Carrying on life at home or moving to a nursing home: frail older people’s experiences of at-homeness

References

• Andrew, M. K., Fisk, J. D., & Rockwood, K. (2012). Psychological well-being in relation to frailty: A frailty identity crisis? International Psychogeriatrics, 24(8), 1347–11. https://doi.org/10.1017/S1041610212000269
   PubMed Web of Science ®Google Scholar
• Baldursson, S. (2002). The nature of at-homeness. Phenomenology Online. Retrieved April 28, 2022, from https://www.phenomenologyonline.com/sources/textorium/baldursson-stefan-the-nature-of-at-homeness
   Google Scholar
• Brinkmann, S., & Kvale, S. (2014). InterViews: Learning the craft of qualitative research interviewing (3rd ed.). Sage.
   Google Scholar
• Clegg, A., Young, J., Iliffe, S., Rikkert, M. O., & Rockwood, K. (2013). Frailty in elderly people. The Lancet, 381(9868), 752–762. https://doi.org/10.1016/S0140-6736(12)62167-9
   PubMed Web of Science ®Google Scholar
• Combes, S., Gillett, K., Norton, C., & Nicholson, C. J . (2021). The importance of living well now and relationships: A qualitative study of the barriers and enablers to engaging frail elders with advance care planning. Palliat Med. Jun;35(6), 1137–1147. https://doi.org/10.1177/02692163211013260
   Web of Science ®Google Scholar
• Cooney, A. (2012). ‘Finding home’: A grounded theory on how older people ‘find home’ in long‐term care settings. International Journal of Older People Nursing, 7(3), 188–199. https://doi.org/10.1111/j.1748‐3743.2011.00278.x
   PubMedGoogle Scholar
• Creswell, J. W., & Creswell Báez, J. (2020). 30 essential skills for the qualitative researcher (Second ed.). Sage.
   Google Scholar
• Dekkers, W. J. M. (2009). On the notion of home and the goals of palliative care. Theoretical Medicine and Bioethics, 30(5), 335–349. https://doi.org/10.1007/s11017-009-9121-5
   Web of Science ®Google Scholar
• Dodge, R., Daly, A. P., Huyton, J., & Sanders, L. D. (2012). The challenge of defining well-being. International Journal of Wellbeing, 2(3), 222–235. https://doi.org/10.5502/ijw.v2.i3.4
   Google Scholar
• Eriksson, K., & Eriksson, K. (2018). Vårdvetenskap: Vetenskapen om vårdandet: Om det tidlösa i tiden. Liber.
   Google Scholar
• Fæø, S. E., Husebo, B. S., Bruvik, F. K., & Tranvåg, O. (2019). “We live as good a life as we can, in the situation we’re in” - the significance of the home as perceived by persons with dementia. BMC Geriatrics, 19(1), 158. https://doi.org/10.1186/s12877-019-1171-6
   Web of Science ®Google Scholar
• Fried, L. P., Tangen, C. M., Waltson, J., Newman, A. B., Hirsh, C., Gottdiener, J., and McBurnie, M. A. (2001). Frailty in older adults: Evidence for a phenotype. Journal of Gerontology: Medical Sciences, 56(3), M146–M156. http://doi.org/10.1093/gerona/56.3.m146
   PubMed Web of Science ®Google Scholar
• Frost, R., Belk, C., Jovicic, A., Ricciardi, F., Kharicha, K., Gardner, B., Iliffe, S., Goodman, C., Manthorpe, J., Drennan, V. M., & Walters, K. (2017). Health promotion interventions for community-dwelling older people with mild or pre-frailty: A systematic review and meta-analysis. BMC Geriatrics, 17(1). https://doi.org/10.1186/s12877-017-0547-8
   Google Scholar
• Frost, R., Kharicha, K., Jovicic, A., Liljas, A. E. M., Iliffe, S., Manthorpe, J., Gardner, B., Avgerinou, C., Goodman, C., Drennan, V. M., & Walters, K. (2018). Identifying acceptable components for home‐based health promotion services for older people with mild frailty: A qualitative study. Health & Social Care in the Community, 26(3), 393–403. https://doi.org/10.1111/hsc.12526
   Web of Science ®Google Scholar
• Gillsjö, C., Schwartz-Barcott, D., & von Post, I. (2011). Home: The place the older adult cannot imagine living without. BMC Geriatrics, 11(1), 10. https://doi.org/10.1186/1471-2318-11-10
   Web of Science ®Google Scholar
• Heidegger, M. (1962). Being and time. Basil Blackwell.
