0
Views
0
CrossRef citations to date
0
Altmetric
Empirical Studies

Mental health service user organizations in times of crises: adaptions, challenges and opportunities experienced by local associations during COVID-19

ORCID Icon & ORCID Icon
Article: 2380360 | Received 22 Apr 2024, Accepted 11 Jul 2024, Published online: 15 Jul 2024

References

  • Akingbola, K. (2020). COVID-19: The prospects for nonprofit human resource management. Canadian Journal of Nonprofit and Social Economy Research, 11(1), 5–14. https://doi.org/10.29173/cjnser.2020v11n1a372
  • Arnstein, S. R. (1969). A ladder of citizen participation. Journal of the American Institute of Planners, 35(4), 216–224. 10.1080/01944366908977225
  • Arvidson, M., Johansson, H., & Scaramuzzino, R. (2018). Advocacy compromised: How financial, organizational and institutional factors shape advocacy strategies of civil society organizations. VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations, 29(4), 844–856. https://doi.org/10.1007/s11266-017-9900-y
  • Beresford, P. (2020). PPI or user involvement: Taking stock from a service user perspective in the twenty first century. Research Involvement and Engagement, 6(1), 1–5. https://doi.org/10.1186/s40900-020-00211-8
  • Beresford, P., Farr, M., Hickey, G., Kaur, M., Ocloo, J., Tembo, D., & Williams, O. (Eds.). (2021). The challenges and necessity of co-production. In COVID-19 and Co-production in health and social care research, policy, and practice (Vol. 1, pp. 3–16). Policy Press.
  • Brülhart, M., Klotzbücher, V., Lalive, R., & Reich, S. K. (2021). Mental health concerns during the COVID-19 pandemic as revealed by helpline calls. Nature, 600(7887), 121–126. https://doi.org/10.1038/s41586-021-04099-6
  • Figueroa, C. A., & Aguilera, A. (2020). The need for a mental health technology revolution in the COVID-19 pandemic. Frontiers in Psychiatry, 11, 548472. https://doi.org/10.3389/fpsyt.2020.00523
  • Gelfgren, S., Ineland, J., & Cocq, C. (2022). Social media and disability advocacy organizations: Caught between hopes and realities. Disability & Society, 37(7), 1085–1106. https://doi.org/10.1080/09687599.2020.1867069
  • Gillard, S., Dare, C., Hardy, J., Nyikavaranda, P., Rowan Olive, R., Shah, P., Birken, M., Foye, U., Ocloo, J., Pearce, E., Stefanidou, T., Pitman, A., Simpson, A., Johnson, S., Lloyd-Evans, B., Anderson, K., Barber, N., Chhapia, A. … Machin, K. (2021). Experiences of living with mental health problems during the COVID-19 pandemic in the UK: A coproduced, participatory qualitative interview study. Social Psychiatry & Psychiatric Epidemiology, 56(8), 1447–1457. https://doi.org/10.1007/s00127-021-02051-7
  • Graneheim, U. H., Lindgren, B.-M., & Lundman, B. (2017). Methodological challenges in qualitative content analysis: A discussion paper. Nurse Education Today, 56, 29–34. https://doi.org/10.1016/j.nedt.2017.06.002
  • Grim, K., Näslund, H., Allaskog, C., Andersson, J., Argentzell, E., Broström, K., Jenneteg, F. G., Jansson, M., Schön, U.-K., & Svedberg, P. (2022). Legitimizing user knowledge in mental health services: Epistemic (in) justice and barriers to knowledge integration. Frontiers in Psychiatry, 1957. https://doi.org/10.3389/fpsyt.2022.981238
  • Hankivsky, O., Grace, D., Hunting, G., Giesbrecht, M., Fridkin, A., Rudrum, S., Ferlatte, O., & Clark, N. (2014). An intersectionality-based policy analysis framework: Critical reflections on a methodology for advancing equity. International Journal for Equity in Health, 13(1), 1–16. https://doi.org/10.1186/s12939-014-0119-x
  • Hjorth, E., Gabrielsson, H., Pohlkamp, L., & Wallin, V. (2021). Patientorganisationer som företräder riskgrupper under covid-19-pandemin: Förändringar i organisation och relation till andra aktörer [Patient organizations representing risk groups during the COVID-19 pandemic: Changes in organization and relationship to other actors]. Socialmedicinsk Tidskrift, 98(1), 38–47.
  • Johansson, H., Arvidson, M., Johansson, S., & Nordfeldt, M. (2019). Mellan röst och service: Ideella organisationer i lokala välfärdssamhällen [Between voice and service: Non-profit organizations in local welfare communities]. Studentlitteratur AB.
  • Jones, N., Byrne, L., & Carr, S. (2020). If not now, when? COVID-19, lived experience, and a moment for real change. The Lancet Psychiatry, 7(12), 1008–1009. https://doi.org/10.1016/S2215-0366(20)30374-6
  • Karlsson, M., & Markström, U. (2012). Non-profit organizations in mental health: their roles as seen in research. VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations, 23, 287–301.
  • Karlsson, M. O. E. (2021). Covid-19 och det civila samhälle: En berättelse om människors initiativ [Covid-19 and the civil society: A story of people’s initiatives]. Socialmedicinsk Tidskrift, 98(1), 9–14. ht tps://d oi.org/1 0.00-0003-3272-5340
  • Kim, M., & Mason, D. P. (2020). Are you ready: Financial management, operating reserves, and the immediate impact of COVID-19 on nonprofits. Nonprofit and Voluntary Sector Quarterly, 49(6), 1191–1209. https://doi.org/10.1177/0899764020964584
