Young pain patients’ experience in primary care. A qualitative study

References

• Alfvén, G., & Olsson, G. (2008). Långvarig smärta hos barn och undomar kan och bör behandlas [Long-term pain in children and aldocents can and should be treated]. Läkartidningen, 10, 720–722. Retrieved from http://www.lakartidningen.se.proxy.kib.ki.se/.
   Google Scholar
• Alperstein, D., & Sharpe, L. (2015). The efficacy of motivational interviewing in adults with chronic pain: A meta-analysis and systematic review. Journal of Pain, 17, 393–403. doi:10.1016/j.jpain.2015.10.021
   PubMed Web of Science ®Google Scholar
• Arnett, J. J. (2004). Emerging adulthood: The winding road from the late teens through the twenties. New York: Oxford University Press.
   Google Scholar
• Asbring, P., & Narvanen, A. L. (2002). Women’s experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia. Qualitative Health Research, 12, 148–160. doi:10.1177/104973230201200202
   PubMed Web of Science ®Google Scholar
• Bailly, F., Foltz, V., Rozenberg, S., Fautrel, B., & Gossec, L. (2015) The impact of chronic low-back pain is partly related to loss of social role: A qualitative study. Joint Bone Spine, 82, 437–441. doi: 10.1016/j.jbspin.2015.02.019
   PubMed Web of Science ®Google Scholar
• Brattberg, G. (2004). Do pain problems in young school children persist into early adulthood a 13-year follow-up. European Journal of Pain, 8, 187–199. doi:10.1016/j.ejpain.2003.08.001
   PubMed Web of Science ®Google Scholar
• Breen, A., Austin, H., Campion-Smith, C., Carr, E., & Mann, E. (2007). “You feel so hopeless”: A qualitative study of GP management of acute back pain. European Journal of Pain, 11, 21–21. doi:10.1016/j.ejpain.2005.12.006
   PubMed Web of Science ®Google Scholar
• Breivik, H., Collett, B., Ventafridda, V., Cohen, R., & Gallacher, D. (2006). Survey of chronic pain in Europe: Prevalence, impact on daily life, and treatment. European Journal of Pain, 10, 287–287. doi:10.1016/j.ejpain.2005.06.009
   PubMed Web of Science ®Google Scholar
• Chang, L., Toner, B. B., Fukudo, S., Guthrie, E., Locke, G. R., Norton, N. J., & Sperber, A. D. (2006). Gender, age, society, culture, and the patient’s perspective in the functional gastrointestinal disorders. Gastroenterology, 130, 1435–1446. doi:10.1053/j.gastro.2005.09.071
   PubMed Web of Science ®Google Scholar
• Clarke, K. A., & Iphofen, R. (2008). A phenomenological hermeneutic study into unseen chronic pain. British Journal of Nursing, 17, 658–663. doi:10.12968/bjon.2008.17.10.29482
   PubMedGoogle Scholar
• Dewar, A. L., Gregg, K., White, M. I., & Lander, J. (2009). Navigating the health care system: Perceptions of patients with chronic pain. Chronic Dis Can, 29, 162–168. Retrieved from http://publications.gc.ca.proxy.kib.ki.se/collections/collection_2009/aspc-phac/H12-27-29-4E.pdf.
   PubMed Web of Science ®Google Scholar
• Dow, C. M., Roche, P. A., & Ziebland, S. (2012). Talk of frustration in the narratives of people with chronic pain. Chronic Illness, 8, 176–191. doi:10.1177/1742395312443692
   PubMedGoogle Scholar
• Eccleston, C., Wastell, S., Crombez, G., & Jordan, A. (2008). Adolescent social development and chronic pain. European Journal of Pain, 12, 765–774. doi:10.1016/j.ejpain.2007.11.002
   PubMed Web of Science ®Google Scholar
• Escudero-Carretero, M., Garcia-Toyos, N., Prieto-Rodriguez, M., Pérez-Corral, O., March-Cerdá, J., & López-Doblas, M. (2008). Fibromyalgia: Patient perception on their disease and health system. Qualitative research study. Reumatologia Clinica, 6, 16–22. Retrieved from http://www.sciencedirect.com.proxy.kib.ki.se/science/journal/21735743.
