Social Boundaries in Young Adult Females with Down Syndrome as a Foundation for Sexuality Education

References

• Adamson, L. B., Deckner, D. F., & Bakeman, R. (2010). Early interests and joint engagement in typical development, autism, and Down syndrome. Journal of Autism and Developmental Disorders, 40(6), 665–676. https://doi.org/10.1007/s10803-009-0914-1
   PubMed Web of Science ®Google Scholar
• Alfaraj, A., & Kuyini, A. B. (2014). The use of technology to support the learning of children with down syndrome in Saudi Arabia. World Journal of Education, 4(6), 42–53. https://doi.org/10.5430/wje.v4n6p42
   Google Scholar
• Bittles, A. H., Bower, C., Hussain, R., & Glasson, E. J. (2007). The four ages of Down syndrome. European Journal of Public Health, 17(2), 221–225. https://doi.org/10.1093/eurpub/ckl103
   PubMed Web of Science ®Google Scholar
• Cox, V., Orchard, T., Cushing, P., & Kinsella, E. A. (2019). Mediators of Inclusion. Research Involving Participants with Cognitive Disability and Differences: Ethics, Autonomy, Inclusion, and Innovation, 109–120.
   Google Scholar
• de Graaf, G., Buckley, F., & Skotko, B. G. (2017). Estimation of the number of people with Down syndrome in the United States. Genetics in Medicine: Official Journal of the American College of Medical Genetics, 19(4), 439–447. https://doi.org/10.1038/gim.2016.127
   PubMed Web of Science ®Google Scholar
• de Graaf, G., Buckley, F., Dever, J., & Skotko, B. G. (2017). Estimation of live birth and population prevalence of Down syndrome in nine US states. American Journal of Medical Genetics. Part A, 173(10), 2710–2719. https://doi.org/10.1002/ajmg.a.38402
   PubMed Web of Science ®Google Scholar
• Dukes, E., & McGuire, B. E. (2009). Enhancing capacity to make sexuality-related decisions in people with an intellectual disability. Journal of Intellectual Disability Research: JIDR, 53(8), 727–734. https://doi.org/10.1111/j.1365-2788.2009.01186.x
   PubMedGoogle Scholar
• Enow, H., Nagalingam, P., Singh, R., & Madhusaudan, D. T. (2015). Need for a comprehensive sex and relationship education programme for adults with learning disability. Psychiatria Danubina, 27(S1), 465–467.
   Google Scholar
• Feng, J., Lazar, J., Kumin, L., & Ozok, A. (2008). The 10th International ACM SIGACCESS Conference, October). Computer usage by young individuals with down syndrome: an exploratory study. In Proceedings of on Computers and accessibility (pp. 35–42). ACM. https://doi.org/10.1145/1414471.1414480
   Google Scholar
• Ginevra, M. C., Nota, L., & Stokes, M. A. (2016). The differential effects of Autism and Down's syndrome on sexual behavior. Autism Research: Official Journal of the International Society for Autism Research, 9(1), 131–140. https://doi.org/10.1002/aur.1504
   PubMed Web of Science ®Google Scholar
• Gougeon, N. A. (2009). Sexuality education for students with intellectual disabilities, a critical pedagogical approach: outing the ignored curriculum. Sex Education, 9(3), 277–291. https://doi.org/10.1080/14681810903059094
   Google Scholar
• Guralnick, M. J., Connor, R. T., & Johnson, L. C. (2011). The peer social networks of young children with Down syndrome in classroom programmes. Journal of Applied Research in Intellectual Disabilities: JARID, 24(4), 310–321. https://doi.org/10.1111/j.1468-3148.2010.00619.x
   PubMed Web of Science ®Google Scholar
• Harvard University (2016). Harvard University finds Circles^® curriculum proven effective [White Paper]. James Stanfield Company. http://www.stanfield.com/wp-content/uploads/2016/05/Harvard-University-Finds-Circles®-Curriculum-Proven-Effective-1.pdf
   Google Scholar
• Kraus, L., Lauer, E., Coleman, R., & Houtenville, A. (2018). 2017 disability statistics annual report. University of New Hampshire.
   Google Scholar
• Lamont, M., & Molnár, V. (2002). The study of boundaries in the social sciences. Annual Review of Sociology, 28(1), 167–195. https://doi.org/10.1146/annurev.soc.28.110601.141107
   Web of Science ®Google Scholar
• Lazar, J., Kumin, L., & Feng, J. H. (2011). The Proceedings of the 13th International ACM SIGACCESS Conference, October). Understanding the computer skills of adult expert users with Down syndrome: An exploratory study. In On Computers and accessibility (pp. 51–58). ACM. https://doi.org/10.1145/2049536.2049548
   Google Scholar
• Löfgren-Mårtenson, L. (2004). “May I?” About sexuality and love in the new generation with intellectual disabilities. Sexuality and Disability, 22(3), 197–207. https://doi.org/10.1023/B:SEDI.0000039062.73691.cb
   Web of Science ®Google Scholar
• Löfgren-Mårtenson, L. (2012). “I want to do it right!’’ A pilot study of Swedish sex education and young people with intellectual disabilities. Sexuality and Disability, 30(2), 209–225. https://doi.org/10.1007/s11195-011-9239-z
   Web of Science ®Google Scholar
• Lott, I. T., & Dierssen, M. (2010). Cognitive deficits and associated neurological complications in individuals with Down’s syndrome. The Lancet. Neurology, 9(6), 623–633. https://doi.org/10.1016/S1474-4422(10)70112-5
   PubMed Web of Science ®Google Scholar
• Mechling, L. C., Gast, D. L., & Krupa, K. (2007). Impact of SMART board technology: An investigation of sight word reading and observational learning. Journal of Autism and Developmental Disorders, 37(10), 1869–1882. https://doi.org/10.1007/s10803-007-0361-9
   PubMed Web of Science ®Google Scholar
• Oxelgren, U. W., Westerlund, J., Myrelid, Å., Annerén, G., Johansson, L., Åberg, M., & Fernell, E. (2019). An intervention targeting social, communication and daily activity skills in children and adolescents with Down syndrome and autism: A pilot study. Neuropsychiatric Disease and Treatment, 15, 2049.
