The development and feasibility of an online aphasia group intervention and networking program – TeleGAIN

References

• Attard, M., Lanyon, L., Togher, L., & Rose, M. (2015). Consumer perspectives on community aphasia groups: a narrative literature review in the context of psychological well-being. Aphasiology, 29, 983–1019. doi:https://doi.org/10.1080/02687038.2015.1016888
   Google Scholar
• Australian Bureau of Statisics. (2011). Household Use of Information Technology, Australia, 2010-1. Retrieved from http://www.abs.gov.au/ausstats/[email protected]/0/D11394A54F8B9ED1CA25796600152C62?opendocument
   Google Scholar
• Bandura, A. (1997). Self-efficacy: The exercise of control. New York: W.H. Freeman and Company.
   Google Scholar
• Beeson, P., & Holland, A. (2007). Aphasia groups in a university setting. In R. Elman (Ed.), Group treatment of neurogenic communication disorders: The expert clinician's approach (2nd ed., pp. 145–158). San Diego, CA: Plural Publishing.
   Google Scholar
• Bernstein-Ellis, E., & Elman, R., (2007). Aphasia group communication treatment: The Aphasia Center of California approach. In R. Elman (Ed.), Group treatment of neurogenic communication disorders: The expert clinician's approach (2nd ed., pp. 71–94). San Diego, CA: Plural Publishing.
   Google Scholar
• Brandenburg, C., Worrall, L., Rodriguez, A., & Copland, D. (2013). Mobile computing technology in aphasia: An integrated review of accessibility and potential use. Aphasiology, 27, 444–461. doi:10.1080/02687038.2013.772293
   Google Scholar
• Brennan, D., & Barker, L. (2008). Human factors in the development and implementation of telerehabilitation systems. Journal of Telemedicine and Telecare, 14, 55–58. doi:https://doi.org/10.1258/jtt.2007.007040
   Google Scholar
• Brennan, D., Georgeadis, A., & Baron, C. (2002). Telerehabilitation tools for the provision of remote speech-language treatment. Topics in Stroke Rehabilitation, 8, 71–78. doi:10.1310/U7KV-DY7U-Q6QP-LVBP
   Google Scholar
• Brennan, D., Georgeadis, A., Baron, C., & Barker, L. (2004). The effect of videoconference-based telerehabilitation on story retelling performance by brain-injured subjects and its implications for remote speech–language therapy. Telemedicine Journal and E-Health, 10, 147–154. doi:10.1089/tmj.2004.10.147
   Google Scholar
• Brumfitt, S., & Sheeran, P. (1997). An evaluation of short-term group therapy for people with aphasia. Disability and Rehabilitation, 19, 221–230. doi:10.3109/09638289709166531
   Google Scholar
• Campbell, M., Fitzpatrick, R., Haines, A., Kinmonth, A.L., Sandercock, P., & Spiegelhalter, D. (2000). Framework for the design and evaluation of complex interventions to improve health. British Medical Journal, 321, 694–696. doi:10.1136/bmj.321.7262.694
   Google Scholar
• Charness, N., Demiris, G., & Krupinski, E. (2011). Designing telehealth for an aging population: A human factors perspective. Boca Raton, FL: Taylor & Francis.
   Google Scholar
• Clark, P., Dawson, S., Scheideman-Miller, C., & Post, M. (2002). TeleRehab: Stroke teletherapy and management using two-way interactive video. Journal of Neurologic Physical Therapy, 26, 87–93. doi:10.1097/01253086-200226020-00006
   Google Scholar
• Coleman, J., Frymark, T., Franceschini, N., & Theodoros, D. (2015). Assessment and treatment of cognition and communication skills in adults with acquired brain injury via telepractice: A systematic review. American Journal of Speech-Language Pathology, 24, 295–315. doi:10.1044/2015_AJSLP-14-0028
   Google Scholar
• Craig, P., Dieppe, P., Macintyre, S., & Michie, S. (2013). Developing and evaluating complex interventions: The new Medical Research Council guidance. International Journal of Nursing Studies, 50, 587–592. doi:https://doi.org/10.1016/j.ijnurstu.2012.09.010
   Google Scholar
• Craig, P., Dieppe, P., Macintyre, S., Michie, S., Nazareth, I., & Petticrew, M. (2008). Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ, 337, a1655. doi:10.1136/bmj.a1655
   Google Scholar
• Davidson, B., Worrall, L., & Hickson, L. (2003). Identifying the communication activities of older people with aphasia: Evidence from naturalistic observation. Aphasiology, 17, 243--264. doi:10.1080/729255457
   Google Scholar
• Elman, R. (2007). The importance of aphasia group treatment for rebuilding community and health. Topics in Language Disorders, 27, 300–308. doi:10.1097/01.TLD.0000299884.31864.99
   Google Scholar
• Elman, R., & Bernstein-Ellis, E. (1999a). The efficacy of group communication treatment in adults with chronic aphasia. Journal of Speech, Language, and Hearing Research, 42, 411–419. doi:10.1044/jslhr.4202.411
   Google Scholar
• Elman, R., & Bernstein-Ellis, E. (1999b). Psychsocial aspects of group communication treatment – Preliminary Findings. Seminars in Speech and Language, 20, 65–72. doi:10.1055/s-2008-1064009
   Google Scholar
• Elman, R., & Hoover, E. (2013). Integrating communication support into aphasia group treatment. In N. Simmons-Mackie, J. King, & D. Beukelman (Eds.), Supporting communication for adults with acute and chronic aphasia (pp. 189–220). Maryland, US: Paul H. Brookes Publishing Co., Inc.
