References
- World health Organization (WHO) COVID virus dashboard. Available from: https://covid19.who.int/
- Lillicrap D, Morrissey JH. COVID-19: 2020 A year in turmoil. J Thromb Haemost. 2020;18(5):993. doi: 10.1111/jth.14816
- Souza JC, Pettengill EC, Pettengill CA. Psychosocial aspects of quarantine, social isolation and social distance. Psychology. 2020;11(8):1200–1214. doi: 10.4236/psych.2020.118080
- McLoone J, Wakefield CE, Marshall GM, et al. It’s made a really hard situation even more difficult: the impact of COVID-19 on families of children with chronic illness. PLoS One. 2022;17(9):e0273622. doi: 10.1371/journal.pone.0273622
- Boulin M, Cransac-Miet A, Maynadié M, et al. COVID-19 lockdown in patients with chronic diseases: a cross-sectional study. Int j environ res public health. 2022;19(7):3957. doi: 10.3390/ijerph19073957
- Gurvich C, Thomas N, Thomas EHX, et al. Coping styles and mental health in response to societal changes during the COVID-19 pandemic. Int J Social Psychiatry. 2021;67(5):540–549. doi: 10.1177/0020764020961790
- O’Donovan M, Buckley C, Benson J, et al. Telehealth for delivery of haemophilia comprehensive care during the COVID-19 pandemic. Haemophilia. 2020;26(6):984–990. doi: 10.1111/hae.14156
- von Mackensen S, Halimeh S, Siebert M, et al. Impact of COVID-19 pandemic on mental health of patients with inherited bleeding disorders in Germany. Haemophilia. 2020;26(6):e272–e281. doi: 10.1111/hae.14130
- Olivieri M, Halimeh S, Wermes C, et al. Auswirkungen der COVID-19 Pandemie auf die medizinische Versorgung von Patienten mit angeborenen Blutungsneigungen [Impact of COVID-19 pandemic on medical care of patients with inherited bleeding disorders]. Gesundheitswesen. 2021;83(4):282–290. German. doi: 10.1055/a-1399-9166
- Volot F, Soudry-Faure A, Callegarin A, et al. Impact of first COVID-19 lockdown on paediatric and adult haemophilia patients treated in a French Haemophilia comprehensive care Centre. Haemophilia. 2022;28(3):462–471. doi: 10.1111/hae.14526
- Kar SK, Yasir Arafat SM, Kabir R, et al. Coping with mental health challenges during COVID-19. Coronavirus Disease 2019 (COVID-19). 2020 Apr 30;199–213. doi: 10.1007/978-981-15-4814-7_16
- Napolitano M, Mansueto MF, Sirocchi D, et al. Emotions and opinions of adult patients with haemophilia during the COVID-19 (coronavirus Disease 2019) pandemic caused by SARS-CoV-2: a monocentric survey. Patient Preference Adherence. 2020;14:1145–114. doi: 10.2147/PPA.S257225
- Centers for Disease Control and Prevention. COVID-19: underlying medical conditions associated with higher risk for severe COVID-19: information for healthcare professionals. Atlanta (GA); [ Updated 2022 Dec 5; cited 2022 Dec 21]. Available from: https://www.cdc.gov/coronavirus/2019-ncov/hcp/clinical-care/underlyingconditions.html
- Hermans C, Weill A, Pierce GF. The COVID-19 pandemic: new global challenges for the haemophilia community. Haemophilia. 2020;26(3):371–372. doi: 10.1111/hae.14001
- la Cortez-Rodriguez H D, Alverez-Roman M, Rodriquez-Merchan EC, et al. What COVID-19 can mean for people with hemophilia beyond the infection risk. Exp Rev Hematol. 2020;13(10):1073–1079. doi: 10.1080/17474086.2020.1818066
- The 18 HIPPA identifiers. Loyola University Chicago. Available from: https://www.luc.edu/hipaa/policiesandguidelines/the18hipaaidentifiers/
- United Nations Educational, Scientific, and Cultural Organization. International standard classification of education 2011. [Internet]. Montreal (Canada). 2012 [Cited 2022 Dec 21]. Available from: https://uis.unesco.org/sites/default/files/documents/international-standard-classification-of-education-isced-2011-en.pdf
- International classification of occupations (ISCO-08). Available from: https://ilostat.ilo.org/resources/concepts-and-definitions/classification-occupation/
- Klok A, Boon GJAM, Barco S, et al. The post-COVID-19 functional status scale: a tool to measure functional status over time after COVID-19. Eur Respir J. 2020;56(1):2001494. doi: 10.1183/13993003.01494-2020
- Machado FVC, Meys R, Delbressine JM, et al. Construct validity of the Post-COVID-19 functional status scale in adult subjects with COVID-19. Health Qual Life Outcomes. 2021;19(1):40. doi: 10.1186/s12955-021-01691-2
- Lee SA. Coronavirus anxiety scale: a brief mental health screener for COVID-19 related anxiety. Death Stud. 2020;44(7):393–401. doi: 10.1080/07481187.2020.1748481
- Wu Y, Kwakkenbos L, Henry RS, et al. Validation of the COVID-19 fears questionnaires for chronic medical conditions: a scleroderma patient-centered intervention network COVID-19 cohort study. J Psychosom Res. 2020;139:110271. doi: 10.1016/j.jpsychores.2020.110271
