Disability Policy Meets Cultural Values: Chinese Families of Children and Young People with Developmental Disabilities in Taipei and Sydney

References

• ABS (Australian Bureau of Statistics). 2014, June 24. Caring in the Community, Australia: Summary of Findings, 2012. https://www.abs.gov.au/ausstats/[email protected]/Latestproducts/4436.0Main%20Features22012?opendocument&tabname=Summary&prodno=4436.0&issue=2012&num=&view=
   Google Scholar
• Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Chang, M. Y., and R. McConkey. 2008. “The Perceptions and Experiences of Taiwanese Parents who Have Children with an Intellectual Disability.” International Journal of Disability, Development and Education 55 (1): 27–41. https://doi.org/10.1080/10349120701827961
   Web of Science ®Google Scholar
• Chang, H. 2007. “Social Change and the Disability Rights Movement in Taiwan: 1980–2002.” The Review of Disability Studies: An International Journal 3 (1–2): 3–19.
   Google Scholar
• Chang, H.-H. 2009. “From Housewives to Activists: Lived Experiences of Mothers for Disability Rights in Taiwan.” Asian Journal of Women's Studies 15 (3): 34–59. https://doi.org/10.1080/12259276.2009.11666072
   Web of Science ®Google Scholar
• Chattoo, S., and K. Atkin. 2012. “Race, Ethnicity and Social Policy: Theoretical Concepts and the Limitations of Current Approaches to Welfare.” In Understanding Race and Ethnicity: Theory, History, Policy and Practice, edited by S. Chattoo, K. Atkin, G. Craig, and R. Flynn, 19–40. Bristol: Policy Press.
   Google Scholar
• Chou, Y. C., T. Kröger, and C. Y. Pu. 2018. “Underemployment among Mothers of Children with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 31 (1): 152–158. https://doi.org/10.1111/jar.12336
   PubMed Web of Science ®Google Scholar
• Chou, Y.-C., S.-C. Wang, H.-H. Chang, and L.-Y. Fu. 2014. “Working but Not Employed: Mothers of Adults with Intellectual Disability as Hidden Workers.” Journal of Intellectual & Developmental Disability 39 (4): 353–362. https://doi.org/10.3109/13668250.2014.940862
   Web of Science ®Google Scholar
• Clark, E., Z. Zhou, and L. Du. 2019. “Autism in China: Progress and Challenges in Addressing the Needs of Children and Families.” International Journal of School & Educational Psychology 7 (2): 135–146. https://doi.org/10.1080/21683603.2019.1570885
   Google Scholar
• Colker, R. 2015. “Blaming Mothers: A Disability Perspective.” Boston University Law Review 95 (3): 1205–1224.
   Web of Science ®Google Scholar
• DeLambo, D., W. Chung, and W. Huang. 2011. “Stress and Age: A Comparison of Asian American and non-Asian American Parents of Children with Developmental Disabilities.” Journal of Developmental and Physical Disabilities 23 (2): 129–141. https://doi.org/10.1007/s10882-010-9211-3
   Web of Science ®Google Scholar
• Dressler, W. W., M. C. Balieiro, and J. E. Dos Santos. 1997. “The Cultural Construction of Social Support in Brazil: Associations with Health Outcomes.” Culture, Medicine and Psychiatry 21 (3): 303–335. https://doi.org/10.1023/A:1005394416255
   PubMed Web of Science ®Google Scholar
• Fang, Q., K. Fisher, and B. Li. 2021. “How Can Co-Production Help to Deliver Culturally Responsive Disability Support? A Case Study from Australia.” Health and Social Care in the Community 2021: 1–9.
   Google Scholar
• Garrido, R., M. Garcia-Ramirez, and F. E. Balcazar. 2019. “Moving Towards Community Cultural Competence.” International Journal of Intercultural Relations 73: 89–101. https://doi.org/10.1016/j.ijintrel.2019.09.002
   Web of Science ®Google Scholar
• Gilligan, C. 1982. In a Different Voice: Psychological Theory and Women’s Development. Cambridge: Harvard University Press.
