Barriers adult refugees face to community health and patient engagement: a systematic review

References

• Abrishami, D. (2018). The need for cultural competency in health care. Radiologic Technology, 89(5), 441–448.
   PubMed Web of Science ®Google Scholar
• Adhikari, B., Pell, C., & Cheah, P. Y. (2020). Community engagement and ethical global health research. Global Bioethics, 31(1), 1–12. https://doi.org/10.1080/11287462.2019.1703504
   PubMedGoogle Scholar
• Aldridge, R. W., Story, A., Hwang, S. W., Nordentoft, M., Luchenski, S. A., Hartwell, G., Tweed, E. J., Lewer, D., Katikireddi, S. V., & Hayward, A. C. (2018). Morbidity and mortality in homeless individuals, prisoners, sex workers, and individuals with substance use disorders in high-income countries: A systematic review and meta-analysis. The Lancet, 391(10117), 241–250. https://doi.org/10.1016/S0140-6736(17)31869-X
   PubMed Web of Science ®Google Scholar
• Andermann, A. (2016). Taking action on the social determinants of health in clinical practice: A framework for health professionals. Canadian Medical Association Journal, 188(17–18), E474–E483. https://doi.org/10.1503/cmaj.160177
   PubMed Web of Science ®Google Scholar
• Barry, M. J., & Edgman-Levitan, S. (2012). Shared decision making – The pinnacle of patient-centered care. New England Journal of Medicine, 366(9), 780–781. https://doi.org/10.1056/NEJMp1109283
   PubMed Web of Science ®Google Scholar
• Bell, G. R. (2012). A framework for community engagement in primary health. Saskatoon: Primary health and chronic disease management, saskatoon health region, saskatoon, SK. Canada, 1–77.
   Google Scholar
• Bellows, M., Kovacs Burns, K., Jackson, K., Surgeoner, B., & Gallivan, J. (2015). Meaningful and effective patient engagement: What matters most to stakeholders. Patient Experience Journal, 2(1), 18–28. https://doi.org/10.35680/2372-0247.1069
   Google Scholar
• Boise, L., Tuepker, A., Gipson, T., Vigmenon, Y., Soule, I., & Onadeko, S. (2013). African refugee and immigrant health needs: Report from a community-based house meeting project. Progress in Community Health Partnerships: Research, Education, and Action, 7(4), 369–378. https://doi.org/10.1353/cpr.2013.0045
   PubMedGoogle Scholar
• Brandenberger, J., Tylleskär, T., Sontag, K., Peterhans, B., & Ritz, N. (2019). A systematic literature review of reported challenges in health care delivery to migrants and refugees in high-income countries - the 3C model. BMC Public Health, 19(1), 755. https://doi.org/10.1186/s12889-019-7049-x
   PubMedGoogle Scholar
• Byrow, Y., Pajak, R., Specker, P., & Nickerson, A. (2020). Perceptions of mental health and perceived barriers to mental health help-seeking amongst refugees: A systematic review. Clinical Psychology Review, 75, 101812. https://doi.org/10.1016/j.cpr.2019.101812
   PubMed Web of Science ®Google Scholar
• Campbell, S. (2020). A filter to retrieve studies related to refugees/immigrants in health professions from the OVID medline database. Google Docs. https://docs.google.com/document/d/13CDD4zA_T2nTHO_fAQ-m1vcLr8Nmuw7rnZ2BbXSbO0k/edit?usp=embed_facebook.
