable health communication. Journal of Consumer Health on the Internet 25, no. 2: 205–216. doi:10.1080/15398285.2021.1911487.
   Web of Science ®Google Scholar
• Charnock, D., S. Shepperd, G. Needham, and R. Gann. 1999. DISCERN: An instrument for judging the quality of written consumer health information on treatment choices. Journal of Epidemiology and Community Health 53, no. 2: 105–111. doi:10.1136/jech.53.2.105.
   PubMed Web of Science ®Google Scholar
• Cooper, A., N. Kanumilli, J. Hill, R.I.G. Holt, D. Howarth, C.E. Lloyd, P. Kar, et al. 2018. Language matters. Addressing the use of language in the care of people with diabetes: Position statement of the English advisory group. Diabetic Medicine 35, no. 12: 1630–1634. doi:10.1111/dme.13705.
   PubMed Web of Science ®Google Scholar
• Davis, Jody, Amy Hess Fischl, Joni Beck, Lillian Browning, Amy Carter, Jo Ellen Condon, Michelle Dennison, et al. 2022. 2022 National standards for diabetes self-management education and support. The science of Diabetes Self-Management and Care 48, no. 1: 44–59. doi:10.1177/26350106211072203.
   PubMedGoogle Scholar
• DeRosa, A.P., B.B. Nelson, D. Delgado, K.C. Mages, L. Martin, and J.C. Stribling. 2019. Involvement of information professionals in patient- and family-centered care initiatives: A scoping review. Journal of the Medical Library Association 107, no. 3: 314–322. doi:10.5195/jmla.2019.652.
   PubMed Web of Science ®Google Scholar
• Dickinson, J.K. 2018. The experience of diabetes-related language in diabetes care. Diabetes Spectrum 31, no. 1: 58–64. doi:10.2337/ds16-0082.
   PubMedGoogle Scholar
• Dickinson, Jane K., Susan J. Guzman, Melinda D. Maryniuk, Catherine A. O'Brian, Jane K. Kadohiro, Richard A. Jackson, Nancy D'Hondt, et al. 2017. The use of language in diabetes care and education. Diabetes Care 40, no. 12: 1790–1799. doi:10.2337/dci17-0041.
   PubMed Web of Science ®Google Scholar
• Eysenbach, G., J. Powell, O. Kuss, and E.-R. Sa. 2002. Empirical studies assessing the quality of health information for consumers on the world wide web: A systematic review. JAMA 287, no. 20: 2691–2700. doi:10.1001/jama.287.20.2691.
   PubMed Web of Science ®Google Scholar
• Giguère, Anik, Hervé Tchala Vignon Zomahoun, Pierre-Hugues Carmichael, Claude Bernard Uwizeye, France Légaré, Jeremy M. Grimshaw, Marie-Pierre Gagnon, et al. 2020. Printed educational materials: Effects on professional practice and healthcare outcomes. The Cochrane Database of Systematic Reviews 8, no. 8:CD004398. doi:10.1002/14651858.CD004398.pub4.
   PubMedGoogle Scholar
• Gregory, Gabriel A., Thomas I.G. Robinson, Sarah E. Linklater, Fei Wang, Stephen Colagiuri, Carine de Beaufort, Kim C. Donaghue, et al. 2022. Global incidence, prevalence, and mortality of type 1 diabetes in 2021 with projection to 2040: A modelling study. The Lancet. Diabetes & Endocrinology 10, no. 10: 741–760. doi:10.1016/S2213-8587(22)00218-2.
   PubMed Web of Science ®Google Scholar
• Grinstead, C., S. Sumner, and M. Inofuentes-Likins. 2022. Nurses’ experiences and perceptions of using online resources for patient and family education. Journal of Consumer Health on the Internet 26, no. 2: 199–206. doi:10.1080/15398285.2022.2067715.
   Web of Science ®Google Scholar
• Healy, M., A. Richard, and K. Kidia. 2022. How to reduce stigma and bias in clinical communication: A narrative review. Journal of General Internal Medicine 37, no. 10: 2533–2540. doi:10.1007/s11606-022-07609-y.
   PubMed Web of Science ®Google Scholar
• Himmelstein, G., D. Bates, and L. Zhou. 2022. Examination of stigmatizing language in the electronic health record. JAMA Network Open 5, no. 1:e2144967. doi:10.1001/jamanetworkopen.2021.44967.
   PubMed Web of Science ®Google Scholar
• Jones, M. 2020. Nursing2020 survey report: Empowering language in healthcare. Nursing 50, no. 12: 47–49. doi:10.1097/01.NURSE.0000721760.23111.e2.
