767
Views
6
CrossRef citations to date
0
Altmetric
Articles

A Scoping Study of a Tertiary Intellectual Disability Mental Health Service: A Family Member and Support Person Perspective

ORCID Icon, , & ORCID Icon

References

  • Australian Government Department of Health. (2017). The fifth national mental health and suicide prevention plan. Commonwealth of Australia.
  • Balogh, R., McMorris, C. A., Lunsky, Y., Ouellette‐Kuntz, H., Bourne, L., Colantonio, A., & Gonçalves‐Bradley, D. C. (2016). Organising healthcare services for persons with an intellectual disability (review). The Cochrane Library.
  • Beasley, J. B., Kalb, L., & Klein, A. (2018). Improving mental health outcomes for individuals with intellectual disability through the Iowa START (I-START) program. Journal of Mental Health Research in Intellectual Disabilities, 11(4), 287–300. https://doi.org/10.1080/19315864.2018.1504362
  • Bertelli, M. O., Rossi, M., Scuticchio, D., Bianco, A., & Marco O. Bertelli, D. (2015). Diagnosing psychiatric disorders in people with intellectual disabilities: Issues and achievements. Advances in Mental Health and Intellectual Disabilities, 9(5), 230–242. https://doi.org/10.1108/AMHID-05-2015-0023
  • Brown, M., Duff, H., Karatzias, T., & Horsburgh, D. (2011). A review of the literature relating to psychological interventions and people with intellectual disabilities: Issues for research, policy, education and clinical practice. Journal of Intellectual Disabilities, 15(1), 31–45. https://doi.org/10.1177/1744629511401166
  • Cooper, S.-A, Smiley, E., Morrison, J., Williamson, A., & Allan, L. (2007). Mental ill-health in adults with intellectual disabilities: Prevalence and associated factors. British Journal of Psychiatry, 190(1), 27–35. https://doi.org/10.1192/bjp.bp.106.022483
  • Cooper, S.-A., McLean, G., Guthrie, B., McConnachie, A., Mercer, S., Sullivan, F., & Morrison, J. (2015). Multiple physical and mental health comorbidity in adults with intellectual disabilities: Population-based cross-sectional analysis. BMC Family Practice, 16(1), 110. https://doi.org/10.1186/s12875-015-0329-3
  • Cooper, S. A., Smiley, E., Allan, L. M., Jackson, A., Finlayson, J., Mantry, D., & Morrison, J. (2009). Adults with intellectual disabilities: Prevalence, incidence and remission of self‐injurious behaviour, and related factors. Journal of Intellectual Disability Research, 53(3), 200–216. https://doi.org/10.1111/j.1365-2788.2008.01060.x
  • Department of Developmental Disability Neuropsychiatry. (2014). Accessible mental health services for people with an intellectual disability: A guide for providers. NSW.
  • Department of Developmental Disability Neuropsychiatry. (2018). Recommendations from the national roundtable on the mental health of people with intellectual disability 2018. UNSW.
  • Edwards, N., Lennox, N., & White, P. (2007). Queensland psychiatrists‘ attitudes and perceptions of adults with intellectual disability. Journal of Intellectual Disability Research, 51(1), 75–81. https://doi.org/10.1111/j.1365-2788.2006.00870.x
  • Emerson, E., & Einfeld, S. (2011). Challenging behaviour. Cambridge University Press.
  • Fuller, C. G., & Sabatino, D. A. (1998). Diagnosis and treatment considerations with comorbid developmentally disabled populations. Journal of Clinical Psychology, 54(1), 1–10.
  • Giuntoli, G., Newton, B., & Fisher, K. R. (2015). Current models of health service delivery for people with intellectual disability: Literature review. Social Policy Research Centre, UNSW Australia.
  • Grenyer, B., & Fanaian, M. (2015). Final report on the treatment of personality disorders research project (2010-2013). Wollongong:
  • Hall, I., Parkes, C., Samuels, S., & Hassiotis, A. (2006). Working across boundaries: Clinical outcomes for an integrated mental health service for people with intellectual disabilities. Journal of Intellectual Disability Research, 50(8), 598–607. https://doi.org/10.1111/j.1365-2788.2006.00821.x
  • Howe, D., Batchelor, S., & Coates, D. D. (2017). Young A ustralians with moderate to severe mental health problems: Client data and outcomes at C hildren and Y oung P eople’s M ental H ealth. Early Intervention in Psychiatry, 11(4), 334–341. https://doi.org/10.1111/eip.12252
  • Hurley, A. (2006). Mood disorders in intellectual disability. Current Opinion in Psychiatry, 19(5), 465–469. https://doi.org/10.1097/01.yco.0000238471.84206.0a
  • Jess, G., Torr, J., Cooper, S. A., Lennox, N., Edwards, N., Galea, J., & O’Brien, G. (2008). Specialist versus generic models of psychiatry training and service provision for people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 21(2), 183–193. https://doi.org/10.1111/j.1468-3148.2007.00394.x
  • Kalb, L. G., Beasley, J., & Caoili, A. (2019). Improvement in Mental Health Outcomes and Caregiver Service Experiences Associated with a START Program. Journal of American Intellectual and Developmental Disabilities, 124(1), 25–34. Social Policy Research Centre, UNSW Australia.
