191
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Acceptability of a Multimodal Telerehabilitation Intervention for Children Ages 3–8 Years with Motor Difficulties: Results of a Qualitative Study

Pages 287-301 | Received 14 Sep 2022, Accepted 01 Jul 2023, Published online: 04 Jul 2023

References

  • Grilli L, Feldman DE, Swaine B, Gosselin J, Champagne F, Pineault R. Wait times for paediatric rehabilitation. Health Policy. 2007;2(3):e171–187. doi:10.12927/hcpol.2007.18681.
  • Statistique Canada, Division de la statistique sociale et autochtone. 2007. L’Enquete sur la participation et les limitations d’activites de 2006. [Internet]. Ottawa: Statistique Canada; [accessed 2022 Mar 10]. https://central.bac-lac.gc.ca/.item?id=89-628-XIF2007001-2&op=pdf&app=Library
  • World Health Organization, United Nations Children’s Fund (UNICEF). 2012. Early Childhood Development And Disability: A Discussion Paper. Geneva: World Health Organization; [accessed 2022 Mar 17]. https://apps.who.int/iris/handle/10665/75355
  • Camden C, Zwicker JG, Morin M, Schuster T, Couture M, Poder TG, Maltais DB, Battista M-C, Baillargeon J-P, Goyette M, et al. Web-based early intervention for children with motor difficulties aged 3–8 years old using multimodal rehabilitation (WECARE): protocol of a patient-centred pragmatic randomised trial of paediatric telerehabilitation to support families. BMJ Open. 2021;11(4):e046561. doi:10.1136/bmjopen-2020-046561.
  • Harris SR, Mickelson ECR, Zwicker JG. Diagnosis and management of developmental coordination disorder. CMAJ. 2015;187(9):659–65. doi:10.1503/cmaj.140994.
  • Camden C 2011. Réorganiser les services de réadaptation destinés aux enfants : utilisation d’une recherche-action participative pour documenter un nouveau modèle de services. [Internet]. [accessed 2020 Sep 25]. https://papyrus.bib.umontreal.ca/xmlui/handle/1866/5323
  • Camden C, Swaine B, Tétreault S, Brodeur M-M. Reorganizing pediatric rehabilitation services to improve accessibility: do we sacrifice quality? BMC Health Serv Res. 2010;10(1):227. doi:10.1186/1472-6963-10-227.
  • Larroque B, Ancel P-Y, Marret S, Marchand L, André M, Arnaud C, Pierrat V, Rozé J-C, Messer J, Thiriez G, et al. Neurodevelopmental disabilities and special care of 5-year-old children born before 33 weeks of gestation (the EPIPAGE study): a longitudinal cohort study. Lancet. 2008;371(9615):813–20. doi:10.1016/S0140-6736(08)60380-3.
  • Missiuna C, Moll S, Law M, King S, King G. Mysteries and mazes: parents’ experiences of children with developmental coordination disorder. Can J Occup Ther. 2006;73(1):7–17. doi:10.2182/cjot.05.0010.
  • Hurtubise K, Pratte G, Hamel C, Clapperton I, Camden C. Rethinking early intervention rehabilitation services for children with motor difficulties: engaging stakeholders in the conceptualization of telerehabilitation primary care. Disabil Rehabil. 2021;44(22):6749–58. doi:10.1080/09638288.2021.1972173.
  • Blauw-Hospers CH, Hadders-Algra M. A systematic review of the effects of early intervention on motor development. Dev Med Child Neurol. 2005;47(6):421–32. doi:10.1017/S0012162205000824.
  • Miller AR, Armstrong RW, Mâsse LC, Klassen AF, Shen J, O’Donnell ME. Waiting for child developmental and rehabilitation services: an overview of issues and needs. Dev Med Child Neurol. 2008;50(11):815–21. doi:10.1111/j.1469-8749.2008.03113.x.
  • Pagani LS, Fitzpatrick C, Archambault I, Janosz M. School readiness and later achievement: a French Canadian replication and extension. Dev Psychol. 2010;46(5):984–94. doi:10.1037/a0018881.
  • Lobo MA, Harbourne RT, Dusing SC, McCoy SW. Grounding early intervention: physical therapy cannot just be about motor skills anymore. Phys Ther. 2013;93(1):94–103. doi:10.2522/ptj.20120158.
