Using creative, sensory and embodied research methods when working with people with dementia: a method story

References

• Bartlett, R., Gjernes, T., Lotherington, A. T., & Obstefelder, A. (2018). Gender, citizenship and dementia care: A scoping review of studies to inform policy and future research. Health & Social Care in the Community, 26(1), 14–26. https://doi.org/10.1111/hsc.12340
   PubMed Web of Science ®Google Scholar
• Blodgett, A., Coholic, D., Schinke, R., McGannon, K., Peltier, D., & Pheasant, C. (2013). Moving beyond words: Exploring the use of an arts-based method in Aboriginal community sport research. Qualitative Research in Sport, Exercise and Health, 5(3), 312–331. https://doi.org/10.1080/2159676X.2013.796490
   Google Scholar
• Braun, V., Clarke, V., Terry, G., & Hayfield, N. (2018). Thematic analysis. In P. Liamputtong (Ed.), Handbook of research methods in health and social sciences (pp. 843–860). Springer.
   Google Scholar
• Braun, V., & Clarke, V. (2019). Reflecting on reflexive thematic analysis. Qualitative Research in Sport, Exercise and Health, 11(4), 589–597. https://doi.org/10.1080/2159676X.2019.1628806
   Web of Science ®Google Scholar
• Broome, E., Dening, T., & Schneider, J. (2019). Facilitating imagine arts in residential care homes: The artists’ perspectives. Arts & Health, 11(1), 54–66. https://doi.org/10.1080/17533015.2017.1413399
   PubMed Web of Science ®Google Scholar
• Buse, C., & Twigg, J. (2015). Materialising memories: Exploring the stories of people with dementia through dress. Ageing and Society, 36(6), 1115–1135. https://doi.org/10.1017/S0144686X15000185
   Web of Science ®Google Scholar
• Camic, P., Hulbert, S., & Kimmel, J. (2019). Museum object handling: A health-promoting community-based activity for dementia care. Journal of Health Psychology, 24(6), 787–798. https://doi.org/10.1177/1359105316685899
   PubMed Web of Science ®Google Scholar
• Camp, C. (2019). Denial of Human Rights: We Must Change the Paradigm of Dementia Care, Clinical Gerontologist, 42(3), 221–223, https://doi.org/10.1080/07317115.2019.1591056
   PubMed Web of Science ®Google Scholar
• Campbell, S., & Ward, R. (2017). Videography in care-based hairdressing in dementia care: Practices and processes. In J. Keady, L. C. Hydén, A. Johnson, & C. Swarbrick (Eds.), Social research methods in dementia studies: inclusion and innovation (pp. 96–119). Routledge.
   Google Scholar
• Chamberlain, P., & Craig, C. (2013). Engagingdesign – Methods for collective creativity. In M. Kuruso (Ed.), Human-computer interaction, part I, HCII 2013, LNCS 8004 (pp. 22–31). Springer-Verlag Berlin Heidelberg.
   Google Scholar
• Chamberlain, P., & Craig, C. (2017). HOSPITAbLe: Critical design and the domestication of healthcare. Research Through Design 2017 Proceedings. Edinburgh : Figshare. https://figshare.com/articles/HOSPITAbLe_critical_design_and_the_domestication_of_healthcare/4746952
   Google Scholar
• Dowlen, R. (2018). The ‘in the moment’ musical experiences of people with dementia: A multiple-case study approach (Doctoral thesis, University of Manchester). https://www.research.manchester.ac.uk/portal/en/theses/the-in-the-moment-musical-experiences-of-people-with-dementia-a-multiplecase-study-approach(48599400-3e3d-4871-a0e3-94d6b3692a5d).html
   Google Scholar
• Dowlen, R., Keady, J., Milligan, C., Swarbrick, C., Ponsillo, N., Geddes, L., & Riley, B. (2021). In the moment with music: An exploration of the embodied and sensory experiences of people living with dementia during improvised music-making. Ageing and Society, 1–23. doi:10.1017/S0144686X21000210
   Google Scholar
• Ellingson, L. (2017). Embodiment in Qualitative Research. Routledge.
