Working with Adults with Intellectual Disability and Clinicians to Advance Mental Health Treatment: Informing Practice Guidelines and Research

References

• Beail, N. (2017). Psychological therapies and people who have ID: a report from the Royal College of Psychiatrists and British Psychological Society. AMHID, 11(1), 24–26. https://doi.org/10.1108/AMHID-09-2016-0021
   Google Scholar
• Bouvet, C., & Coulet, A. (2016). Relaxation therapy and anxiety, self-esteem, and emotional regulation among adults with intellectual disabilities. Journal of intellectual disabilities. Journal of Intellectual Disabilities, 20(3), 228–240. https://doi.org/10.1177/1744629515605942
   PubMedGoogle Scholar
• Cooney, P., Jackman, C., Coyle, D., & O’Reilly, G. (2017). Computerised cognitive–behavioural therapy for adults with intellectual disability: Randomised controlled trial. British Journal of Psychiatry, 211(2), 95–102. https://doi.org/10.1192/bjp.bp.117.198630
   PubMed Web of Science ®Google Scholar
• Cooper, S., and van der Speck, R. (2009). Epidemiology of mental ill health in adults with intellectual disabilities. Current Opinion in Psychiatry, 22(5), 431–436. https://doi.org/10.1097/YCO.0b013e32832e2a1e
   PubMed Web of Science ®Google Scholar
• Cuthill, F. M., Espie, C. A., & Cooper, S. A. (2003). Development and psychometric properties of the glasgow depression scale for people with a learning disability: Individual and carer supplement versions. British Journal of Psychiatry, 182(4), 347–353. https://doi.org/10.1192/bjp.182.4.347
   PubMedGoogle Scholar
• Douglass, S., Palmer, K., & O’Conner, C. (2007). Experiences of running an anxiety management group for people with a learning disability using a cognitive behavioural intervention. British Journal of Learning Disabilities, 35(4), 245–252. https://doi.org/10.1111/j.1468-3156.2007.00443.x *
   Google Scholar
• Felver, J. C., Clawson, A. J., Ash, T. L., Martens, B. K., Wang, Q., & Singh, N. N. (2022). Meta-analysis of mindfulness-based program soles of the feet for disruptive behaviors. Behavior Modification, 46(6), 1488–1516. https://doi.org/10.1177/01454455211073738
   PubMed Web of Science ®Google Scholar
• Gates, B., & Waight, M. (2007). Reflections on conducting focus groups with people with learning disabilities: Theoretical and practical issues. Journal of Research in Nursing, 12(2), 111–126. https://doi.org/10.1177/1744987106075617
   Google Scholar
• Gilmore, L., & Cuskelly, M. (2014). Vulnerability to Loneliness in People with Intellectual Disability: An Explanatory Model. Policy Practice Intel Disabi, 11(3), 192–199. https://doi.org/10.1111/jppi.12089
   Web of Science ®Google Scholar
• Goldstein, N. E., Kemp, K. A., Leff, S. S., & Lochman, J. E. (2012). Guidelines for adapting manualized interventions for new target populations: A step‐wise approach using anger management as a model. Clinical Psychology Science & Practice, 19(4), 385. https://doi.org/10.1111/cpsp.12011
   PubMed Web of Science ®Google Scholar
• Graser, J., Göken, J., Lyons, N., Ostermann, T., & Michalak, J. (2022). Cognitive-behavioral therapy for adults with intellectual disabilities: A meta-analysis. Clinical Psychology Science & Practice, 29(3), 227–242. https://doi.org/10.1037/cps0000077
   Web of Science ®Google Scholar
• Hassiotis, A., Serfaty, M., Azam, K., Strydom, A., Blizard, R., Romeo, R., Martin, S., & King, M. (2013). Manualised individual cognitive behavioural therapy for mood disorders in people with mild to moderate intellectual disability: A feasibility randomised controlled trial. Journal of Affective Disorders, 151(1), 186–195. https://doi.org/10.1016/j.jad.2013.05.076
   PubMed Web of Science ®Google Scholar
• Hassiotis, A., Serfaty, M., Azam, K., Strydom, A., Blizard, R., Romeo, R., Martin, S., & King, M. (2013). Manualised Individual Cognitive Behavioural Therapy for mood disorders in people with mild to moderate intellectual disability: A feasibility randomised controlled trial. Journal of Affective Disorders, 151(1), 186–195. https://doi.org/10.1016/j.jad.2013.05.076
   PubMed Web of Science ®Google Scholar
• Honey, A., Emerson E, and Llewellyn., G. (2011). The mental health of young people with disabilities: impact of social conditions. Soc Psychiat Epidemiol, 46(1), (1–10). https://doi.org/10.1007/s00127-009-0161-y
   PubMed Web of Science ®Google Scholar
• Hwang, Y. S., & Kearney, P. (2012). A systematic review of mindfulness intervention for individuals with developmental disabilities: Long-term practice and long-lasting effects. Research in Developmental Disabilities, 34(1), 314–326. https://doi.org/10.1016/j.ridd.2012.08.008
   PubMed Web of Science ®Google Scholar
• Jahoda, A., Hastings, R., Hatton, C., Cooper, S.-A., Dagnan, D., Zhang, R., & Melville, C. (2017). Comparison of behavioural activation with guided self-help for treatment of depression in adults with intellectual disabilities: A randomised controlled trial. The. The Lancet Psychiatry, 4(12), 909–919. https://doi.org/10.1016/s2215-0366(17)30426-1
   PubMed Web of Science ®Google Scholar
• James, J. S. (2017). Cognitive-behavioral therapy for depression in individuals with intellectual disabilities: A review. Journal of Mental Health Research in Intellectual Disabilities, 10(1), 17–29. https://doi.org/10.1080/19315864.2016.1271485
   Web of Science ®Google Scholar
• Karatzias, T., Brown, M., Taggart, L., Truesdale, M., Sirisena, C., Walley, R., & Paterson, D. (2019). A mixed‐methods randomized controlled feasibility trial of eye movement desensitization and reprocessing (EMDR) plus Standard Care (SC) versus SC alone for DSM‐5 posttraumatic stress disorder (PTSD) in adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(4), 806–818. doi:https://doi.org/10.1111/jar.12570
   PubMed Web of Science ®Google Scholar
• Krueger, R., & Casey, M. (2009). Focus groups: A practical guide for applied research. Sage Publications.