  • Underwood K, Frankel EB. The developmental systems approach to early intervention in Canada. Infant Young Child. 2012;25(4):286–96. doi:10.1097/IYC.0b013e3182673dfc.
  • Camden C, Pratte G, Fallon F, Couture M, Berbari J, Tousignant M. Diversity of practices in telerehabilitation for children with disabilities and effective intervention characteristics: results from a systematic review. Disability Rehabil An Int, Multidiscip J. 2020;42(24):3424–36. doi:10.1080/09638288.2019.1595750.
  • King G, Williams L, Hahn Goldberg S. Family-oriented services in pediatric rehabilitation: a scoping review and framework to promote parent and family wellness: family-oriented services. Child Care Health Dev. 2017;43(3):334–47. doi:10.1111/cch.12435.
  • Wang Q, Lee R-T, Hunter S, Chan S-C. The effectiveness of internet-based telerehabilitation among patients after total joint arthroplasty: a systematic review and meta-analysis of randomised controlled trials. J Telemed Telecare. 2021;29(4):247–60. doi:10.1177/1357633X20980291.
  • Camden C, Couture M, Pratte G, Morin M, Roberge P, Poder T, Maltais DB, Jasmin E, Hurtubise K, Ducreux E, et al. Recruitment, use, and satisfaction with a web platform supporting families of children with suspected or diagnosed developmental coordination disorder: a randomized feasibility trial. Dev Neurorehabil. 2019;22(7):470–78. doi:10.1080/17518423.2018.1523243.
  • Cranen K, Veld RH, Ijzerman M, Vollenbroek-Hutten M. Change of patients’ perceptions of telemedicine after brief use. Telemed E-Health. 2011;17(7):530–35. doi:10.1089/tmj.2010.0208.
  • Gagnon M, Collins J, Elfassy C, Merlo GM, Marsh J, Sawatzky B, Yap R, Hamdy R, Veilleux L-N, Dahan-Oliel N. A telerehabilitation intervention for youths with arthrogryposis multiplex congenita: protocol for a pilot study. JMIR Res Protoc. 2020;9(6):e18688. doi:10.2196/18688.
  • Little LM, Wallisch A, Pope E, Dunn W. Acceptability and cost comparison of a telehealth intervention for families of children with Autism. Infant Young Child. 2018;31(4):275–86. doi:10.1097/IYC.0000000000000126.
  • Tanner K, Bican R, Boster J, Christensen C, Coffman C, Fallieras K, Long R, Mansfield C, O’Rourke S, Pauline L, et al. Feasibility and acceptability of clinical pediatric telerehabilitation services. Int J Telerehab. 2020;12(2):43–52. doi:10.5195/ijt.2020.6336.
  • Beani E, Menici V, Ferrari A, Cioni G, Sgandurra G. Feasibility of a home-based action observation training for children with unilateral cerebral palsy: an explorative study. Front Neurol. 2020;11:16. doi:10.3389/fneur.2020.00016.
  • Criss MJ. School-based telerehabilitation in occupational therapy: using telerehabilitation technologies to promote improvements in student performance. Int J Telerehab. 2013. [accessed 2021 Jun 4. Internet 10.5195/ijt.2013.6115
  • Hines M, Bulkeley K, Dudley S, Cameron S, Lincoln M. Delivering quality allied health services to children with complex disability via telepractice: lessons learned from four case studies. J Dev Phys Disabil. 2019;31(5):593–609. doi:10.1007/s10882-019-09662-8.
  • Lotan M, Downs J, Elefant C. A pilot study delivering physiotherapy support for rett syndrome using a telehealth framework suitable for COVID-19 lockdown. Dev Neurorehabil. 2021;24(6):429–34. doi:10.1080/17518423.2021.1914762.
  • Ashburner J, Vickerstaff S, Beetge J, Copley J. Remote versus face-to-face delivery of early intervention programs for children with autism spectrum disorders: perceptions of rural families and service providers. Res Autism Spectr Disord. 2016;23:1–14. doi:10.1016/j.rasd.2015.11.011.
  • Gibbs V, Toth-Cohen S. Family-centered occupational therapy and telerehabilitation for children with autism spectrum disorders. Occup Ther In Health Care. 2011;25(4):298–314. doi:10.3109/07380577.2011.606460.
