A Theoretical Exploration of Live Discharge from Hospice for Caregivers of Adults with Dementia

References

• Adshead, G. (2010). Becoming a caregiver: Attachment theory and poorly performing doctors. Medical Education, 44(2), 125–131. doi:10.1111/j.1365-2923.2009.03556.x
   PubMed Web of Science ®Google Scholar
• Allan, K. (2006). Contemporary social and sociological theory: Visualizing social worlds. Thousand Oaks, CA: Pine Forge/Sage.
   Google Scholar
• Alzheimer’s Association. (2019). 2019 Alzheimer’s disease faces and figures. Retrieved from https://www.alz.org/media/Documents/alzheimers-facts-and-figures-2019-r.pdf.
   Google Scholar
• Baum, N. (2007). Therapists’ responses to treatment termination: An inquiry into the variables that contribute to therapists’ experiences. Clinical Social Work Journal, 35(2), 97–106. doi:10.1007/s10615-006-0066-0
   Web of Science ®Google Scholar
• Blumer, H. (1969). Symbolic interactionism: Perspective and method. Englewood Cliffs, NJ: Prentice-Hall.
   Google Scholar
• Boss, P. (1999). Ambiguous loss: Learning to live with unresolved grief. Cambridge, MA: Harvard University Press.
   Google Scholar
• Boss, P. (2006). Loss, trauma, and resilience: Therapeutic work with ambiguous loss. New York, NY: W.W. Norton and Company, Inc.
   Google Scholar
• Boss, P. (2010). The trauma and complicated grief of ambiguous loss. Pastoral Psychology, 59(2), 137–145. doi:10.1007/s11089-009-0264-0
   Google Scholar
• Bowlby, J. (1961). Processes of mourning. International Journal of Psycho-Analysis, 42, 317–340.
   PubMed Web of Science ®Google Scholar
• Bowlby, J. (1969). Attachment and loss: Vol. I. Attachment. New York, NY: Basic Books. doi:10.1093/sw/26.4.355
   Google Scholar
• Bowlby, J. (1977). The making and breaking of affectional bonds: I. Aetiology and psychopathology in the light of attachment theory. The British Journal of Psychiatry: The Journal of Mental Science, 130(3), 201–210. doi:10.1192/bjp.130.3.201
   PubMed Web of Science ®Google Scholar
• Bowlby, J. (1980). Attachment and Loss, Vol. 3: Sadness and depression. New York: Basic Books.
   Google Scholar
• Campbell, R. W. (2015). Being discharged from hospice alive: The lived experience of patients and families. Journal of Palliative Medicine, 18(6), 495–499. doi:10.1089/jpm.2014.0228
   PubMed Web of Science ®Google Scholar
• Centers for Medicare and Medicaid Services. (2015). Medicare benefit policy manual. Retrieved https://www.cms.gov/Regulations-and-Guidance/Guidance/Manuals/downloads/bp102c15.pdf.
   Google Scholar
• Chiao, C. Y., Wu, H. S., & Hsiao, C. Y. (2015). Caregiver burden for informal caregivers of patients with dementia: A systematic review. International Nursing Review, 62(3), 340–350. doi:10.1111/inr.12194
   PubMed Web of Science ®Google Scholar
• Doka, K. (2000). Mourning psychological loss: Anticipatory mourning in Alzheimer’s Disease, ALS, and irreversible coma. In T. Rando (Ed.), Clinical dimensions of anticipatory mourning: Theory and practice in working with the dying, their loved ones, and their caregivers (pp. 447–492). Champagne, IL: Research Press.
   Google Scholar
• Dupuis, S. L. (2002). Understanding ambiguous loss in the context of dementia care: Adult children’s perspectives. Journal of Gerontological Social Work, 37(2), 93–115. doi:10.1300/J083v37n02_08
   Google Scholar
• Electronic Code of Federal Regulations. (2012). Title 42: Public health, part 418: Hospice care. Retrieved from https://www.gpo.gov/fdsys/pkg/CFR-2011-title42-vol3/pdf/CFR-2011-title42-vol3-part418.pdf.