- Schalet BD, Pilkonis PA, Yu L, et al. Clinical validity of PROMIS depression, anxiety, and anger across diverse clinical samples. J Clinical Epidemiol. 2016;73:119–127. doi: 10.1016/j.jclinepi.2015.08.036
- Khawaja NG, Yu LNH. A comparison of the 27-item and 12-item intolerance of uncertainty scales. Clinical Psychologist. 2010;14(3):97–106. doi: 10.1080/13284207.2010.502542
- Sinclair VG, Wallston KA. The development and psychometric evaluation of the Brief Resilient coping scale. Assessment. 2004;11(1):94–101. doi: 10.1177/1073191103258144
- Löwe B, Wahl I, Rose M, et al. A 4-item measure of depression and anxiety: validation and standardization of the patient health Questionnaire-4 (PHQ-4) in the general population. J Affective Disorders. 2010;122(1–2):86–95. doi: 10.1016/j.jad.2009.06.019
- StataCorp. Stata statistical Software: release 15. College Station (TX): StataCorp LLC; 2017.
- AJMC. A timeline of COVID-19 vaccine developments in 2021. [Internet]. Cranbury (NJ); 2021. Jun 3 [cited 2022 Dec 12]. Available from: https://www.ajmc.com/view/a-timeline-of-covid-19-vaccine-developments-in-2021
- Reuters. Germany to start first COVID-19 vaccination in elderly homes on December 27. [Internet]. 2020. Dec 21 [Cited 2022 Dec 21]. Available from: https://www.reuters.com/article/us-health-coronavirus-eu-vaccine-germany-idUSKBN28V1UM
- Food and Drug Administration. FDA news Release: FDA approves first COVID-19 vaccine. 2021 [Cited 2022 Dec 21]. Available from: https://www.fda.gov/news-events/press-announcements/fda-approves-first-covid-19-vaccine#:~:text=Today%2C%20the%20U.S.%20Food%20and,years%20of%20age%20and%20older
- World Health Organization. WHO issues its first emergency use validation for a COVID-19 vaccine and emphasizes need for equitable global access. [Internet]. Geneva (Switzerland); 2020 Dec 31 [cited 2022 Dec 21]. Available from: https://www.who.int/news/item/31-12-2020-who-issues-its-first-emergency-use-validation-for-a-covid-19-vaccine-and-emphasizes-need-for-equitable-global-access
- Ledford H, Cyranoski D, Van Noorden R. The UK has approved a COVID vaccine — Here’s what scientists now want to know. Nature. 2020;588(7837):205–206. doi: 10.1038/d41586-020-03441-8
- DW Made for Minds. 101-year-old among first to get vaccinated in Germany. [Internet]. 2020 Dec 26 [Cited 2022 Dec 22]. Available from: https://www.dw.com/en/coronavirus-101-year-old-woman-among-first-in-germany-to-receive-biontech-pfizer-covid-vaccine/a-56065181
- World Health Organization. Interim statement on COVID-19 vaccine booster doses. [Internet]. Geneva (Switzerland). 2021 Aug 10 [Cited 2022 Dec 21]. Available from: https://www.who.int/news/item/10-08-2021-interim-statement-on-covid-19-vaccine-booster-doses
- Development of population numbers in Germany from 1990 to 2021. Statista.com. Available from: https://www.statista.com/statistics/672608/development-population-numbers-germany/
- Vaccination status; Germany. Impfdashboard.de. Available from: https://impfdashboard.de/en/
- US and World Population Clock. United States Census Bureau. Available from: https://www.census.gov/popclock/
- US Coronavirus Vaccine Tracker. Available from: https://usafacts.org/visualizations/covid-vaccine-tracker-states/
- Population estimates for the UK, England, Wales, Scotland and Northern Ireland: 2021. Office of National Statistics. Available from: https://www.ons.gov.uk/peoplepopulationandcommunity/populationandmigration/populationestimates/bulletins/annualmidyearpopulationestimates/mid2021
- UK vaccination status GOV.UK coronovirus (COVID-19) in the UK. Available from: https://coronavirus.data.gov.uk/details/vaccinations?areaType=nation&areaName=England
- Pfrepper C, Holstein K, Königs C, et al. Consensus recommendations for intramuscular COVID-19 vaccination in patients with hemophilia. Hamostaseologie. 2021;41(3):190–196. doi: 10.1055/a-1401-2691
- Chang C, Zhang L, Dong F, et al. Asthma control, self-management, and healthcare access during the COVID-19 epidemic in Beijing. Allergy. 2021;76(2):586–588. doi: 10.1111/all.14591
- Chen CL, Brozen M, Rollman JE, et al. Transportation access to health care during the COVID-19: trends and implications for significant patient populations and health care needs. UC Office of the Presidents, ITS reports. 2020. Available from: https://escholarship.org/uc/item/22b3b1rc
- Valentino L, Skinner MW, Pipe W. The role of telemedicine in the delivery of health care in the COVID-19 pandemic. Haemophilia. 2020;26(5):e230–e231. doi: 10.1111/hae.14044
- Santaella M, Nichols C, Ryan S, et al. Telegenetic counseling for females: My Life, Our future participants. Res Pract Thromb Haemost. 2021;5(S1):HTRS.P1.15.e12554.32.