  • Fairweather GC, Lincoln MA, Ramsden R. Speech-language pathology teletherapy in rural and remote educational settings: decreasing service inequities. Int J Speech Lang Pathol. 2016;18(6):592–602. doi:10.3109/17549507.2016.1143973.
  • Anderson E, Parslow R, Hollingworth W, Mills N, Beasant L, Gaunt D, Metcalfe C, Kessler D, Macleod J, Pywell S, et al. Recruiting adolescents with chronic fatigue syndrome/myalgic encephalomyelitis to internet-delivered therapy: internal pilot within a randomized controlled trial. J Med Internet Res. 2020;22(8):e17768. doi:10.2196/17768.
  • Johnsson G, Kerslake R, Crook S. Delivering allied health services to regional and remote participants on the autism spectrum via video-conferencing technology: lessons learned. Rural Remote Health. 2019;19(3):1–6. doi:10.22605/RRH5358.
  • Gagnon M 2020. Assessments And Interventions For Youths With Arthrogryposis Multiplex Congenita [M.S.]. Ann Arbor: McGill University (Canada). http://ezproxy.usherbrooke.ca/login?url=https://www.proquest.com/dissertations-theses/assessments-interventions-youths-with/docview/2516132024/se-2?accountid=13835
  • Craig P, Dieppe P, Macintyre S, Michie S, Nazareth S, Petticrew M 2019. Developing And Evaluating Complex Interventions: New Guidance. [Internet]. [accessed 2022 Apr 4]. https://www.unisante.ch/sites/default/files/inline-files/Complex%20Interventions%20Guidance%2029-9-08_0.pdf
  • Nadal C, Sas C, Doherty G. Technology acceptance in mobile health: scoping review of definitions, models, and measurement. J Med Internet Res. 2020;22(7):e17256. doi:10.2196/17256.
  • Government of Canada CI of HR. 2010. Section 3.6.2: Framework For Evaluating Complex Interventions - Knowledge Translation In Health Care - CIHR. Canadian Institut of Health Research. [Internet]. [accessed 2022 Apr 18]. https://cihr-irsc.gc.ca/e/41946.html
  • Dostie R, Gaboury I, Cinar E, Camden C. Acceptability of pediatric telerehabilitation interventions provided by physical therapists and occupational therapists—a scoping review. Physical & Occupational Therapy In Pediatrics. 2022;42(6):615–634. doi:10.1080/01942638.2022.2064203.
  • Perski O, Short CE. Acceptability of digital health interventions: embracing the complexity. Transl Behav Med. 2021;11(7):1473–80. doi:10.1093/tbm/ibab048.
  • Sekhon M, Cartwright M, Francis JJ. Acceptability of healthcare interventions: an overview of reviews and development of a theoretical framework. BMC Health Serv Res. 2017;17(1):88. doi:10.1186/s12913-017-2031-8.
  • Sekhon M, Cartwright M, Francis JJ. Development of a theory-informed questionnaire to assess the acceptability of healthcare interventions. BMC Health Serv Res. 2022;22(1):279. doi:10.1186/s12913-022-07577-3.
  • Bruhn JG. EthicaL issues in intervention outcomes. Fam Community Health. 2001;23(4):24–35. doi:10.1097/00003727-200101000-00005.
  • Wilson BN, Crawford SG, Green D, Roberts G, Aylott A, Kaplan BJ. Psychometric properties of the revised developmental coordination disorder questionnaire. Phys Occup Ther Pediatr. 2009;29(2):182–202. doi:10.1080/01942630902784761.
  • Carswell A, McColl MA, Baptiste S, Law M, Polatajko H, Pollock N. The Canadian occupational performance measure: a research and clinical literature review. Can J Occup Ther. 2004;71(4):210–22. doi:10.1177/000841740407100406.
  • Graham F, Rodger S, Ziviani J. Coaching parents to enable children’s participation: an approach for working with parents and their children. Aust Occup Ther J. 2009;56(1):16–23. doi:10.1111/j.1440-1630.2008.00736.x.
  • Missiuna CA, Pollock NA, Levac DE, Campbell WN, Whalen SDS, Bennett SM, Hecimovich CA, Gaines BR, Cairney J, Russell DJ. Partnering for change: an innovative school-based occupational therapy service delivery model for children with developmental coordination disorder. Can J Occup Ther. 2012;79(1):41–50. doi:10.2182/cjot.2012.79.1.6.