   Google Scholar
• Funk, L. M., Allan, D. E., & Stajduhar, K. I. (2009). Palliative family caregivers’ accounts of health care experiences: The importance of “security. Palliative & Supportive Care, 7(4), 435–447. doi:10.1017/S1478951509990447
   PubMedGoogle Scholar
• Gaugler, J. E., Kane, R. L., Kane, R. A., Clay, M. S., & Newcomer, R. (2005). The effects of duration of caregiving on institutionalization. The Gerontologist, 45(1), 78–89. doi:10.1093/geront/45.1.78
   PubMed Web of Science ®Google Scholar
• Gelso, C., Palma, B., & Bhatia, A. (2013). Attachment theory as a guide to understanding the real relationship in psychotherapy. Journal of Clinical Psychology, 69(11), 1160–1171. doi:10.1002/jclp.22043
   PubMed Web of Science ®Google Scholar
• Hawkins, A. C., Howard, R. A., & Oyebode, J. R. (2007). Stress and coping in hospice nursing staff. The impact of attachment styles. Psycho-oncology, 16(6), 563–572. doi:10.1002/pon.1064
   PubMed Web of Science ®Google Scholar
• Hooper, L. M., Tomek, S., & Newman, C. (2012). Using attachment theory in medical settings: Implications for primary care physicians. Journal of Mental Health (Abingdon, England), 21(1), 23–37. doi:10.3109/09638237.2011.613955
   PubMed Web of Science ®Google Scholar
• Johnson, K. S., Elbert-Avila, K., Kuchibhatla, M., & Tulsky, J. A. (2012). Characteristics and outcomes of hospice enrollees with dementia discharged alive. Journal of the American Geriatrics Society, 60(9), 1638–1644. doi:10.1111/j.1532-5415.2012.04117.x
   PubMed Web of Science ®Google Scholar
• Kaiser Family Foundation. (2019). An overview of Medicaid. Retrieved https://www.kff.org/medicare/issue-brief/an-overview-of-medicare/.
   Google Scholar
• Kirchmann, H., Nolte, T., Runkewitz, K., Bayerle, L., Becker, S., Blasczyk, V., … Strauss, B. (2013). Associations between adult attachment characteristics, medical burden, and life satisfaction among older primary care patients. Psychology and Aging, 28(4), 1108–1114. doi:10.1037/a0034750
   PubMed Web of Science ®Google Scholar
• Kubler-Ross, E. (1961). On death and dying. New York, NY: Macmillan.
   Google Scholar
• Lindemann, E. (1944). Symptomatology and management of acute grief. American Journal of Psychiatry, 101(2), 141–148. doi:10.1176/ajp.101.2.141
   Google Scholar
• Lloyd, B. T., & Stirling, C. (2011). Ambiguous gain: Uncertain benefit of service use for dementia carers. Sociology of Health & Illness, 33(6), 899–913. doi:10.1111/j.1467-9566.2010.01332.x
   PubMed Web of Science ®Google Scholar
• McCoyd, J. L. M., & Walter, C. A. (2016). Grief and loss across the lifespan: A biopsychosocial perspective. New York, NY: Springer Publishing Company.
   Google Scholar
• Mead, G. (1934). Mind, self and society: From the standpoint of a social behavioralist (C.W. Morris, Ed.). Chicago, IL: University of Chicago Press.
   Google Scholar
• Meier, D.E. (2010). The development status and future of palliative care. In D.E. Meier, S.L. Isaacs, & R.G. Hughes (Eds.), Palliative care: Transforming the care of serious illness (pp. 3–76). San Francisco, CA: Jossey-Bass.
   Google Scholar
• Mikulincer, M., Shaver, P. R., & Berant, E. (2013). An attachment perspective on therapeutic processes and outcomes. Journal of Personality, 81(6), 606–616. doi:10.1111/j.1467-6494.2012.00806.x
   PubMed Web of Science ®Google Scholar
• Miley, K., O’Melia, M., & DuBois, B. (2011). Generalist social work practice: An empowering approach (6th ed.). Boston, MA: Allyn & Bacon.
   Google Scholar
• National Hospice and Palliative Care Organization (NHPCO). (2012). Cost savings when hospice care is provided in the nursing home. Retrieved from http://hospiceactionnetwork.org/linked_documents/get_informed/issues/nursing_home/Cost_Savings_Hospice_Nursing_Home2012.pdf.
   Google Scholar
• National Hospice and Palliative Care Organization (NHPCO). (2019). Hospice facts and figures. Retrieved from https://39k5cm1a9u1968hg74aj3x51-wpengine.netdna-ssl.com/wp-content/uploads/2019/07/2018_NHPCO_Facts_Figures.pdf.
   Google Scholar
• Neimeyer, R. (2000). Searching for the meaning of meaning: Grief therapy and the process of reconstruction. Death Studies, 24(6), 541–558. doi:10.1080/07481180050121480
   PubMed Web of Science ®Google Scholar
• Parker-Oliver, D. (2000). The social construction of the “dying role” and the hospice drama. OMEGA - Journal of Death and Dying, 40(4), 493–512. doi:10.2190/YT9D-12Y2-54LY-TCMN
   Web of Science ®Google Scholar
• Parkes, C. (1972). Bereavement: Studies of grief in adult life. London: Routledge
   Google Scholar
• Parsons, T. (1972). Definitions of health and illness in the light of American values and social structure. In E.G. Jaco (Ed.), Patients, physicians and illnesses (pp. 97–117). New York, NY: The Free Press.
