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Original research

Impact of patients’ attitudes and dynamics in needs and life experiences during their journey in COPD: an ethnographic study

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Pages 121-132 | Received 21 Dec 2020, Accepted 15 Feb 2021, Published online: 09 Jul 2021

References

  • Soriano JB, Abajobir AA, Abate KH; GBD 2015 Chronic Respiratory Disease Collaborators. Global, regional, and national deaths, prevalence, disability-adjusted life years, and years lived with disability for chronic obstructive pulmonary disease and asthma, 1990–2015: a systematic analysis for the Global Burden of Disease Study 2015. Lancet Respir Med. 2017;5:691–706.
  • Vogelmeier CF, Criner GJ, Martinez FJ, et al. Global strategy for the diagnosis, management, and prevention of chronic obstructive lung disease 2017 report. GOLD executive summary. Am J Respir Crit Care Med. 2017;195:557–582.
  • Goërtz YMJ, Spruit MA, Van ’T Hul AJ, et al. Fatigue is highly prevalent in patients with COPD and correlates poorly with the degree of airflow limitation. Ther Adv Respir Dis. 2019;13:1753466619878128.
  • Kouijzer M, Brusse-Keizer M, Bode C. COPD-related fatigue: impact on daily life and treatment opportunities from the patient’s perspective. Respir Med. 2018;141:47–51.
  • Miravitlles M, Ribera A. Understanding the impact of symptoms on the burden of COPD. Respir Res. 2017;18:67.
  • Global Initiative for Chronic Obstructive Lung Disease. GOLD report 2020 global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease. Glob Initiat Chronic Obstr Lung Dis. 2020:141.
  • Wedzicha JA, Miravitlles M, Hurst JR, et al. Management of COPD exacerbations: a European Respiratory Society/American Thoracic Society guideline. Eur Respir J. 2017;49:1600791.
  • de GesEPOC GDT. SEPAR: guía de práctica clínica para el diagnóstico y tratamiento de pacientes con enfermedad pulmonar obstructiva crónica (EPOC) – guía Española de la EPOC (GesEPOC). Versión 2017. Arch Bronconeumol. 2017;53:2–64.
  • Brien SB, Lewith GT, Thomas M. Patient coping strategies in COPD across disease severity and quality of life: a qualitative study. NPJ Prim Care Respir Med. 2016;26:16051. .
  • Ketelaars CA, Schlösser MA, Mostert R, et al. Determinants of health-related quality of life in patients with chronic obstructive pulmonary disease. Thorax. 1996;51:39–43.
  • Balcells E, Gea J, Ferrer J, et al. Factors affecting the relationship between psychological status and quality of life in COPD patients. Health Qual Life Outcomes. 2010;8:108.
  • Kaptein A, Fischer M, Scharloo M. Self-management in patients with COPD: theoretical context, content, outcomes, and integration into clinical care. Int J Chron Obstruct Pulmon Dis. 2014;9:907.
  • Zwerink M, Brusse-Keizer M, van der Valk PDLPM, et al. Self management for patients with chronic obstructive pulmonary disease. Cochrane Database Syst Rev. 2014;2014:CD002990.
  • Wiśniewski D, Porzezińska M, Gruchała-Niedoszytko M, et al. Factors influencing adherence to treatment in COPD patients and its relationship with disease exacerbations. Pneumonol Alergol Pol. 2014;82:96–104.
  • López-Campos JL, Quintana Gallego E, Carrasco Hernández L. Status of and strategies for improving adherence to COPD treatment. Int J Chron Obstruct Pulmon Dis. 2019;14:1503–1515.
  • Topp M, Vestbo J, Mortensen EL. Personality traits and mental symptoms are associated with impact of chronic obstructive pulmonary disease on patients’ daily life. COPD J Chronic Obstr Pulm Dis. 2016;13:773–778. .
  • Mathar H, Fastholm P, Sandholm Larsen N. Self-reported illness behaviour related to chronic obstructive pulmonary disease and rehabilitation: a theory-guided qualitative study. Scand J Caring Sci. 2020;34:484–491.
  • Kaptein AA, Scharloo M, Fischer MJ, et al. 50 Years of psychological research on patients with COPD – road to ruin or highway to heaven? Respir Med. 2009;103:3–11.