  • Hunter D, McCallum J, Howes J. Defining Exploratory-Descriptive Qualitative (EDQ) research and considering its application to healthcare. J Nurs Health Care. 2019. Internet. http://eprints.gla.ac.uk/180272/7/180272.pdf.
  • Camden C, Dostie R, Heguy L, Gauvin C, Hudon C, Rivard L, Gaboury I. Understanding parental concerns related to their child’s development and factors influencing their decisions to seek help from health care professionals: results of a qualitative study. Child Care Health Dev. 2020;46(1):9–18. doi:10.1111/cch.12731.
  • Braun V, Clarke V, Hayfield N, Terry G. Thematic Analysis. In: Liamputtong P, editor. Handbook of Research Methods in Health Social Sciences. [internet]. Singapore: Springer Singapore; 2018. pp. 1–18. [accessed 2021 Mar 3]. doi:10.1007/978-981-10-2779-6_103-1
  • Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exerc Health. 2019;11(4):589–97. doi:10.1080/2159676X.2019.1628806.
  • Bergen N, Labonté R. “Everything is perfect, and we have no problems”: detecting and limiting social desirability bias in qualitative research. Qual Health Res. 2020;30(5):783–92. doi:10.1177/1049732319889354.
  • Fereday J, Muir-Cochrane E. Demonstrating rigor using thematic analysis: a hybrid approach of inductive and deductive coding and theme development. Int J Qual. 2006;5(1):80–92. doi:10.1177/160940690600500107.
  • Braun V, Clarke V. To saturate or not to saturate? questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qual Res Sport Exerc Health. 2021;13(2):201–16. doi:10.1080/2159676X.2019.1704846.
  • Saunders B, Sim J, Kingstone T, Baker S, Waterfield J, Bartlam B, Burroughs H, Jinks C. Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quant. 2018;52(4):1893–907. doi:10.1007/s11135-017-0574-8.
  • Thorne S. The great saturation debate: what the “S Word” means and doesn’t mean in qualitative research reporting. Can J Nurs Res. 2020;52(1):3–5. doi:10.1177/0844562119898554.
  • Meyrick J. What is good qualitative research?: a first step towards a comprehensive approach to judging rigour/quality. J Health Psychol. 2006;11(5):799–808. doi:10.1177/1359105306066643.
  • Spencer L, Ritchie J, Lewis J, Dillon L. Quality in qualitative evaluation: a framework for assessing research evidence. London, Cabinet Office: Government Chief Social Researcher’s Office; 2003. https://core.ac.uk/download/pdf/74376246.pdf
  • QSR International Pty Ltd. 2020. Nvivo. [Internet]. https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home
  • Wallisch A, Little L, Pope E, Dunn W. Parent perspectives of an occupational therapy telehealth intervention. Int J Telerehab. 2019;11(1):15–22. doi:10.5195/ijt.2019.6274.
  • Abimbola S, Li C, Mitchell M, Everett M, Casburn K, Crooks P, Hammond R, Milling H, Ling L, Reilly A, et al. On the same page: co-designing the logic model of a telehealth service for children in rural and remote Australia. Digital Health. 2019;5:205520761982646. doi:10.1177/2055207619826468.
  • Maini R, Mounier-Jack S, Borghi J. How to and how not to develop a theory of change to evaluate a complex intervention: reflections on an experience in the democratic republic of Congo. BMJ Glob Health. 2018;3(1):e000617. doi:10.1136/bmjgh-2017-000617.
  • Skeat J, Eadie P, Ukoumunne O, Reilly S. Predictors of parents seeking help or advice about children’s communication development in the early years: help or advice for communication development. Child Care Health Dev. 2010;36(6):878–87. doi:10.1111/j.1365-2214.2010.01093.x.
  • Camden C, Silva M. Pediatric teleheath: opportunities created by the COVID-19 and suggestions to sustain its use to support families of children with disabilities. Phys Occup Ther Pediatr. 2021;41(1):1–17. doi:10.1080/01942638.2020.1825032.