- Chunara R, Zhao Y, Chen J, et al. Telemedicine and healthcare disparities: a cohort study in a large healthcare system in New York City during COVID-19. J Am Med Inf Assoc. 2021;28(1):33–41. doi: 10.1093/jamia/ocaa217
- Hirko KA, Kerver JM, Ford S, et al. Telehealth in response to the COVID-19 pandemic: implications for rural health disparities. J Am Med Inf Assoc. 2020;27(11):1816–1818. doi: 10.1093/jamia/ocaa156
- Rambod M, Sharif F, Molazem Z, et al. Health-related quality of life & psychological aspects of adults with hemophilia in Iran. Clin App Thromb & Hem. 2018;24(7):1073–1081. doi: 10.1177/1076029618758954
- Ianone M, Pennick L, Tom A, et al. Prevalence of depression in adults with haemophilia. Haemophilia. 2012;18(6):868–872. doi: 10.1111/j.1365-2516.2012.02863.x
- Fakhari A, Dolatkhah R Psychiatric disorders in hemophilia patients. Priory.Com. Available from: https://www.priory.com/fam/hemophil.htm
- Iyoriobhe J, O’Hara J, Camp C, et al. Physician & patient reported anxiety & depression in hemophilia. Int J Technol Assess Health Care. 2017;33(S1):138–139. doi: 10.1017/S0266462317002902
- Buckner TW, Witkop M, Guelcher C, et al. Management of US men, women, & children with hemophilia & methods & demographics of the bridging hemophilia B experiences, results & opportunities into solutions (B‐HERO‐S) study. Eur J Haematol. 2017;98(S86):5–17. doi: 10.1111/ejh.12854
- Carlsson KS, Winding B, Asermark J, et al. Pain, depression and anxiety in people with haemophilia from three Nordic countries: cross-sectional survey data from the MIND study. Haemophilia. 2022;28(4):557–567. doi: 10.1111/hae.14571
- Roberts JC, Kulkarni R, Kouides PA. Depression and anxiety in persons with Von Willebrand disease. Haemophilia. 2023;29(2):545–554. doi: 10.1111/hae.14725
- Cikili-Uytun M, Cetin FH, Yilmaz R, et al. Psychiatric problems & its contributing factors in children & adolescents with hemophilia: a single centre study in a Turkish sample. Gaz Egypt Paediatr Assoc Gaz. 2020;68(1). doi: 10.1186/s43054-020-00032-0
- Hossain M, Tasnim S, Sjultana A, et al. Epidemiology of mental health problems in COVID-19: a review. F1000Res. 2020;9:636. doi: 10.12688/f1000research.24457.1
- Zhang Y, Ma ZF. Impact of the COVID-19 pandemic on mental health and quality of life among local residents in Liaoning Province, China: a cross-sectional study. Int J Environ Res Public Health. 2020;17(7):2381. doi: 10.3390/ijerph17072381
- Buneviciene I, Bunevicius R, Bagdonas S, et al. Psychometric properties of the COVID-19 fears Questionnaire for chronic medical conditions in patients with pre-existing medical conditions. Health Soc Care Community. 2022;30(5):e2866–e2873. doi: 10.1111/hsc.13730
- Ogueji IF, Okoloba MM, Ceccaldi MMD. Coping strategies of individuals in the United Kingdom during the COVID-19 pandemic. Curr Psychol. 2022;41(11):7493–7499. doi: 10.1007/s12144-020-01318-7
- Sabatello M, Burke TB, McDonald KE, et al. Disability, ethics, and health care in the COVID-19 pandemic. Am J Public Health. 2020;110(10):1523–1527. doi: 10.2105/AJPH.2020.305837
- Okoloba MM, Ogueli IA, Darroch SJ, et al. A multinational pilot study on the lived experiences and mental health impacts from the COVID-19 pandemic. Gob Psychiatry Arch. 2020;3(2):211–226. doi: 10.52095/gpa.2020.1378