   Google Scholar
• Gopalkrishnan, N. 2019. “Cultural Competence and Beyond: Working Across Cultures in Culturally Dynamic Partnerships.” The International Journal of Community and Social Development 1 (1): 28–41. https://doi.org/10.1177/2516602619826712.
   Google Scholar
• Hankivsky, O. 2005. Social Policy and the Ethic of Care. Vancouver: uBC Press.
   Google Scholar
• Hsueh, K. H., J. Hu, and S. Clarke-Ekong. 2008. “Acculturation in Filial Practices among U.S. Chinese Caregivers.” Qualitative Health Research 18 (6): 775–785. https://doi.org/10.1177/1049732308318923.
   PubMed Web of Science ®Google Scholar
• Hwang, I.-T., J. M. Kramer, E. S. Cohn, and L. L. Barnes. 2020. “Asian Immigrant Parents’ Role Enactment While Accessing and Using Services for Their Child with Developmental Disabilities in the United States: A Meta-Synthesis Study.” Qualitative Health Research 30 (11): 1632–1646. https://doi.org/10.1177/1049732320926138.
   PubMed Web of Science ®Google Scholar
• IRC (International Review Committee). 2017. Concluding Observations of the ROC’s Initial CRPD Report. Taipei.
   Google Scholar
• IRC (International Review Committee). 2022. Concluding Observations of the ROC’s Initial CRPD Report. Taipei.
   Google Scholar
• Kröger, T., S. Yeandle, B. Cass, Y.-C. Chou, M. Shimmei, and M. Szebehely. 2013. “The Emergence of Policy Supporting Working Carers: Development in Six Countries.” In Combining Paid Work and Family Care: Policies and Experiences in International Perspective, edited by T. Kröger, and S. Yeandle, 23–50. Bristol: Policy Press.
   Google Scholar
• Kwok, K., and S. Kwok Lai Yuk Ching. 2022. “Navigating Stigma and Discrimination: Experiences of Migrant Children with Special Needs and Their Families in Accessing Education and Healthcare in Hong Kong.” International Journal of Environmental Research and Public Health 19 (10): 5929. https://doi.org/10.3390/ijerph19105929.
   PubMed Web of Science ®Google Scholar
• Lee, R., and Y. Zhu. 2021. “Diagnosis as a Sociocultural Practice: Critical Personal Narratives of Asian Immigrant Mothers with Autism-Spectrum Disorder Children in Canada.” Disability and Society 36 (10): 1643–1662. https://doi.org/10.1080/09687599.2020.1804326.
   Web of Science ®Google Scholar
• Liu, Y., and K. R. Fisher. 2017. “Engaging with Disability Services: Experiences of Families from Chinese Backgrounds in Sydney.” Australian Social Work 70 (4): 441–452. https://doi.org/10.1080/0312407X.2017.1324885
   Web of Science ®Google Scholar
• McKenzie, J. A. 2016. “An Exploration of an Ethics of Care in Relation to People with Intellectual Disability and Their Family Caregivers in the Cape Town Metropole in South Africa.” Alter 10 (1): 67–78. https://doi.org/10.1016/j.alter.2015.12.001
   Google Scholar
• Ow, R., T. T. Tiong, and S. Goh. 2004. “Diverse Perceptions of Social Support: Asian Mothers of Children with Intellectual Disability.” Families in Society: The Journal of Contemporary Social Services 85 (2): 214–220. https://doi.org/10.1606/1044-3894.327.