   Google Scholar
• Hemberg, J., Nyqvist, F., Ueland, V., & Näsman, M. (2020). Experiences of longing in daily life and associations to well-being among frail older adults receiving home care: A qualitative study. International Journal of Qualitative Studies on Health and Well-being, 15(1), 1857950. https://doi.org/10.1080/17482631.2020.1857950
   PubMed Web of Science ®Google Scholar
• Hilli, Y., & Eriksson, K. (2019). The home as ethos of caring: A concept determination. Nursing Ethics, 26(2), 425–433. https://doi.org/10.1177/0969733017718395
   PubMed Web of Science ®Google Scholar
• Hoogendijk, E. O., Afilalo, J., Ensrud, K. E., Kowal, P., Onder, G., & Fried, L. P. (2019). Frailty: Implications for clinical practice and public health. The Lancet, 394(10206), 1375. https://doi.org/10.1016/S0140-6736(19)31786-6
   Web of Science ®Google Scholar
• Kojima, G., Taniguchi, Y., Iliffe, S., Jivraj, S., & Walters, K. (2019). Transitions between frailty states among community-dwelling older people: A systematic review and meta-analysis. Ageing Research Reviews, 50, 81–88. https://doi.org/10.1016/j.arr.2019.01.010
   PubMed Web of Science ®Google Scholar
• Lekan, D. A., Collins, S. K., & Hayajneh, A. A. (2021). Definitions of frailty in qualitative research: A qualitative systematic review. Journal of Aging Research, 2021, 1–20. https://doi.org/10.1155/2021/6285058
   Google Scholar
• Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Sage.
   Google Scholar
• Merleau-Ponty, M. (2002). Phenomenology of perception. Taylor and Francis.
   Google Scholar
• Ministry of Health and Care Services, Norway (2018). A full life – All your life. A quality reform for older persons. White paper no. 15 (2017–2018). Oslo: Government of Norway. https://www.helsedirektoratet.no/tema/leve-hele-livet-kvalitetsreformen-for-eldre/St%20Meld%2015%20-%20engelsk.pdf/_/attachment/inline/8561e891-57dd-447b-a184-895b739d74ce:c3c28dd80df596a4c8a05ffe6e5cf2e291198ba0/St%20Meld%2015%20-%20engelsk.pdf, accessed 30 April 2022.
   Google Scholar
• Molony, S. L. (2010). The meaning of home: A qualitative metasynthesis. Research in Gerontological Nursing, 3(4), 291–307. https://doi.org/10.3928/19404921-20100302-02
   PubMed Web of Science ®Google Scholar
• Munkejord, M. C., Eggebø, H., & Schönfelder, W. (2018). Hjemme best?: En tematisk analyse av eldres fortellinger om omsorg og trygghet i eget hjem. Tidsskrift for Omsorgsforskning, 4(1), 16–26. https://doi.org/10.18261/.2387-5984-2018-01-03
   Google Scholar
• Nieboer, A. P., Nieboer, A. P., Cramm, J. M., & Cramm, J. M. (2018). Age-friendly communities matter for older people’s well-being. Journal of Happiness Studies, 19(8), 2405–2420. https://doi.org/10.1007/s10902-017-9923-5
   Web of Science ®Google Scholar
• Nilsen, E. R., Hollister, B., Söderhamn, U., & Dale, B. (2021). What matters to older adults? Exploring person‐centred care during and after transitions between hospital and home. Journal of Clinical Nursing. 31, 569–581. https://doi.org/10.1111/jocn.15914
   Google Scholar
• O’Neill, M., Ryan, A., Tracey, A., & Laird, L. (2020). “You’re at their mercy”: Older peoples’ experiences of moving from home to a care home: A grounded theory study. International Journal of Older People Nursing, 15(2), e12305–n/a. https://doi.org/10.1111/opn.12305
   PubMed Web of Science ®Google Scholar
• Öhlén, J., Ekman, I., Zingmark, K., Bolmsjö, I., & Benzein, E. (2014). Conceptual development of “at-homeness” despite illness and disease: A review. International Journal of Qualitative Studies on Health and Well-being, 9(1), 236770. https://doi.org/10.3402/qhw.v9.23677
   Web of Science ®Google Scholar
• Österlind, J., Ternestedt, B. M., Hansebo, G., & Hellström, I. (2017). Feeling lonely in an unfamiliar place: Older people’s experiences of life close to death in a nursing home. International Journal of Older People Nursing, 12(1), e12129–n/a. https://doi.org/10.1111/opn.12129
   Web of Science ®Google Scholar
• Paddock, K., Brown Wilson, C., Walshe, C., & Todd, C. (2019). Care home life and identity: A qualitative case study. Gerontologist, 59(4), 655–664. https://doi.org/10.1093/geront/gny090
   Web of Science ®Google Scholar
• Pasveer, B., Synnes, O., & Moser, I. (2020). Ways of home making in care for later life. Springer Singapore Pte. Limited.
