Quality of life of patients after total laryngectomy: the struggle against stigmatization and social exclusion using speech synthesis

References

• Dušek L, Mužík J, Kubásek M, et al. Epidemiology of malignant tumours in the Czech Republic. Klin Onkol. 2014;27:406–423.
   PubMedGoogle Scholar
• Larson DA, Derkay CS. Epidemiology of recurrent respiratory papillomatosis. APMIS. 2010;118:450–454.
   PubMed Web of Science ®Google Scholar
• Marin B, Hamidou B, Couratier P, et al. Population-based epidemiology of Amyotrophic Lateral Sclerosis (ALS) in an ageing Europe – the French Register of ALS in Limousin (FRALim register). Eur J Neurol. 2014;21:1292–1e79.
   PubMed Web of Science ®Google Scholar
• Chaves A, Pernambuco L, Balata P, et al. Limits on quality of life in communication after total laryngectomy. Int Arch Otorhinolaryngol. 2013;16:482–491.
   Google Scholar
• Dooks P, McQuestion M, Goldstein D, et al. Experiences of patients with laryngectomies as they reintegrate into their community. Support Care Cancer. 2012;20:489–498.
   PubMed Web of Science ®Google Scholar
• Dronkers EAC, Mes SW, Wieringa MH, et al. Noncompliance to guidelines in head and neck cancer treatment; Associated factors for both patient and physician. BMC Cancer. 2015;15:515 [Internet]; [cited 2016 Jul 14];15. Available from: http://www.biomedcentral.com/1471-2407/15/515.
   PubMed Web of Science ®Google Scholar
• Noonan BJ, Hegarty J. The impact of total laryngectomy: the patient's perspective. Oncol Nurs Forum. 2010;37:293–301.
   PubMed Web of Science ®Google Scholar
• Singer P. Practical ethics. 3rd ed. New York: Cambridge University Press; 2011.
   Google Scholar
• Goffman E. Stigma: notes on the management of spoiled identity. New York: Simon & Schuster; 1986.
   Google Scholar
• Bourdieu P. Masculine domination. Cambridge: Polity; 2001.
   Google Scholar
• Cohen S. Folk devils and moral panics. New York: Routledge; 2011.
   Google Scholar
• Lebel S, Devins G. Stigma in cancer patients whose behavior may have contributed to their disease. Future Oncol. 2008;4:717–733.
   PubMed Web of Science ®Google Scholar
• Doi H, Nakamura K, Toda T, et al. An evaluation of alaryngeal speech enhancement methods based on voice conversion techniques. In: 2011 IEEE International Conference on Acoustics, Speech and Signal Processing (ICASSP); [cited 2017 Jan 28]. p. 5136–5139. Available from: http://ieeexplore.ieee.org/document/5947513/
   Google Scholar
• Hanzlíček Z, Romportl J, Matoušek J. Voice conservation: towards creating a speech-aid system for total laryngectomees. In: Kelemen J, Romportl J, Žáčková E, editors. Beyond artificial intelligence: contemplations, expectations, applications. Berlin: Springer-Verlag; 2013. p. 203–212.
   Google Scholar
• Jůzová M, Romportl J, Tihelka D. Speech corpus preparation for voice banking of laryngectomised patients. In: Král P, Matoušek V, editors. Text speech dialogue [Internet]. Cham: Springer International Publishing; 2015 [cited 2017 Jan 28]. p. 282–290. Available from: http://link.springer.com/10.1007/978-3-319-24033-6_32
   Google Scholar
• Jůzová M, Tihelka D, Matoušek J. Designing high-coverage multi-level text corpus for non-professional-voice conservation. In: Ronzhin A, Potapova R, Németh G, editors. Speech comput. [Internet]. Cham: Springer International Publishing; 2016 [cited 2017 Jan 28]. p. 207–215. Available from: http://link.springer.com/10.1007/978-3-319-43958-7_24
   Google Scholar
• Romportl J, Řepová B, Betka J. Vocal rehabilitation of laryngectomised patients by personalised computer speech synthesis. In: Zehnhoff-Dinnesen A am, Wiskirska-Woźnica B, Nawka T, et al., editors. Phoniatrics I. European manual of medicine. Berlin: Springer-Verlag; 2018.
   Google Scholar
• Honneth A. The struggle for recognition: the moral grammar of social conflicts. Cambridge: MIT Press; 1996.
   Google Scholar
• Fraser N. From redistribution to recognition? Dilemmas of justice in a “Post-Socialist” age. New Left Rev. 1995;212:68–93.
   Google Scholar
• Abbey SE, De Luca E, Mauthner OE, et al. Qualitative Interviews vs Standardized Self-report Questionnaires in assessing Quality of life in heart transplant recipients. J Heart Lung Transplant. 2011;30:963–966.
   PubMed Web of Science ®Google Scholar
• Algave DP, Mourão LF. Quality of life in total laryngectomy patients: an analysis of different assessment tools. Rev CEFAC. 2015;17:58–70.
   Google Scholar
• Tonon G. Relevance of the use of qualitative methods in the study of quality of life. In: Tonon G, editor. Qualitative studies in quality of life. New York: Springer; 2015. p. 3–21.
   Google Scholar
• Warren N, Manderson L, Misajon RA. More than SF-36? Using narratives to elaborate health and well-being data in recent lower-limb amputees. In: Møller V, Huschka D, editors. Quality of life and the millennium challenge: advances in quality-of-life studies. Theory Res. Berlin: Springer; 2009. p. 59–80.
   Google Scholar
• Décima M. Qualitative studies in health-related quality of life: the case of young people living with HIV/AIDS. In: Tonon G, editor. Qualitative studies in quality of life. New York: Springer; 2015. p. 97–120.
   Google Scholar
• Lowndes S. The E-mail interview. In: Gillham B, editor. Research interviewing: the range of techniques. New York: Open University Press; 2005. p. 107–112.
   Google Scholar
• Brinkmann S. Qualitative interviewing. Oxford: Oxford University Press; 2013.
   Google Scholar
• Semple CJ, Dunwoody L, George Kernohan W, et al. Changes and challenges to patients' lifestyle patterns following treatment for head and neck cancer. J Adv Nurs. 2008;63:85–93.
   PubMed Web of Science ®Google Scholar
• Babin E, Grandazzi G. Cooperation between medicine and sociology in head and neck oncology. Otolaryngol Head Neck Surg. 2014;150:712–715.
   PubMed Web of Science ®Google Scholar
• Ruf M, Büchi S, Moergeli H, et al. Positive personal changes in the aftermath of head and neck cancer diagnosis: a qualitative study in patients and their spouses. Head Neck. 2009;31:513–520.
   PubMed Web of Science ®Google Scholar
• Cox SR, Theurer JA, Spaulding SJ, et al. The multidimensional impact of total laryngectomy on women. J Commun Disord. 2015;56:59–75.
   PubMed Web of Science ®Google Scholar
• Komura K, Hegarty JR. The appraisal of positive life changes following cancer diagnosis: an interview study. Palliat Support Care. 2006;4:3–12.
   PubMedGoogle Scholar
• Isaksson J, Wilms T, Laurell G, et al. Meaning of work and the process of returning after head and neck cancer. Support Care Cancer. 2016;24:205–213.
   PubMed Web of Science ®Google Scholar
• Rasmussen DM, Elverdam B. The meaning of work and working life after cancer: an interview study. Psychooncology. 2008;17:1232–1238.
   PubMed Web of Science ®Google Scholar