   Google Scholar
• Pederson, S. N., & Emmers-Sommer, T. M. (2012). I’m not trying to be cured, so there’s not much he can do for me”: Hospice patients’ constructions of hospice’s holistic care approach in a biomedical culture. Death Studies, 36(5), 419–446. doi:10.1080/07481187.2011.584024
   PubMed Web of Science ®Google Scholar
• Perren, S., Schmid, R., Herrmann, S., & Wettstein, A. (2007). The impact of attachment on dementia-related problem behavior and spousal caregivers’ well-being. Attachment & Human Development, 9(2), 163–178. doi:10.1080/14616730701349630
   PubMed Web of Science ®Google Scholar
• Pietromonaco, P. R., Uchino, B., & Schetter, C. D. (2013). Close relationship processes and health: Implications of attachment theory for health and disease. Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association, 32(5), 499–513. doi:10.1037/a0029349
   PubMed Web of Science ®Google Scholar
• Reith, M., & Payne, M. (2009). Social work in end-of-life and palliative care. Chicago, IL: Lyceum Books, Inc.
   Google Scholar
• Russell, D., Diamond, E. L., Lauder, B., Dignam, R. R., Dowding, D. W., Peng, T. R., … Bowles, K. H. (2017). Frequency and risk factors for live discharge from hospice. Journal of the American Geriatrics Society, 65(8), 1726–1732. doi:10.1111/jgs.14859
   PubMed Web of Science ®Google Scholar
• Sanders, S., Ott, C. H., Kelber, S. T., & Noonan, P. (2008). The experience of high levels of grief in caregivers of persons with Alzheimer's disease and related dementia. Death Studies, 32(6), 495–523. doi:10.1080/07481180802138845
   PubMed Web of Science ®Google Scholar
• Simon, B. L. (1994). Are theories for practice necessary? Yes! Journal of Social Work Education, 30(2), 144–148. doi:10.1080/10437797.1994.10672224
   Web of Science ®Google Scholar
• Teno, J. M., Plotzke, M., Gozalo, P., & Mor, V. (2014). A national study of live discharges from hospice. Journal of Palliative Medicine, 17(10), 1121–1127. doi:10.1089/jpm.2013.0595
   PubMed Web of Science ®Google Scholar
• The Moran Company. (2008). Will elimination of the optional Medicaid hospice benefit save the state of Florida money? A White Paper. http://www.nationalhospiceanalytics.com/library/Medicaid/5_WA_FL_Moran_Study_2008.pdf
   Google Scholar
• Vasileiou, K., Barnett, J., Barreto, M., Vines, J., Atkinson, M., Lawson, S., & Wilson, M. (2017). Experiences of loneliness associated with being an informal caregiver: A qualitative investigation. Frontiers of Psychology, 8, 585.
   PubMed Web of Science ®Google Scholar
• Wallace, C. L. (2016). Overcoming barriers in care for the dying: Theoretical analysis of an innovative program model. Social Work in Health Care, 55(7), 503–517. doi:10.1080/00981389.2016.1183552
   PubMed Web of Science ®Google Scholar
• Wilson, S. A., & Daley, B. J. (1998). Attachment/detachment: Forces influencing care of the dying in long-term care. Journal of Palliative Medicine, 1(1), 21–34. doi:10.1089/jpm.1998.1.21
   PubMedGoogle Scholar
• Wladkowski, S. P. (2016). Live discharge from hospice and the grief experience of dementia caregivers. Journal of Social Work in End-of-Life & Palliative Care, 12(1–2), 47–62. doi:10.1080/15524256.2016.1156600
   PubMed Web of Science ®Google Scholar
• Wladkowski, S. P. (2017). Dementia caregivers and live discharge from hospice: What happens when hospice leaves? Journal of Gerontological Social Work, 60(2), 138–154. doi:10.1080/01634372.2016.1272075
   PubMed Web of Science ®Google Scholar
• Wladkowski, S. P., & Wallace, C. L. (2017). Live discharge from hospice care: Social work perspectives. Poster presentation at the International Association of Gerontology and Geriatrics (IAGG) World Congress of Gerontology and Geriatrics. San Francisco, CA.
   Google Scholar
• Wladkowski, S. P., & Wallace, C. L. (2019). Current practices of live discharge from hospice: Social work perspectives. Health & Social Work, 44(1), 30–38. doi:10.1093/hsw/hly040
   PubMed Web of Science ®Google Scholar
• Worden, J. W. (2009). Grief counseling and grief therapy: A handbook for the mental health practitioner. New York, NY: Springer Publishing Company, LLC.
   Google Scholar