   Google Scholar
• Patton, M. Q. (2015). Qualitative research & evaluation methods: Integrating theory and practice (4th ed.). Sage.
   Google Scholar
• Saarnio, L., Boström, A.-M., Hedman, R., Gustavsson, P., & Öhlén, J. (2017). Enabling at-homeness for residents living in a nursing home: Reflected experience of nursing home staff. Journal of Aging Studies, 43, 40–45. https://doi.org/10.1016/j.jaging.2017.10.001
   Web of Science ®Google Scholar
• Saarnio, L., Boström, A. M., Gustavsson, P., Hedman, R., & Öhlén, J. (2018). Temporally and spatially shaped meanings of at‐homeness among people 85 years and over with severe illness. International Journal of Older People Nursing, 13(1), e12165–n/a. https://doi.org/10.1111/opn.12165
   Web of Science ®Google Scholar
• Saarnio, L., Boström, A.-M., Hedman, R., Gustavsson, P., & Öhlén, J. (2019). Enabling at-homeness for older people with life-limiting conditions: A participant observation study from nursing homes. Global Qualitative Nursing Research, 6, 1–12. https://doi.org/10.1177/2333393619881636
   Web of Science ®Google Scholar
• Shenton, A. K. (2004). Strategies for ensuring trustworthiness in qualitative research projects. Education for Information, 22(2), 63–75. https://doi.org/10.3233/EFI-2004-22201
   Google Scholar
• Sjöberg, M., Edberg, A. K., Rasmussen, B. H., & Beck, I. (2019). Being acknowledged by others and bracketing negative thoughts and feelings: Frail older people’s narrations of how existential loneliness is eased. International Journal of Older People Nursing, 14(1), e12213–n/a. https://doi.org/10.1111/opn.12213
   PubMed Web of Science ®Google Scholar
• Søvde, B. E., Sandvoll, A. M., Natvik, E., & Drageset, J. (2022). In the borderland of the body: How home-dwelling older people experience frailty. Scandinavian Journal of Caring Sciences, 36(1), 255–264. https://doi.org/10.1111/scs.12984
   Web of Science ®Google Scholar
• Statistics Norway (2019). Vesentlig mer bruk av omsorgstjenester ved passerte 85 år [Substantially more use of care services after reaching 85 years of age]. Retrieved April 30, 2022, from https://www.ssb.no/helse/artikler-og-publikasjoner/vesentlig-mer-bruk-av-omsorgstjenester-ved-passerte-85-ar
   Google Scholar
• Svenaeus, F. (2010). Illness as unhomelike being-in-the-world: Heidegger and the phenomenology of medicine. Medicine, Health Care and Philosophy, 14(3), 333–343. https://doi.org/10.1007/s11019-010-9301-0
   Web of Science ®Google Scholar
• Van Manen, M. (1990). Researching lived experience: Human science for an action sensitive pedagogy. State University of New York Press.
   Google Scholar
• Van Manen, M. (2014). Phenomenology of practice: Meaning-giving methods in phenomenological research and writing (Vol. 13). Left Coast Press.
   Google Scholar
• Vetlesen, A. J. (2009). A philosophy of pain. Reaktion Books.
   Google Scholar
• Walker, R., Johns, J., & Halliday, D. (2015). How older people cope with frailty within the context of transition care in Australia: Implications for improving service delivery. Health & Social Care in the Community, 23(2), 216–224. https://doi.org/10.1111/hsc.12142
   Web of Science ®Google Scholar
• Warmoth, K., Lang, I. A., Phoenix, C., Abraham, C., Andrew, M. K., & Hubbard, R. E. (2016). Ageing and Society. 36(7), 1483. https://www.cambridge.org/core/services/aop-cambridge-core/content/view/49CD922BEDECD768F1E556019C270FEF/S0144686X1500046Xa.pdf/div-class-title-thinking-you-re-old-and-frail-a-qualitative-study-of-frailty-in-older-adults-div.pdf
   Google Scholar
• WHO (2017). WHO Clinical Consortium on Healthy Ageing. Report of consortium meeting 1–2 December 2016 in Geneva, Switzerland. World Health Organization. Retrieved April 30, 2022, from https://apps.who.int/iris/bitstream/handle/10665/272437/WHO-FWC-ALC-17.2-eng.pdf
   Google Scholar
• World Medical Association. (2013). World medical association declaration of Helsinki: Ethical principles for medical research involving human subjects. Journal of the American Medical Association, 310(20), 2191–2194. https://doi.org/10.1001/jama.2013.281053
   PubMed Web of Science ®Google Scholar