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ORIGINAL ARTICLE

Spanish adaptation of the Amyotrophic Lateral Sclerosis Questionnaire ALSAQ-40 for ALS patients

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Pages 168-172 | Received 10 Aug 2007, Published online: 10 Jul 2009

References

  • Traynor BJ, Codd MB, Corr B, Forde C, Frost E, Hardiman O. Incidence and prevalence of ALS in Ireland, 1995–1997: a population-based study. Neurology. 1999; 52: 504–9
  • The Scottish Motor Neuron Disease Register: a prospective study of adult onset motor neuron disease in Scotland. Methodology, demography and clinical features of incident cases in 1989. J Neurol Neurosurg Psychiatry. 1992;55:536–41.
  • Piamonte and Valle d'Aosta. Register for Amyotrophic Lateral Sclerosis (PARALS). Incidence of ALS in Italy: evidence for a uniform frequency in Western countries. Neurology. 2001;56:239–44.
  • Chazot F, Vallat JM, Hugon J, Lubeau M, Dumas M. Amyotrophic lateral sclerosis in Limousin (Limoges area, France). Neuroepidemiology. 1986; 5: 39–46
  • Tysnes OB, Vollset SE, Aarli JA. Epidemiology of amyotrophic lateral sclerosis in Hodaland county, western Norway. Acta Neurol Scand. 1991; 83: 280–5
  • Forsgren L, Almay BG, Holmgren G, Wall S. Epidemiology of motor neuron disease in northern Sweden. Acta Neurol Scand. 1983; 68: 20–9
  • Alcaz S, Jarebinski M, Pekmezovic T, Stevic-Marinkovic Z, Pavlovic S, Apostolski S. Epidemiological and clinical characteristics of ALS in Belgrade, Yugoslavia. Acta Neurol Scand. 1996; 94: 264–8
  • Mora JS. La Esclerosis Lateral Amiotrófica: Una enfermedad tratable. Barcelona: Prous Science; 1999. pp 1–506.
  • Olney RK, Murphy J, Forshew D, Garwood E, Miller BL, Langmore S, et al. The effects of executive and behavioural dysfunction on the course of ALS. Neurology. 2005; 65: 1774–7
  • Lomen-Hoerth C, Anderson T, Miller B. The overlap of amyotrophic lateral sclerosis and frontotemporal dementia. Neurology. 2002; 59: 1077–9
  • Borasio GD, Voltz R, Miller RG. Palliative care in amyotrophic lateral sclerosis. Neurol Clin. 2001; 19: 829–47
  • Kilani M, Micallef J, Soubrouillard C, Rey-Lardiller D, Demattei C, Dib M, et al. A longitudinal study of the evolution of cognitive function and affective state in patients with amyotrophic lateral sclerosis. Amyotroph Lateral Scler Other Motor Neuron Disord. 2004; 5: 46–54
  • Dunkel-Schetter C, Wortman CB. The interpersonal dynamics of cancer: problems in social relationships and their impact on the patient. Interpersonal issues in health care, HS Friedman, MR Di Matteo. Academic Press, Nueva York 1982
  • Jenkison C, Fitzpatrick R, Swash M, Levvy G. ALSAQ User Manual. Amyotrophic Lateral Sclerosis Assesment Questionnaire. Health Services Research Unit: University of Oxford. 2001
  • Norquist JM, Fitzpatrick R, Jenkinson C. Health-related quality of life in amyotrophic lateral sclerosis: determining a meaningful deterioration. Qual Life Res. 2004; 13: 1409–14
  • The ALS CNTF treatment study (ACTS) phase I-II Study Group. The Amyotrophic Lateral Sclerosis Functional Rating Scale. Assessment of activities of daily living in patients with amyotrophic lateral sclerosis. Arch Neurol. 1996; 53:141–7.
  • Cohen SR, Mount BM, Strobel MG, Bui F. The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliat Med. 1995; 9: 207–19
  • Brook BR. El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Subcommittee on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular Diseases and the El Escorial clinical limits of amyotrophic lateral sclerosis workshop contributors. J Neurol Sci 1994; 124(Suppl)96–107
  • Yamaguchi T, Ohbu S, Saito M, Ito Y, Moriwaka F, Tashiro K, et al. Validity and clinical applicability of the Japanese version of amyotrophic lateral sclerosis: assessment questionnaire 40 (ALSAQ-40). No To Shinkei. 2004; 56: 483–94
  • Jenkinson C, Fitzpatrick R, Brennan C, Swash M. Evidence for the validity and reliability of the ALS assessment Questionnaire: the ALSAQ-40. Amyotroph Lateral Scler Other Motor Neuron Disord. 1999; 1: 33–40
  • Kiebert GM, Green C, Murphy C, Mitchell JD, O'Brien M, Burrell A, Leigh PN. Patients’ health-related quality of life and utilities associated with different stages of amyotrophic lateral sclerosis. J Neurol Sci. 2001; 191: 87–93
  • Kaub-Wittemer D, Steinbuchel N, Wasner M, Laier-Groeneveld G, Borasio GD. Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers. J Pain Symptom Manage. 2003; 26: 890–6

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