   Google Scholar
• Caprara, G. V., Regalia, C., Scabini, E., Barbaranelli, C., & Bandura, A. (2004). Assessment of filial, parental, marital, and collective family efficacy beliefs. European Journal of Psychological Assessment, 20(4), 247–261. https://doi.org/10.1027/1015-5759.20.4.247
   Web of Science ®Google Scholar
• Chase, L. E., Cleveland, J., Beatson, J., & Rousseau, C. (2017). The gap between entitlement and access to healthcare: An analysis of “candidacy” in the help-seeking trajectories of asylum seekers in Montreal. Social Science & Medicine, 182, 52–59. https://doi.org/10.1016/j.socscimed.2017.03.038
   PubMed Web of Science ®Google Scholar
• Cheng, I.-H., Wahidi, S., Vasi, S., Samuel, S., Cheng, I.-H., Wahidi, S., Vasi, S., & Samuel, S. (2015). Importance of community engagement in primary health care: The case of Afghan refugees. Australian Journal of Primary Health, 21(3), 262–267. https://doi.org/10.1071/PY13137
   PubMed Web of Science ®Google Scholar
• Chew-Graham, C. (2016). Positive reporting? Is there a bias is reporting of patient and public involvement and engagement? Health Expectations, 19(3), 499–500. https://doi.org/10.1111/hex.12470
   PubMed Web of Science ®Google Scholar
• Critical Appraisal Skills Programme. (2018). Critical appraisal check list for qualitative research. https://casp-uk.b-cdn.net/wp-content/uploads/2018/03/CASP-Qualitative-Checklist-2018_fillable_form.pdf.
   Google Scholar
• Cutilli, C. C. (2020). Excellence in patient education. Nursing Clinics of North America, 55(2), 267–282. https://doi.org/10.1016/j.cnur.2020.02.007
   PubMed Web of Science ®Google Scholar
• De Weger, E., Van Vooren, N., Luijkx, K. G., Baan, C. A., & Drewes, H. W. (2018). Achieving successful community engagement: A rapid realist review. BMC Health Services Research, 18(1), 285. https://doi.org/10.1186/s12913-018-3090-1
   PubMedGoogle Scholar
• Domecq, J. P., Prutsky, G., Elraiyah, T., Wang, Z., Nabhan, M., Shippee, N., Brito, J. P., Boehmer, K., Hasan, R., Firwana, B., Erwin, P., Eton, D., Sloan, J., Montori, V., Asi, N., Dabrh, A. M. A., & Murad, M. H. (2014). Patient engagement in research: A systematic review. BMC Health Services Research, 14(1), 89. https://doi.org/10.1186/1472-6963-14-89
   PubMed Web of Science ®Google Scholar
• Edberg, M., Cleary, S., Simmons, L., Cubilla-Batista, I., Andrade, E., & Gudger, G. (2015). Defining the “community”: Applying ethnographic methods for a latino immigrant health intervention. Human Organization, 74(1), 27–41. https://doi.org/10.17730/humo.74.1.6561p4u727582850
   PubMed Web of Science ®Google Scholar
• Fang, M. L., Sixsmith, J., Lawthom, R., Mountian, I., & Shahrin, A. (2015). Experiencing ‘pathologized presence and normalized absence’; understanding health related experiences and access to health care among Iraqi and Somali asylum seekers, refugees and persons without legal status. BMC Public Health, 15(1), 923. https://doi.org/10.1186/s12889-015-2279-z
   PubMedGoogle Scholar
• Filippi, M. K., Faseru, B., Baird, M., Ndikum-Moffor, F., Greiner, K. A., & Daley, C. M. (2014). A pilot study of health priorities of Somalis living in kansas city: Laying the groundwork for CBPR. Journal of Immigrant and Minority Health, 16(2), 314–320. https://doi.org/10.1007/s10903-012-9732-1
   PubMed Web of Science ®Google Scholar
• Frese, M. (2015). Cultural practices, norms, and values. Journal of Cross-Cultural Psychology, 46(10), 1327–1330. https://doi.org/10.1177/0022022115600267
   Web of Science ®Google Scholar
