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Vulnerable Children and Youth Studies
An International Interdisciplinary Journal for Research, Policy and Care
Volume 12, 2017 - Issue 4
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Articles

Secrets, shame and guilt: HIV disclosure in rural Chinese families from the perspective of caregivers

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Pages 292-303 | Received 23 Oct 2016, Accepted 15 Jun 2017, Published online: 31 Jul 2017

References

  • Aderomilehin, O., Hanciles-Amu, A., Ozoya, O. O. (2016). Perspectives and practice of HIV disclosure to children and adolescents by health-care providers and caregivers in sub-Saharan Africa: A systematic review. Front Public Health, 4, 166. doi: 10.3389/fpubh.2016.00166.
  • Bergin, M. (2011). NVivo 8 and consistency in data analysis: Reflecting on the use of a qualitative data analysis program. Nurse Research Journal, 18(3), 6–12. doi:10.7748/nr2011.04.18.3.6.c8457
  • Brashers, D. E., Basinger, E. D., Rintamaki, L. S., Caughlin, J. P., & Para, M. (2016). Taking control: The efficacy and durability of a peer-led uncertainty management intervention for people recently diagnosed with HIV. Health Communication, 32(1), 11–11.
  • China, N. H. a. F. P. C. o. t. P. s. R. o. (2015). 2015 China AIDS Response Progress Report. Retrieved from http://www.unaids.org/sites/default/files/country/documents/CHN_narrative_report_2015.pdf
  • Duffy, L. (2005). Suffering, shame, and silence: The stigma of HIV/AIDS. Journal of the Association of Nurses in AIDS Care, 16(1), 13–20. doi:10.1016/j.jana.2004.11.002
  • Fernet, M., Wong, K., Richard, M. E., Otis, J., Lévy, J. J., Lapointe, N., … Trottier, G. (2011). Romantic relationships and sexual activities of the first generation of youth living with HIV since birth. AIDS Care, 23(4), 393–400. doi:10.1080/09540121.2010.516332
  • Fusch, P. I., & Ness, L. R. (2015). Are we there yet? Data saturation in qualitative research. The Qualitative Report, 20(9), 1408.
  • Galano, E. T. (2016). Costs and benefits of secrecy: The dilemma experienced by adolescents seropositive for HIV. AIDS Care, 29(3), 394–398. doi:10.1080/09540121.2016.1248891
  • Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago, IL: Aldine Publishing Co.
  • Grossman, C. I., & Stangl, A. L. (2013). Global action to reduce HIV stigma and discrimination. Journal of the International AIDS Society, 16, 3. doi:10.7448/IAS.16.3.18881
  • Herek, G. M., & Capitanio, J. P. (1999). AIDS and stigma and sexual prejudice. American Behavioral Scientist, 42, 1130–1147. doi:10.1177/0002764299042007006
  • Herek, G. M., Capitanio, J. P., & Widaman, K. F. (2002). HIV-related stigma and knowledge in the United States: Prevalence and trends, 1991-1999. American Journal of Public Health, 92, 371–377. doi:10.2105/AJPH.92.3.371
  • Hua, J., Emrick, C. B., Golin, C. E., Liu, K., Pan, J., Wang, M., … Jiang, N. (2014). HIV and stigma in Liuzhou, China. AIDS and Behavior, 18(2), 203–211. doi:10.1007/s10461-013-0637-3
  • Jain, A., Nuankaew, R., Mongkholwiboolphol, N., Banpabuth, A., Tuvinun, R., & Richter, K. (2013). Community-based interventions that work to reduce HIV stigma and discrimination: Results of an evaluation study in Thailand. Journal of the International AIDS Society, 16, 3. doi:10.7448/IAS.16.3.18711
  • Kasedde, S., Luo, C., McClure, C., & Chandan, U. (2013). Reducing HIV and AIDS in adolescents: Opportunities and challenges. Current HIV/AIDS Reports, 10(2), 159–168. doi:10.1007/s11904-013-0159-7
  • Langebeek, N., Gisolf, E. H., Reiss, P., Vervoort, S. C., Hafsteinsdóttir, T. B., Richter, C., … Nieuwkerk, P. T. (2014). Predictors and correlates of adherence to combination antiretroviral therapy (ART) for chronic HIV infection: A meta-analysis. BMC Medicine, 12(1), 142. doi:10.1186/s12916-014-0142-1
  • Lemos, D. (2015). Providers’ socioecological perspectives on the supports for and challenges to engagement in care for Latino youth living with HIV: A qualitative study. College of Science and Health Theses and Dissertations. Paper 109. http://via.library.depaul.edu/csh_etd/109
