Young carers in South Africa: tasks undertaken by children in households affected by HIV infection and other illness

References

• Abebe, T. (2007). Changing livelihoods, changing childhoods: Patterns of children’s work in rural southern Ethiopia. Children’s Geographies, 5(1–2), 77–93. doi:10.1080/14733280601108205
   Google Scholar
• Akintola, O. (2006). Gendered home-based care in South Africa: More trouble for the troubled. African Journal of AIDS Research, 5(3), 237–247. doi:10.2989/16085900609490385
   PubMedGoogle Scholar
• Andreouli, E., Skovdal, M., & Campbell, C. (2013). “It made me realise that I am lucky for what I got”: British young carers encountering the realities of their African peers. Journal of Youth Studies. doi:10.1080/13676261.2013.772574
   PubMed Web of Science ®Google Scholar
• Bauman, L. J., Foster, G., Silver, E. J., Berman, R., Gamble, I., & Muchaneta, L. (2006). Children caring for their ill parents with HIV/AIDS. Vulnerable Children and Youth Studies, 1(1), 56–70. doi:10.1080/17450120600659077
   Google Scholar
• Becker, S. (2000). Young carers. In M. Davies (Ed.), The Blackwell encyclopaedia of social work. Oxford: Blackwell.
   Google Scholar
• Becker, S. (2007). Global perspectives on children’s unpaid caregiving in the family: Research and policy on “Young Carers” in the UK, Australia, the USA and sub-Saharan Africa. Global Social Policy, 7, 23–50. doi:10.1177/1468018107073892
   Google Scholar
• Boyatzis, R. E. (1998). Transforming qualitative information: Thematic analysis and code development. Thousand Oaks, CA: SAGE.
   Google Scholar
• Bradshaw, D., Groenewald, P., Laubscher, R., Nannan, N., Nojilana, B., Norman, R., … Johnson, L. (2003). Initial burden of disease estimates for South Africa, 2000. South African Medical Journal, 93, 682–688.
   PubMed Web of Science ®Google Scholar
• Bradshaw, D., Norman, R., & Schneider, M. (2007). A clarion call for action based on refined DALY estimates for South Africa. South African Medical Journal, 97(6), 438–440.
   PubMed Web of Science ®Google Scholar
• Bray, R. (2003). Who does the housework? An examination of South African children’s working roles. Social Dynamics, 29(2), 95–131. doi:10.1080/02533950308628677
   Web of Science ®Google Scholar
• Budlender, D., Chobokoane, N., & Mpetsheni, Y. (2001). A survey of time use: How South African women and men spend their time. Pretoria: Statistics South Africa.
   Google Scholar
• Case, A., & Paxson, C. (2011). The impact of the AIDS pandemic on health services in Africa: Evidence from demographic and health surveys. Demography, 48(2), 675–697. doi:10.1007/s13524-011-0026-3
   Google Scholar
• Collard, D. (2001). The generational bargain. International Journal of Social Welfare, 10, 54–65. doi:10.1111/1468-2397.00152
   Web of Science ®Google Scholar
• DOH. (2001). National guideline on home-based/community-based care. Republic of South Africa: National Department of Health. Retrieved from http://www.npi-connect.net/documents/592341/749044/R1+%26+2+SOTA+-+National+Guidelines+for+Home-Based+%26+Community-Based+Care
   Google Scholar
• Evans, R., & Becker, S. (2009). Children caring for parents with HIV and AIDS: Global issues and policy responses. Bristol: The Policy Press.
   Google Scholar
• Gwandure, C. (2007). Home-based care for parents with AIDS: Impact on children’s psychological functioning. Journal of Child and Adolescent Mental Health, 19(1), 29–44. doi:10.2989/17280580709486633
   PubMedGoogle Scholar
• Hardon, A. P., Akurut, D., Comoro, C., Ekezie, C., Irunde, H. F., Gerrits, T., … Laing, R. (2007). Hunger, waiting time and transport costs: time to confront challenges to ART adherence in Africa. AIDS Care, 19(5), 658–665. doi:10.1080/09540120701244943
   PubMed Web of Science ®Google Scholar
• Healthlink Worldwide. (2006). Building children’s resilience in a supportive environment: Reflecting on opportunities for memory work in HIV responses. London: Author.
   Google Scholar
• IBM Corp. (2013). IBM SPSS statistics for windows (Version 22.0). Armonk, NY: Author.
   Google Scholar
• Joseph, S., Becker, S., Becker, F., & Regel, S. (2009). Assessment of caring and its effect in young people: Development of the Multidimensional Assessment of Caring Activities Checklist (MACA-YC18) and the Positive and Negative Outcomes of Caring Questionnaire (PANOC-YC20) for young carers. Child: Care, Health and Development, 35(4), 510–520.
   PubMed Web of Science ®Google Scholar
• Kahn, K., Garenne, M. L., Collinson, M. A., & Tollman, S. M. (2007). Mortality trends in a new South Africa: Hard to make a fresh start. Scandinavian Journal of Public Health, 35(Suppl. 69), 26–34. doi:10.1080/14034950701355668
   Web of Science ®Google Scholar
• Kang’ethe, S. M. (2010). Human-rights perspectives on caregiving of peoples with HIV: The case for the Kanye home-based care programme, Botswana. African Journal of AIDS Research, 9(2), 193–203.
   PubMed Web of Science ®Google Scholar
• Lopman, B. A., Barnabas, R. V., Boerma, J. T., Chawira, G., Gaitskell, K., Harrop, T., … Gregson, S. (2006). Creating and validating an algorithm to measure AIDS mortality in the adult population using verbal autopsy. PLoS Medicine, 3(8), 1273–1281.