  • Johnstonn R 2019. Caregiver Perspectives On Telehealth: A Service Delivery For Occupational Therapy [Doctor Of Occupational Therapy]. [Internet]. [place unknown]. University of St. Augustine for Health Sciences; [accessed 2022 Mar 7]. doi:10.46409/sr.SMLR2770
  • Hodgetts S, Nicholas D, Zwaigenbaum L, McConnell D. Parents’ and professionals’ perceptions of family-centered care for children with autism spectrum disorder across service sectors. Social Sci Med. 2013;96:138–46. doi:10.1016/j.socscimed.2013.07.012.
  • Wainer AL, Ingersoll BR. Increasing access to an ASD imitation intervention via a telehealth parent training program. J Autism Dev Disord. 2015;45(12):3877–90. doi:10.1007/s10803-014-2186-7.
  • Smart E, Nalder E, Rigby P, King G. Generating expectations: what pediatric rehabilitation can learn from mental health literature. Phys Occup Ther Pediatr. 2019;39(2):217–35. doi:10.1080/01942638.2018.1432007.
  • Schwellnus H, King G, Thompson L. Client-centred coaching in the paediatric health professions: a critical scoping review. Disabil Rehabil. 2015;37(15):1305–15. doi:10.3109/09638288.2014.962105.
  • Ward R, Reynolds JE, Pieterse B, Elliott C, Boyd R, Miller L. Utilisation of coaching practices in early interventions in children at risk of developmental disability/delay: a systematic review. Disabil Rehabil. 2020;42(20):2846–67. doi:10.1080/09638288.2019.1581846.
  • Akhbari Ziegler S, Hadders‐Algra M. Coaching approaches in early intervention and paediatric rehabilitation. Dev Med Child Neurol. 2020;62(5):569–74. doi:10.1111/dmcn.14493.
  • Miciak M, Mayan M, Brown C, Joyce AS, Gross DP. The necessary conditions of engagement for the therapeutic relationship in physiotherapy: an interpretive description study. Arch Physiother. 2018;8(1):3. doi:10.1186/s40945-018-0044-1.
  • Babatunde F, MacDermid J, MacIntyre N. Characteristics of therapeutic alliance in musculoskeletal physiotherapy and occupational therapy practice: a scoping review of the literature. BMC Health Serv Res. 2017;17(1):375. doi:10.1186/s12913-017-2311-3.
  • Tenforde AS, Borgstrom H, Polich G, Steere H, Davis IS, Cotton K, O’Donnell M, Silver JK. Outpatient physical, occupational, and speech therapy synchronous telemedicine: a survey study of patient satisfaction with virtual visits during the COVID-19 pandemic. Am J Phys Med Rehabil. 2020;99(11):977–81. doi:10.1097/PHM.0000000000001571.
  • Campbell J, Theodoros D, Russell T, Gillespie N, Hartley N. Client, provider and community referrer perceptions of telehealth for the delivery of rural paediatric allied health services. Aust J Rural Health. 2019;27(5):419–26. doi:10.1111/ajr.12519.
  • Gillie M, Ali D, Vadlamuri D, Carstarphen KJ. Telehealth literacy as a social determinant of health: a novel screening tool to support vulnerable patient equity. ADR. 2022;6(1):67–72. doi:10.3233/ADR-210024.
  • Darrat I, Tam S, Boulis M, Williams AM. Socioeconomic disparities in patient use of telehealth during the coronavirus disease 2019 surge. JAMA Otolaryngol Head Neck Surg. 2021;147(3):287. doi:10.1001/jamaoto.2020.5161.
  • Mubarak F, Suomi R, Kantola S-P. Confirming the links between socio-economic variables and digitalization worldwide: the unsettled debate on digital divide. JICES. 2020;18(3):415–30. doi:10.1108/JICES-02-2019-0021.
  • Beavis A, Flett P 2020. Magnifying Inequities: Reflections On Indigenous Health And Physiotherapy In The Context Of COVID-19. Canadian Physiotherapy Association. [Internet]. https://physiotherapy.ca/blog/magnifying-inequities-reflections-indigenous-health-and-physiotherapy-context-covid-19
  • Retamal-Walter F, Waite M, Scarinci N. Exploring engagement in telepractice early intervention for young children with developmental disability and their families: a qualitative systematic review. Disabil Rehabil Assist Technol. 2022;1–14. doi:10.1080/17483107.2022.2048098.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.