Burden of Care among Caregivers of Persons Living with HIV/AIDS in Rural Namibia: Correlates and Outcomes

References

• Abasiubong, F., Bassey, E. A., Ogunsemi, O. O., & Udobang, J. A. (2011). Assessing the psychological well-being of caregivers of people living with HIV/AIDS in Niger Delta region, Nigeria. AIDS Care, 23(4), 494–500. doi:10.1080/09540121.2010.516340
   PubMed Web of Science ®Google Scholar
• Ardington, C., & Case, A. (2010). Interactions between mental health and socioeconomic status in the South African national income dynamics study. Journal for Studies in Economics and Econometrics, 34(3), 69–84.
   Google Scholar
• Ballard, T., Coates, J., Swindale, A., & Deitchler, M. (2011). Household hunger scale: Indicator definition and measurement guide. Retrieve from https://www.fantaproject.org/sites/default/files/resources/HHS-Indicator-Guide-Aug2011.pdf
   Google Scholar
• Bauer, K. W., Widome, R., Himes, J. H., Smyth, M., Rock, B. H., Hannan, P. J., & Story, M. (2012). High food insecurity and its correlates among families living on a rural American Indian reservation. American Journal of Public Health, 102(7), 1346–1352. doi:10.2105/AJPH.2011.300522
   PubMed Web of Science ®Google Scholar
• Bevans, M., & Sternberg, E. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. Journal of the American Medical Association, 307(4), 398–403. doi:10.1001/jama.2012.29
   PubMed Web of Science ®Google Scholar
• Boon, H., James, S., Ruiter., R. A. C., van den Borne, B., Williams, E., & Reddy, S. P. (2010). Explaining the perceived ability among older people to provide care as a result of HIV and AIDS in South Africa. AIDS Care, 22(4), 399–408. doi:10.1080/09540120903202921
   PubMed Web of Science ®Google Scholar
• Bronfenbrenner, U. (1979). Toward an experimental ecology of human development. American Psychologist, 32, 513–531. doi:10.1037/0003-066X.32.7.513
   Web of Science ®Google Scholar
• Butler, S. S., Turner, W., & Kaye, L. W. (2005). Depression and caregiver burden among rural elder caregivers. Journal of Gerentological Social Work, 46(1), 47–63. doi:10.1300/J083v46n01_04
   PubMedGoogle Scholar
• Chepngeno-Langat, G., Falkingham, J., Madise, N. J., & Evandrou, M. (2010). Socioeconomic differentials between HIV caregivers and non-caregivers: Is there a selection effect? A case of older people living in Nairobi City slums. Research on Aging, 32(1), 67–96. doi:10.1177/0164027509348116
   PubMed Web of Science ®Google Scholar
• Cluver, L. D., Orkin, M., Boyes, M. E., Garner, F., & Nikelo, J. (2012). AIDS-orphanhood and caregiver HIV/AIDS sickness: Effects on psychological symptoms in South Africa youth. Journal of Pediatric Psychology, 37, 857–867. doi:10.1093/jpepsy/jss004
   PubMed Web of Science ®Google Scholar
• Demmer, C. (2011). Experiences of families caring for HIV-infected child in KwaZulu-Natal, South Africa. AIDS Care, 23(7), 873–879. doi:10.1080/09540121.2010.542123
   PubMed Web of Science ®Google Scholar
• du Guerny, J. (1997, August 19–22). The rural elderly and the ageing rural populations. Paper presented at the World Congress of Gerontology/Inter-Agency Meeting for the International Year of the Older Persons 1999, Adelaide, Australia.
   Google Scholar
• Family Caregiver Alliance. (2003). Women and caregiving: Facts and figures. Retrieve from https://www.caregiver.org/women-and-caregiving-facts-and-figures
   Google Scholar
• Fortes, M., (1969). Kinship and social order. Chicago, IL: Aldine Press.
