Sexuality Education and Implications for Quality of Care for Individuals with Adult Onset Disability: A Review of Current Literature

References

• Aaberg, V. (2016). The state of sexuality education in baccalaureate nursing programs. Nurse Education Today, 44, 14–19. doi:10.1016/j.nedt.2016.05.009
   Google Scholar
• American Occupational Therapy Association. (2014). Occupational therapy practice framework: Domain and process (3rd ed.). American Journal of Occupational Therapy, 68, S1–S48.
   Google Scholar
• American Sexual Health Association (2016). Finding the words. Retrieved from http://www.ashasexualhealth.org/
   Google Scholar
• Annon, J. S. (1976). The PLISSIT Model: A proposed conceptual scheme for the behavioral treatment of sexual problems. Journal of Sex Education and Therapy, 2(1), 1–15.
   Google Scholar
• Areskoug-Josefsson, K., Larsson, A., Gard, G., Rolander, B., & Juuso, P. (2016). Health care students' attitudes towards working with sexual health in their professional roles: Survey of students at nursing, physiotherapy and occupational therapy programmes. Sexuality and Disability, 34(3), 289–302. doi:10.1007/s11195-016-9442-z
   Google Scholar
• Becker, H., Stuifbergen, A., & Tinkle, M. (1997). Reproductive health care experiences of women with physical disabilities: A qualitative study. Archives of Physical Medicine and Rehabilitation, 78(12 Suppl.), S26–S33. doi:10.1016/S0003-9993(97)90218-5
   Google Scholar
• Berman, L., Berman, J., Felder, S., Pollets, D., Chhabra, S., Miles, M., & Powell, J. A. (2003). Seeking help for sexual function complaints: What gynecologists need to know about the female patient's experience. Fertility and Sterility, 79(3), 572–576. doi:10.1016/S0015-0282(02)04695-2
   Google Scholar
• Booth, S., Kendall, M., Fronek, P., Miller, D., & Geraghty, T. (2003). Training the interdisciplinary team in sexuality rehabilitation following spinal cord injury: A needs assessment. Sexuality and Disability, 21(4), 249–261. doi:10.1023/B:SEDI.0000010067.27044.7e
   Google Scholar
• Browne, J., & Russell, S. (2005). My home, your workplace: People with physical disability negotiate their sexual health without crossing professional boundaries. Disability & Society, 20(4), 375–388. doi:10.1080/09687590500086468
   Google Scholar
• Cain, D. J., Keenan, K., & Rubin, S. (2016). Humanistic psychotherapies: Handbook of research and practice. Washington, DC: American Psychological Association.
   Google Scholar
• Courtney-Long, E. A., Carroll, D. D., Zhang, Q. C., Stevens, A. C., Griffin-Blake, S., Armour, B. S., & Campbell, V.A. (2015). Prevalence of disability and disability type among adults: United States, 2013. MMWR: Morbidity and Mortality Weekly Report, 64(29), 777–783.
   Google Scholar
• Criniti, S., Andelloux, M., Woodland, M., Montgomery, O., & Hartmann, S. (2014). The state of sexual health education in U.S. medicine. American Journal of Sexuality Education, 9(1), 65–80. doi:10.1080/15546128.2013.854007
   Google Scholar
• Diamond, L., & Huebner, D. (2012). Is good sex good for you? Rethinking sexuality and health. Social and Personality Psychology Compass, 6(1), 54–69. doi:10.1111/j.1751-9004.2011.00408.x
   Google Scholar
• Department of Health and Human Services. (2014a). Disability and health. Retrieved from https://www.healthypeople.gov/2020/topics-objectives/topic/disability-and-health
   Google Scholar
• Dogan, T., Tugut, N., & Golbasi, Z. (2013). The relationship between sexual quality of life, happiness, and satisfaction with life in married Turkish women. Sexuality and Disability, 31(3), 239–247. doi:10.1007/s11195-013-9302-z
   Google Scholar
• Dune, T. (2012). Sexuality and physical disability: Exploring the barriers and solutions in healthcare. Sexuality and Disability, 30(2), 247–255. doi:10.1007/s11195-012-9262-8
   Google Scholar
• Dyer, K., Aubeeluck, A., Yates, N., & Nair, R. (2015). A multiple timepoint pre-post evaluation of a ‘sexual respect’ DVD to improve competence in discussing sex with patients with disability. Sexuality and Disability, 33(3), 385–397. doi:10.1007/s11195-014-9375-3
   Google Scholar
• East, L., & Orchard, T. (2014). Somebody else's job: Experiences of sex education among health professionals, parents and adolescents with physical disabilities in southwestern Ontario. Sexuality and Disability, 32(3), 335–350. doi:10.1007/s11195-013-9289-5
   Google Scholar
• Eglseder, K. (2017). Sexuality research in occupational therapy education: Enhancing knowledge and comfort in addressing sexuality. SIS Quarterly Practice Connections, 2(3), 28–30.
