2,736
Views
9
CrossRef citations to date
0
Altmetric
Articles

The Moral Resilience of Young People Who Care

ORCID Icon

References

  • Aldridge, J. 2008. “All Work and No Play? Understanding the Needs of Children with Caring Responsibilities.” Children & Society 22: 253–264.
  • Aldridge, J. 2018. “Where are we Now? Twenty-Five Years of Research,Policy and Practice on Young Carers.” Critical Social Policy 38 (1): 155–165.
  • Austin, W. 2007. “The Ethics of Everyday Practice. Healthcare Environments as Moral Communities.” Advances in Nursing Science 30 (1): 81–88.
  • Bagnoli, A., and A. Clark. 2010. “Focus Groups with Young People: A Participatory Approach to Research Planning.” Journal of Youth Studies 13 (1): 101–119.
  • Barbour, R. 2001. “Checklists for Improving Rigour in Qualitative Research: A Case of the Tail Wagging the dog?” British Medical Journal 322 (7294): 1115–1117.
  • Barnes, M., and T. Brannelly. 2008. “Achieving Care and Social Justice for People with Dementia.” Nursing Ethics 15 (3): 384–395.
  • Barnes, M., T. Brannelly, L. Ward, and N. Ward 2015. “Renewal and Transformation – the Importance of an Ethics of Care.” In Ethics of Care: Critical Advances in International Perspective, edited by M. Barnes, et al., 233–244. Bristol: Policy Press.
  • Becker, F., and S. Becker. 2008. Young Adult Carers in the UK: Experiences, Needs and Services for Carers Aged 16-24. London: The Princess Royal Trust for Carers.
  • Becker, S., and J. Sempik. 2019. “Young Adult Carers: The Impact of Caring on Health and Education.” Children & Society 33: 377–386.
  • Bolas, H., A. Van Wersch, and D. Flynn. 2007. “The Well-Being of Young People Who Care for a Dependent Relative: An Interpretative Phenomenological Analysis.” Psychology and Health 22: 829–850.
  • Boyle, G. 2013. “Facilitating Decision-Making by People with Dementia: Is Spousal Support Gendered?” Journal of Social Welfare and Family Law 35 (2): 227–243.
  • Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Health Psychology 3: 77–101.
  • Carers Trust Scotland. 2016. Young People Caring Out There: Experiences of LGBT Young Adult Carers in Scotland. Accessed 21 May 2020. http://www.ep-yc.org/wp-content/uploads/participants-database/sc7.pdf.
  • Cassidy, T., and M. Giles. 2012. “Further Exploration of the Young Carers Perceived Stress Scale: Identifying a Benefit-Finding Dimension.” British Journal of Health Psychology 18: 642–655.
  • Clay, D., C. Connors, N. Day, M. Gkiza, and J. Aldrige. 2016. The Lives of Young Carers in England. Qualitative Report to Dept. for Education. London: DOE.
  • Clifford, D. 2014. “Limitations of Virtue Ethics in the Social Professions.” Ethics and Social Welfare 8 (1): 2–19.
  • Corden, A., and M. Hirst. 2011. “Partner Care at the end-of-Life: Identity, Language and Characteristics.” Ageing and Society 31 (2): 217–242.
  • Cunningham, L., I. Shochet, C. Smith, and A. Wurfl. 2017. “A Qualitative Evaluation of an Innovative Resilience-Building Camp for Young Carers.” Child & Family Social Work 22: 700–710.
  • Defilippis, T., K. Curtis, and A. Gallagher. 2019. “Conceptualising Moral Resilience for Nursing Practice.” Nursing Inquiry 26 (3): 1–7. https://onlinelibrary.wiley.com/doi/abs/10.1111/nin.12291.
  • Dept. of Health and Social Care. 2010. Recognised, Valued and Supported: Next Steps for the Carers Strategy. London: HMSO.
  • Dept of Health and Social Care. 2018. Carers Action Plan 2018 - 2020 Supporting Carers Today. London: HMSO.
  • England, P. 2005. “Emerging Theories of Care Work.” Annual Review of Sociology 31: 381–399.
  • Francis, R. 2013. Report of the Mid-Staffordshire NHS Foundation Trust Public Inquiry. London: HMSO.
  • Giddens, A. 1991. Modernity and Self-Identity. Self and Society in the Late Modern Age. Cambridge: Polity.
  • Gilligan, C. 1982. In a Different Voice: Psychological Theory and Women's Development. Cambridge: Harvard University Press.
  • Gollins, T. no date. “Male Carers: A Study of the Inter-Relations Between Caring, Male Identity and Age.” Unpublished report. Sheffield: University of Sheffield.
  • Graham, H. 1983. “Caring as a Labour of Love.” In A Labour of Love – Women, Work and Caring, edited by J. Finch, and D. Groves, 13–30. London: Routledge.
  • Hamington, M. 2018. “The Care Ethics Moment: International Innovations.” International Journal of Care and Caring 2 (3): 309–318.