   Google Scholar
• Freeman, M., & Nkomo, N. (2006). Guardianship of orphans and vulnerable children: A survey of current prospective South African caregivers. AIDS Care, 18, 302–310. doi:10.1080/09540120500359009
   PubMed Web of Science ®Google Scholar
• George, G., Govender, K., Bachoo, S., Penning, S., & Quinlan, T. (2014). Comparative economic positions of orphan, non-orphan and mixed households: Findings from round 3 of the Amajuba District Study in KwaZulu-Natal, South Africa. Vulnerable Children and Youth Studies: An International Interdisciplinary Journal for Research, Policy, and Care, 9(1), 28–42. doi:10.1080/17450128.2013.772316
   Google Scholar
• Given, C. W., Given, B., Stommel, M., Collins, C., King, S., & Franklin, S. (1992). The Caregiver Reaction Assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Research in Nursing and Health, 15, 271–283. doi:10.1002/nur.4770150406
   PubMed Web of Science ®Google Scholar
• Govender, K., Penning, S., George, G., & Quinlan, T. (2012). Weghing up the burden of care on caregivers of orphan children: The Amajuma District Child Health and Wellbeing Project, South Africa. AIDS Care, 24(6), 712–721. doi:10.1080/09540121.2011.630455
   PubMed Web of Science ®Google Scholar
• Government of the Republic of Namibia/Ministry of Gender Equality and Child Welfare [GRN/MGECW] Windhoek. (2004). Orphans and vulnerable children policy. Namibia: Windhoek.
   Google Scholar
• Government of the Republic of Namibia/Ministry of Gender Equality and Child Welfare [GRN/MGECW] Windhoek. (2009). National plan of action 2006-2010 for orphans and vulnerable children in Namibia: Annual progress and monitoring report. Namibia: Windhoek.
   Google Scholar
• Jackson, H., & Kerkhoven, R. (1995). Developing AIDS care in Zimbabwe: A case for residential community centers? AIDS Care, 7(5), 663–673. doi:10.1080/09540129550126317
   PubMed Web of Science ®Google Scholar
• Jang, Y., Bergman, E., Schonfeld, L., & Molinari, V. (2006). Depressive symptoms among older residents in assisted living facilities. International Aging and Human Development, 63(4), 293–315.
   Web of Science ®Google Scholar
• Kagotho, N., & Ssewamala, F. M. (2012). Correlates of depression among caregivers of children affected by HIV/AIDS in Uganda: Findings from the Suubi-Maka family study. AIDS Care, 24(10), 1226–1232. doi:10.1080/09540121.2012.658754
   PubMed Web of Science ®Google Scholar
• Kalichman, S. C., Simbayi, L. C., Cloete, A., Mthembu, P. P., Mkhonta, R. N., & Ginindza, T. (2009). Measuring AIDS stigma in people living with HIV/AIDS: The Internalized AIDS-Related Stigma Scale. AIDS Care, 21(1), 87–93. doi:10.1080/09540120802032627
   PubMed Web of Science ®Google Scholar
• Kayono-Male, H., & Onyango, P. (1984). The sociology of the African family. London, England: Longman.
   Google Scholar
• Kidman, R., & Thurman, R. (2014). Caregiver burden among adults caring for orphaned children in rural South Africa. Vulnerable Children and Youth Studies: An Interdisciplinary Journal for Research, Policy and Care, 9(3), 234–246. doi:10.1080/17450128.2013.871379
   PubMedGoogle Scholar
• Kiwanuka, J., Mulogo, E., & Haberer, J. E. (2014). Caregiver perceptions and motivations for disclosing or concealing the diagnosis of HIV infection to children receiving HIV care in Mbarara, Uganda: A qualitative study. PLoS ONE, 9(3), 1–9. doi:10.1371/journal.pone.0093276
   Web of Science ®Google Scholar
• Kramer, B. J., & Kipnis, S. (1995). Eldercare and work-role conflict: Toward an understanding of gender differences in caregiver burden. The Gerontologist, 35(3), 340–348. doi:10.1093/geront/35.3.340
   PubMed Web of Science ®Google Scholar
• Kuo, C., & Operario, D. (2011). Health of adults caring for orphaned children in an HIV-endemic community in South Africa. AIDS Care, 23(9), 1128–1135. doi:10.1080/09540121.2011.554527
   PubMed Web of Science ®Google Scholar
• Kuo, C., Reddy, M. K., Operario, D., Cluver, L., & Stein, D. J. (2013). Posttraumatic stress symptoms among adults caring for orphaned children in HIV-endemic South Africa. AIDS Behavior, 17, 1755–1763. doi:10.1007/s10461-013-0461-9
   PubMed Web of Science ®Google Scholar
• Kuyini, A. B., Alhassan, A. R., Tollerud, I., Weld, H., & Haruna, I. (2009). Traditional experiences and views of children and carers and adults in Tamle. Child and Family Social Work, 14, 440–449. doi:10.1111/j.1365-2206.2009.00616.x
   Web of Science ®Google Scholar
• Lekalakala-Mokgele, E. (2012). A literature review of the impact of HIV and AIDS on the role of the elderly in the sub-Saharan African community. Health South Africa [SA] Gesondheid, 16(1), 1–6.