• Gil-Salmerón, A., Katsas, K., Riza, E., Karnaki, P., & Linos, A. (2021). Access to healthcare for migrant patients in Europe: Healthcare discrimination and translation services. International Journal of Environmental Research and Public Health, 18(15), 7901. https://doi.org/10.3390/ijerph18157901
   PubMed Web of Science ®Google Scholar
• Grant, M. J., & Booth, A. (2009). A typology of reviews: An analysis of 14 review types and associated methodologies. Health Information & Libraries Journal, 26(2), 91–108. https://doi.org/10.1111/j.1471-1842.2009.00848.x
   PubMed Web of Science ®Google Scholar
• Grigg-Saito, D., Och, S., Liang, S., Toof, R., & Silka, L. (2008). Building on the strengths of a Cambodian refugee community through community-based outreach. Health Promotion Practice, 9(4), 415–425. https://doi.org/10.1177/1524839906292176
   PubMedGoogle Scholar
• Griswold, K., Zayas, L. E., Kernan, J. B., & Wagner, C. M. (2006). Cultural awareness through medical student and refugee patient encounters. Journal of Immigrant and Minority Health, 9(1), 55–60. https://doi.org/10.1007/s10903-006-9016-8
   Google Scholar
• Heywood, A. E., & López-Vélez, R. (2019). Reducing infectious disease inequities among migrants. Journal of Travel Medicine, 26(2), tay131. https://doi.org/10.1093/jtm/tay131
   Google Scholar
• Im, H. (2018). Constructing health capital in ecological systems: A qualitative evaluation of community-based health workshops in the refugee community. Health & Social Care in the Community, 26(4), e541–e551. https://doi.org/10.1111/hsc.12568
   PubMed Web of Science ®Google Scholar
• Jiwrajka, M., Mahmoud, A., & Uppal, M. (2017). A rohingya refugee’s journey in Australia and the barriers to accessing healthcare. Case Reports, 2017. https://doi.org/10.1136/bcr-2017-219674
   Google Scholar
• Johnson, C. E., Ali, S. A., & Shipp, M. P.-L. (2009). Building community-based participatory research partnerships with a Somali refugee community. American Journal of Preventive Medicine, 37(6), S230–S236. https://doi.org/10.1016/j.amepre.2009.09.036
   PubMed Web of Science ®Google Scholar
• Kamaraju, S., Olson, J., DeNomie, M., Visotcky, A., Banerjee, A., Asan, O., Tavares, E., Rao, A., LaCroix, M., Krause, K., Neuner, J., & Stolley, M. (2019). Community breast health education for immigrants and refugees: Lessons learned in outreach efforts to reduce cancer disparities. Journal of Cancer Education, 34(6), 1092–1096. https://doi.org/10.1007/s13187-018-1412-y
   PubMed Web of Science ®Google Scholar
• Khadka, J., Ryan, B., Margrain, T. H., Court, H., & Woodhouse, J. M. (2010). Development of the 25-item cardiff visual ability questionnaire for children (CVAQC). British Journal of Ophthalmology, 94(6), 730–735. https://doi.org/10.1136/bjo.2009.171181
   PubMed Web of Science ®Google Scholar
• Kim, J. M., Suarez-Cuervo, C., Berger, Z., Lee, J., Gayleard, J., Rosenberg, C., Nagy, N., Weeks, K., & Dy, S. (2018). Evaluation of patient and family engagement strategies to improve medication safety. The Patient - Patient-Centered Outcomes Research, 11(2), 193–206. https://doi.org/10.1007/s40271-017-0270-8
   Web of Science ®Google Scholar
• Krist, A. H., Tong, S. T., Aycock, R. A., & Longo, D. R. (2017). Engaging patients in decision-making and behavior change to promote prevention. Studies in Health Technology and Informatics, 240, 284–302. https://doi.org/10.3233/ISU-170826
   PubMedGoogle Scholar
• Lazarus, J. V., Baker, L., Cascio, M., Onyango, D., Schatz, E., Smith, A. C., & Spinnewijn, F. (2020). Novel health systems service design checklist to improve healthcare access for marginalised, underserved communities in Europe. BMJ Open, 10(4), e035621. https://doi.org/10.1136/bmjopen-2019-035621