   Google Scholar
• Esmail, S., Darry, K., Walter, A., & Knupp, H. (2010). Attitudes and perceptions towards disability and sexuality. Disability and Rehabilitation, 32(14), 1148–1155. doi:10.3109/09638280903419277
   Google Scholar
• Ford J. V., Barnes, R., Rompalo, A., Hook, E. W. (2013). Sexual health training and education in the U.S. Public Health Reports, 128(Suppl. 1), 96–101. doi:10.1177/00333549131282S111
   Google Scholar
• Forsythe, E., & Horsewell, J. (2006). Sexual rehabilitation of women with spinal cord injury. Spinal Cord, 44(4), 234–241. doi:10.1038/sj.sc.3101844
   Google Scholar
• Fronek, P., Booth, S., Kendall, M., Miller, D., & Geraghty, T. A. (2005). The effectiveness of a sexuality training program for the interdisciplinary spinal cord injury rehabilitation team. Sexuality and Disability, 23(2), 51–63. doi:10.1007/s11195-005-4669-0
   Google Scholar
• Fronek, P., Kendall, M., Booth, S., Eugarde, E., & Geraghty, T. A. (2011). Longitudinal study of sexuality training for the interdisciplinary rehabilitation team. Sexuality and Disability, 29(2), 87–100. doi:10.1007/s11195-010-9177-1
   Google Scholar
• Fuqing, G., Yunpeng, D., Taowen, P., Min, L., & Hongliang, S. (2015). Evolution of human medical model and development course of medical humanistic spirit. Biomedical Research, 26(3), 407–414.
   Google Scholar
• Gianotten, W., Bender, J., Post, M., & Höing, M. (2006). Training in sexology for medical and paramedical professionals: A model for the rehabilitation setting. Sexual and Relationship Therapy, 21(3), 303–317. doi:10.1080/14681990600754559
   Google Scholar
• Gieselman, J., Stark, N., & Farruggia, M. (2000). Implications of the situated learning model for teaching and learning nursing research. Journal of Continuing Education in Nursing, 31(6), 263–268.