   PubMedGoogle Scholar
• Kim, S.H, and A. Lee. 2016. Health-literacy-sensitive diabetes self-management interventions: A systematic review and meta-analysis. Worldviews on Evidence-Based Nursing 13, no. 4: 324–333. doi:10.1111/wvn.12157.
   PubMed Web of Science ®Google Scholar
• Language Matters Diabetes. n.d. Language matters: The guides. https://www.languagemattersdiabetes.com/the-documents (accessed August 22, 2022).
   Google Scholar
• Lewis, D.M. 2022. Language matters in diabetes and in diabetes science and research. Journal of Diabetes Science and Technology 16, no. 4: 1057–1058. doi:10.1177/19322968221085028.
   PubMedGoogle Scholar
• Liu, Nancy F., Adam S. Brown, Alexandra E. Folias, Michael F. Younge, Susan J. Guzman, Kelly L. Close, Richard Wood, et al. 2017. Stigma in people with type 1 or type 2 diabetes. Clinical Diabetes 35, no. 1: 27–34. doi:10.2337/cd16-0020.
   PubMedGoogle Scholar
• Novin, S., S.M. Konda, B. Xing, M. Bange, B. Blodi, and B. Burckhard. 2020. Diabetic retinopathy online: A powerful opportunity for revision. Journal of Consumer Health on the Internet 24, no. 3: 251–268. doi:10.1080/15398285.2020.1791668.
   Web of Science ®Google Scholar
• Office of Disease Prevention and Health Promotion, U.S. Department of Health and Human Services. n.d. Health literacy in healthy people 2030. https://health.gov/our-work/healthy-people/healthy-people-2030/health-literacy-healthy-people-2030 (accessed December 29, 2022).
   Google Scholar
• Ouyang, Wei., Wenzhao Xie, Zirui Xin, Haiyan He, Tingxiao Wen, Xiaoqing Peng, Pingping Dai, et al. 2021. Evolutionary overview of consumer health informatics: Bibliometric study on the web of science from 1999 to 2019. Journal of Medical Internet Research 23, no. 9:e21974. doi:10.2196/21974.
   PubMed Web of Science ®Google Scholar
• Polonsky, William H., Matthew Capehorn, Anne Belton, Susan Down, Aus Alzaid, Victoria Gamerman, Friedericke Nagel, et al. 2017. Physician–patient communication at diagnosis of type 2 diabetes and its links to patient outcomes: New results from the global IntroDia® study. Diabetes Research and Clinical Practice 127: 265–274. doi:10.1016/j.diabres.2017.03.016.
   PubMed Web of Science ®Google Scholar
• Portillo, D.N. 2022. The use of person-first language in diabetes care & research. How far have we come since ADA & ADCES recommendations?: A systematic review. Thesis, The University of Texas at El Paso. https://www.proquest.com/docview/2681016188/abstract/FF88F0AB787D4353PQ/1.
   Google Scholar
• Schabert, J., J.L. Browne, K. Mosely, and J. Speight. 2013. Social stigma in diabetes: A framework to understand a growing problem for an increasing epidemic. The Patient 6, no. 1: 1–10. doi:10.1007/s40271-012-0001-0.
   PubMedGoogle Scholar
• Schulz, P.J., and K. Nakamoto. 2013. Health literacy and patient empowerment in health communication: The importance of separating conjoined twins. Patient Education and Counseling 90, no. 1: 4–11. doi:10.1016/j.pec.2012.09.006.
   PubMed Web of Science ®Google Scholar
• Speight, J., and T. C. Skinner, T. Dunning, T. Black, G. Kilov, C. Lee, R. Scibilia, et al. 2021. Our language matters: Improving communication with and about people with diabetes. A position statement by diabetes Australia. Diabetes Research and Clinical Practice 173: 108655. doi:10.1016/j.diabres.2021.108655.
   PubMed Web of Science ®Google Scholar
• Srivastava, S.B. 2019. Language: A powerful tool in promoting healthy behaviors. American Journal of Lifestyle Medicine 13, no. 4: 359–361. doi:10.1177/1559827619839995.
   PubMed Web of Science ®Google Scholar
• Truccolo, I. 2016. Providing patient information and education in practice: The role of the health librarian. Health Information and Libraries Journal 33, no. 2: 161–166. doi:10.1111/hir.12142.
   PubMedGoogle Scholar
• Volk, R.M. 2007. Expert searching in consumer health: An important role for librarians in the age of the internet and the web. Journal of the Medical Library Association 95, no. 2: 203–e66. doi:10.3163/1536-5050.95.2.203.
   PubMed Web of Science ®Google Scholar