Role of Children in End-of-Life Treatment Planning Among Korean American Older Adults

REFERENCES

• Asian American Federation of New York Census Information Center . ( 2004 ). Census profile: New York City's Korean American population ( Vol. 2007 ). New York : Author .
   Google Scholar
• Blackhall , L. J. , Frank , G. , Murphy , S. T. , Michel , V. , Palmer , J. M. , & Azen , S. P. ( 1999 ). Ethnicity and attitudes towards life sustaining technology . Social Science and Medicine , 48 , 1779 – 1789 .
   PubMed Web of Science ®Google Scholar
• Blackhall , L. J. , Murphy , S. T. , Frank , G. , Michel , V. , & Azen , S. ( 1995 ). Ethnicity and attitudes toward patient autonomy . JAMA , 274 , 820 – 825 .
   PubMed Web of Science ®Google Scholar
• Bowman , K. W. , & Singer , P. A. ( 2001 ). Chinese seniors' perspectives on end-of-life decisions . Social Science and Medicine , 53 , 455 – 464 .
   PubMed Web of Science ®Google Scholar
• Bullock , K. , McGraw , S. A. , Blank , K. , & Bradley , E. H. ( 2005 ). What matters to older African Americans facing end-of-life decisions? A focus group study . Journal of Social Work in End-of-Life & Palliative Care , 1 , 3 – 19 .
   PubMedGoogle Scholar
• Butow , P. N. , Maclean , M. , Dunn , S. M. , Tattersall , M. H. , & Boyer , M. J. ( 1997 ). The dynamics of change: Cancer patients' preferences for information, involvement and support . Annals of Oncology , 8 ( 9 ), 857 – 863 .
   PubMed Web of Science ®Google Scholar
• Chow , N. ( 2004 ). Asian value and aged care . Geriatrics & Gerontology International , 4 , S21 – S25 .
   Google Scholar
• Degenholtz , H. B. , Arnold , R. A. , Meisel , A. , & Lave , J. R. (2002). Persistence of racial disparities in advance care plan documents among nursing home residents. Journal of the American Geriatrics Society , 50, 378–381.
   PubMed Web of Science ®Google Scholar
• Ditto , P. H. , Jacobson , J. A. , Smucker , W. D. , Danks , J. H. , & Fagerlin , A. ( 2006 ). Context changes choices: A prospective study of the effects of hospitalization on life-sustaining treatment preferences . Medical Decision Making , 26 , 313 – 322 .
   PubMed Web of Science ®Google Scholar
• Fan , R. ( 1997 ). Self-determination vs. family-determination: Two incommensurable principles of autonomy: A report from East Asia . Bioethics , 11 , 309 – 322 .
   PubMed Web of Science ®Google Scholar
• Fan , R. ( 2006 ). Confucian filial piety and long term care for aged parents . HEC Forum , 18 , 1 – 17 .
   PubMedGoogle Scholar
• Fetters , M. D. ( 1998 ). The family in medical decision making: Japanese perspectives . Journal of Clinical Ethics , 9 , 132 – 146 .
   PubMed Web of Science ®Google Scholar
• Foster , L. , & McLellan , L. ( 2002 ). Translating psychosocial insight into ethical discussions supportive of families in end-of-life decision-making . Social Work in Health Care , 35 , 37 – 51 .
   PubMed Web of Science ®Google Scholar
• Frank , G. , Blackhall , L. J. , Michel , V. , Murphy , S. T. , Azen , S. P. , & Park , K. ( 1998 ). A discourse of relationships in bioethics: Patient autonomy and end-of-life decision making among elderly Korean Americans . Medical Anthropology Quarterly , 12 , 403 – 423 .
   PubMed Web of Science ®Google Scholar
• Gutheil , I. , & Heyman , J. ( 2006 ). “They don't want to hear us”: Hispanic elders and adult children speak about end-of-life planning . Journal of Social Work in End-of-Life and Palliative Care , 2 , 55 – 70 .