   Google Scholar
• Elman, R., & Larsen, S. (2010). Computer and internet use among people with aphasia. Paper presented at the Clinical Aphasiology Conference. Isle of Palms, SC. Retrieved from http://aphasiology.pitt.edu/archive/00002161/
   Google Scholar
• Foster, A., Horspool, K., Edwards, L., Thomas, C., Salisbury, C., Montgomery, A., & O’cathain, A. (2015). Who does not participate in telehealth trials and why? A cross-sectional survey. Trials, 16, 258. doi:https://doi.org/10.1186/s13063-015-0773-3
   Google Scholar
• Getz, H., Snider, S., Brennan, D., & Friedman, R. (2016). Successful remote delivery of a treatment for phonological alexia via telerehab. Neuropsychological Rehabilitation, 26, 584–609. doi:https://doi.org/10.1080/09602011.2015.1048254
   Google Scholar
• Hall, N., Boisvert, M., & Steele, R. (2013). Telepractice in the assessment and treatment of individuals with aphasia: A systematic review. International Journal of Telerehabilitation, 5, 27–38. doi:10.5195/IJT.2013.6119
   Google Scholar
• Holland, A. (2008). Recent advances and future directions in aphasia therapy. Brain Impairment, 9, 179–190. doi:10.1375/brim.9.2.179
   Google Scholar
• Holland, A., Halper, A., & Cherney, L. (2010). Tell me your story: Analysis of script topics selected by persons with aphasia. American Journal of Speech-Language Pathology, 19, 198–203. doi:10.1044/1058-0360
   Google Scholar
• Holland, A., & Hinckley, J. (2002). Assessment and treatment of pragmatic aspects of communication in aphasia. In A. Hillis (Ed.), The handbook of adult language disorders (pp. 413–427). New York: Psychology Press.
   Google Scholar
• Kagan, A. (1998). Supported conversation for adults with aphasia: methods and resources for training conversation partners. Aphasiology, 12, 816–830. doi:10.1080/02687039808249575
   Google Scholar
• Kagan, A., Simmons-Mackie, N., Rowland, A., Huijbregts, M., Shumway, E., & McEwan, S. (2007). The assessment for living with aphasia. Toronto, CA: Aphasia Institute.
   Google Scholar
• Katz, R., Hallowell, B., Code, C., Armstrong, E., Roberts, P., Pound, C., & Katz, L. (2000). A multinational comparison of aphasia management practices. International Journal of Language & Communication Disorders, 35, 303–314. doi:https://doi.org/10.1080/136828200247205
   Google Scholar
• Kearns, K., & Elman, R. (2008). Group therapy for aphasia: Theoretic and practical considerations. In R. Chapey (Ed.), Language intervention strategies in aphasia and related neurogenic communication disorders (5th ed., pp. 376–400). Philadelphia: Lippincott William & Wilkins.
   Google Scholar
• Keck, C., & Doarn, C. (2014). Telehealth technology applications in speech–language pathology. Telemedicine and e-Health, 20, 653–659. doi:https://doi.org/10.1089/tmj.2013.0295
   Google Scholar
• Kirkevold, M., Bronken, B., Randi, M., R., & Kvigne, K. (2012). Promoting psychosocial well-being following a stroke: Developing a theoretically and empirically sound complex intervention. International Journal of Nursing Studies, 49, 386. doi:10.1016/j.ijnurstu.2011.10.006
   Google Scholar
• Lanyon, L., Rose, M., & Worrall, L. (2013). The efficacy of outpatient and community-based aphasia group interventions: A systematic review. International Journal of Speech-Language Pathology, 15, 359–374. doi:10.3109/17549507.2012.752865
   Google Scholar
• Lathan, C., Kinsella, A., Rosen, M., Winters, J., & Trepagnier, C. (1999). Aspects of human factors engineering in home telemedicine and telerehabilitation systems. Telemedicine Journal, 5, 169–175. doi:https://doi.org/10.1089/107830299312131
   Google Scholar
• Mashima, P., & Doarn, C. (2008). Overview of telehealth activities in speech–language pathology. Telemedicine and e-Health, 14, 1101–1117. doi:10.1089/tmj.2008.0080
   Google Scholar
• Marshall, R. (1993). Problem-focused group treatment for clients with mild aphasia. American Journal of Speech-Language Pathology, 2, 31–37. doi:10.1044/1058-0360.0202.31
   Google Scholar
• Perry, A., & Skeat, J. (2004). AusTOMs for speech pathology. Melbourne: La Trobe University.