   PubMed Web of Science ®Google Scholar
• Lee, M. P., Zullo, S. W., Sobanko, J. F., & Etzkorn, J. R. (2019). Patient-Centered care in dermatologic surgery. Dermatologic Clinics, 37(3), 367–374. https://doi.org/10.1016/j.det.2019.03.006
   PubMed Web of Science ®Google Scholar
• Ling, S., O'Shea, R. M., Pszonak, R. P., & Bertram, D. A. (1994). Culture shock in a university health service: A case and commentaries. Journal of American College Health, 43(1), 39–44. https://doi.org/10.1080/07448481.1994.9939084
   PubMedGoogle Scholar
• Luchenski, S., Maguire, N., Aldridge, R. W., Hayward, A., Story, A., Perri, P., Withers, J., Clint, S., Fitzpatrick, S., & Hewett, N. (2018). What works in inclusion health: Overview of effective interventions for marginalised and excluded populations. The Lancet, 391(10117), 266–280. https://doi.org/10.1016/S0140-6736(17)31959-1
   PubMed Web of Science ®Google Scholar
• Maizes, V., Rakel, D., & Niemiec, C. (2009). Integrative medicine and patient-centered care. EXPLORE, 5(5), 277–289. https://doi.org/10.1016/j.explore.2009.06.008
   Google Scholar
• Manirankunda, L., Loos, J., Alou, T. A., Colebunders, R., & Nostlinger, C. (2009). “It’s better Not To know”: Perceived barriers to HIV voluntary counseling and testing among Sub-saharan African migrants in Belgium. AIDS Education and Prevention, 21(6), 582–593. https://doi.org/10.1521/aeap.2009.21.6.582
   PubMed Web of Science ®Google Scholar
• Marmot, M. (2005). Social determinants of health inequalities. The Lancet, 365(9464), 1099–1104. https://doi.org/10.1016/S0140-6736(05)71146-6
   PubMed Web of Science ®Google Scholar
• Matlin, S. A., Depoux, A., Schütte, S., Flahault, A., & Saso, L. (2018). Migrants’ and refugees’ health: Towards an agenda of solutions. Public Health Reviews, 39(1), 27. https://doi.org/10.1186/s40985-018-0104-9
   Google Scholar
• Matthews, A. K., Newman, S., Anderson, E. E., Castillo, A., Willis, M., & Choure, W. (2018). Development, implementation, and evaluation of a community engagement advisory board: Strategies for maximizing success. Journal of Clinical and Translational Science, 2(1), 8–13. https://doi.org/10.1017/cts.2018.13
   PubMedGoogle Scholar
• McKeown, S., & Mir, Z. M. (2021). Considerations for conducting systematic reviews: Evaluating the performance of different methods for de-duplicating references. Systematic Reviews, 10(1), 38. https://doi.org/10.1186/s13643-021-01583-y
   PubMed Web of Science ®Google Scholar
• McMorrow, S., & Saksena, J. (2017). Voices and views of Congolese refugee women: A qualitative exploration to inform health promotion and reduce inequities. Health Education & Behavior, 44(5), 769–780. https://doi.org/10.1177/1090198117726572
   PubMed Web of Science ®Google Scholar
• Meyer-Weitz, A., Asante, K. O., & Lukobeka, B. J. (2018). Healthcare service delivery to refugee children from the democratic Republic of Congo living in Durban, South Africa: A caregivers’ perspective. BMC Medicine, 16(1), 1–12. https://doi.org/10.1186/s12916-018-1153-0
   Google Scholar
• Miner, S., Liebel, D. V., Wilde, M. H., Carroll, J., & Omar, S. (2017). Using a clinical outreach project to foster a community-engaged research partnership with Somali families. Progress in Community Health Partnerships: Research, Education, and Action, 11(1), 53–59. https://doi.org/10.1353/cpr.2017.0007
   PubMedGoogle Scholar
• Mirza, M., Luna, R., Mathews, B., Hasnain, R., Hebert, E., Niebauer, A., & Mishra, U. D. (2014). Barriers to healthcare access among refugees with disabilities and chronic health conditions resettled in the US midwest. Journal of Immigrant and Minority Health, 16(4), 733–742. https://doi.org/10.1007/s10903-013-9906-5
