More than just a task: intimate care delivery in the nursing home

References

• Abad-Corpa, E., Gonzalez-Gil, T., Martínez-Hernández, A., Barderas-Manchado, A. M., De la Cuesta-Benjumea, C., Monistrol-Ruano, O., & Mahtani-Chugani, V. (2012). Caring to achieve the maximum independence possible: A synthesis of qualitative evidence on older adults’ adaptation to dependency. Journal of Clinical Nursing, 21(21–22), 3153–10. https://doi.org/https://doi.org/10.1111/j.1365-2702.2012.04207.x
   Web of Science ®Google Scholar
• Baillie, L. (2009). Patient dignity in an acute hospital setting: A case study. International Journal of Nursing Studies, 46(1), 23–36. https://doi.org/https://doi.org/10.1016/j.ijnurstu.2008.08.003
   PubMed Web of Science ®Google Scholar
• Barken, R., & Armstrong, P. (2018). Skills of workers in long-term residential care: Exploring complexities, challenges, and opportunities. Ageing International, 43(1), 110–122. https://doi.org/https://doi.org/10.1007/s12126-017-9285-7
   Web of Science ®Google Scholar
• Berta, W., Laporte, A., Deber, R., Baumann, A., & Gamble, B. (2013). The evolving role of health care aides in the long-term care and home and community care sectors in Canada. Human Resources for Health, 11(1), 25 https://doi.org/https://doi.org/10.1186/1478-4491-11-25
   Google Scholar
• Brandburg, G. L., Symes, L., Mastel-Smith, B., Hersch, G., & Walsh, T. (2013). Resident strategies for making a life in a nursing home: A qualitative study. Journal of Advanced Nursing, 69(4), 862–874. https://doi.org/https://doi.org/10.1111/j.1365-2648.2012.06075.x
   PubMed Web of Science ®Google Scholar
• Carnaby, S., & Cambridge, P. (2002). Getting personal: An exploratory study of intimate and personal care provision for people with profound and multiple intellectual disabilities. Journal of Intellectual Disability Research, 46(Pt 2), 120–132. https://doi.org/https://doi.org/10.1046/j.1365-2788.2002.00358.x
   Web of Science ®Google Scholar
• Coffey, A., & Atkinson, P. (1996). Making sense of qualitative data: Complementary research strategies. Sage.
   Google Scholar
• Cruz, E. V., & Higginbottom, G. (2013). The use of focused ethnography in nursing research. Nurse Researcher, 20(4), 36–43. https://doi.org/https://doi.org/10.7748/nr2013.03.20.4.36.e305
   PubMedGoogle Scholar
• Edvardsson, D. (2015). Notes on person-centred care: What it is and what it is not. Nordic Journal of Nursing Research, 350(2), 65–66. https://doi.org/https://doi.org/10.1136/bmj.h160
   Google Scholar
• Evans, B. C., Crogan, N. L., & Shultz, J. A. (2004). Resident coping strategies in the nursing home: An indicator of the need for dietary services change. Applied Nursing Research, 17(2), 109–115. https://doi.org/https://doi.org/10.1016/j.apnr.2004.02.003
   PubMed Web of Science ®Google Scholar
• Ferri, P., Muzzalupo, J., & Lorenzo, R. D. (2015). Patients’ perception of dignity in an Italian general hospital: A cross-sectional analysis. BMC Health Services Research, 15(1) 41. https://doi.org/https://doi.org/10.1186/s12913-015-0704-8
   Google Scholar
• Gaudenz, C., De Geest, S., Schwendimann, R., & Zúñiga, F. (2019). Factors associated with care workers’ intention to leave employment in nursing homes: A secondary data analysis of the swiss nursing homes human resources project. Journal of Applied Gerontology, 38(11), 1537–1563. https://doi.org/https://doi.org/10.1177/0733464817721111
   Web of Science ®Google Scholar
• Hewko, S. J., Cooper, S. L., Huynh, H., Spiwek, T. L., Carleton, H. L., Reid, S., & Cummings, G. G. (2015). Invisible no more: A scoping review of the health care aide workforce literature. BMC Nursing, 14(1), 38. https://doi.org/https://doi.org/10.1186/s12912-015-0090-x
   PubMedGoogle Scholar
• Higginbottom, G., Pillay, J., & Boadu, J. Y. (2013). Guidance on performing focused ethnographies with an emphasis on healthcare research. The Qualitative Report, 18(9), 1–16. https://doi.org/https://doi.org/10.46743/2160-3715/2013.1550
   Google Scholar
• Johansson, B., & Mårtensson, L. B. (2019). Ways of strategies to knowing the patient described by nursing students. Nurse Education in Practice, 38, 120–125. https://doi.org/https://doi.org/10.1016/j.nepr.2019.06.003
   Web of Science ®Google Scholar
• Kornhaber, R., Walsh, K., Duff, J., & Walker, K. (2016). Enhancing adult therapeutic interpersonal relationships in the acute health care setting: An integrative review. Journal of Multidisciplinary Healthcare, 9, 537–546. https://doi.org/https://doi.org/10.2147/JMDH.S116957
   PubMed Web of Science ®Google Scholar
• Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Sage Publications.