   PubMed Web of Science ®Google Scholar
• Pound, P., Langford, R., & Campbell, R. (2015). Qualitative synthesis of young people's views of sex and relationship education. The Lancet, 386, S65. https://doi.org/10.1016/S0140-6736(15)00903-4
   Web of Science ®Google Scholar
• Rafi, A. (2017). Using machine learning to match assistive technology to people with disabilities. Studies in Health Technology and Informatics, 242, 409–412. https://doi.org/10.3233/978-1-61499-798-6-409
   PubMedGoogle Scholar
• Rogers, C. (2010). But it’s not all about the sex: Mothering, normalisation and young learning disabled people. Disability & Society, 25(1), 63–74. https://doi.org/10.1080/09687590903363365
   Web of Science ®Google Scholar
• Roll, A. E., & Bowers, B. J. (2019). Building and connecting: Family strategies for developing social support networks for adults with down syndrome. Journal of Family Nursing, 25(1), 128–151. https://doi.org/10.1177/1074840718823578
   PubMed Web of Science ®Google Scholar
• Rushbrooke, E., Murray, C., & Townsend, S. (2014). The experiences of intimate relationships by people with intellectual disabilities: A qualitative study. Journal of Applied Research in Intellectual Disabilities: JARID, 27(6), 531–541. https://doi.org/10.1111/jar.12091
   PubMed Web of Science ®Google Scholar
• Schaafsma, D., Kok, G., Stoffelen, J. M. T., & Curfs, L. M. G. (2015). Identifying effective methods for teaching sex education to individuals with intellectual disabilities: A systematic review. Journal of Sex Research, 52(4), 412–432. https://doi.org/10.1080/00224499.2014.919373
   PubMed Web of Science ®Google Scholar
• Servais, L. (2006). Sexual health care in persons with intellectual disabilities. Developmental Disabilities Research Reviews, 12(1), 48–56.
   Google Scholar
• The Arc (2008). Sexuality. Author. Retrieved October 8, 2017, from http://www.thearc.org/document.doc?id=3641
   Google Scholar
• U.S. Census Bureau (2010). Survey of Income and Program Participation. https://www.census.gov/people/disability/publications/sipp2010.html
   Google Scholar
• van Gameren-Oosterom, H. B., Fekkes, M., Buitendijk, S. E., Mohangoo, A. D., Bruil, J., & Van Wouwe, J. P. (2011). Development, problem behavior, and quality of life in a population based sample of eight-year-old children with Down syndrome. PLoS One, 6(7), e21879. https://doi.org/10.1371/journal.pone.0021879
   PubMed Web of Science ®Google Scholar
• Walker-Hirsch, L., & Champagne, M. P. (1991). The Circles Concept: Social Competence in Special Education. Educational Leadership, 49(1), 65–67.
   Google Scholar
• Watt, K. J., Johnson, P., & Virji‐Babul, N. (2010). The perception of friendship in adults with Down syndrome. Journal of Intellectual Disability Research: JIDR, 54(11), 1015–1023. https://doi.org/10.1111/j.1365-2788.2010.01330.x
   PubMedGoogle Scholar
• Wiley, B., Cameron, D., Gulati, S., & Hogg, A. (2016). Exploring the use of tablets (iPads) with children and young adults with disabilities in Trinidad. Disability and Rehabilitation. Assistive Technology, 11(1), 32–37. https://doi.org/10.3109/17483107.2014.914251
   PubMed Web of Science ®Google Scholar
• Wilkenfeld, B., & Ballan, M. (2011). Educators’ attitudes and beliefs towards the sexuality of individuals with developmental disabilities. Sexuality and Disability, 29(4), 351–361. https://doi.org/10.1007/s11195-011-9211-y
   Web of Science ®Google Scholar
• Wissink, I. B., Van Vugt, E., Moonen, X., Stams, G. J. J., & Hendriks, J. (2015). Sexual abuse involving children with an intellectual disability (ID): A narrative review. Research in Developmental Disabilities, 36, 20–35. https://doi.org/10.1016/j.ridd.2014.09.007
   PubMed Web of Science ®Google Scholar
• World Health Organization (1975). Education and treatment in human sexuality: The training of health professionals (Technical Report Series., No 572). World Health Organization.
   Google Scholar