   Google Scholar
• Power, E., Thomas, E., Worrall, L., Rose, M., Togher, L., Nickels, L., … Clarke, K. (2015). Development and validation of Australian aphasia rehabilitation best practice statements using the RAND/UCLA appropriateness method. BMJ Open, 5, e007641. doi:https://doi.org/10.1136/bmjopen-2015-007641
   Google Scholar
• Radonjic, V., & Rakuscek, N. (1991). Group therapy to encourage communication ability in aphasic patients. Aphasiology, 5, 451–455. doi:10.1080/02687039108248551
   Google Scholar
• Redfern, J., McKevitt, C., & Wolfe, C. (2006). Development of complex interventions in stroke care: A systematic review. Stroke, 37, 2410–2419. doi:https://doi.org/10.1161/01.STR.0000237097.00342.a9
   Google Scholar
• Robey, R.R. (2004). A five-phase model for clinical-outcome research. Journal of Communication Disorders, 37, 401–411. doi:https://doi.org/10.1016/j.jcomdis.2004.04.003
   Google Scholar
• Rose, M., & Attard, M. (2015). Practices and challenges in community aphasia groups in Australia: Results of a national survey. International Journal of Speech-Language Pathology, 0, 1–11. doi:https://doi.org/10.3109/17549507.2015.1010582
   Google Scholar
• Rosen, M. (1999). Telerehabilitation. Neurorehabilitation, 12, 11–26.
   Google Scholar
• Ross, A., Winslow, I., Marchant, P., & Brumfitt, S. (2006). Evaluation of communication, life participation and psychological well‐being in chronic aphasia: The influence of group intervention. Aphasiology, 20, 427–448. doi:10.1080/02687030500532786
   Google Scholar
• Simmons-Mackie, N., & Elman, R. (2011). Negotiation of identity in group therapy for aphasia: The Aphasia Café. International Journal of Language & Communication Disorders, 46, 312–323. doi:10.3109/13682822.2010.507616
   Google Scholar
• Simmons-Mackie, N., & Kagan, A. (2007). Application of the ICF in Aphasia. Seminars in Speech and Language, 28, 244–253. doi:10.1055/s-2007-986521
   Google Scholar
• Steele, R., Baird, A., McCall, D., & Haynes, L. (2015). Combining teletherapy and on-line language exercises in the treatment of chronic aphasia: An outcome study. International Journal of Telerehabilitation, 6, 3–20. doi:https://doi.org/10.5195/ijt.2014.6157
   Google Scholar
• Suter, P., Suter, W.N., & Johnston, D. (2011). Theory-based telehealth and patient empowerment. Population Health Management, 14, 87–92. doi:https://doi.org/10.1089/pop.2010.0013
   Google Scholar
• Swinburn, K., Porter, G., & Howard, D. (2004). The comprehensive aphasia test. Hove, East Sussex: Psychology Press.
   Google Scholar
• Theodoros, D., Hill, A., Russell, T., Ward, E., & Wootton, R. (2008). Assessing acquired language disorders in adults via the internet. Telemedicine and e-Health, 14, 552–559. doi:10.1089/tmj.2007.0091
   Google Scholar
• van der Gaag, A., Smith, L., Davis, S., Moss, B., Cornelius, V., Laing, S., & Mowles, C. (2005). Therapy and support services for people with long-term stroke and aphasia and their relatives: A six-month follow-up study. Clinical Rehabilitation, 19, 372–380. doi:https://doi.org/10.1191/0269215505cr785oa
   Google Scholar
• Verna, A., Davidson, B., & Rose, T. (2009). Speech–language pathology services for people with aphasia: A survey of current practice in Australia. International Journal of Speech-Language Pathology, 11, 191–205. doi:https://doi.org/10.1080/17549500902726059
   Google Scholar
• Worrall, L., Howe, T., O'callaghan, A., Hill, A., Rose, M., Wallace, S., … Rohde, A. (2013). The World Report on Disability as a blueprint for international, national, and local aphasia services. International Journal of Speech-Language Pathology, 15, 106–112. doi:10.3109/17549507.2012.721004
   Google Scholar