   Web of Science ®Google Scholar
• Saunders, B., J. Sim, T. Kingstone, S. Baker, J. Waterfield, B. Bartlam, H. Burroughs, and C. Jinks. 2018. “Saturation in Qualitative Research: Exploring Its Conceptualization and Operationalization.” Quality & Quantity 52 (4): 1893–1907. https://doi.org/10.1007/s11135-017-0574-8
   PubMed Web of Science ®Google Scholar
• Senaratna, T., A. Wehbe, and C. Smedley. 2018. “Accessing and Using the National Disability Insurance Scheme (NDIS): Views and Experiences of Culturally and Linguistically Diverse (CaLD) Communities.” https://drive.google.com/file/d/11Q21sAfBae6tgDWNhbxGEF6OillMTqvA/view.
   Google Scholar
• Shang, X., and K. R. Fisher. 2016. Disability Policy in China: Child and Family Experiences. Milton Park: Routledge.
   Google Scholar
• Sim, S. S., H. Bourke-Taylor, E. Fossey, and M. L. Yu. 2021. “Being More Than a Mother: A Qualitative Study of Asian Immigrant Mothers in Australia Who Have Children with Disabilities.” Research in Developmental Disabilities 117: 104060. https://doi.org/10.1016/j.ridd.2021.104060
   PubMed Web of Science ®Google Scholar
• Soldatic, K., L. Magee, P. James, S. Partoredjo, and J. Mann. 2020. “Disability and Migration in Urban Australia: The Case of Liverpool.” Australian Journal of Social Issues 55 (4): 456–473. https://doi.org/10.1002/ajs4.93.
   Web of Science ®Google Scholar
• Su, C., N. Khanlou, and N. Mustafa. 2021. “Chinese Immigrant Mothers of Children with Developmental Disabilities: Stressors and Social Support.” International Journal of Mental Health and Addiction 19 (1): 1–18. https://doi.org/10.1007/s11469-018-9882-z.
   Web of Science ®Google Scholar
• Tait, K., F. Fung, A. Hu, N. Sweller, and W. Wang. 2016. “Understanding Hong Kong Chinese Families’ Experiences of an Autism/ASD Diagnosis.” Journal of Autism and Developmental Disorders 46 (4): 1164–1183. https://doi.org/10.1007/s10803-015-2650-z
   PubMed Web of Science ®Google Scholar
• Tronto, J. C. 1993. Moral Boundaries: A Political Argument for an Ethic of Care. New York: Psychology Press.
   Google Scholar
• Turner, H. N. 2010. “Parental Preference or Child Well-Being: An Ethical Dilemma.” Journal of Pediatric Nursing 25 (1): 58–63. https://doi.org/10.1016/j.pedn.2009.04.007
   PubMed Web of Science ®Google Scholar
• United Nations. 1989. “Convention on the Rights of the Child.” Treaty Series 1577 (November): 3.
   Google Scholar
• Wada, Y. 2014. “Relational Care Ethics from a Comparative Perspective: The Ethics of Care and Confucian Ethics.” Ethics and Social Welfare 8 (4): 350–363. https://doi.org/10.1080/17496535.2014.894109
   Google Scholar
• WHO (World Health Organisation). 2014. Health for the World’s Adolescents: A Second Chance in the Second Decade (Summary). Geneva: WHO Press.
   Google Scholar
• Williams, F. 2018. “Care: Intersections of Scales, Inequalities and Crises.” Current Sociology 66 (4): 547–561. https://doi.org/10.1177/0011392118765206
   Web of Science ®Google Scholar
• WHO (World Health Organisation) & UNICEF (United Nations Children's Fund). 2012. Early Childhood Development and Disability: A Discussion Paper. Geneva: WHO Press.
   Google Scholar
• Yuan, L. 2002. “Ethics of Care and Concept of Jen: A Reply to Chenyang Li.” Hypatia 17 (1): 107–130. https://doi.org/10.1111/j.1527-2001.2002.tb00682.x
   Google Scholar
• Zheng, Y., S. P. Maude, M. J. Brotherson, and A. Merritts. 2016. “Early Childhood Intervention in China from the Families’ Perspective.” International Journal of Disability, Development and Education 63 (4): 431–449. https://doi.org/10.1080/1034912X.2015.1124988
   Web of Science ®Google Scholar