   Google Scholar
• Fletcher, J., . R., Lee, K., & Snowden, S. (2019). Uncertainties when applying the mental capacity act in dementia research: A call for researcher experiences. Ethics and Social Welfare, 13(2), 183–197. https://doi.org/10.1080/17496535.2019.1580302
   Web of Science ®Google Scholar
• Gray, K., Evans, S. C., Griffiths, A., & Schneider, J. (2017). Critical reflections on methodological challenge in arts and dementia evaluation and research. Dementia, 17(6), 775–784. https://doi.org/10.1177/1471301217734478
   PubMedGoogle Scholar
• Hendriks, N., Slegers, K., & Duysburgh, P. (2015). Codesign with people living with cognitive or sensory impairments: A case for method stories and uniqueness. CoDesign, 11(1), 70–82. https://doi.org/10.1080/15710882.2015.1020316
   Web of Science ®Google Scholar
• Howes, D. (2005). Empire of the Senses: The sensual cultural reader. Berg.
   Google Scholar
• Hubbard, G., Downs, M., & Tester, S. (2003). Including older people with dementia in research: Challenges and strategies. Ageing & Mental Health, 7(5), 351–362. https://doi.org/10.1080/1360786031000150685
   PubMed Web of Science ®Google Scholar
• Iltanen, S., & Topo, P. (2015). Object elicitation in interviews about clothing, design, ageing and dementia. Journal of Design Research, 13(2), 167–184. https://doi.org/10.1504/JDR.2015.069759
   Google Scholar
• Kara, H. (2015). Creative research methods in the social sciences: A practical guide. Policy Press.
   Google Scholar
• Keady, J., Campbell, S., Clark, A., Dowlen, R., Elvish, R., Jones, L., Kindell, J., Swarbrick, C., & Williams, S. (2020). Re-thinking and re-positioning ‘being in the moment’ within a continuum of moments: Introducing a new conceptual framework for dementia studies. Ageing and Society, 1–22. https://doi.org/10.1017/S0144686X20001014
   Google Scholar
• Killick, J., & Craig, C. (2012). Creativity and communication in persons with dementia. Jessica Kingsley Publishers.
   Google Scholar
• Kontos, P. (2015). Dementia and Embodiment. In J. Twigg. & W. Martin. (Eds.), Routledge handbook of cultural gerontology (pp. 173–181). Routledge.
   Google Scholar
• Kontos, P., & Martin, W. (2013). Embodiment and dementia: Exploring critical narratives of selfhood, surveillance, and dementia care. Dementia, 12(3), 288–302. https://doi.org/10.1177/1471301213479787
   PubMedGoogle Scholar
• La Jevic, L., & Springgay, S. (2008). A/ r/ tography as an ethics of embodiment: Visual journal in preservice education. Qualitative Inquiry, 14(1), 67–89. https://doi.org/10.1177/1077800407304509
   Web of Science ®Google Scholar
• Leavy, P. (2015). Method meets art: Arts-based research practice. The Guildford Press.
   Google Scholar
• Lee, J. (2012). Against method: The Portability of method in human-centered design. Aalto University. https://aaltodoc.aalto.fi/handle/123456789/11461
   Google Scholar
• Lee, J. (2014). The true benefits of designing design methods. Artifact, 3(2), 5. https://doi.org/10.14434/artifact.v3i2.3951
   Google Scholar
• Mannay, D. (2015). Visual, narrative and creative research methods: Application, reflection and ethics (1st ed.). Routledge. https://doi.org/10.4324/9781315775760
   Google Scholar
• Martin, W., Kontos, P., & Ward, R. (2013). Embodiment and dementia. Dementia, 12(3), 283–287. https://doi.org/10.1177/1471301213485234
   PubMedGoogle Scholar
• Morrissey, K., Wood, G., Green, D., Pantidi, N., & McCarthy, J. (2016). “I’m a rambler, I’m a gambler, I’m a long way from home.” The place of props, music and design in dementia care. In Proceedings of the 2016 ACM Conference on Designing Interactive Systems, (pp. 1008–1010). New York: Association for Computing Machinery
   Google Scholar
• Murphy, K., Jordan, F., Hunter, A., Cooney, A., & Casey, D. (2015). Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies. Dementia: The International Journal of Social Research and Practice, 14(6), 800–824. https://doi.org/10.1177/1471301213512489
   Web of Science ®Google Scholar
• NHS. (2020). Dementia guide: Symptoms of dementia. Retrieved August 3, 2020, from https://www.nhs.uk/conditions/dementia/about/
   Google Scholar
• Phillipson, L., & Hammond, A. (2018). More than talking: A scoping review of innovative approaches to qualitative research involving people with dementia. International Journal of Qualitative Methods, 17(1), 1–13. https://doi.org/10.1177/1609406918782784
   Web of Science ®Google Scholar
• Pink, S. (2011). Multimodality, multisensoriality and ethnographic knowing: Social semiotics and the phenomenology of perception. Qualitative Research, 11(1), 261–276. https://doi.org/10.1177/1468794111399835
   Google Scholar
• Pink, S. (2015). Doing Sensory Ethnography (2nd ed.). SAGE Publications.
