Knowledge and experiences with augmentative and alternative communication by paediatric nurses: a pilot study

References

• Rimal RN, Lapinski MK. Why health communication is important in public health. Bull World Health Organ. 2009;87:247.
   PubMed Web of Science ®Google Scholar
• Blackstone SW. Issues and challenges in advancing effective patient-provider communication. In: Blackstone SW, Beukelman DR, Yorkston KM, editors. Patient-provider communication: roles for speech-language pathologists and other health care professionals. San Diego (CA): Plural Publishing; 2015.
   Google Scholar
• GovTrack [Internet]. Washington (DC): US Congress. S. 2561 (100th): Technology-related assistance for individuals with disabilities act of 1988; 2019 [cited 2019 Apr 10]. Available from: https://www.govtrack.us/congress/bills/100/s2561
   Google Scholar
• Finke EH, Light J, Kitko L. A systematic review of the effectiveness of nurse communication with patients with complex communication needs with a focus on the use of augmentative and alternative communication. J Clin Nurs. 2008;17(16):2102–2115.
   PubMed Web of Science ®Google Scholar
• Hemsley B, Balandin S. Without AAC: the stories of unpaid carers of adults with cerebral palsy and complex communication needs in hospital. AAC Augment Altern Commun. 2004;20(4):243–258.
   Google Scholar
• Costello JM, Patak L, Pritchard J. Communication vulnerable patients in the pediatric ICU: enhancing care through augmentative and alternative communication. J Pediatr Rehabil Med. 2010;3(4):289–301.
   PubMedGoogle Scholar
• The Joint Commission. Transitions of care: The need for a more effective approach to continuing patient care. [Internet]. 2012 [cited 2018 Nov 12]; Hot Topics in Health Care: Available from: http://www.jointcommission.org/assets/1/18/Hot_Topics_Transitions_of_Care.pdf
   Google Scholar
• Batorowicz B, Shepherd TA. Teamwork in AAC: examining clinical perceptions teamwork in AAC: examining clinical perceptions. Augment Altern Commun. 2011;27(1):16–25.
   PubMed Web of Science ®Google Scholar
• Hemsley B, Lee S, Munro K, et al. Supporting communication for children with cerebral palsy in hospital: views of community and hospital staff. Dev Neurorehabil. 2014;17(3):156–166.
   PubMed Web of Science ®Google Scholar
• Costello JM. AAC intervention in the intensive care unit: the Children’s Hospital Boston model. AAC Augment Altern Commun. 2000;16(3):137–153.
   Google Scholar
• Happ MB, Baumann BM, Sawicki J, et al. SPEACS-2: intensive care unit “communication rounds” with speech language pathology. Geriatr Nurs (Minneap). 2010;31(3):170–177.
   Web of Science ®Google Scholar
• Hemsley B, Balandin S, Worrall L. Nursing the patient with complex communication needs: time as a barrier and a facilitator to successful communication in hospital. J Adv Nurs. 2012;68(1):116–126.
   PubMed Web of Science ®Google Scholar
• The Joint Commission [Internet]. Oakbrook Terrace (IL): Joint Commission. Advancing effective communication, cultural competence, and patient-and family-centered care: a roadmap for hospitals; 2010 [cited 2018 Nov 11] . Available from: http://scholar.google.com/scholarhl=en&btnG=Search&q=intitle:Advancing+Effective+Communication+,+Cultural+Competence+,+and+Patient-+and+Family-Centered+Care+A+Roadmap+for+Hospitals#0
   Google Scholar
• Hemsley B, Balandin S, Worrall L. The “Big 5” and beyond: nurses, paid carers, and adults with developmental disability discuss communication needs in hospital. Appl Nurs Res. 2011;24(4):e51–e58.
   PubMedGoogle Scholar
• Koszalinski RS, Tappen RM, Viggiano D. Evaluation of speak for myself with patients who are voiceless. Rehabil Nurs. 2015;40(4):235.
   PubMed Web of Science ®Google Scholar
• Hemsley B, Sigafoos J, Balandin S, et al. Nursing the patient with severe communication impairment. J Adv Nurs. 2001;35(6):827–835.
   PubMed Web of Science ®Google Scholar
• Leathart AJ. Communication and socialisation (1): an exploratory study and explanation for nurse-patient communication in an ITU. Intensive Crit care Nurs. 1994;10(2):93–104.
   PubMedGoogle Scholar
• Radtke JV, Tate JA, Happ MB. Nurses’ perceptions of communication training in the ICU. Intensive Crit Care Nurs. 2012;28(1):16–25.
   PubMedGoogle Scholar
• Balandin S, Hemsley B, Sigafoos J, et al. Communicating with nurses: the experiences of 10 adults with cerebral palsy and complex communication needs. Appl Nurs Res. 2007;20(2):56–62.
   PubMed Web of Science ®Google Scholar
• Costello JM, Santiago RM, Blackstone SW. Pediatric acute and intensive care in hospitals. In: Blackstone SW, Beukelman DR, Yorkston KM, editors. Patient-provider communication: roles for speech-language pathologists and other health care professionals. San Diego (CA): Plural Publishing; 2015. p. 187–223.