   PubMed Web of Science ®Google Scholar
• Montesanti, S. R., Abelson, J., Lavis, J. N., & Dunn, J. R. (2016). Enabling the participation of marginalized populations: Case studies from a health service organization in Ontario, Canada. Health Promotion International, 32(4), dav118–dav649. https://doi.org/10.1093/heapro/dav118
   Web of Science ®Google Scholar
• Morley, J. E. (2018). Patient-Centered care and cognitive dysfunction. Clinics in Geriatric Medicine, 34(4), ix–ix. https://doi.org/10.1016/j.cger.2018.08.013
   PubMed Web of Science ®Google Scholar
• Morrison, S. D., Sudha, S., Young, A., Dharod, J., Nie, Y. B., Siu, H. W., Siu, L., Ksor, H. V., Sayers, J., Bernot, K., Malotky, M., & Nsonwu, M. (2018). When community calls, We collaborate! community-based participatory research With the multilanguage montagnard refugee community. Progress in Community Health Partnerships: Research, Education, and Action, 12(2), 179–186. https://doi.org/10.1353/cpr.2018.0038
   PubMedGoogle Scholar
• Murali, N. S., & Deao, C. E. (2019). Patient engagement. Primary Care: Clinics in Office Practice, 46(4), 539–547. https://doi.org/10.1016/j.pop.2019.07.007
   PubMed Web of Science ®Google Scholar
• MyHealth Project. (2019). Workshop: Developing interventions to improve migrants’ healthcare access in Europe. European Journal of Public Health, 29(Supplement_4), ckz185.089. https://doi.org/10.1093/eurpub/ckz185.089
   Google Scholar
• Napier, M. P., Selvan, K., Hayeems, R. Z., Shuman, C., Chitayat, D., Sutherland, J. E., Day, M. A., & Héon, E. (2021). Gene therapy: Perspectives from young adults with Leber’s congenital amaurosis. Eye, 1–6. https://doi.org/10.1038/s41433-021-01763-z
   Google Scholar
• Nelson, B. D., Getchell, M., Rosborough, S., Atwine, B., Okeyo, E., Wall, E., & Greenough, P. G. (2010). A participatory approach to assessing refugee perceptions of health services. World Health & Population, 11(4), 13–22. https://doi.org/10.12927/whp.2010.21720
   PubMedGoogle Scholar
• Paananen, J., & Majlesi, A. R. (2018). Patient-centered interaction in interpreted primary care consultations. Journal of Pragmatics, 138, 98–118. https://doi.org/10.1016/j.pragma.2018.10.003
   Web of Science ®Google Scholar
• Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., Shamseer, L., Tetzlaff, J. M., Akl, E. A., Brennan, S. E., Chou, R., Glanville, J., Grimshaw, J. M., Hróbjartsson, A., Lalu, M. M., Li, T., Loder, E. W., Mayo-Wilson, E., McDonald, S., … Moher, D. (2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. Systematic Reviews, 10(1), 89. https://doi.org/10.1186/s13643-021-01626-4
   PubMed Web of Science ®Google Scholar
• Paloma, V., Morena, I., & López-Torres, C. (2020). Promoting posttraumatic growth among the refugee population in Spain: A community-based pilot intervention. Health & Social Care in the Community, 28(1), 127–136. https://doi.org/10.1111/hsc.12847
   PubMed Web of Science ®Google Scholar
• Robards, F., Kang, M., Steinbeck, K., Hawke, C., Jan, S., Sanci, L., Liew, Y. Y., Kong, M., & Usherwood, T. (2019). Health care equity and access for marginalised young people: A longitudinal qualitative study exploring health system navigation in Australia. International Journal for Equity in Health, 18(1), 41. https://doi.org/10.1186/s12939-019-0941-2
   PubMedGoogle Scholar
• Salman, K., Turek, J. M., & Donovan, C. (2021). Community health and wellness fair: A strategy for assessment of social determinants of health, inclusion and engagement of newcomers. Journal of Community Health, 46(3), 527–537. https://doi.org/10.1007/s10900-020-00901-0