   Google Scholar
• Lightfoot, E., & Kalomo, E. (2010). The interplay of population aging and HIV/AIDS on social development. Social Development Issues, 32(1), 1–15.
   Google Scholar
• Littrell, M., Boris, N. W., Brown, L., Hill, M., & Macintyre, K. (2011). The influence of orphan care and other household shocks on health status over time: A longitudinal study of children’s caregiver in rural Malawi. AIDS Care, 23(12), 1551–1561. doi:10.1080/09540121.2011.582079
   PubMed Web of Science ®Google Scholar
• Matshalaga, N. R., & Powell, G. (2002). Mass orphanhood in the era of HIV/AIDS: Bold support for alleviation of poverty and education may avert a social disaster. British Medical Journal, 324(7331), 185–186. doi:10.1136/bmj.324.7331.185
   PubMed Web of Science ®Google Scholar
• Mhaka-Mutepfa, M., Mpofu, E., & Cumming, R. (2015). Impact of protective factors on resilience of grandparent carers fostering orphans and non-orphans in Zimbabwe. Journal of Aging and Health, 27(3), 454–479. doi:10.1177/0898264314551333
   PubMed Web of Science ®Google Scholar
• Moore, A. R., & Henry, D. (2005). Experiences of older informal caregivers to people with HIV/AIDS in Lome, Togo. Aging International, 30(2), 147–166. doi:10.1007/s12126-005-1009-8
   Google Scholar
• Motshome, P., & Madiba, S. (2013). Perceptions, reasons and experiences of disclosing HIV diagnosis in infected children in Kweneng District, Botswana. International Journal of Health Sciences & Research, 4(2), 129–139.
   Google Scholar
• Mudavanhu, D., Segalo, P., & Fourie, E. (2006). Grandmothers caring for their grandchildren orphaned by HIV and AIDS. Pretoria, South Africa: University of South Africa.
   Google Scholar
• Namibia Statistics Agency. (2012). Child poverty in Namibia: A child-centered analysis of the NHIES 2009/10. Retrieved from http://cms.my.na/assets/documents/p19dnb2udr1jj0d9d25sv5f124r1.PDF
   Google Scholar
• Ndaba-Mbata, R. D., & Seloilwe, E. S. (2000). Home-based care of the terminally ill in Botswana: Knowledge and perceptions. International Nursing Review, 47, 218–223. doi:10.1046/j.1466-7657.2000.00023.x
   PubMedGoogle Scholar
• Nhongo, T. M. (2004, August 18–20). The changing role of older people in African households and the impact of aging on African family structures. Paper presented at The Ageing in Africa Conference, Johannesburg, South Africa.
   Google Scholar
• Oburu, P. O., & Palmerus, K. (2005). Stress related factors among primary and part time caregiving grandmothers of Kenyan grandchildren. International Journal of Aging and Human Development, 60(4), 273–282. doi:10.2190/XLQ2-UJEM-TAQR-4944
   PubMed Web of Science ®Google Scholar
• Pearlin, L. I., Mullan, J. T., Semple, S., & Skaff, M. M. (1990). Caregiving and stress process: An overview of concepts and their measures. Gerontologist, 30, 583–594. doi:10.1093/geront/30.5.583
   PubMed Web of Science ®Google Scholar
• Reddy, P. (2005). Inkala ixinge Etyeni: [The burden of care on the elderly in Eastern Cape, South Africa [Trapped in a difficult situation]. Johannesburg, South Africa: South African Population Council/Horizon Update.
