3,719
Views
10
CrossRef citations to date
0
Altmetric
Empirical Studies

Breathing through a troubled life – a phenomenological-hermeneutic study of chronic obstructive pulmonary disease patients’ lived experiences during the course of pulmonary rehabilitation

ORCID Icon, ORCID Icon, ORCID Icon &
Article: 1647401 | Accepted 16 Jul 2019, Published online: 21 Aug 2019

References

  • Bailey, P. H. (2004). The dyspnea-anxiety-dyspnea cycle–COPD patients’ stories of breathlessness: “It’s scary/when you can’t breathe”. Qualitative Health Research, 14(6), 760–11.
  • Cassidy, S., Turnbull, S., Gardani, M., & Kirkwood, K. (2014). Attendance at pulmonary rehabilitation classes: An exploration of demographic, physiological and psychological factors that predict completion of treatment. Chronic Respiratory Disease, 11(2), 95–102.
  • Cooney, A., Mee, L., Casey, D., Murphy K., Kirwan C., Burke E., … PRINCE team. (2013). Life with chronic obstructive pulmonary disease: Striving for “controlled co-existence”. Journal of Clinical Nursing, 22(7–8), 986–995.
  • Cox, N. S., Oliveira, C. C., Lahham, A., & Holland, A. E. (2017). Pulmonary rehabilitation referral and participation are commonly influenced by environment, knowledge, and beliefs about consequences: A systematic review using the theoretical domains framework. Journal of Physiotherapy, 63, 84–93.
  • Crisafulli, E., Gorgone, P., Vagaggini, B., Pagani M., Rossi G., Costa F., … Olivieri D. (2010). Efficacy of standard rehabilitation in COPD outpatients with comorbidities. European Respiratory Journal, 36(5), 1042–1048.
  • Dahlberg, K. (2006). The essence of essences/the search for meaning structures inphenomenological analysis of lifeworld phenomena. International Journal of Qualitative Studies on Health and Well-being, 1(1), 11–19.
  • Dreyer, P. S., & Pedersen, B. D. (2009). Distanciation in Ricoeur’s theory of interpretation: Narrations in a study of life experiences of living with chronic illness and home mechanical ventilation. Nursing Inquiry, 16(1), 64.
  • Emerson, R. M., Fretz, R., & Shaw, L. L. (1995). Writing ethnographic fieldnotes. London: The University of Chicago Press.
  • Fog, J. (2004). Conversation as the key point: The qualitative research interview [Med Samtalen Som Udgangspunkt: Det Kvalitative Forskningsinterview] (Vol. 2). revider. [Kbh.]: Akademisk Forlag.
  • Freire, P. (2005). Education for critical consciousness. London: Continuum.
  • Giacomini, M., DeJean, D., Simeonov, D., & Smith, A. (2012). Experiences of living and dying with COPD: A systematic review and synthesis of the qualitative empirical literature. Ontario Health Technology Assessment Series, 12(13), 1–47.
  • Global Initiative for Chronic Obstructive Lung Disease. 2018. Global strategy for the diagnosis management and prevention of COPD. Global. Retrieved from file:///C:/Users/cpsi/Desktop/litteratur/GOLD-2018-v6.0-FINAL-revised-20-Nov_WMS.pdf
  • Gysels, M., & Higginson, I. J. (2008). Access to services for patients with chronic obstructive pulmonary disease: The invisibility of breathlessness. Journal of Pain and Symptom Management, 36(5), 451–460.
  • Halding, A.-G., & Heggdal, K. (2012). Patients’ experiences of health transitions in pulmonary rehabilitation. Nursing Inquiry, 19(4), 345–356.
  • Hammersley, M., & Atkinson, P. (2007). Ethnography – Principles in practice (3rd ed.). London: Routlegde.
  • Hoaas, H., Andreassen, H. K., Lien, L. A., Hjalmarsen, A., & Zanaboni, P. (2016). Adherence and factors affecting satisfaction in long-term telerehabilitation for patients with chronic obstructive pulmonary disease: A mixed methods study. BMC Medical Informatics and Decision Making, 16(1), 26.
  • Holland, A. E., Hill, C. J., Rochford, P., Fiore, J., Berlowitz, D. J., & McDonald, C. F. (2013). Telerehabilitation for people with chronic obstructive pulmonary disease: Feasibility of a simple, real time model of supervised exercise training. Journal of Telemedicine and Telecare, 19(4), 222–226.
  • Jackson, K., Oelke, N. D., Besner, J., & Harrison, A. (2012). Patient journey: Implications for improving and integrating care for older adults with chronic obstructive pulmonary disease. Canadian Journal on Aging / La Revue Canadienne Du Vieillissement, 31(2), 223–233.
  • Kauffman, K. S., Doede, M., Diaz-Abad, M., Scharf, S. M., Bell-Farrell, W., Rogers, V. E., & Geiger-Brown, J. (2014). Experience of insomnia, symptom attribution and treatment preferences in individuals with moderate to severe COPD: A qualitative study. Patient Preference and Adherence, 8, 1699–1704.