   Google Scholar
• Pitts-Taylor, V. (2015). A feminist carnal sociology? Embodiment in sociology, feminism and naturalized philosophy. Qualitative Sociology, 38(1), 19–25. https://doi.org/10.1007/s11133-014-9298-4
   Web of Science ®Google Scholar
• Reavey, P., & Prosser, J. (2012). Visual research in psychology. In H. Cooper, P. M. Camic, D. L. Long, A. T. Panter, D. Rindskopf, & K. J. Sher (Eds.), APA handbooks in psychology®. APA handbook of research methods in psychology, Vol. 2. Research designs: Quantitative, qualitative, neuropsychological, and biological (pp. 185–207). American Psychological Association.
   Google Scholar
• Robertson, L., Nevay, S., Jones, H., Moncurl, W., & Lim, C. (2020). Birds of a feather sew together: A mixed methods approach to measuring the impact of textile and e-textile crafting upon wellbeing using Warwick-Edinburgh Mental Wellbeing Scale. In K. Christer, C. Craig, P. Chamberlain (Eds.), Proceedings of the 6th International Conference on Design4Health (pp. 561–570). Amsterdam: Lab4Living Sheffield Hallam University
   Google Scholar
• Scottish Dementia Working Group Research Sub-Group. (2014). Core principles for involving people with dementia in research: Innovative practice. Dementia, 13(5), 680–685. https://doi.org/10.1177/1471301214533255
   PubMedGoogle Scholar
• Shercliff, E., & Holroyd Twigger, A. (2020). Stitching Together: Participatory textile making as an emerging methodological approach to research, Journal of Arts & Communities, 10(1–2), 5–18
   Google Scholar
• Stephan, B., & Brayne, C. (2010). Prevalence and projections of dementia. In M. Downs & B. Bowers (Eds.), Excellence in dementia care: Research into practice (pp. 9–35). Open University Press.
   Google Scholar
• Tarr, J., Gonzalez-Polledo, E., & Cornish, F. (2018). On liveness: Using arts workshops as a research method. Qualitative Research, 18(1), 36–52. https://doi.org/10.1177/1468794117694219
   Web of Science ®Google Scholar
• Taylor, J. S., DeMers, S. M., Vig, E. K., & Borson, S. (2012). The disappearing subject: Exclusion of people with cognitive impairment and dementia from geriatrics research. Journal of American Geriatrics Society, 60(3), 413–419. https://doi.org/10.1111/j.1532-5415.2011.03847.x
   PubMed Web of Science ®Google Scholar
• Thanem, T., & Knights, D. (2019). Embodied research methods. Sage.
   Google Scholar
• The Dementia Centre. (2011, September 1). Tearing Clothing. https://dementia.stir.ac.uk/tearing-clothes.
   Google Scholar
• Thomson, L. J. M., & Chatterjee, H. J. (2016). Well-being with objects: Evaluating a museum object-handling intervention for older adults in health care settings. Journal of Applied Gerontology, 35(3), 349–362. https://doi.org/10.1177/0733464814558267
   PubMed Web of Science ®Google Scholar
• Tsekleves, E., & Keady, J. (2021). Design for people living with dementia. Routledge.
   Google Scholar
• Ward, C. M., Milligan, C., Rose, E., Elliott, M., & Wainwright, R. B. (2020). The benefits of community-based participatory arts activities for people living with dementia: A thematic scoping review. Arts & Health. https://doi.org/10.1080/17533015.2020.1781217
   Google Scholar
• Woodward, S. (2020). Material methods: Researching and thinking with things. Sage.
   Google Scholar
• Yanow, D. (2012). Organizational ethnography between toolbox and world-making. Journal of Organizational Ethnography, 1(1), 31–42. https://doi.org/10.1108/202466741211220633
   Google Scholar
• Zeilig, H., Tischler, V., van der Byl Williams, M., West, J., & Strohmaier, S. (2019). Co-creativity and agency: A case study analysis of a co-creative arts group for people with dementia. Journal of Aging Studies, 49, 16–24. https://doi.org/10.1016/j.jaging.2019.03.002
   PubMed Web of Science ®Google Scholar