Publication Cover
Acta Clinica Belgica
International Journal of Clinical and Laboratory Medicine
Volume 72, 2017 - Issue 3
712
Views
18
CrossRef citations to date
0
Altmetric
Review

The patient perspective on the effects of medical record accessibility: a systematic review

, , , , , , & show all

References

  • Raad voor de Volksgezondheid en Zorg. De participerende patiënt; 2013 [cited 2015 Oct 9]. Available from: http://www.raadrvs.nl.
  • Baxter S, Farrell K, Brown C, Clarke J, Davies H. Where have all the copy letters gone? A review of current practice in professional-patient correspondence. Patient Edu Couns. 2008;71(2):259–264.10.1016/j.pec.2007.12.002
  • Naik AD, Schulman-Green D, McCorkle R, Bradley EH, Bogardus ST Jr. Will older persons and their clinicians use a shared decision-making instrument? J Gen Intern Med. 2005;20(7):640–643.10.1007/s11606-005-0110-8
  • Siminoff LA, Rogers HL, Thomson MD, Dumenci L, Harris-Haywood S. Doctor, what’s wrong with me? Factors that delay the diagnosis of colorectal cancer. Patient Edu Couns. 2011;84(3):352–358.10.1016/j.pec.2011.05.002
  • Forsyth R, Maddock CA, Iedema RA, Lassere M. Patient perceptions of carrying their own health information: approaches towards responsibility and playing an active role in their own health – implications for a patient-held health file. Health Expect. 2010;13(4):416–426.10.1111/hex.2010.13.issue-4
  • Frampton S, Horowitz S, Stumpo B. Patients first. Open medical records: allowing patients access to their records increases their satisfaction. So why are hospitals resistant? Am J Nursing. 2009;109(8):59–63.10.1097/01.NAJ.0000358504.52667.71
  • Ventegodt S, Morad M, Merrick J. Clinical holistic medicine: the ‘new medicine’, the multiparadigmatic physician, and the medical record. Sci World J. 2004;4:273–285.10.1100/tsw.2004.25
  • Vlaams Patiëntenplatform. Patiëntenvoorlichting in ziekenhuizen: Een verkennend onderzoek in Vlaanderen; 2007 [cited 2015 Oct 21]. Available from: http://www.vlaamspatientenplatform.be.
  • Feeley TW, Shine KI. Access to the medical record for patients and involved providers: transparency through electronic tools. Ann Intern Med. 2011;155(12):853–854.10.7326/0003-4819-155-12-201112200-00010
  • Parchman ML, Flannagan D, Ferrer RL, Matamoras M. Communication competence, self-care behaviors and glucose control in patients with type 2 diabetes. Patient Edu Couns. 2009;77(1):55–59.10.1016/j.pec.2009.03.006
  • Parchman ML, Zeber JE, Palmer RF. Participatory decision making, patient activation, medication adherence, and intermediate clinical outcomes in type 2 diabetes: a STARNet study. Ann Family Med. 2010;8(5):410–417.10.1370/afm.1161
  • Patel VL, Arocha JF, Kushniruk AW. Patients’ and physicians’ understanding of health and biomedical concepts: relationship to the design of EMR systems. J Biomed Inform. 2002;35(1):8–16.10.1016/S1532-0464(02)00002-3
  • Bulas D. Talking to patients: why should we? Appl Radiol. 2011;40(6):6–7.
  • Federale Overheidsdienst Volksgezondheid. Wet ‘Rechten van de patiënt’ – In een goede relatie weet je wat je aan mekaar hebt; 2014 [cited 2015 Oct 10]. Available from: http://www.health.fgov.be.
  • Centre for Biomedical Ethics and Law (Katholieke Universiteit Leuven). EU Member States: General overview 2008. Available from: http://europatientrights.eu/countries/eu_member_states.html.
  • Wikipedia. Medical record 2016 [cited 2016 Nov 22]. Available from: https://en.wikipedia.org/wiki/Medical_record#German_law_and_customs.
  • Vlaams Patiëntenplatform. Ervaringen van patiënten over tien jaar patiëntenrechten; 2012 [cited 2015 Oct 10]. Available from: http://www.vlaamspatientenplatform.be.
  • Markle Foundation. Markle survey on health in a networked life 2010; 2011 [cited 2016 Nov 21]. Available from: http://www.markle.org/sites/default/files/20110110_HINLSurveyBrief_0.pdf.
  • Ferreira A, Correia A, Silva A, Corte A, Pinto A, Saavedra A, et al. Why facilitate patient access to medical records. In: Bos B, Blobel B, editors. Medical and care compunetics 4. Amsterdam: IOS Press; 2007. p. 77–90.
  • Zahedi F. The challenge of truth telling across cultures: a case study. J Med Ethics Hist Med. 2011;4:11.
  • Ruhnke GW, Wilson SR, Akamatsu T, Kinoue T, Takashima Y, Goldstein MK, et al. Ethical decision making and patient autonomy: a comparison of physicians and patients in Japan and the United States. Chest. 2000;118(4):1172–1182.10.1378/chest.118.4.1172