  • Russell S, Ogunbayo OJ, Newham JJ, et al. Qualitative systematic review of barriers and facilitators to self-management of chronic obstructive pulmonary disease: views of patients and healthcare professionals. Npj Prim Care Respir Med. 2018;28:2.
  • Tiemensma J, Gaab E, Voorhaar M, et al. Illness perceptions and coping determine quality of life in COPD patients. Int J Chron Obstruct Pulmon Dis. 2016;11:2001–2007.
  • Scharloo M, Kaptein AA, Schlösser M, et al. Illness perceptions and quality of life in patients with chronic obstructive pulmonary disease. J Asthma. 2007;44:575–581.
  • Tabała K, Wrzesińska M, Stecz P, et al. Correlates of respiratory admissions frequency in patients with obstructive lung diseases: coping styles, personality and anxiety. Psychiatr Pol. 2020;54:303–316.
  • Barbour RS. Checklists for improving rigour in qualitative research: a case of the tail wagging the dog? BMJ. 2001;322:1115–1117.
  • Dervin B. Sense making theory and practice: an overview of user interests in knowledge seeking and use. J Knowl Manag. 1998;2:36–46. .
  • Miravitlles M, Soriano JB, García-Río F, et al. Prevalence of COPD in Spain: impact of undiagnosed COPD on quality of life and daily life activities. Thorax. 2009;64:863–868.
  • Kaptein AA, Scharloo M, Fischer MJ, et al. Illness perceptions and COPD: an emerging field for COPD patient management. J Asthma. 2008;45:625–629.
  • McCathie HCF, Spence SH, Tate RL. Adjustment to chronic obstructive pulmonary disease: the importance of psychological factors. Eur Respir J. 2002;19:47–53. .
  • Harrison SL. Reviewing and applying qualitative research to inform management of chronic obstructive pulmonary disease. Chron Respir Dis. 2019;16:1–3.
  • Sigurgeirsdottir J, Halldorsdottir S, Arnardottir RH, et al. COPD patients’ experiences, self-reported needs, and needs-driven strategies to cope with self-management. Int J Chron Obstruct Pulmon Dis. 2019;14:1033–1043.
  • Stoilkova A, Janssen DJA, Franssen FME, et al. Coping styles in patients with COPD before and after pulmonary rehabilitation. Respir Med. 2013;107:825–833.
  • Tumilty E, Doolan-Noble F, Latu ATF, et al. A balancing act”. Living with severe chronic obstructive pulmonary disease in Southern New Zealand: a qualitative study. J Prim Health Care. 2020;12:166.
  • Papava I, Oancea C, Enatescu VR, et al. The impact of coping on the somatic and mental status of patients with COPD: a cross-sectional study. Int J Chron Obstruct Pulmon Dis. 2016;11:1343–1351.
  • Stoilkova A, Wouters EFM, Spruit MA, et al. The relationship between coping styles and clinical outcomes in patients with COPD entering pulmonary rehabilitation. COPD J Chronic Obstr Pulm Dis. 2013;10:316–323.
  • Scharloo M, Kaptein AA, Weinman JA, et al. Physical and psychological correlates of functioning in patients with chronic obstructive pulmonary disease. J Asthma. 2000;37:17–29.
  • Tselebis A, Bratis D, Kosmas E, et al. Psychological symptom patterns and vital exhaustion in outpatients with chronic obstructive pulmonary disease. Ann Gen Psychiatry. 2011;10:32.
  • Ashutosh K, Haldipur C, Boucher ML. Clinical and personality profiles and survival in patients with COPD. Chest. 1997;111:95–98.
  • Disler RT, Green A, Luckett T, et al. Experience of advanced chronic obstructive pulmonary disease: metasynthesis of qualitative research. J Pain Symptom Manage. 2014;48:1182–1199.
  • Ogunbayo OJ, Russell S, Newham JJ, et al. Understanding the factors affecting self-management of COPD from the perspectives of healthcare practitioners: a qualitative study. Npj Prim Care Respir Med. 2017;27:27.
  • Adams RJ. Improving health outcomes with better patient understanding and education. Risk Manag Healthc Policy. 2010;3:61–72.
  • O’Conor R, Muellers K, Arvanitis M, et al. Effects of health literacy and cognitive abilities on COPD self-management behaviors: a prospective cohort study. Respir Med. 2019;160:105630.
  • Gatti V, Banfi P, Centanni S, et al. Enlightening chronic obstructive pulmonary disease through patients’ and caregivers’ narratives. Int J Chron Obstruct Pulmon Dis. 2018;13:3095–3105.