   Google Scholar
• Haboubin, L. N. (2003). Views of health professionals on discussing sexual issues with patients. Disability and Rehabilitation, 25(6), 291–296. doi:10.1080/0963828021000031188
   Google Scholar
• Hartshorn, C., D'Castro, E., & Adams, J. (2013). “SI-SRH”––A new model to manage sexual health following a spinal cord injury: Our experience. Journal of Clinical Nursing, 22(23-24), 3541–3548. doi:10.1111/jocn.12449
   Google Scholar
• Helland, Y., Kjeken, I., Garratt, A., Kvien, T., & Dagfinrud, H. (2013). Current practice and barriers to the management of sexual issues in rheumatology: Results of a survey of health professionals. Annals of the Rheumatic Diseases, 42(1), 20–26. doi:10.3109/03009742.2012.709274
   Google Scholar
• Higgins, A., Sharek, D., Nolan, M., Sheerin, B., Flanagan, P., Slaicuinaite, S., Walsh, H. (2012). Mixed methods evaluation of an interdisciplinary sexuality education programme for staff working with people who have an acquired physical disability. Journal of Advanced Nursing, 68(11), 2559–2569. doi:10.1111/j.1365-2648.2012.05959.x
   Google Scholar
• Hyland, A., & Mc Grath, M. (2012). Sexuality and occupational therapy in Ireland: A case of ambivalence? Disability and Rehabilitation, 35(1), 73–80. doi:10.3109/09638288.2012.688920
   Google Scholar
• Kedde, H., van de Wiel, H., Schultz, W., Vanwesenbeeck, I., & Bender, J. (2012). Sexual health problems and associated help-seeking behavior of people with physical disabilities and chronic diseases. Journal of Sex & Marital Therapy, 38(1), 63–78. doi:10.1080/0092623X.2011.569638
   Google Scholar
• Kendall, M., Booth, S., Fronek, P., Miller, D., & Geraghty, T. A. (2003). The development of a scale to assess the training needs of professionals in providing sexuality rehabilitation following spinal cord injury. Sexuality and Disability, 21(1), 49–64. doi:10.1023/A:1023510925729
   Google Scholar
• Kingsberg, S. (2004). Just ask! Talking to patients about sexual function. Sexuality, Reproduction and Menopause, 2(4), 199–203. doi:10.1016/j.sram.2004.11.007
   Google Scholar
• Lottes, I. (2013). Sexual rights: Meanings, controversies, and sexual health promotion. Journal of Sex Research, 50(3–4), 367–391. doi:10.1080/00224499.2013.764380
   Google Scholar
• Marwick, C. (1999). Survey says patients expect little physician help on sex. Journal of the American Medical Association, 281(23), 2173–3174. doi:10.1001/jama.281.23.2173
   Google Scholar
• McCabe, M. P., Cummins, R.A., & Deeks, A. A. (2000). Sexuality and quality of life among people with physical disability. Sexuality and Disability, 18(2), 115–123. doi:10.1023/A:1005562813603
   Google Scholar
• McClure, L. (2012). Where is the sex in mental health practice? A discussion of sexuality care needs of mental health clients. Journal of Ethics in Mental Health, 7, 1–6.
   Google Scholar
• Miller, S., & Byers, E. (2010). Psychologists' sexual education and training in graduate school. Canadian Journal of Behavioural Science, 42(2), 93–100. doi:10.1037/a0018571
   Google Scholar
• Milligan, M. S., & Neufeldt, A. H. (2001). The myth of asexuality: a survey of social and empirical evidence. Sexuality and Disability, 19(2), 91–109.
   Google Scholar
• Moin, V., Duvdevany, I., & Mazor, D. (2009). Sexual identity, body image and life satisfaction among women with and without physical disability. Sexuality and Disability, 27(2), 83–95. doi:10.1007/s11195-009-9112-5
   Google Scholar
• Morreale, M., Arfken, C., & Balon, R. (2010). Survey of sexual education among residents from different specialties. Academic Psychiatry, 34(5), 346–348. doi:10.1176/appi.ap.34.5.346
   Google Scholar
• Neistadt, M. (1986). Sexuality counseling for adults with disabilities: A module for an occupational therapy curriculum. American Journal of Occupational Therapy, 40(8), 542–545. doi:10.5014/ajot.40.8.542
   Google Scholar
• Onda, E. (2012). Situated cognition: Its relationship to simulation in nursing education. Clinical Simulation in Nursing, 8(7), 273–280. doi:10.1016/j.ecns.2010.11.004
   Google Scholar
• Payne, M. J., Greer, D. L., & Corbin, D. E. (1988). Sexual functioning as a topic in occupational therapy training: A survey of programs. The American Journal of Occupational Therapy, 42(4), 227–230. doi:10.5014/ajot.42.4.227
   Google Scholar
• Porat, O., Heruti, R., Navon-Porat, H., & Hardoff, D. (2012). Counseling young people with physical disabilities regarding relationships and sexuality issues: Utilization of a novel service. Sexuality and Disability, 30(3), 311–317. doi:10.1007/s11195-011-9241-5
   Google Scholar
• Quinn, C., & Happell, B. (2012). Getting BETTER: Breaking the ice and warming to the inclusion of sexuality in mental health nursing care. International Journal of Mental Health Nursing, 21(2), 154–162. doi:10.1111/j.1447-0349.2011.00783.x
   Google Scholar
• Ricciardi, R., Szabo, C. M., & Poullos, A. Y. (2007). Sexuality and spinal cord injury. The Nursing. Clinics of North America, 42(4), 675.