  • Hawker S, Payne S, Kerr C, Hardey M, Powell J. Appraising the evidence: reviewing disparate data systematically. Qual Health Res. 2002;12(9):1284–1299.10.1177/1049732302238251
  • Delbanco T, Walker J, Bell SK, Darer JD, Elmore JG, Farag N, et al. Inviting patients to read their doctors’ notes: a quasi-experimental study and a look ahead. Ann Intern Med. 2012;157(7):461–470.10.7326/0003-4819-157-7-201210020-00002
  • Delbanco T, Walker J, Darer JD, Elmore JG, Feldman HJ, Leveille SG, et al. Open notes: doctors and patients signing on. Ann Intern Med. 2010;153(2):121–125.10.7326/0003-4819-153-2-201007200-00008
  • Halamka JD, Mandl KD, Tang PC. Early experiences with personal health records. J Am Med Inform Assoc. 2008;15(1):1–7.10.1197/jamia.M2562
  • Ross SE, Lin CT. The effects of promoting patient access to medical records: a review. J Am Med Inform Assoc. 2003;10(2):129–138.10.1197/jamia.M1147
  • Ross SE, Todd J, Moore LA, Beaty BL, Wittevrongel L, Lin CT. Expectations of patients and physicians regarding patient-accessible medical records. J Am Med Inform Assoc. 2005;7(2):e13.10.2196/jmir.7.2.e13
  • Snyder CF, Wu AW, Miller RS, Jensen RE, Bantug ET, Wolff AC. The role of informatics in promoting patient-centered care. Cancer J. 2011;17(4):211–218.10.1097/PPO.0b013e318225ff89
  • Walker J, Leveille SG, Ngo L, Vodicka E, Darer JD, Dhanireddy S, et al. Inviting patients to read their doctors’ notes: patients and doctors look ahead: patient and physician surveys. Ann Intern Med. 2011;155(12):811–819.10.7326/0003-4819-155-12-201112200-00003
  • Wibe T, Helleso R, Slaughter L, Ekstedt M. Lay people’s experiences with reading their medical record. Soc Sci Med. 2011;72(9):1570–1573.10.1016/j.socscimed.2011.03.006
  • Rostom AY, Gershuny AR. Access to patient records. Lancet. 1991;338(8778):1337–1338.10.1016/0140-6736(91)92642-F
  • Arora NK, McHorney CA. Patient preferences for medical decision making: who really wants to participate? Med Care. 2000;38(3):335–341.10.1097/00005650-200003000-00010
  • Benbassat J, Pilpel D, Tidhar M. Patients’ preferences for participation in clinical decision making: a review of published surveys. Behav Med. 1998;24(2):81–88.10.1080/08964289809596384
  • Degner LF, Sloan JA. Decision-making during serious illness – what role do patients really want to play. J Clin Epidemiol. 1992;45(9):941–950.10.1016/0895-4356(92)90110-9
  • Fioriglio G, Szolovits P. Copy fees and patients’ rights to obtain a copy of their medical records: from law to reality. AMIA Annual Symposium proceedings / AMIA Symposium; Washington (DC): American Medical Informatics Association; 2005. p. 251–255.
  • Goffeau M. E-Health in België: Een toegevoegde waarde? 2013. Available from: http://www.scriptiebank.be/sites/default/files/webform/scriptie/E_health%20in%20Belgie%20een%20toegevoegde%20waarde.pdf.
  • Vermeir P, Vandijck D, Degroote S, Ommeslag D, Van De Putte M, Heytens S, et al. Mutual perception of communication between general practitioners and hospital-based specialists. Acta Clin Belg. 2015;70(5):350–356.10.1179/2295333715Y.0000000032
  • Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inf Assoc. 2006;13(2):121–126.10.1197/jamia.M2025
  • Fricton JR, Davies D. Personal health records to improve health information exchange and patient safety. In: Henriksen K, Battles JB, Keyes MA, Grady ML, editors. Advances in patient safety: new directions and alternative approaches (Vol 4: Technology and medication safety). Advances in patient safety. Rockville (MD): Agency for Healthcare Research and Quality (US); 2008.
  • Lober WB, Zierler B, Herbaugh A, Shinstrom SE, Stolyar A, Kim EH, et al. Barriers to the use of a personal health record by an elderly population. AMIA Annual Symposium proceedings / AMIA Symposium AMIA Symposium; Washington (DC): American Medical Informatics Association; 2006. p. 514–518.
  • Cruickshank J, Packman C, Paxman J. Personal health records. Putting patients in control? 2020health.org; 2012.
  • Federaal regeerakkoord 2014 [cited 2015 Oct 16]. Available from: http://www.feweb.be/sites/default/files/FEDERAALREGEERAKKOORD_09102014.PDF.
  • Vlaams Patiëntenplatform. Introductie van een personal health record in België: Visie VPP; 2015 [cited 2015 Nov 2]. Available from: http://www.rtreh.be.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.