  • Lennox, N., & Chaplin, R. (1995). The psychiatric care of people with intellectual disabilities: The perceptions of trainee psychiatrists and psychiatric medical officers. Australian and New Zealand Journal of Psychiatry, 29(4), 632–637. https://doi.org/10.3109/00048679509064978
  • Lennox, N., & Chaplin, R. (1996). The psychiatric care of people with intellectual disabilities: The perceptions of consultant psychiatrists in Victoria. Australian and New Zealand Journal of Psychiatry, 30(6), 774–780. https://doi.org/10.3109/00048679609065044
  • Lennox, N., Diggens, J., & Ugoni, A. (2000). Health care for people with an intellectual disability: General practitioners’ attitudes, and provision of care. Journal of Intellectual and Developmental Disability, 25(2), 127–133. https://doi.org/10.1080/13269780050033544
  • Lennox, N. G., Diggens, J. N., & Ugoni, A. M. (1997). The general practice care of people with intellectual disability: Barriers and solutions. Journal of Intellectual Disability Research, 41(5), 380–390. https://doi.org/10.1111/j.1365-2788.1997.tb00725.x
  • Man, J., Kangas, M., Trollor, J., & Sweller, N. (2016). Clinical competencies and training needs of psychologists working with adults with intellectual disability and comorbid mental ill health. Clinical Psychologist. 21: 206-214. doi:10.1111/cp.12092
  • Maulik, P. K., Mascarenhas, M. N., Mathers, C. D., Dua, T., & Saxena, S. (2011). Prevalence of intellectual disability: A meta-analysis of population-based studies. Research in Developmental Disabilities, 32(2), 419–436. https://doi.org/10.1016/j.ridd.2010.12.018
  • Moss, S., Emerson, E., Bouras, N., & Holland, A. (1997). Mental disorders and problematic behaviours in people with intellectual disability: Future directions for research. Journal of Intellectual Disability Research, 41(6), 440–447. https://doi.org/10.1111/j.1365-2788.1997.tb00735.x
  • Moss, S., Emerson, E., Kiernan, C., Turner, S., Hatton, C., & Alborz, A. (2000). Psychiatric symptoms in adults with learning disability and challenging behaviour. The British Journal of Psychiatry, 177(5), 452–456. https://doi.org/10.1192/bjp.177.5.452
  • NSW Council for Intellectual Disability. (2013). Natioanl roundtable on the mental health of people with intellectual disability communique. NSW.
  • NSW Mental Health Commission. (2014). Living well: A strategic plan for mental health in NSW.
  • Phillips, A., Morrison, J., & Davis, R. W. (2004). General practitioners‘ educational needs in intellectual disability health. Journal of Intellectual Disability Research, 48(2), 142–149. https://doi.org/10.1111/j.1365-2788.2004.00503.x
  • Salvador-Carulla, L., & Symonds, S. (2016). Health services use and costs in people with intellectual disability: Building a context knowledge base for evidence-informed policy. Current Opinion in Psychiatry, 29(2), 89–94. https://doi.org/10.1097/YCO.0000000000000237
  • Schalick, W. O., Westbrook, C., & Young, B. (2012). Communication with Individuals with Intellectual Disabilities and Psychiatric Disabilities: A Summary of the Literature. Michigan Retirement Research Center Research Paper(2012-264).
  • Sheehan, R., Paschos, D., & Hemmings, C. (2013). A comparison of different models to meet the mental health needs of adults with intellectual disabilities. Advances in Mental Health and Intellectual Disabilities, 7(3), 161–168. https://doi.org/doi:10.1108/20441281311320747
  • Torr, J., Lennox, N., Cooper, S.-A., Rey-Conde, T., Ware, R. S., Galea, J., & Taylor, M. (2008). Psychiatric care of adults with intellectual disabilities: Changing perceptions over a decade. Aust N Z J Psychiatry., 42, 42(10), 890–897. https://doi.org/10.1080/00048670802345474
  • Weise, J., Pollack, A. J., Britt, H., & Trollor, J. N. (2017). Primary health care for people with an intellectual disability: An exploration of consultations, problems identified, and their management in Australia. Journal of Intellectual Disability Research, 61(5), 399–410. https://doi.org/10.1111/jir.12352
  • Weise, J., & Trollor, J. N. (2018). Preparedness and training needs of an Australian public mental health workforce in intellectual disability mental health. Journal of Intellectual & Developmental Disability, 43(4),431-440. doi: 10.3109/13668250.2017.1310825
  • Wen, X. (1997). The definition and prevalence of intellectual disability in Australia. Canberra.
  • Whittle, E. L., Fisher, K. R., Reppermund, S., Lenroot, R., & Trollor, J. (2018). Barriers and enablers to accessing mental health services for people with intellectual disability: A scoping review. Journal of Mental Health Research in Intellectual Disabilities, 11(1), 69–102. https://doi.org/10.1080/19315864.2017.1408724
  • Ziviani, J., Lennox, N., Allison, H., Lyons, M., & Mar, C. D. (2004). Meeting in the middle: Improving communication in primary health care consultations with people with an intellectual disability. Journal of Intellectual and Developmental Disability, 29(3), 211–225. https://doi.org/doi:10.1080/13668250412331285163

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.