   Google Scholar
• Frisén, A., & Hwang, P. (2006). Ungdomar och identitet [Aldolescents and identity]. Stockholm: Natur och kultur.
   Google Scholar
• Glenton, C. (2003). Chronic back pain sufferers–striving for the sick role. Social Science & Medicine, 57, 2243–2252. doi:10.1016/S0277-9536(03)00130-8
   PubMed Web of Science ®Google Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112. doi:10.1016/j.nedt.2003.10.001
   PubMed Web of Science ®Google Scholar
• Hallstam, A., Stalnacke, B. M., Svensen, C., & Lofgren, M. (2015). “Change is possible”: Patients’ experience of a multimodal chronic pain rehabilitation programme. Journal of Rehabilitation Medicine, 47, 242–248. doi:10.2340/16501977-1926
   PubMed Web of Science ®Google Scholar
• Harding, G., Parsons, S., Rahman, A., & Underwood, M. (2005). “It struck me that they didn't understand pain”: The specialist pain clinic experience of patients with chronic musculoskeletal pain. Arthritis & Rheumatism, 53, 691–696. doi:10.1002/art.21451
   PubMed Web of Science ®Google Scholar
• Jacobsson, U. (2007). Möten och bemötande i hälso- och sjukvården [Meetings and encounters in health care]. Socialmedicinsk tidskrift, 6, 541–548. Retrieved from http://socialmedicinsktidskrift.se/index.php/smt.
   Google Scholar
• Jacobsson, U. (2008). När vården (be-)möter långvarig smärta [When health-care meet longterm pain]. Socialmedicinsk tidskrift, 6, 515–522. Retrieved from http://socialmedicinsktidskrift.se/index.php/smt.
   Google Scholar
• Jordan, A. L., Eccleston, C., & Osborn, M. (2007). Being a parent of the adolescent with complex chronic pain: An interpretative phenomenological analysis. European Journal of Pain, 11, 49–49. doi:10.1016/j.ejpain.2005.12.012
   PubMed Web of Science ®Google Scholar
• Lempp, H. K., Hatch, S. L., Carville, S. F., & Choy, E. H. (2009). Patients’ experiences of living with and receiving treatment for fibromyalgia syndrome: A qualitative study. BMC Musculoskeletal Disorders, 10, 124. doi:10.1186/1471-2474-10-124
   PubMed Web of Science ®Google Scholar
• Licoln, Y., & Guba, E. (1985). Naturalistic inquiry (pp. 218–219). London: Sage Publications.
   Google Scholar
• Liddle, S. D., Baxter, G. D., & Gracey, J. H. (2007). Chronic low back pain: Patients’ experiences, opinions and expectations for clinical management. Disability and Rehabilitation, 29, 1899–1909. doi:10.1080/09638280701189895
   PubMed Web of Science ®Google Scholar
• Löfgren, M., Schüldt Ekholm, K., Schult, M.-L., & Ekholm, J. (2016). Qualitative evidence in pain. In K. Olson, R. A. Young, & I. Z. Schultz (Eds.), Handbook of qualitative health research for evidence-based practice (pp. 126–139). New York: Springer.
   Google Scholar
• Löfgren, M., & Norrbrink, C. (2012). “But I know what works”–patients’ experience of spinal cord injury neuropathic pain management. Disability and Rehabilitation, 34, 2139–2147. doi:10.3109/09638288.2012.676146
   PubMed Web of Science ®Google Scholar
• Marcia, J. (2006). Jagidentitet och objektrelationer [Selft-identity and object relations]. In A. Frisén & P. Hwang (Eds.), Ungdomar och identitet [Aldolescents and identity] (pp. 171–196). Stockholm: Natur och kultur.
