Knowledge, beliefs, attitudes, and behaviors regarding sickle cell disease: Implications for prevention

References

• Abioye-Kuteyi, E. A., Oyegbade, O., Bello, I., & Osakwe, C. (2009, October). (2009). Sickle cell knowledge, premarital screening and marital decisions among local government workers in Ile- Ife, Nigeria. African Journal of Primary Health Care & Family Medicine, 1(1), 53–57. doi:10.4102/phcfm.v1i1.22
   Google Scholar
• Acharya, K., Lang, C. W., & Ross, L. F. (2009). A pilot study to explore knowledge, attitudes, and beliefs about sickle cell trait and disease. Journal of the National Medical Association, 101(11), 1163–1172. doi:10.1016/S0027-9684(15)31113-5
   PubMed Web of Science ®Google Scholar
• Agency for Healthcare Research and Quality. (2009). Healthcare cost and utilization project. Statistical brief #21: Sickle cell disease patients in U.S. hospitals. Retrieved December 2, 2009, from http://www.hcup-us.ahrq.gov/reports/statbriefs/sb21.pdf
   Google Scholar
• Al Arrayed, S., & Al Hajeri, A. (2010). Public awareness of sickle cell disease in Bahrain. Annals of Saudi Medicine, 30(4), 284–288. doi:10.4103/0256-4947.65256
   PubMed Web of Science ®Google Scholar
• Alao, O. O., Araoye, M., & Ojabo, C. (2009). Knowledge of sickle cell disease and haemoglobin electrophoresis: A survey of students of a tertiary institution. Nigerian Journal of Medicine, 18(3), 326–329.
   PubMedGoogle Scholar
• Ani, C., Aranda, M. A., Kinanee, J., Ola, B., & Kramer, T. (2012). Trainee-teachers’ stigmatizing attitude towards sickle cell disorders in Nigeria. European Journal of Educational Studies, 4(3), 349–360.
   Google Scholar
• Bediako, S. M., & Moffitt, K. R. (2011). Race and social attitudes about sickle cell disease. Ethnicity & Health, 16(4–5), 423–429. doi:10.1080/13557858.2011.552712
   PubMed Web of Science ®Google Scholar
• Bhatt, K., Reid, M. E., Lewis, N. A., & Asnani, M. R. (2011). Knowledge and health beliefs of Jamaican adolescents with sickle cell disease. Pediatric Blood Cancer, 57(6), 1044–1048. doi:10.1002/pbc.23091
   PubMed Web of Science ®Google Scholar
• Boyd, J. H., Watkins, A. R., Price, C. L., Fleming, F., & DeBaun, M. R. (2005). Inadequate community knowledge about sickle cell disease among African-American women. Journal of the National Medical Association, 97(1), 62–67.
   PubMed Web of Science ®Google Scholar
• Brace, N., Kemp, R., & Snelgar, R. (2006). SPSS for psychologists: A guide to data analysis using SPSS for Windows (3rd ed.). Hampshire, England: Palgrave Macmillan.
   Google Scholar
• Burnes, D. P. R., Antle, B. J., Williams, C. C., & Cook, L. (2008). Mothers raising children with sickle cell disease at the intersection of race, gender, and illness-stigma. Health & Social Work, 33(3), 211–220. doi:10.1093/hsw/33.3.211
   PubMed Web of Science ®Google Scholar
• Burnett, A. L. (2012). Sexual health outcomes improvement in sickle cell disease: A matter of health policy. Journal of Sexual Medicine, 9(1), 104–113. doi:10.1111/j.1743-6109.2011.02411.x
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and Prevention. (2016, August 31) Sickle cell disease. Retrieved from https://www.cdc.gov/ncbddd/sicklecell/about.html#references
   Google Scholar
• Creswell, J. (2009). Research design: Qualitative, quantitative, and mixed methods approaches (3rd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Gallo, A. M., Wilkie, D., Suarez, M., Labotka, R., Molokie, R., Thompson, A., … Johnson, B. (2010). Reproductive decisions in people with sickle cell disease or sickle cell trait. Western Journal of Nursing Research, 32(8), 1074–1090. doi:10.1177/0193945910371482
   Web of Science ®Google Scholar
• Gustafon, S. L., Gettig, E. A., Watt-Morse, M., & Krishnamurti, L. (2007). Health beliefs among African American women regarding genetic testing and counseling for sickle cell disease. Genetics in Medicine, 9(5), 303–310. doi:10.1097/GIM.0b013e3180534282
   PubMed Web of Science ®Google Scholar
• Guvenc, G., Akyuz, A., & Acikel, C. H. (2011). Health belief model scale for cervical cancer and pap smear test: Psychometric testing. Journal of Advanced Nursing, 67(2), 428–437. doi:10.1111/j.1365-2648.2010.05450.x
   PubMed Web of Science ®Google Scholar
• Hayes, A. (2012). Study: Interracial marriage, acceptance growing. Retrieved from http://www.cnn.com/2012/02/16/us/interracial-marriage/
   Google Scholar
• Interracial marriages in the U.S. hit all-time high 4.8 million. (2012, February 16). The Associated Press. Retrieved from http://www.nydailynews.com/life-style/interracial-marriages-u-s-hit-all-time-high-4-8-million-article-1.1023643
   Google Scholar
• Jayson, S. (2012, February 16). U.S. rate of interracial marriage hits record high. USA Today. Retrieved from http://usatoday30.usatoday.com/news/health/wellness/marriage/story/2012-02-16/US-rate-of-interracial-marriage-hits-record-high/53109980/1
   Google Scholar
• Johnson, Y. M., & Munch, S. (2009). Fundamental contradictions in cultural competence. Social Work, 54(3), 220–231. doi:10.1093/sw/54.3.220
   PubMed Web of Science ®Google Scholar
• Krisberg, K. (2016). New coalition targets gaps in Sickle Cell care, treatment efforts. Nation’s Health, 46(9), 5.