  • Lalander, P., & Herz, M. (2023). Keeping an open venue and working face to face during the covid-19 outbreak: Challenges for civil society organizations working with people living precarious lives in Sweden. Nordic Social Work Research, 1–13. https://doi.org/10.1080/2156857X.2023.2208155
  • Lebenbaum, M., de Oliveira, C., McKiernan, J., Gagnon, F., & Laporte, A. (2024). COVID-19 pandemic, physical distancing policies, and the non-profit sector volunteer force. Nonprofit and Voluntary Sector Quarterly, 53(1), 274–288. https://doi.org/10.1177/08997640231163782
  • Lovik, A., González-Hijón, J., Kähler, A. K., Valdimarsdóttir, U. A., Frans, E. M., Magnusson, P. K., Pedersen, N. L., Hall, P., Czene, K., & Sullivan, P. F. (2023). Mental health indicators in Sweden over a 12-month period during the COVID-19 pandemic: Baseline data of the Omtanke2020 study. Journal of Affective Disorders, 322, 108–117. https://doi.org/10.1016/j.jad.2022.11.004
  • Lundström, T., & Svedberg, L. (2003). The voluntary sector in a social democratic welfare state: The case of Sweden. Journal of Social Policy, 32(2), 217–238. https://doi.org/10.1017/S0047279402007006
  • Markström, U., & Karlsson, M. (2013). Towards hybridization: The roles of Swedish non-profit organizations within mental health. VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations, 24(4), 917–934. https://doi.org/10.1007/s11266-012-9287-8
  • Moreno, C., Wykes, T., Galderisi, S., Nordentoft, M., Crossley, N., Jones, N., Cannon, M., Correll, C. U., Byrne, L., Carr, S., Chen, E. Y. H., Gorwood, P., Johnson, S., Kärkkäinen, H., Krystal, J. H., Lee, J., Lieberman, J., López-Jaramillo, C. … Vita, A. (2020). How mental health care should change as a consequence of the COVID-19 pandemic. The Lancet Psychiatry, 7(9), 813–824. https://doi.org/10.1016/S2215-0366(20)30307-2
  • Näslund, H., Markström, U., & Sjöström, S. (2018). Participatory spaces of mental health service user organizations in the post-deinstitutional era: Mapping roles and challenges. VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations, 29(1), 190–200. https://doi.org/10.1007/s11266-017-9906-5
  • Näslund, H., Sjöström, S., & Markström, U. (2020). Delivering experiential knowledge: Repertoires of contention among Swedish mental health service user organisations. Nordic Social Work Research, 10(4), 369–381. https://doi.org/10.1080/2156857X.2019.1583599
  • Ocloo, J. (2021). Silenced voices, unequal impact: Addressing health inequities and discrimination in co-producing health and care during the pandemic and beyond. In J. Ocloo, P. Beresford, M. Farr, G. Hickey, M. Kaur, D. Tembo, & O. Williams (Eds.), COVID-19 and co-production in health and social care research, policy, and practice: The challenges and necessity of co-production (1st ed., Vol. 1, pp. 29–38). Bristol University Press. http://www.jstor.org/stable/j.ctv1p6hqjs.7
  • Rocha, A., & Almeida, F. (2021). Mental health innovative solutions in the context of the COVID-19 pandemic. Journal of Science and Technology Policy Management, 15(4), 1–19. https://doi.org/10.1108/JSTPM-11-2020-0165
  • Roeg, D., & Weerman, A. (2020). In tijden van corona: Initiatieven die bijdragen aan participatie en herstel in tijden van social distancing [In times of corona: Initiatives that contribute to participation and recovery in times of social distancing]. Participatie En Herstel, 2, 4–10.
  • Santos, M. R., & Laureano, R. M. (2022). COVID-19-related studies of nonprofit management: A critical review and research agenda. VOLUNTAS: International Journal of Voluntary and Nonprofit Organizations, 33(5), 936–951. https://doi.org/10.1007/s11266-021-00432-9
  • Selznick, P. (1980). TVA and the grass roots: A study of politics and organization (Vol. 3). University of California Press.
  • Trägårdh, L. (2010). Rethinking the Nordic welfare state through a neo-Hegelian theory of state and civil society. Journal of Political Ideologies, 15(3), 227–239. https://doi.org/10.1080/13569317.2010.513853
  • Valeriani, G., Sarajlic Vukovic, I., Lindegaard, T., Felizia, R., Mollica, R., & Andersson, G. (2020). Addressing healthcare gaps in Sweden during the COVID-19 outbreak: On community outreach and empowering ethnic minority groups in a digitalized context. Healthcare, 8(4), 445. https://doi.org/10.3390/healthcare8040445
  • Williams, O., Tembo, D., Ocloo, J., Kaur, M., Hickey, G., Farr, M., & Beresford, P. (2021). Co-production methods and working together at a distance. In COVID-19 and Co-production in health and social care research, policy, and practice (p. 1). Bristol University Press.
  • World Health Organization. (2022). Mental health and COVID-19: Early evidence of the pandemic’s impact: Scientific brief (Report No. WHO/2019-nCoV/Sci_Brief/Mental_health/2022.1). World Health Organization.
  • Worsley, J., Hassan, S., Nolan, L., & `Corcoran, R. (2023). Experiences of remote provision across a voluntary sector organisation providing mental health and wellbeing services for young people. International Journal of Environmental Research and Public Health, 20(22), 1–12. https://doi.org/10.3390/ijerph20227086