Effect of Home-based Bimanual Training in Children with Unilateral Cerebral Palsy (The COAD-study): A Case Series

References

• Novak I, McIntyre S, Morgan C, Campbell L, Dark L, Morton N, Stumbles E, Wilson SA, Goldsmith S. A systematic review of interventions for children with cerebral palsy: state of the evidence. Dev Med Child Neurol. 2013;55(10):885–910. doi:10.1111/dmcn.12246.
   PubMed Web of Science ®Google Scholar
• Sakzewski L, Ziviani J, Boyd RN. Efficacy of upper limb therapies for unilateral cerebral palsy: a meta-analysis. Pediatrics. 2014;133(1):e175–204. doi:10.1542/peds.2013-0675.
   PubMed Web of Science ®Google Scholar
• Ferre CL, Brandao M, Surana B, Dew AP, Moreau NG, Gordon AM. Caregiver-directed home-based intensive bimanual training in young children with unilateral spastic cerebral palsy: a randomized trial. Dev Med Child Neurol. 2017;59(5):497–504. doi:10.1111/dmcn.13330.
   PubMed Web of Science ®Google Scholar
• Eliasson AC, Burtner P. Improving hand function in children with cerebral palsy. Wiley; 2008. place unknown.
   Google Scholar
• Van der Kamp J, Steenbergen B, Masters RSW. Explicit and implicit motor learning in children with unilateral cerebral palsy. Disabil Rehabil. 2018;40(23):2790–97. doi:10.1080/09638288.2017.1360403.
   PubMed Web of Science ®Google Scholar
• Lin KC, Wang TN, Wu CY, Chen CL, Chang KC, Lin YC, Chen YJ. Effects of home-based constraint-induced therapy versus dose-matched control intervention on functional outcomes and caregiver well-being in children with cerebral palsy. Res Dev Disabil. 2011;32(5):1483–91. doi:10.1016/j.ridd.2011.01.023.
   PubMed Web of Science ®Google Scholar
• Peplow UC, Carpenter C. Perceptions of parents of children with cerebral palsy about the relevance of, and adherence to, exercise programs: a qualitative study. Phys Occup Ther Pediatr. 2013;33(3):285–99. doi:10.3109/01942638.2013.773954.
   PubMed Web of Science ®Google Scholar
• Register NT. Trial NL5415 (NTR5743). Utrecht (the Netherlands) [accessed 26 August 2019]. https://www.trialregister.nl/trial/5415.
   Google Scholar
• Beckers LWME, Rameckers EAA, Smeets RJEM, van der Burg JJW, Aarts PBM, Schnackers MLAP, Janssen-Potten YJM. Barriers to recruitment of children with cerebral palsy in a trial of home-based training. Contemp Clin Trials Commun. 2019;15:15. doi:10.1016/j.conctc.2019.100371.
   Web of Science ®Google Scholar
• Eliasson AC, Krumlinde-Sundholm L, Rosblad B, Beckung E, Arner M, Ohrvall AM, Rosenbaum P. The manual ability classification system (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48(7):549–54. doi:10.1017/S0012162206001162.
   PubMed Web of Science ®Google Scholar
• Palisano R, Rosenbaum P, Walter S, Russell D, Wood E, Galuppi B. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997;39(4):214–23. doi:10.1111/j.1469-8749.1997.tb07414.x.0
   PubMed Web of Science ®Google Scholar
• Schnackers M, Beckers L, Janssen-Potten Y, Aarts P, Rameckers E, van der Burg J, de Groot I, Focus Group COAD, Smeets R, Geurts S, et al. Home-based bimanual training based on motor learning principles in children with unilateral cerebral palsy and their parents (the COAD-study): rationale and protocols. BMC Pediatr. 2018;18(1):139. doi:10.1186/s12887-018-1110-2.
   PubMedGoogle Scholar
• Cusick A, Lannin NA, Lowe K. Adapting the Canadian occupational performance measure for use in a paediatric clinical trial. Disabil Rehabil. 2007;29:761–66. doi:10.1080/09638280600929201.
   PubMed Web of Science ®Google Scholar
• Geerdink Y, Aarts P, Van der Holst M, Lindeboom R, Van Der Burg J, Steenbergen B, Geurts AC. Development and psychometric properties of the Hand-Use-at-Home questionnaire to assess amount of affected hand-use in children with unilateral paresis. Dev Med Child Neurol. 2017;59(9):919–25. doi:10.1111/dmcn.13449.