  • Keating, A., Lee, A. L., & Holland, A. E. (2011). Lack of perceived benefit and inadequate transport influence uptake and completion of pulmonary rehabilitation in people with chronic obstructive pulmonary disease: A qualitative study. Journal of Physiotherapy, 57(3), 183–190.
  • Kvale, S. (1996). InterViews: An introduction to qualitative research interviewing. Thousand Oaks: Sage.
  • Løgstrup, K. E. (2010). Den Etiske Fordring [The ethical claim] (4th ed.). Århus: Klim.
  • Mathar, H., Fastholm, P., Lange, P., & Larsen, N. S. (2017). Why do patients decline participation in offered pulmonary rehabilitation? A qualitative study. Clinical Rehabilitation, 31(12), 1674–1683.
  • McCarthy, B., Casey, D., Devane, D., Murphy, K., Murphy, E., & Lacasse, Y. (2015). Pulmonary rehabilitation for chronic obstructive pulmonary disease. Cochrane Database of Systematic Reviews, (2), CD003793. doi:10.1002/14651858.CD003793.pub3
  • McMillan Boyles, C., Hill Bailey, P., & Mossey, S. (2011). Chronic obstructive pulmonary disease as disability: Dilemma STORIES. Qualitative Health Research, 21(2), 187–198.
  • Meis, J. J. M., Bosma, C. B., Spruit, M. A., Franssen, F. M. E., Janssen, D. J. A., Teixeira, P. J., … Kremers, S. P. J. (2014). A qualitative assessment of COPD patients’ experiences of pulmonary rehabilitation and guidance by healthcare professionals. Respiratory Medicine, 108(3), 500–510.
  • Merleau-Ponty, M. (2002). Phenomenology of perception (2nd ed.). London: Routlegde.
  • Pedersen, B. D. (1999). Sygeplejepraksis: Sprog& erkendelse [Nursing practice. Language and cognition].
  • Ricoeur, P. (1976). Interpretation theory: Discourse and the surplus of meaning (Vol. 5). Fort Worth, TX: Texas Christian University Press. print.
  • Rochester, C. L., Vogiatzis, I., Holland, A. E., Lareau, S. C., Marciniuk, D. D., Puhan, M. A., … ZuWallack, R. L. (2015). An Official American Thoracic Society/European Respiratory Society policy statement: Enhancing implementation, use, and delivery of pulmonary rehabilitation. American Journal of Respiratory and Critical Care Medicine, 192(11), 1373–1386.
  • Simonÿ, C., Andersen, I. C., Bodtger, U., & Birkelund, R. (2019). Accommodating to a troubled life – Chronic obstructive pulmonary disease patients ’ experiences and perceptions of self-image during the course of rehabilitation. Disability and Rehabilitation, 1–9. doi:10.1080/09638288.2018.1563641
  • Simonÿ, C., Specht, K., Andersen, I. C., Johansen, K. K., Nielsen, C., & Agerskov, H. (2018). A ricoeur-inspired approach to interpret participant observations and interviews. Global Qualitative Nursing Research, 5, 233339361880739.
  • Spradley, J. P. (1979). The ethnographic interview. Fort Worth: Harcourt Brace Jovanovich College Publishers.
  • Spradley, J. P. (1980). Participant observation. New York: Holt, Rinehart and Winston.
  • Spruit, M. A. (2014). Pulmonary rehabilitation. European Respiratory Review, 23(131), 55–63.
  • Stridsman, C., Lindberg, A., & Skär, L. (2014). Fatigue in chronic obstructive pulmonary disease: A qualitative study of people’s experiences. Scandinavian Journal of Caring Sciences, 28(1), 130–138.
  • Sundhedsstyrelsen. (2014). National klinisk retningslinje for rehabilitering af patienter med KOl [The National Clinical Guideline of Rehabiliation to Patients with COPD]. Sundhedsstyrelsen København. ISBN: 978-87-7104-030-2. Retrived from https://sundhedsstyrelsen.dk/da/nyheder/2014/~/media/C0B92E9C3BEA4B28A3294D70288EC535.ashx
  • Williams, V., Bruton, A., Ellis-Hill, C., & McPherson, K. (2007). What really matters to patients living with chronic obstructive pulmonary disease? An exploratory study. Chronic Respiratory Disease, 4(2), 77–85.
  • Williams, V., Bruton, A., Ellis-Hill, C., & McPherson, K. (2010). The effect of pulmonary rehabilitation on perceptions of breathlessness and activity in COPD patients: A qualitative study. Primary Care Respiratory Journal, 19(1), 45–51.
  • Wodskou, P., Høst, D., Godtfredsen, N., & Frølich, A. (2014). A qualitative study of integrated care from the perspectives of patients with chronic obstructive pulmonary disease and their relatives. BMC Health Services Research, 14(1), 471.
  • World Health Organization. 2018. Chronic respiratory diseases. Retrieved from http://www.who.int/respiratory/copd/en/
  • World Medical Association. (2013). World Medical Association declaration of helsinki ethical principles for medical research involving human subjects. Journal of the American Medical Association, 310(20). doi:10.3917/jib.151.0124
  • Zanaboni, P., Hoaas, H., Aarøen Lien, L., Hjalmarsen, A., & Wootton, R. (2016, February). Long-term exercise maintenance in COPD via telerehabilitation: A two-year pilot study. Journal of Telemedicine and Telecare, 1357633X15625545. doi:10.1177/1357633X15625545