Development of a quality of life measure for children and young people with speech, language, and communication needs

References

• Boyle , J , McCartney , E , Forbes , J and O’Hare , A . 2007 . A randomised control trial and economic evaluation of direct versus indirect and individual versus group modes of speech and language therapy for children with primary language impairment . Health Technology Assessment , 11 : 1 – 158 .
   Web of Science ®Google Scholar
• Bukstein , DA , McGrath , MM , Buchner , DA , Landgraf , J and Goss , DF . 2000 . Evaluation of a short form for measuring health-related quality of life among pediatric asthma patients . Journal of Allergy and Clinical Immunology , 105 : 245 – 251 .
   PubMed Web of Science ®Google Scholar
• Clegg , J . & Ginsborg, J. (Eds.). (2006). Language and social disadvantage: Theory into practice. Chichester, UK: John Wiley & Sons
   Google Scholar
• Conti-Ramsden , G , Botting , N , Simkin , Z and Knox , E . 2001 . Follow-up of children attending infant language units: Outcomes at 11 years of age . International Journal of Language and Communication Disorders , 36 : 207 – 220 .
   PubMed Web of Science ®Google Scholar
• Cowen , RJ , Swerdlick , ME and Philips , M . 1996 . Psychological testing and assessment, , 3rd , London , UK : Mayfield .
   Google Scholar
• Creemens , J , Eiser , C and Blades , M . 2006 . Characteristics of health-related self report measures for children aged three to eight years: A review of the literature . Quality of Life Research , 15 : 739 – 754 .
   PubMed Web of Science ®Google Scholar
• Cummins , RA . 1997 . Self-rated quality of life scales for people with an intellectual disability: A review . Journal of Applied Research in Intellectual Disabilities , 10 : 199 – 216 .
   Web of Science ®Google Scholar
• De Vellis , RF . 2003 . Scale development. Theory and applications, , 2nd , London , UK : SAGE .
   Google Scholar
• Eiser , C and Morse , R . 2001 . Quality-of life measures in chronic diseases of childhood . Health Technology Assessment , 4 : 1 – 156 .
   Google Scholar
• Field , A . 2005 . Discovering statistics using SPSS, , 2nd , London , UK : SAGE .
   Google Scholar
• Fink , A . 2003 . How to ask survey questions, , 2nd , London , UK : SAGE .
   Google Scholar
• Gerharz , EW , Eiser , C and Woodhouse , CRJ . 2003 . Current approaches to assessing the quality of life in children and adolescents . British Journal of Urology , 91 : 150 – 154 .
   Google Scholar
• Gregory , RJ . 2004 . Psychological testing. History, principles, and applications, , 4th , Boston , MA : Pearson Education International .
   Google Scholar
• Guyatt , GH , Feeney , DH and Patrick , DL . 1993 . Measuring health-related quality of life . Annals of International Medicine , 118 : 622 – 629 .
   PubMed Web of Science ®Google Scholar
• Hanley , B . (1999). Involvement Works. The second report of the standing group on consumers in NHS research. HMSO
   Google Scholar
• Hartshorne , M . 2006 . The cost to the nation of children's poor communication , London , UK : I CAN .
   Google Scholar
• Kline , P . 2000 . A psychometrics primer , London , UK : Free Association Books .
   Google Scholar
• Law , J and Garrett , Z . 2004 . Speech and language therapy: Its potential role in CAMHS . Child and Adolescent Mental Health , 9 : 50 – 55 .
   PubMedGoogle Scholar
• Loewenthal , KM . 2001 . An introduction to psychological tests and scales, , 2nd , Hove , UK : Psychology Press .
   Google Scholar
• Markham , C , Van Laar , D , Gibbard , D and Dean , T . 2009 . Children with speech, language and communication needs: Their perceptions of their quality of life . International Journal of Language & Communication Disorders , 44 : 748 – 768 .
   PubMed Web of Science ®Google Scholar
• Marx , RG , Bombardier , C , Hogg-Johnson , S and Wright , JG . 1999 . Clinimetric and psychometric strategies for development of a health measurement scale . Journal of Clinical Epidemiology , 52 : 105 – 111 .
   PubMed Web of Science ®Google Scholar
• McHorney , CA , Ware , JE , Lu , JF and Sherbourne , CD . 1994 . The MOS 36-item Short-Form Health Survey (SF-36): III. Tests of data, quality, scaling assumptions, and reliability across diverse patient groups . Medical Care , 32 : 40 – 66 .
   PubMed Web of Science ®Google Scholar
• Nathan , L , Stackhouse , J , Goulandris , N and Snowling , MJ . 2004 . The development of early literacy skills among children with speech difficulties . Journal of Speech, Language, and Hearing Research , 47 : 377 – 391 .
   PubMed Web of Science ®Google Scholar
• Oppenheim , AN . 2000 . Questionnaire design , London , UK : Continuum International Publishing .
   Google Scholar
• Rapley , M . 2003 . Quality of life research: A critical introduction , London , UK : Sage .
   Google Scholar
• Smith , SC , Lamping , DL , Banerjee , S , Harwood , R , Foley , B Smith , P . 2005 . Measurement of health-related quality of life for people with dementia: Development of a new instrument (DEMQOL) and an evaluation of current methodology . Health Technology Assessment , 9 ( 10 ) : 1 – 108 .
   Web of Science ®Google Scholar
• Snowling , M , Adams , J , Bishop , D and Stothard , S . 2001 . Educational attainments of school leavers with a preschool history of speech-language impairments . International Journal of Language and Communication Disorders , 2 : 174 – 184 .
   Google Scholar
• Stackhouse , J . & Wells, B. (Eds.) (2001). Children's speech and literacy difficulties: 2. Identification and intervention. London, UK: Whurr
   Google Scholar
• Streiner , DL and Norman , GR . 2003 . Health measurement scales. A practical guide to their development and use, , 2nd , Oxford , UK : Oxford University Press .
   Google Scholar
• Tabachnick , BG and Fidell , LS . 2007 . Using multivariate statistics, , 5th , London , UK : Pearson .
   Google Scholar
• Varni , JW , Burwinkle , TM , Seid , M and Skarr , D . 2003 . The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability and validity . Ambulatory Pediatrics , 3 : 329 – 341 .
   PubMedGoogle Scholar
• Varni , JW , Seid , M and Rode , CA . 1999 . The PedsQl (TM): Measurement for the Pediatric Quality of Life Inventory . Medical Care , 37 : 126 – 139 .
   PubMed Web of Science ®Google Scholar
• WHOQOL Group . 1993 . Measuring Quality of Life: The development of the World Health Organization Quality of Life Instrument (WHOQOL) , Geneva , Switzerland : WHO .
   Google Scholar
• Wright , JG and Feinstein , AR . 1992 . A comparative contrast of clinimetric and psychometric methods for constructing indexes and rating scales . Journal of Clinical Epidemiology , 45 : 1201 – 1218 .
   PubMed Web of Science ®Google Scholar