   PubMed Web of Science ®Google Scholar
• Van der Holst M, Geerdink Y, Aarts P, Steenbeek D, Pondaag W, Nelissen RG, Geurts AC, Vliet Vlieland TP. Hand-use-at-home questionnaire: validity and reliability in children with neonatal brachial plexus palsy or unilateral cerebral palsy. Clin Rehabil. 2018;32(10):1363–73. doi:10.1177/0269215518775156.
   PubMed Web of Science ®Google Scholar
• Mackie PC, Jessen EC, Jarvis SN. The lifestyle assessment questionnaire: an instrument to measure the impact of disability on the lives of children with cerebral palsy and their families. Child Care Health Dev. 1998;24(6):473–86. doi:10.1046/j.1365-2214.1998.00083.x.
   PubMed Web of Science ®Google Scholar
• Beckers L, Speth L, Rameckers E, Cross-cultural Translation J-PY. Adaptation of the lifestyle assessment questionnaire (laq-cp) into dutch: a brief report. Pediatr Phys Ther. 2017;29(3):251–55. doi:10.1097/PEP.0000000000000428.
   PubMed Web of Science ®Google Scholar
• Steenbeek D, Ketelaar M, Galama K, Gorter JW. Goal attainment scaling in paediatric rehabilitation: a critical review of the literature. Dev Med Child Neurol. 2007;49(7):550–56. doi:10.1111/j.1469-8749.2007.00550.x.
   PubMed Web of Science ®Google Scholar
• Steenbeek D, Ketelaar M, Lindeman E, Galama K, Gorter JW. Interrater reliability of goal attainment scaling in rehabilitation of children with cerebral palsy. Arch Phys Med Rehabil. 2010;91(3):429–35. doi:10.1016/j.apmr.2009.10.013.
   PubMed Web of Science ®Google Scholar
• Krumlinde-Sundholm L, Eliasson AC. Development of the assisting hand assessment: a rasch-built measure intended for children with unilateral upper limb impairments. Scand J Occup Ther. 2003;10(1):16–26. doi:10.1080/11038120310004529.
   Google Scholar
• Krumlinde-Sundholm L, Holmefur M, Kottorp A, Eliasson A-C. The assisting hand assessment: current evidence of validity, reliability, and responsiveness to change. Dev Med Child Neurol. 2007;49(4):259–64. doi:10.1111/j.1469-8749.2007.00259.x.
   PubMed Web of Science ®Google Scholar
• Speth L, Janssen-Potten Y, Leffers P, Rameckers E, Defesche A, Geers R, Smeets R, Vles H. Observational skills assessment score: reliability in measuring amount and quality of use of the affected hand in unilateral cerebral palsy. BMC Neurol. 2013;13(1):152. doi:10.1186/1471-2377-13-152.
   PubMedGoogle Scholar
• Beckers L, Van der Burg J, Janssen-Potten Y, Rameckers E, Aarts P, Smeets R. Process evaluation of two home-based bimanual training programs in children with unilateral cerebral palsy (the COAD-study): protocol for a mixed methods study. BMC Pediatr. 2018;18(1):141. doi:10.1186/s12887-018-1111-1.
   PubMedGoogle Scholar
• Lesage FX, Berjot S, Deschamps F. Clinical stress assessment using a visual analogue scale. Occup Med (Lond). 2012;62(8):600–05. doi:10.1093/occmed/kqs140.
   PubMed Web of Science ®Google Scholar
• Vermulst A, Kroes G, De Meyer R, Nguyen L, Veerman JW, Handleiding OBVL. [Manual OBVL] Delft (the Netherlands): Eburon Uitgeverij; 2015.
   Google Scholar
• Damen H, Veerman JW, Vermulst AA, Nieuwhoff R, de Meyer RE, Scholte RHJ. Parental empowerment: construct validity and reliability of a dutch empowerment questionnaire (EMPO). J Child Fam Stud. 2017;26(2):424–36. doi:10.1007/s10826-016-0568-5.
   Web of Science ®Google Scholar
• Zahra D, Hedge C. The reliable change index: why isn’t it more popular in academic psychology? PsyPag Quarterly. 2010;76:14–19.
   Google Scholar
• Ferre CL, Brandao MB, Hung YC, Carmel JB, Gordon AM. Feasibility of caregiver-directed home-based hand-arm bimanual intensive training: a brief report. Dev Neurorehabil. 2015;18(1):69–74. doi:10.3109/17518423.2014.948641.
   PubMed Web of Science ®Google Scholar