   Web of Science ®Google Scholar
• Martin, R. (2006). Children’s perspectives: Roles, responsibilities and the burdens of children in home-based care. Journal of Social Development in Africa, 21(1), 106–129.
   Google Scholar
• Mika, P., Bergner, R. M., & Baum, M. C. (1987). The development of a scale for the assessment of parentification. Family Therapy, 3, 229–235.
   Google Scholar
• Noble, M., Babita, M., Barnes, H., Dibben, C., Magasela, W., Noble, S., … Zungu, S. (2006). The provincial indices of multiple deprivation for South Africa 2001. Oxford: Centre for Analysis of South African Social Policy, University of Oxford.
   Google Scholar
• Norman, R., Bradshaw, D., Schneider, M., Pieterese, D., & Groenewald, P. (2006). Revised burden of disease estimates for the comparative risk factor assessment, South Africa 2000. Cape Town: South African Medical Research Council.
   Google Scholar
• Oramasionwu, C. U., Daniels, K. R., Labreche, M. J., & Frei, C. R. (2011). The environmental and social influences of HIV/AIDS in sub-Saharan Africa: A focus on rural communities. International Journal of Environmental Research and Public Health, 8, 2967–2979. doi:10.3390/ijerph8072967
   PubMed Web of Science ®Google Scholar
• Organization of African Unity. (1990). African Charter on the Rights and Welfare of the Child. Retrieved from http://www.au.int/en/sites/default/files/Charter_En_African_Charter_on_the_Rights_and_Wlefare_of_the_Child_AddisAbaba_July1990.pdf
   Google Scholar
• Robson, E. (2000). Invisible carers: Young people in Zimbabwe’s home-based healthcare. Area, 32(1), 59–69. doi:10.1111/j.1475-4762.2000.tb00115.x
   Web of Science ®Google Scholar
• Robson, E. (2004). Hidden child workers: Young carers in Zimbabwe. Antipode, 36(2), 227–248. doi:10.1111/j.1467-8330.2004.00404.x
   Web of Science ®Google Scholar
• Robson, E., & Ansell, N. (2000). Young carers in Southern Africa: Exploring stories from Zimbabwean secondary school students. In S. Holloway & G. Valentine (Eds.), Children’s geographies: Playing, living, learning (pp. 174–193). London: Routledge.
   Google Scholar
• Robson, E., Ansell, N., Huber, U. S., Gould, W. T. S., & Van Blerk, L. (2006). Young caregivers in the context of the HIV/AIDS pandemic in sub-Saharan Africa. Population, Space, and Place, 12(2), 93–111. doi:10.1002/psp.392
   Web of Science ®Google Scholar
• Ruiz-Casares, M. (2009). Between adversity and agency: Child and youth-headed households in Namibia. Vulnerable Children and Youth Studies, 4(3), 238–248. doi:10.1080/17450120902730188
   Google Scholar
• Sessions, M. W., & Jurkovic, G. J. (1986). The parentification questionnaire. Available from Gregory J. Jurkovic. Atlanta: Department of Psychology, Georgia State University.
   Google Scholar
• Shisana, O., Hall, E. J., Maluleke, K. R., Stoker, D. J., Schwabe, C., Colvin, M., … Gisselquist, D. (2003). The impact of HIV/AIDS on the health sector: National survey of health personnel, ambulatory and hospitalised patients and health facilities, 2002. Pretoria: National Department of Health.
   Google Scholar
• Skovdal, M. (2009). Young carers in Western Kenya: Collective struggles and coping strategies. London: Institute of Social Psychology, London School of Economics and Political Science.
   Google Scholar
• Skovdal, M. (2010). Children caring for their “caregivers”: Exploring the caring arrangements in households affected by AIDS in Western Kenya. AIDS Care, 22(1), 96–103. doi:10.1080/09540120903016537
   PubMed Web of Science ®Google Scholar
• Skovdal, M., & Andreouli, E. (2011). Using identity and recognition as a framework to understand and promote the resilience of caregiving children in Western Kenya. Journal of Social Policy, 40(3), 613–630. doi:10.1017/S0047279410000693
   Web of Science ®Google Scholar
• Skovdal, M., & Ogutu, V. O. (2009). “I washed and fed my mother before going to school”: Understanding the psychosocial well-being of children providing chronic care for adults affected by HIV/AIDS in Western Kenya. Globalization and Health, 5, 8. doi:10.1186/1744-8603-5-8
   PubMed Web of Science ®Google Scholar
• Skovdal, M., Ogutu, V. O., Aoro, C., & Campbell, C. (2009). Young carers as social actors: Coping strategies of children caring for ailing or ageing guardians in Western Kenya. Social Science & Medicine, 69, 587–595. doi:10.1016/j.socscimed.2009.06.016
   PubMed Web of Science ®Google Scholar
• Statistics South Africa. (2011). Survey of activities of young people 2010. Pretoria: Author.
   Google Scholar
• Statistics South Africa. (2013). Census 2011: Agricultural households. Pretoria: Author.
   Google Scholar
• Warren, J. (2007). Young carers: Conventional or exaggerated levels of involvement in domestic and caring tasks? Children & Society, 21(2), 136–146.
   Google Scholar
• Withell, B. (2009). The prebereavement psychological needs of AIDS-affected adolescents in Uganda. International Journal of Palliative Nursing, 15, 128–133. doi:10.12968/ijpn.2009.15.3.41091
   PubMedGoogle Scholar