  • Heyman, A. 2018. “What do Young Adult Carers Learn Through Supporting Family Members? Extending the Affirmation Model.” Disability & Society 33 (8): 1191–1211.
  • HMSO. 2014. Care Act 2014 (England). London: HMSO.
  • Hoff, A. 2015. Current and Future Challenges of Family Care in the UK. Report for the UK Government Office for Science. London: HMSO.
  • Hounsell, D. 2013. Hidden From View. The Experiences of Young Carers in England. London: Children’s Society.
  • Hunter, S., D. Riggs, and M. Augoustinous. 2017. “Hegemonic Masculinity Versus a Caring Masculinity: Implications for Understanding Primary Caregiving Fathers.” Social and Personality Psychology Compass 11: 3.
  • Institute of Development Studies. 2016. Redistributing Unpaid Care Work, Why Tax Matters for Women’s Rights. Briefing No. 109. London: IDS.
  • Jurchak, M., and M. Pennington. 2009. “Fostering Moral Agency in new Intensive Care Nurses.” Critical Care Nurse 29 (6): 78–79.
  • Kittay, E. 1999. Love’s Labor: Essays on Women, Equality and Dependency. New York: Routledge.
  • Klaver, K., E. van Elst, and A. Baart. 2014. “ Demarcation of the Ethics of Care as a Discipline: Discussion Article.” Nursing Philosophy 21 (7): 755–765.
  • Leinonen, A. 2011. “Adult Children and Parental Care-Giving: Making Sense of Participation Patterns among Siblings.” Ageing & Society 31 (2): 308–327.
  • Liaschenko, J., and E. Peter. 2016. “Fostering Nurses’ Moral Agency and Moral Identity: The Importance of Moral Community.” Hastings Center Report 46 (S1): S18–S21.
  • Luthar, S., D. Cicchetti, and B. Becker. 2000. “The Construct of Resilience: A Critical Evaluation and Guidelines for Future Work.” Child Development 71 (3): 543.
  • McDougall, E., M. O'Connor, and J. Howell. 2018. ““Something That Happens at Home and Stays at Home”: An Exploration of the Lived Experience of Young Carers in Western Australia.” Health and Social Care in the Community 26 (4): 572–580.
  • Merriam-Webster Inc. 2019. “Online Dictionary:” https://www.merriam-webster.com/dictionary/compassion.
  • Milligan, C., and M. Morbey. 2016. “Care, Coping and Identity: Older Men's Experiences of Spousal Care-Giving.” Journal of Aging Studies 28: 105–114.
  • Monteverde, S. 2016. “Caring for Tomorrow’s Workforce: Moral Resilience and Healthcare Ethics Education.” Nursing Ethics 23 (1): 104–116.
  • Morris, J. 1993. Independent Lives, Community Care and Disabled People. London: Macmillan.
  • Mullin, A. 2011. “Gratitude and Caring Labour.” Ethics and Social Welfare 5 (2): 110–122.
  • Office for National Statistics. 2013. Full Story: The gender Gap in Unpaid Care Provision: Is There an Impact on Health and Economic Position?. https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/healthandwellbeing/articles/fullstorythegendergapinunpaidcareprovisionisthereanimpactonhealthandeconomicposition/2013-05-16.
  • Pickard, S. 2010. “The‘Good Carer’: Moral Practices in Late Modernity.” Sociology 44 (3): 471–487.
  • Rose, H., and K. Cohen. 2010. “The Experiences of Young Carers: A Meta-Synthesis of Qualitative Findings.” Journal of Youth Studies 13 (4): 473–487.
  • Rushton, C. 2016. “Moral Resilience: A Capacity for Navigating Moral Distress in Critical Care.” AACN Advanced Critical Care 27 (1): 111–119.
  • Skovdal, M., and E. Andreouli. 2011. “Using Identity and Recognition as a Framework to Understand and Promote the Resilience of Caregiving Children in Western Kenya.” Journal of Social Policy 40 (3): 613–630.
  • Svanberg, E., J. Stott, and A. Spector. 2010. ““Just Helping”: Children Living with a Parent with Young Onset Dementia.” Aging & Mental Health 14 (6): 740–751.
  • Tarrant, A. 2018. “Care in an age of Austerity: Men’s Care Responsibilities in Low-Income Families.” Ethics and Social Welfare 12 (1): 34–48.
  • van de Sand, J., B. Laxman, and S. Nolan. 2018. “ Engaging men as Fathers and Caregivers: An Entry Point to Advancing Women’s Empowerment and Rights.” International Journal of Care and Caring 2 (3): 425–431.
  • van Nistelrooij, I. 2015. Sacrifice: A Care-Ethical Reappraisal. Leuven: Peeters.
  • Wayman, S., P. Raws, and H. Leadbitter. 2016. ‘There’s Nobody is There – No-One Who can Actually Help?’. The Challenges of Estimating the Number of Child Carers and Knowing how to Meet Their Needs. London: Children’s Society.