   Google Scholar
• Picco, E., Santoro, R., & Garrino, L. (2010). Dealing with the patient’s body in nursing: Nurses’ ambiguous experience in clinical practice. Nursing Inquiry, 17(1), 39–46. https://doi.org/https://doi.org/10.1111/j.1440-1800.2009.00481.x
   PubMed Web of Science ®Google Scholar
• Randers, I., & Mattiasson, A. C. (2000). The experiences of elderly people in geriatric care with special reference to integrity. Nursing Ethics, 7(6), 503–519. https://doi.org/https://doi.org/10.1177/096973300000700606
   PubMed Web of Science ®Google Scholar
• Remillard, E. T., Fausset, C. B., Fain, W. B., & Bowers, B. J. (2019). Aging with long-term mobility impairment: Maintaining activities of daily living via selection, optimization, and compensation. The Gerontologist, 59(3), 559–569. https://doi.org/https://doi.org/10.1093/geront/gnx186
   PubMed Web of Science ®Google Scholar
• Rodriquez, J. (2011). “It’s a dignity thing”: Nursing home care workers’ use of emotions. Sociological Forum, 26(2), 265–286. https://doi.org/https://doi.org/10.1111/j.1573-7861.2011.01240.x
   PubMed Web of Science ®Google Scholar
• Roper, J. M., & Shapira, J. (2000). Ethnography in nursing research. Sage Publications, Inc.
   Google Scholar
• Sacco-Peterson, M., & Borell, L. (2004). Struggles for autonomy in self-care: The impact of the physical and socio-cultural environment in a long-term care setting. Scandinavian Journal of Caring Sciences, 18(4), 376–386. https://doi.org/https://doi.org/10.1111/j.1471-6712.2004.00292.x
   PubMed Web of Science ®Google Scholar
• Šaňáková, Š., & Čáp, J. (2019). Dignity from the nurses’ and older patients’ perspective: A qualitative literature review. Nursing Ethics, 26(5), 1292–1309. https://doi.org/https://doi.org/10.1177/0969733017747960
   PubMed Web of Science ®Google Scholar
• Sinclair, S., McClement, S., Raffin-Bouchal, S., Hack, T. F., Hagen, N. A., McConnell, S., & Chochinov, H. M. (2016). Compassion in health care: An empirical model. Journal of Pain and Symptom Management, 51(2), 193–203. https://doi.org/https://doi.org/10.1016/j.jpainsymman.2015.10.009
   PubMed Web of Science ®Google Scholar
• Speziale, H. J. S., & Carpenter, D. R. (2007). Qualitative research in nursing: Advancing the humanistic imperative (4th ed.). Lippincott Williams & Wilkins.
   Google Scholar
• Steinke, C. (2016). Elemental nursing: Knowing, doing, being. Canadian Nurse, 112(2), 34. https://www.canadian-nurse.com/
   Google Scholar
• Tallman, B. (2015). Personhood and intersubjectivity. Perspectives: The Journal of the Gerontological Nursing Association, 38(1), 19–21. https://cgna.net/journal.
   Google Scholar
• Teeri, S., Välimäki, M., Katajisto, J., & Leino-Kilpi, H. (2007). Nurses perceptions of older patients integrity in long-term institutions. Scandinavian Journal of Caring Sciences, 21(4), 490–499. https://doi.org/https://doi.org/10.1111/j.1471-6712.2007.00499.x
   Web of Science ®Google Scholar
• Thompson, G. N., McClement, S. E., & Chochinov, H. M. (2011). How respect and kindness are experienced at the end of life by nursing home residents. Canadian Journal of Nursing Research, 43(3), 96–118. https://cjnr.archive.mcgill.ca/issue/view/223.
   Google Scholar
• Twigg, J., Wolkowitz, C., Cohen, R. L., & Nettleton, S. (2011). Conceptualising body work in health and social care. Sociology of Health & Illness, 33(2), 171–188. https://doi.org/https://doi.org/10.1111/j.1467-9566.2010.01323.x
   PubMed Web of Science ®Google Scholar
• Vassbø, T. K., Kirkevold, M., Edvardsson, D., Sjögren, K., Lood, Q., & Bergland, Å. (2019). The meaning of working in a person-centred way in nursing homes: A phenomenological-hermeneutical study. BMC Nursing, 18(1), 45. https://doi.org/https://doi.org/10.1186/s12912-019-0372-9
   Google Scholar
• Yeatts, D. E., Seckin, G., Shen, Y., Thompson, M., Auden, D., & Cready, C. M. (2018). Burnout among direct-care workers in nursing homes: Influences of organisational, workplace, interpersonal and personal characteristics. Journal of Clinical Nursing, 27(19–20), 3652–3665. https://doi.org/https://doi.org/10.1111/jocn.14267
   Web of Science ®Google Scholar
• Yeung, J., Jones, A., Jhangri, G. S., Gibson, W., Hunter, K. F., & Wagg, A. (2019). Toileting disability in older people residing in long-term care or assisted living facilities: A scoping review of the literature. Journal of Wound, Ostomy and Continence Nursing, 46(5), 424–433. https://doi.org/https://doi.org/10.1097/WON.0000000000000575
   PubMed Web of Science ®Google Scholar