   Google Scholar
• Romeo, A. J., Wanlass, R., & Arenas, S. (1993). A profile of psychosexual functioning in males following spinal cord injury. Sexual Disability, 11(4), 269–276. doi:10.1007/BF01102171
   Google Scholar
• Rowen, T. S., Stein, S., & Tepper, M. (2015). Sexual health care for people with physical disabilities. Journal of Sexual Medicine, 12(3), 584–589. doi:10.1111/jsm.12810
   Google Scholar
• Simpson, G., Anwar, S., Wilson, J., & Bertapelle, T. (2006). Improving the rehabilitative management of client sexual health concerns after neurological disability: Evaluation of a staff sexuality training programme in New Zealand. Clinical Rehabilitation, 20(10), 847–859. doi:10.1177/0269215506072180
   Google Scholar
• Solursh, D. S., Ernst, J. L., Lewis, R. W., Prisant, L. M., Mills, T. M., Solursh, L. P., … Salazar, W. H. (2003). The human sexuality education of physicians in North American medical schools. International Journal of Impotence Research, 15(Suppl. 5), S41–S45. doi:10.1038/sj.ijir.3901071
   Google Scholar
• Tepper, M. S. (2000). Sexuality and disability: The missing discourse of pleasure. Sexuality and Disability, 18(4), 283–290. doi:10.1023/A:1005698311392
   Google Scholar
• Tiefer, L. (2010). Beyond the medical model of women's sexual problems: A campaign to resist the promotion of female sexual dysfunction. Sexual and Relationship Therapy, 25(2), 197–205. doi:10.1080/14681991003750434
   Google Scholar
• United States Census Bureau. (2012). Americans with disabilities [2010]. Retrieved from http://www.census.gov/prod/2012pubs/p70-131.pdf
   Google Scholar
• U.S. Department of Health and Human Services, Office of Disease Prevention and Health Promotion. (2017). Disability and health. Retrieved from https://www.healthypeople.gov/2020/topics-objectives/topic/disability-and-health
   Google Scholar
• Valvano, A. K., West, L. M., Wilson, C. K., Macapagal, K. R., Penwell-Waines, L. M., Waller, J. L., & Steplemen, L. M. (2014). Health professions students' perceptions of sexuality in patients with physical disability. Sexuality and Disability, 32(3), 413–427. doi:10.1007/s11195-014-9347-7
   Google Scholar
• Walker, B. L., & Harrington, D. (2002). Effects of staff training on staff knowledge and attitudes about sexuality. Educational Gerontology, 28(8), 639–654. doi:10.1080/03601270290081452
   Google Scholar
• Weerakoon, P., Sitharthan, G., & Skowronski, D. (2008). Online sexuality education and health professional students' comfort in dealing with sexual issues. Sexual and Relationship Therapy, 23(3), 247–257. doi:10.1080/14681990802199926
   Google Scholar
• World Health Organization. (2010). Developing sexual health programmes: A framework for action. Retrieved from http://www.who.int/reproductivehealth/publications/sexual_health/rhr_hrp_10_22/en/
   Google Scholar
• World Health Organization. (2016). Disabilities. http://www.who.int/topics/disabilities/en/
   Google Scholar
• World Health Organization. (2016a). Sexual and reproductive health. Retrieved from http://wwwwho.int/reproductivehealth/topics/sexual_health/conceptual_elements/en/
   Google Scholar
• Zheng, R. (2012). Effects of situated learning on student's knowledge acquisition: An individual differences perspective. Journal of Educational Computing Research, 43(4), 467–487. doi:10.2190/EC.43.4.c
   Google Scholar