   Google Scholar
• Mazza, M. G., Rossetti, A., Crespi, G., & Clerici, M. (2020). Prevalence of co-occurring psychiatric disorders in adults and adolescents with intellectual disability: A systematic review and meta-analysis. Journal of Applied Research in Intellectual Disabilities, 33(2), 126–138. https://doi.org/10.1111/jar.12654
   PubMed Web of Science ®Google Scholar
• McDonald, K. (2019, May). Participatory research with people with developmental disabilities. Keynote address at Nisonger Institute.
   Google Scholar
• McNair, L., Woodrow, C., & Hare, D. (2016). Dialectical behavior therapy [DBT} with people with intellectual disabilities: A systematic and narrative analysis. Journal of Applied Research in Intellectual Disabilities, 30(5), 787–804. https://doi.org/10.1111/jar.12277
   PubMed Web of Science ®Google Scholar
• Millward, L. (2012). Focus groups. In: GM. Breakwell, JA. Smith & DB. Wright (eds.), Research Methods in Psychology. Available at: www.uk.sagepub.com/upm-data/46878_Breakwell_Ch17.pdf
   Google Scholar
• Mindham, J., & Espie, C. A. (2003). Glasgow anxiety scale for people with an Intellectual Disability (GAS‐ID): Development and psychometric properties of a new measure for use with people with mild intellectual disability. Journal of Intellectual Disability Research, 47(1), 22–30. 10.1046/j.1365-2788.2003.00457.x
   PubMedGoogle Scholar
• National Guideline Alliance (UK). (2016). Mental Health Problems in People with Learning Disabilities: Prevention, Assessment and Management. National Institute for Health and Care Excellence (UK).
   Google Scholar
• Nezu, A. M., & Nezu, C. M. (2007). Evidence-based outcome research: A practical guide to conducting randomized controlled trials for psychosocial interventions. Oxford University Press.
   Google Scholar
• Prout H. T., & Nowak-Drabik K. M. (2003). Psychotherapy With Persons Who Have Mental Retardation: An Evaluation of Effectiveness. Am J Mental Retard, 108(2). https://doi.org/10.1352/0895-8017(2003)108<0082:PWPWHM>2.0.CO;2
   PubMedGoogle Scholar
• Roberts, L., & Kwan, S. (2018). Putting the C into CBT: Cognitive challenging with adults with mild to moderate intellectual disabilities and anxiety disorders. Clinical Psychology & Psychotherapy, 25(5), 662–671. https://doi.org/10.1002/cpp.2196
   PubMed Web of Science ®Google Scholar
• Rounsaville, B. J., Carroll, K. M., & Onken, L. S. (2001). A stage model of behavioral therapies research: Getting started and moving on from stage I. Clinical Psychology Science & Practice, 8(2), 133. https://doi.org/10.1093/clipsy.8.2.133
   Web of Science ®Google Scholar
• Strauss, A., & Corbin, J. M. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Sage Publications, Inc.
   Google Scholar
• Thom, R. P., Pineda, J., Nowinski, L., Birtwell, K., Hooker, J. M., McGuire, J. F., & McDougle, C. J. (2022). A virtually delivered adapted cognitive-behavioral therapy group for adults with Williams syndrome and anxiety. Cognitive and Behavioral Practice, 30(4), 669–677. 10.1016/j.cbpra.2022.02.025
   Web of Science ®Google Scholar
• Whittle, E. L., Fisher, K. R., Reppermund, S., Lenroot, R., & Trollor, J. (2018). Barriers and enablers to accessing mental health services for people with intellectual disability: A scoping review. Journal of Mental Health Research in Intellectual Disabilities, 11(1), 69–102. https://doi.org/10.1080/19315864.2017.1408724
   Web of Science ®Google Scholar
• Witwer, A. N., Rosencrans, M. E., Held, M. K., Cobranchi, C., Crane, J., Chapman, R., Havercamp, S. M., & Nisonger, R. R. T. C. (2021). Psychotherapy treatment outcome research in adults with ID: Where do we go from here? Clinical Psychology Science & Practice. https://doi.org/10.1037/cps0000053
   Web of Science ®Google Scholar
• Witwer, A. W., Walton, K., Held, M., Rosencrans, M., Cobranchi, C., Fletcher, R., Crane, J., Chapman, R., Havercamp, S. M., & Nisonger, R. R. T. C. (2022). A scoping review of psychological interventions, accommodations, and assessments for adults with intellectual disability. Professional Psychology: Research and Practice, 53(6), 615–625. https://doi.org/10.1037/pro0000474
   Web of Science ®Google Scholar