   PubMed Web of Science ®Google Scholar
• Sarrami-Foroushani, P., Travaglia, J., Debono, D., & Braithwaite, J. (2014). Implementing strategies in consumer and community engagement in health care: Results of a large-scale, scoping meta-review. BMC Health Services Research, 14(1), 402. https://doi.org/10.1186/1472-6963-14-402
   PubMedGoogle Scholar
• Shrestha, M., Dhungel, R. K., Rizal, H., Kulung, D., Sharma, A., Dhaurali, G., Sharma, B., Asdigian, N. L., Kramer, B., Rosa Galter, M., & Ratcliff, D. (2021). Community-led health promotion groups in a Bhutanese-Nepali refugee community. Health Promotion Practice, (Asdigian, Kramer, Shrestha, Dhungel, Rizal, Kulung, Sharma, Dhaurali, Sharma) Namaste Community Health Partnership, CO, Denver, United States(Asdigian) University of Colorado Anschutz Medical Campus, CO, Aurora, United States(Kramer) CO, Denver, United S, 15248399211019056. https://doi.org/10.1177/15248399211019057
   Google Scholar
• Silberholz, E. A., Brodie, N., Spector, N. D., & Pattishall, A. E. (2017). Disparities in access to care in marginalized populations. Current Opinion in Pediatrics, 29(6), 718–727. https://doi.org/10.1097/MOP.0000000000000549
   PubMed Web of Science ®Google Scholar
• Smeets, R. G., Kroese, M. E., Ruwaard, D., Hameleers, N., & Elissen, A. M. (2020). Person-centred and efficient care delivery for high-need, high-cost patients: Primary care professionals’ experiences. BMC Family Practice, 21(1), 1–9. https://doi.org/10.1186/s12875-020-01172-3
   PubMed Web of Science ®Google Scholar
• Spruijt, I., Haile, D. T., Erkens, C., van den Hof, S., Goosen, S., ten Kate, A., Teshome, H., Karels, M., Koenders, M., & Suurmond, J. (2020). Strategies to reach and motivate migrant communities at high risk for TB to participate in a latent tuberculosis infection screening program: A community-engaged, mixed methods study among Eritreans. BMC Public Health, 20(1), 315. https://doi.org/10.1186/s12889-020-8390-9
   PubMed Web of Science ®Google Scholar
• Spycher, J., Bodenmann, P., Bize, R., & Marti, J. (2021). Care and cost trajectories of asylum seekers in a nurse-led, patient centered, care network in Switzerland. BMC Health Services Research, 21(1), 681. https://doi.org/10.1186/s12913-021-06644-5
   PubMed Web of Science ®Google Scholar
• Thomas, J., & Harden, A. (2008). Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology, 8(1), 45. https://doi.org/10.1186/1471-2288-8-45
   PubMed Web of Science ®Google Scholar
• Tong, A., Flemming, K., McInnes, E., Oliver, S., & Craig, J. (2012). Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ. BMC Medical Research Methodology, 12(1), 1–8. https://doi.org/10.1186/1471-2288-12-181
   PubMed Web of Science ®Google Scholar
• UNHCR. (2020). UNHCR global trends—Forced displacement in 2020. UNHCR Flagship Reports. https://www.unhcr.org/statistics/unhcrstats/60b638e37/global-trends-forced-displacement-2020.html.
   Google Scholar
• UNHCR. (2022). What is a refugee? UNHCR: Geneva, Switzerland. https://www.unhcr.org/what-is-a-refugee.html.
   Google Scholar
• Wagner, J., Burke, G., Kuoch, T., Scully, M., Armeli, S., & Rajan, T. V. (2013). Trauma, healthcare access, and health outcomes among southeast Asian refugees in Connecticut. Journal of Immigrant and Minority Health, 15(6), 1065–1072. https://doi.org/10.1007/s10903-012-9715-2
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2020). Community engagement: A health promotion guide for universal health coverage in the hands of the people.
   Google Scholar