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Editorial

How clinicians and persons with hemophilia may approach shared decision-making

ORCID Icon &
Pages 193-196 | Received 27 Feb 2024, Accepted 07 May 2024, Published online: 11 May 2024

References

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  • National Bleeding Disorders Foundation Medical and Scientific Advisory Council (MASAC). MASAC document 282- MASAC recommendations on hemophilia treatment center preparedness for delivering gene therapy: National Bleeding Disorders Foundation. [cited 2024 Feb 10]. Availabe from: https://www.hemophilia.org/healthcare-professionals/guidelines-on-care/masac-documents/masac-document-282-masac-recommendations-on-hemophilia-treatment-center-preparedness-for-delivering-gene-therapy-for-hemophilia.
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  • Limjoco J, Calatroni A, Aristizabal P, et al. Gene therapy preferences and informed decision-making: results from a national hemophilia foundation community voices in research survey. Haemophilia. 2023;29(1):51–60. doi: 10.1111/hae.14706
  • van Overbeeke E, Hauber B, Michelsen S, et al. Patient Preferences to Assess Value IN Gene therapies: protocol development for the PAVING study in hemophilia. Front Med. 2021;8:595797. doi: 10.3389/fmed.2021.595797
  • van Overbeeke E, Michelsen S, Hauber B, et al. Patient perspectives regarding gene therapy in haemophilia: interviews from the PAVING study. Haemophilia. 2021;27(1):129–136. doi: 10.1111/hae.14190
  • Witkop M, Morgan G, O’Hara J, et al. Patient preferences and priorities for haemophilia gene therapy in the US: a discrete choice experiment. Haemophilia. 2021;27(5):769–782. doi: 10.1111/hae.14383

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