873
Views
7
CrossRef citations to date
0
Altmetric
Original Articles

The relationship of ethics to quality: a particular case of research in autism

Pages 353-361 | Published online: 04 Dec 2007

References

  • Autism Research Co‐ordination Group . 2006 . First annual report of the Autism Research Co‐Ordination Group , London : Department for Education and Skills . Research report no. 787
  • Autism Speaks . 2006 . How to cope Available online at: http://www.autismspeaks.org/howtocope/strategies.php (accessed 25 July 2007)
  • Bettelheim , B. 1967 . The Empty fortress: infantile autism and the birth of the self , New York : The Free Press .
  • British Educational Research Association . 2000 . Good practice in educational research writing , Southwell, Notts : British Educational Research Association .
  • Cass , H. , Sekaran , D. and Baird , G. 2006 . Medical investigation of children with autistic spectrum disorders . Child: Care, Health and Development , 32 (5) : 521 – 533 .
  • Chappell , A. L. 1992 . Towards a sociological critique of the normalisation principle . Disability, Handicap & Society , 7 (1) : 35 – 51 .
  • Dawson , M. 2004 . The misbehaviour of behaviourists: ethical challenges to the autism‐ABA industry Available online at: http://www.sentex.net/~nexus23/naa_aba.html (accessed 26 July 2007)
  • Department of Health and Human Services . 2004 . Congressional Appropriations Committee Report on the State of Autism Research , Bethesda, MD : National Institutes of Health/National Institute of Mental Health . Available online at: http://www.nimh.nih.gov/autismiacc/researchmatrix.pdf (accessed 17 July 2004)
  • Feuer , M. , Towne , L. and Shavelson , R. 2002 . Scientific culture and educational research . Educational Researcher , 31 (8) : 4 – 14 .
  • Gilbert , T. 2004 . Involving people with learning disabilities in research: issues and possibilities . Health and Social Care in the Community , 12 (4) : 298 – 308 .
  • Goldacre , B. September 9 2006 . “ It’s business, and it’s fishy ” . In The Guardian September 9 , (online version). Available online at: http://www.guardian.co.uk/science/2006/sep/09/badscience.uknews (accessed 26 July 2007)
  • Gray , D. E. 2002 . Everybody just freezes. Everybody is just embarrassed: felt and enacted stigma among parents of children with high functioning autism . Sociology of Health and Illness , 24 : 734 – 749 .
  • Groundwater‐Smith , S. and Mockler , N. 2007 . Ethics in practitioner research: an issue of quality . Research Papers in Education , 22 (2) : 199 – 211 .
  • Groundwater‐Smith , S. and Mockler , N. Building knowledge, building professionalism: the coalition of knowledge building schools and teacher professionalism . paper presented at the Australian Association for Educational Research Annual Conference . 1–5 December . University of Queensland . Available online at: http://www.amonline.net.au/amarc/pdf/conferences/susangs.pdf (accessed 26 July 2007)
  • Jordan , R. 1999 . Autistic spectrum disorders: an introductory handbook for practitioners , London : David Fulton Publishers .
  • Jordan , R. , Jones , G. and Murray , D. 1998 . Educational interventions for children with autism: a literature of recent and current research , Colegate, Norwich : Department for Education and Skills . Research Report 77
  • Judge Rotenberg Educational Center . n.d. . Use of skin‐shock at the Judge Rotenberg Educational Center (JRC): bibliography on skin‐shock Available online at: http://www.effectivetreatment.org/bibliography.htm (accessed 23 July 2007)
  • Kindlon , R. , Bandini , S. , Suriano , C. , Tyner‐Doyle , P. , Mayar , C. , Crimmons , D. and Roll , D. 2006 . Observations and findings of out‐of‐state program visitation: Judge Rotenberg Educational Center , Albany, NY : New York State Education Department . Available online at: http://www.isaccorp.org/documents/judgerotenbergreport.pdf (accessed 18 July 2007)
  • Lincoln , Y. 1995 . Emerging criteria for quality in qualitative and interpretive inquiry . Qualitative Inquiry , 1 : 275 – 289 .
  • Lovaas , O. I. , Schaeffer , B. and Simmons , J. Q. 1965 . Building social behavior in autistic children by use of electric shock . Journal of Experimental Research in Personality , 1 : 99 – 109 .
  • Lovaas , O. I. and Smith , T. 1988 . “ Intensive behavioral treatment for young autistic children ” . In Advances in clinical child psychology , Edited by: Lahey , B. B. and Kazdin , A. E. New York : Plenum Press .
  • Lovaas Institute . 2007 . The Lovaas approach: the potential benefits of intensive behavioural intervention Available online at: http://www.lovaas.com/approach-benefits.php (accessed 25 July 2007)
  • Medical Research Council . 2001 . MRC review of autism research: epidemiology and causes , London : Medical Research Council .
  • Pendlebury , S. and Enslin , P. 2001 . Representation, identification and trust: towards an ethics of educational research . Journal of Philosophy of Education , 35 (3) : 361 – 370 .
  • Quality Assurance Agency for Higher Education . 2004 . Code of practice for the assurance of academic quality and standards in higher education , Mansfield, Notts : Quality Assurance Agency for Higher Education .
  • Rollens , R. 2004 . New autism data: slight decrease may reflect mercury removal from vaccines Available online at: http://autismdiva.blogspot.com/2005/07/autism-hysteria-history-april-2004.html (accessed 25 July 2007)
  • Savulescu , J. , Chalmers , I. and Blunt , J. 1996 . Are research ethics committees behaving unethically? Some suggestions for improving performance and accountability . British Medical Journal , 313 : 1390 – 1393 .
  • Shaker , P. and Ruitenberg , C. 2007 . ‘Scientifically‐based research’: the art of politics and the distortion of science . International Journal of Research and Method in Education , 30 (2) : 207 – 219 .
  • Smith , R. 2003 . “ Research and revelation: what really works? ” . In Beyond empiricism: on criteria for educational research , Edited by: Smeyers , P. and Depaepe , M. 129 – 140 . Leuven, , Belgium : Leuven University Press .
  • Thomson , R. G. 1997 . Extraordinary bodies: figuring physical disability in American culture and literature , New York : Columbia University Press .
  • Tustin , F. 1992 . Autistic States in Children , London : Routledge .
  • Waltz , M. Participatory and emancipatory autism research: what’s the problem? . Paper presented at Autism2006 virtual conference. Available online at: http://www.awares.org/conferences/print_paper.asp?section=000100010001&conferenceCode=000200020009&id=82 (accessed 26 July 2007)
  • Wing , L. and Gould , J. 1979 . Severe impairments of social interaction and associated abnormalities in children: epidemiology and classification . Journal of Autism and Childhood Schizophrenia , 9 : 11 – 29 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.