   PubMedGoogle Scholar
• Gutheil , I. A. , & Heyman , J. C. ( 2005 ). Communication between older people and their health care agents: Results of an intervention . Health and Social Work , 30 , 107 – 116 .
   PubMed Web of Science ®Google Scholar
• Hines , S. C. , Glover , J. J. , Babrow , A. S. , Holley , J. L. , Badzek , L. A. , & Moss , A. H. ( 2001 ). Improving advance care planning by accommodating family preferences . Journal of Palliative Medicine , 4 , 481 – 489 .
   PubMedGoogle Scholar
• Hobart , K. R. ( 2002 ). Death and dying and the social work role . Journal of Gerontological Social Work , 36 , 181 – 192 .
   Google Scholar
• Hsu , C. , O'Connor , M. , & Lee , S. ( 2009 ). Understanding of death and dying for people of Chinese origin . Death Studies , 33 , 153 – 174 .
   PubMed Web of Science ®Google Scholar
• Kagawa-Singer , M. , & Blackhall , L. J. ( 2001 ). Negotiating cross-cultural issues at the end of life: “You got to go where he lives.” JAMA , 286 , 2993 – 3001 .
   PubMed Web of Science ®Google Scholar
• Kahana , B. , Dan , A. , Kahana , E. , & Kercher , K. ( 2004 ). The personal and social context of planning for end-of-life care . Journal of the American Geriatrics Society , 52 , 1163 – 1167 .
   PubMed Web of Science ®Google Scholar
• Kim , J. ( 2008 ). Adjustment problems among Korean elderly immigrants in New York and Los Angeles and effects of resources on psychological distress and status in the family . Dissertation Abstracts International , 69 ( 04 ), 1556, (UMI No. 3307607) .
   Google Scholar
• Kwak , J. , & Salmon , J. R. ( 2007 ). Attitudes and preferences of Korean-American older adults and caregivers on end-of-life care . Journal of the American Geriatrics Society , 55 , 1867 – 1872 .
   PubMed Web of Science ®Google Scholar
• Malcomson , H. , & Bisbee , S. ( 2009 ). Perspectives of healthy elders on advance care planning . Journal of the American Academy of Nurse Practitioners , 21 , 18 – 23 .
   PubMed Web of Science ®Google Scholar
• Mezey , M. D. , Leitman , R. , Mitty , E. L. , Bottrell , M. M. , & Ramsey , G. C. ( 2000 ). Why hospital patients do and do not execute an advance directive . Nursing Outlook , 48 , 165 – 171 .
   PubMed Web of Science ®Google Scholar
• Morrison , R. S. , Zayas , L. H. , Mulvihill , M. , Baskin , S. A. , & Meier , D. E. (1998). Barriers to completion of health care proxies: An examination of ethnic differences. Archives of Internal Medicine , 158, 2493–2497.
   PubMed Web of Science ®Google Scholar
• Murphy , S. T. , Palmer , J. M. , Azen , S. , Frank , G. , Michel , V. , & Blackhall , L. J. ( 1996 ). Ethnicity and advance care directives . Journal of Law, Medicine and Ethics , 24 , 108 – 117 .
   PubMed Web of Science ®Google Scholar
• Padgett , D. K. ( 2008 ). Qualitative methods in social work research , (2nd ed.) . Thousand Oaks , CA : Sage Publications .
   Google Scholar
• Park , M. , & Chesla , C. ( 2007 ). Revisiting Confucianism as a conceptual framework for Asian family study . Journal of Family Nursing , 13 ( 3 ), 293 – 311 .
   PubMed Web of Science ®Google Scholar
• Perkins , H. S. , Geppert , C. M. , Gonzales , A. , Cortez , J. D. , & Hazuda , H. P. ( 2002 ). Cross-cultural similarities and differences in attitudes about advance care planning . Journal of General Internal Medicine , 17 , 48 – 57 .