   Google Scholar
• McMahon, L., Murray, C., Sanderson, J., & Daiches, A. (2012). “Governed by the pain”: Narratives of fibromyalgia. Disability and Rehabilitation, 34, 1358–1366. doi:10.3109/09638288.2011.645114
   PubMed Web of Science ®Google Scholar
• Melin, H., Agenstam, Å., Öberg, B., & Löfgren, M. (2014). Från hopplöshet till hopp. Kartläggning av den unga smärtpatienten och rehabiliteringsinsatser i primärvård och specialistvård [From hopelessness to to hope. A survey of the young patient with long-term pain in primary care and specialist care]. A report to the county council. Retrieved from http://www.ds.se/Om-oss/Organisation/Rehabiliteringsmedicin/Externa-uppdrag-Rapporter/.
   Google Scholar
• Nationella medicinska indikatorer. (2011). Indikation för multimodal rehabiliering vid långvarig smärta [Indicators for multi-modal rehabilitation in long-term pain]. Rapport 2011:02. Stockholm: National board of welfare (Socialstyrelsen). Retrieved from https://www.socialstyrelsen.se/SiteCollectionDocuments/nationella-indikationer-multimodal-rehabilitering.pdf.
   Google Scholar
• Newton, B. J., Southall, J. L., Raphael, J. H., Ashford, R. L., & LeMarchand, K. (2013). A narrative review of the impact of disbelief in chronic pain. Pain Management Nursing, 14, 161–171. doi:10.1016/j.pmn.2010.09.001
   PubMed Web of Science ®Google Scholar
• Ojala, T., Häkkinen, A., Karppinen, J., Sipilä, K., Suutama, T., & Piirainen, A. (2015). Chronic pain affects the whole person – A phenomenological study. Disability and Rehabilitation, 37, 363–371. doi:10.3109/09638288.2014.923522
   PubMed Web of Science ®Google Scholar
• The Open Code3.6 Software program. Umeå: Umeå University. Retrived January, 2013, from http://www.phmed.umu.se/enheter/epidemiologi/forskning/open-code/.
   Google Scholar
• Richardson, J. C. (2005). Establishing the (extra)ordinaryin chronic widespread pain. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 9, 31–48. doi: 10.1177/1363459305048096
   Google Scholar
• The Swedish Council on Health Technology Assessment. (2010). Rehabilitation in chronic pain – A systematic review (in Swedish). Stockholm: The Swedish Council on Health Technology Assessment. Report No. 198. Retrieved from http://www.sbu.se/upload/publikationer/content0/1/rehab_smarta_2010_fulltext.pdf.
   Google Scholar
• Schaefer, K. M. (1995). Struggling to maintain balance: A study of women living with fibromyalgia. Journal of Advanced Nursing, 21, 95–102. doi:10.1046/j.1365-2648.1995.21010095.x
   PubMed Web of Science ®Google Scholar
• Segall, A. (1976). The sick role concept: Understanding illness behavior. Journal of Health and Social Behavior, 17, 162–169.10.2307/2136342
   PubMed Web of Science ®Google Scholar
• Slade, S. C., Molloy, E., & Keating, J. L. (2009). People with non-specific chronic low back pain who have participated in exercise programs have preferences about exercise: A qualitative study. Australian Journal of Physiotherapy, 55, 115–121.10.1016/S0004-9514(09)70041-8
   PubMed Web of Science ®Google Scholar
• Undeland, M., & Malterud, K. (2007). The fibromyalgia diagnosis – Hardly helpful for the patients?. Scandinavian Journal of Primary Health Care, 25, 250–255. doi:10.1080/02813430701706568
   PubMed Web of Science ®Google Scholar
• Werner, A., Isaksen, L. W., & Malterud, K. (2004). ‘I am not the kind of woman who complains of everything’: Illness stories on self and shame in women with chronic pain. Social Science & Medicine, 59, 1035–1045. doi:10.1016/j.socscimed.2003.12.001
   PubMed Web of Science ®Google Scholar
• Werner, A., & Malterud, K. (2003). It is hard work behaving as a credible patient: Encounters between women with chronic pain and their doctors. Social Science & Medicine, 57, 1409–1419. doi:10.1016/S0277-9536(02)00520-8
   PubMed Web of Science ®Google Scholar
• Willmott, M. (1989). The sick role and related concepts. In A. K. Broome (Ed.), Health Psychology (pp. 57–73). Boca Raton, FL: Chapman & Hall/CRC.10.1007/978-1-4899-3228-0
   Google Scholar