   Google Scholar
• Blackstone SW, Hunt Berg M. Social networks: a communication inventory for individuals with complex communication needs and their communication partners. Monterey (CA): Augmentative Communication, Inc.; 2003.
   Google Scholar
• Qualtrics [Internet]. Provo (UT): Qualtrics; 2018 [cited 2018 Sep 14]. Available from: https://www.qualtrics.com
   Google Scholar
• Blackstone SW, Pressman H. Patient communication in health care settings: new opportunities for augmentative and alternative communication. Augment Altern Commun. 2016;32(1):69–79.
   PubMed Web of Science ®Google Scholar
• Happ MB. Interpretation of nonvocal behavior and the meaning of voicelessness in critical care. Soc Sci Med. 2000;50(9):1247–1255.
   PubMed Web of Science ®Google Scholar
• Magnus VS, Turkington L. Communication interaction in ICU—Patient and staff experiences and perceptions. Intensive Crit Care Nurs. 2006;22(3):167–180.
   PubMedGoogle Scholar
• Gulley B, Majors D. 2015. Annual report - East Tennessee Children’s Hospital. Knoxville (TN): East Tennessee Children’s Hospital; 2015 [cited 2018 November 6].
   Google Scholar
• Tabachnick BG, Fidell LS. Using multivariate statistics. 5th ed. Boston (MA): Pearson Education Inc.; 2007.
   Google Scholar
• IBM Corp. IBM SPSS Statistics for Windows [Software]. Armonk (NY): IBM; 2017.
   Google Scholar
• Hemsley B, Balandin S, Togher L. Family caregivers discuss roles and needs in supporting adults with cerebral palsy and complex communication needs in the hospital setting. J Dev Phys Disabil. 2008;20(3):257–274.
   Web of Science ®Google Scholar
• Happ MB, Garrett KL, Tate JA, et al. Effect of a multi-level intervention on nurse-patient communication in the intensive care unit: results of the SPEACS trial. Hear Lung J Acute Crit Care. 2014;43(2):89–98.
   PubMed Web of Science ®Google Scholar
• Patak L, Wilson-Stronks A, Costello J, et al. Improving patient-provider communication: a call to action. J Nurs Adm. 2009;39(9):372–376.
   PubMed Web of Science ®Google Scholar
• Charmaz K. Grounded theory. In: Smith JA, Harre R, Van Langenhove L, editors. Rethinking methods in psychology. London (UK): Sage; 1995. p. 27–49.
   Google Scholar
• Charmaz K. Inside interviewing, new lenses, new concerns. In: Gubrium JF, editor. Qualitative interviewing and grounded theory analysis. Thousand Oaks (CA): Sage; 2003. p. 311–330.
   Google Scholar
• Charmaz K. Grounded theory in the 21st century: applications for advancing social justice studies. In: Denzin NK, Lincoln YS, editors. The Sage handbook of qualitative research. 3rd ed. Thousand Oaks (CA): Sage; 2005. p. 507–535.
   Google Scholar
• Charmaz K. Constructing grounded theory: a practical guide through qualitative analysis. Thousand Oaks (CA): Sage; 2006.
   Google Scholar
• Creswell J. Qualitative inquiry and research design. 3rd ed. Thousand Oaks (CA): Sage; 2013.
   Google Scholar
• Glaser BG, Strauss AL. The discovery of grounded theory. Int J Qual Meth. 1967;5:1–10.
   Google Scholar
• Glaser BG. Basics of grounded theory analysis: emergence vs forcing. Mill Valley (CA): Sociology Press; 1992.
   Google Scholar
• Strauss AL. Qualitative analysis for social scientists. Cambridge (UK): Cambridge University Press; 1987.
   Google Scholar
• NCH Software [Internet]. Canberra (Australia): NCH; 2016 [cited 2018 Oct 5]. Available from: https://www.nch.com.au/scribe/index.html
   Google Scholar
• Flick U. An introduction to qualitative research. 5th ed. London (UK): Sage Publications Ltd.; 2014.
   Google Scholar
• Campbell JL, Quincy C, Osserman J, et al. Coding in-depth semistructured interviews. Sociol Meth Res. 2013;42(3):294–320.
   Web of Science ®Google Scholar
• Corbin J, Strauss A. Grounded theory research: procedures, canons, and evaluative criteria. Qual Sociol. 1990;13(1):3–21.
   Web of Science ®Google Scholar
• sComm. UbiDuo - sComm. Raymond, MO (USA): sComm; 2018 [cited 2018 Oct 17]. Available from: https://www.scomm.com/product/ubiduo-2-tts/
   Google Scholar
• Burkhart LJ. What is AAC? [Internet]. East Lansing (MI): ISAAC; 2019 [cited 2019 July 17]. Available from: https://www.isaac-online.org/english/what-is-aac/
   Google Scholar
• Burns MI, Baylor CR, Morris M. A, et al. Training healthcare providers in patient–provider communication: what speech-language pathology and medical education can learn from one another. Aphasiology. 2012;26(5):673–688.
   Web of Science ®Google Scholar
• Light J, Drager K. AAC technologies for young children with complex communication needs: state of the science and future research directions. Augment Altern Commun. 2007;23(3):204–216.
   PubMed Web of Science ®Google Scholar