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A patient empowerment program for primary immunodeficiency improves quality of life in children and adolescents

Maria Fasshauera Klinikum St. Georg, Klinik für Kinder- und Jugendmedizin - ImmunDefektCentrum Leipzig IDCL, Leipzig, GermanyCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0003-4543-8543View further author information
ORCID Icon,
Gesine Schuermannb Medizinische Hochschule Hannover, Arbeitsbereich Immunologie, Klinik für Pädiatrische Pneumologie, Allergologie und Neonatologie, Hannover, GermanyView further author information
,
Norbert Gebertc Private Psychotherapeutische Praxis, Panketal, GermanyView further author information
,
Horst von Bernuthd Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin & Berlin Institute of Health (BIH), Klinik für Pädiatrie mit Schwerpunkt Pneumologie, Immunologie und Intensivmedizin, Berlin, Germany;e Labor Berlin Charité-Vivantes, Fachbereich Immunologie, Berlin, Germany;f Berlin Institute of Health at Charité (BIH) – UniversitätsmedizinBerlin, Germany;g Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin, Humboldt-Universität zu Berlin & Berlin Institute of Health (BIH), Berlin-Brandenburg Center for Regenerative Therapies (BCRT), Berlin, GermanyView further author information
,
Monika Bullingerh Universitätsklinikum Eppendorf, Zentrum für Psychosoziale Medizin, Institut und Poliklinik für Medizinische Psychologie, Hamburg, GermanyView further author information
,
Sigune Goldackeri Universitätsklinikum Freiburg, Centrum für Chronische Immundefizienz (CCI), Freiburg, GermanyView further author information
,
Renate Kruegerj Charité- Universitätsmedizin Berlin, ImmunDefektCentrum Berlin, Berlin, GermanyView further author information
,
Petra Manzeyk Ludwig-Maximilian-Universität München, Dr. von Haunersches Kinderspital, Immundefektambulanz, München, GermanyView further author information
,
Stefanie Messneri Universitätsklinikum Freiburg, Centrum für Chronische Immundefizienz (CCI), Freiburg, GermanyView further author information
,
Ellen D Rennerl Universität Augsburg, Medizinische Fakultät, Translationale Immunologie, Augsburg, Germany;m Technische Universität München, Klinikum rechts der Isar, Kinderpoliklinik Schwabing, München, GermanyView further author information
,
Henrike Ritterbuschi Universitätsklinikum Freiburg, Centrum für Chronische Immundefizienz (CCI), Freiburg, GermanyView further author information
,
Uwe Schauern Ruhr-Universität Bochum im St. Josef Hospital, Klinik für Kinder- und Jugendmedizin, Bochum, GermanyView further author information
,
Ilka Schulzeo KiJuMed-Gemeinschaftspraxis für Kinder- und Jugendmedizin sowie Kinder- und Jugendpsychotherapie, Bern, SwitzerlandView further author information
,
Volker Umlaufp Inselspital, Kinderklinik, Bern, SwitzerlandView further author information
,
Steffi Widmannk Ludwig-Maximilian-Universität München, Dr. von Haunersches Kinderspital, Immundefektambulanz, München, GermanyView further author information
&
Ulrich Baumannb Medizinische Hochschule Hannover, Arbeitsbereich Immunologie, Klinik für Pädiatrische Pneumologie, Allergologie und Neonatologie, Hannover, GermanyView further author information
 show all
Received 22 Mar 2024, Accepted 11 Jun 2024, Published online: 29 Jul 2024

References

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