   PubMed Web of Science ®Google Scholar
• Phipps , E. , True , G. , Harris , D. , Chong , U. , Tester , W. , et al. . ( 2003 ). Approaching the end of life: Attitudes, preferences, and behaviors of African-American and white patients and their family caregivers . Journal of Clinical Oncology , 21 , 549 – 554 .
   PubMed Web of Science ®Google Scholar
• Reeves , T. J. , & Bennett , C. E. ( 2004 ). We the people: Asians in the United States (Census 2000 Special Reports, Vol. CENSR-17). Washington, DC: U.S. Department of Commerce, Economics and Statistics Administration, U.S. Census Bureau.
   Google Scholar
• Searight , H. R. , & Gafford , J. ( 2005a ). Cultural diversity at the end of life: Issues and guidelines for family physicians . American Family Physician , 71 , 515 – 522 .
   PubMed Web of Science ®Google Scholar
• Searight , H. R. , & Gafford , J. ( 2005b ). “It's like playing with your destiny”: Bosnian immigrants' views of advance directives and end-of-life decision-making . Journal of Immigrant Health , 7 , 195 – 203 .
   PubMedGoogle Scholar
• Seymour , J. , Gott , M. , Bellamy , G. , Ahmedzai , S. H. , & Clark , D. ( 2004 ). Planning for the end of life: The views of older people about advance care statements . Social Science and Medicine , 59 , 57 – 68 .
   PubMed Web of Science ®Google Scholar
• Shrank , W. H. , Kutner , J. S. , Richardson , T. , Mularski , R. A. , Fischer , S. , & Kagawa-Singer , M. ( 2005 ). Focus group findings about the influence of culture on communication preferences in end-of-life care . Journal of General Internal Medicine , 20 , 703 – 709 .
   PubMed Web of Science ®Google Scholar
• Strauss , A. , & Corbin , J. ( 1998 ). Basics of qualitative research: Techniques and procedures for developing grounded theory . Thousand Oaks : Sage Publications .
   Google Scholar
• Sung , K. ( 1995 ). Measures and dimensions of filial piety in Korea . Gerontologist , 35 , 240 – 247 .
   PubMed Web of Science ®Google Scholar
• Teno , J. , Lynn , J. , Wenger , N. , Phillips , R. , Murphy , D. , et al. . ( 1997 ). Advance directives for seriously ill hospitalized patients: Effectiveness with the Patient Self-Determination Act and the SUPPORT Intervention . Journal of the American Geriatrics Society , 45 , 500 – 507 .
   PubMed Web of Science ®Google Scholar
• U.S. Census Bureau. (n.d.). 2005–2007 American community survey 3-year estimates. Retrieved August 20, 2009, from http://factfinder.census.gov/servlet/STTable?_bm=y&-geo_id=01000US&-qr_name=ACS_2007_3YR_G00_S2601A&-ds_name=ACS_2007_3YR_G00_&-redoLog=f
   Google Scholar
• Vig , E. K. , Taylor , J. S. , Starks , H. , Hopley , E. K. , & Fryer-Edwards , K. ( 2006 ). Beyond substituted judgment: How surrogates navigate end-of-life decision-making . Journal of the American Geriatrics Society , 54 ( 11 ), 1688 – 1693 .
   PubMed Web of Science ®Google Scholar
• Waters , C. M. (2001). Understanding and supporting African Americans' perspectives of end-of-life care planning and decision making. Qualitative Health Research , 11, 385–398.
   PubMed Web of Science ®Google Scholar
• Werth , J. L. J. , Blevins , D. , Toussaint , K. L. , & Durham , M. R. ( 2002 ). The influence of cultural diversity on end-of-life care and decisions . American Behavioral Scientist , 46 , 204 – 219 .
   Web of Science ®Google Scholar
• Winter , L. , & Parks , S. M. ( 2008 ). Family discord and proxy decision makers' end-of-life treatment decisions . Journal of Palliative Medicine , 11 ( 8 ), 1109 – 1113 .
   Google Scholar