   Google Scholar
• Schatz, E. (2007). “Taking care of my own blood”: Older women’s relationships to their households in rural South Africa. Scandinavian Journal of Public Health, 35(69), 147–154. doi:10.1080/14034950701355676
   Web of Science ®Google Scholar
• Schatz, E., & Gilbert, L. (2012). “My heart is very painful”: Physical, mental and social well-being of older women at the times of HIV/AIDS in rural South Africa. Journal of Aging Studies, 26, 16–25. doi:10.1016/j.jaging.2011.05.003
   Web of Science ®Google Scholar
• Schulz, R., & Martire, L. (2004). Family caregiving of persons with dementia prevalence, health effects, and support strategies. American Journal of Geriatric Psychiatry, 12(3), 240–249. doi:10.1097/00019442-200405000-00002
   PubMed Web of Science ®Google Scholar
• Seeley, J., Kajura, E., & Bachengana, C. (1993). The extended family and support for people with AIDS in rural population in south west Uganda: A safety net with holes? AIDS Care, 5(1), 117–122. doi:10.1080/09540129308258589
   PubMed Web of Science ®Google Scholar
• Sheikah, J., & Yesavage, J. (1986). Geriatric depression scale: Recent evidence and development of a shorter version. Clinical Gerontologist, 5(1/2), 165–173. doi:10.1300/J018v05n01_09
   Google Scholar
• Smith, R. (2007). Living in an age of HIV and AIDS: Implications for families in South Africa. Nordic Journal of African Studies, 16(2), 161–178.
   Google Scholar
• Social Impact Assessment and Policy Analysis Corporation. (2003). Situational analysis of orphan children in Namibia. Windhoek, Namibia: Ministry of Health and Social Services.
   Google Scholar
• Ssengonzi, R. (2007). The plight of older persons as caregivers to people infected/affected by HIV/AIDS: Evidence from Uganda. Journal of Cross Cultural Gerontology, 22, 339–353. doi:10.1007/s10823-007-9043-5
   PubMedGoogle Scholar
• Ssewamala, F. M., Neilands, T. B., Waldfogel, J., & Ismayilova, L. (2012). The impact of a comprehensive microfinance intervention on depresion levels of AIDS-orphaned children in Uganda. Journal of Adolscent Health, 50, 346–352. doi:10.1016/j.jadohealth.2011.08.008
   PubMed Web of Science ®Google Scholar
• Thomas, F. (2006). Stigma, fatigue and social breakdown: Exploring the impacts of HIV/AIDS on patient and caregiver well-being in the Caprivi Region, Namibia. Social Science & Medicine, 63(12), 3174–3187. doi:10.1016/j.socscimed.2006.08.016
   PubMed Web of Science ®Google Scholar
• United Nations Programme on HIV/AIDS. (2006). 2006 report on the global AIDS epidemic: A UNAIDS 19th anniversary special edition. Geneva, Switzerland: United Nations.
   Google Scholar
• United Nations Programme on HIV/AIDS [UNAIDS]. (2008). Executive summary: Report on the global AIDS epidemic. Geneva: United Nations.
   Google Scholar
• United Nations Programme on HIV/AIDS [UNAIDS] (2012). Executive Summary: Report on the Global AIDS Epidemic.
   Google Scholar
• United Nations Programme on HIV/AIDS. (2014). Namibia. Retrieved from http://www.unaids.org/en/regionscountries/countries/namibia
   Google Scholar
• White, J. M., & Klein, D. M. (2002). Family theories (2nd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Williams, M., Unrau, Y. A., & Grinnell, R. M. (2003). Research methods for social workers. Peosta, IA: Eddie Bowers Publishing Co., Inc.
   Google Scholar
• Zarit, S. H., Femia, E. E., Watson, J., Rice-Oeschger, L., & Kakos, B. (2004). Memory club: A group intervention for people with early-stage dementia and their care partners. Gerontologist, 44(2), 262–269. doi:10.1093/geront/44.2.262
   PubMed Web of Science ®Google Scholar
• Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist, 20(6), 649–655. doi:10.1093/geront/20.6.649
   PubMed Web of Science ®Google Scholar