  • Lo, S., Zea, M., & Poppen, P. (2009). Information, uncertainty, and sexual disclosures in the era of HIV/AIDS. Uncertainty, Information Management, and Disclosure Decisions: Theories and Applications, 87–105, Routledge, NY, USA.
  • Mburu, G., Ram, M., Skovdal, M., Bitira, D., Hodgson, I., Mwai, G. W., … Seeley, J. (2013). Resisting and challenging stigma in Uganda: The role of support groups of people living with HIV. Journal of the International AIDS Society, 16, 3. doi:10.7448/IAS.16.3.18636
  • Mo, P. K. H., Lau, J. T. F., Yu, X., & Gu, J. (2014). The role of social support on resilience, posttraumatic growth, hopelessness, and depression among children of HIV-infected parents in mainland China. AIDS Care, 26(12), 1526–1533. doi:10.1080/09540121.2014.923810
  • Murnane, P. S. (2016). Extent of disclosure: What perinatally HIV-infected children have been told about their own HIV status. AIDS Care, 29(3), 378–386. doi:10.1080/09540121.2016.1224310
  • Nichols, J., Steinmetz, A., & Paintsil, E. (2016). Impact of HIV-status disclosure on adherence to antiretroviral therapy among HIV-infected children in resource-limited settings: A systematic review. AIDS and Behavior, 21(2), 59-69..
  • Nijhawan, A. E., Kitchell, E., Etherton, S. S., Duarte, P., Halm, E. A., & Jain, M. K. (2015). Half of 30-day hospital readmissions among HIV-infected patients are potentially preventable. AIDS Patient Care and STDs, 29(9), 465–473. doi:10.1089/apc.2015.0096
  • Qiao, S., Li, X., Zhou, Y., Shen, Z., Tang, Z., & Stanton, B. (2015a). Factors influencing the decision-making of parental HIV disclosure: A socio-ecological approach. AIDS (London, England), 29(0 1), S25. doi:10.1097/QAD.0000000000000670
  • Qiao, S., Li, X., Zhou, Y., Shen, Z., Tang, Z., & Stanton, B. (2015b). The role of enacted stigma in parental HIV disclosure among HIV-infected parents in China. AIDS Care, 27(sup1), 28–35. doi:10.1080/09540121.2015.1034648
  • Qiao, S., Nie, J.-B., Tucker, J., Rennie, S., & Li, X.-M. (2015). The role of social relationship in HIV healing and its implications in HIV cure in China. Health Psychology and Behavioral Medicine: An Open Access Journal, 3(1), 115–127. doi:10.1080/21642850.2015.1040405
  • Steward, W. T., Miège, P., & Choi, K.-H. (2013). Charting a moral life: The influence of stigma and filial duties on marital decisions among Chinese men who have sex with men. PloS One, 8(8), e71778. doi:10.1371/journal.pone.0071778
  • UNAIDS. (2015). 2015 China AIDS Response Progress Report. Retrieved from China:
  • Vreeman, R. C., Gramelspacher, A. M., Gisore, P. O., Scanlon, M. L., & Nyandiko, W. M. (2013). Disclosure of HIV status to children in resource-limited settings: A systematic review. Journal of the International AIDS Society, 16, 1. doi:10.7448/IAS.16.1.18466
  • WHO. (2013). HIV and adolescents: Guidance for HIV testing and counselling and care for adolescents living with HIV: Recommendations for a public health approach and considerations for policy-makers and managers (pp. 100). WHO Document Production Services, Geneva, Switzerland.
  • Wu, Z., Wang, Y., Detels, R., & Bulterys, M. (2015). Towards ending HIV/AIDS among drug users in China. Addiction (Abingdon, England), 110, 1–3. doi:10.1111/add.12809
  • Yang, J. P., Xie, T., Simoni, J. M., Shiu, C.-S., Chen, W.-T., Zhao, H., & Lu, H. (2016). A mixed-methods study supporting a model of Chinese parental HIV disclosure. AIDS and Behavior, 20(1), 165–173. doi:10.1007/s10461-015-1070-6
  • Zea, M. C., Reisen, C. A., Poppen, P. J., Bianchi, F. T., & Echeverry, J. J. (2007). Predictors of disclosure of human immunovirus-positive serostatus among Latino gay men. Cultural Diversity and Ethnic Minority Psychology, 13, 304–312. doi:10.1037/1099-9809.13.4.304
  • Zhang, C., Li, X., Liu, Y., Qiao, S., Zhang, L., Zhou, Y., … Tang, Z. (2016). Emotional, physical and financial burdens of stigma against people living with HIV/AIDS in China. AIDS Care, 28(sup1), 124–131. doi:10.1080/09540121.2016.1146206
  • Zhao, J., Li, X., Qiao, S., Zhao, G., Zhang, L., & Stanton, B. (2015). Parental HIV disclosure: From perspectives of children affected by HIV in Henan, China. AIDS Care, 27(4), 416–423. doi:10.1080/09540121.2014.978733

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