   Google Scholar
• Leedy, P. D., & Ormrod, J. E. (2010). Practical research: Planningand design (9th ed.). Upper Saddle River, NJ: Pearson Education.
   Google Scholar
• Lim, J., Baik, O. M., & Ashing-Giwa, K. T. (2012). Cultural health beliefs and health behaviors in Asian American breast cancer survivors: A mixed-methods approach. Oncology Nursing, 39(4), 388–397.
   Google Scholar
• Morisky, D.E., Ang, A., Krousel-Wood, M., & Ward, H.J. (2008). The Journal of Clinical Hypertension, 10(5), 348–354.
   PubMed Web of Science ®Google Scholar
• Moronkola, O. A., & Fadairo, R. A. (2006). University students in Nigeria: Knowledge, attitude toward sickle cell disease, and genetic counseling before marriage. International Quarterly of Community Health Education, 26(1), 85–93. doi:10.2190/JN25-4353-75PK-3733
   PubMedGoogle Scholar
• Nelson, S. C., & Hackman, H. W. (2013). Race matters: Perceptions of race and racism in a Sickle Cell Center. Pediatric Blood Cancer, 60, 451–454. doi:10.1002/pbc.24361
   PubMed Web of Science ®Google Scholar
• Nnaji, G. A., Ezeagwuna, D. A., Nnaji, I. J. F., Osakwe, J. O., Nwigwe, A. C., & Onwurah, O. W. (2013). Prevalence and pattern of sickle cell disease in premarital couples in Southeastern Nigeria. Nigerian Journal of Clinical Practice, 16(3), 309–314. doi:10.4103/1119-3077.113452
   PubMed Web of Science ®Google Scholar
• Nordentoft, M. (2011). Crucial element in suicide prevention strategies. Progress in Neuro-Psychopharmacology & Biological Psychiatry, 35(4), 848–853. doi:10.1016/j.pnpbp.2010.11.038
   PubMed Web of Science ®Google Scholar
• Ojodu, J., Hulihan, M. M., Pope, S. N., & Grant, A. M. (2014). Incidence of sickle cell trait – United States, 2010. MMWR: Morbidity & Mortality Weekly Report, 63(49), 1155–1158.
   PubMed Web of Science ®Google Scholar
• Olarewaju, S. O., Enwerem, K., Adebimpe, W. O., & Olugbenga-Bello, A. (2013). Knowledge and attitude of secondary school students in Jos, Nigeria on sickle cell disease. Pan African Medical Journal, 15(127), 1–9.
   PubMedGoogle Scholar
• Olatona, F. A., Odeyemi, K. A., Onajole, A. T., & Asuzu, M. C. (2012). Effects of health education on knowledge and attitude of youth corps members to sickle cell disease and its screening in Lagos State. Community Medicine & Health Education, 2(7), 1–6.
   Google Scholar
• Olubiyi, S. K., Umar, J. N., Ajiboye, O., Olubiyi, V. M., & Abioye, T. A. S. (2013). Knowledge and attitude of undergraduates of Ekiti State University towards sickle cell disease and genetic counseling before marriage. Sky Journal of Medicine and Medical Sciences, 1(7), 29–35.
   Google Scholar
• Owolabi, R. S., Alabi, P., Daniel, O., Ajayi, S., Otu, T., & Ogundiran, A. (2011). Knowledge and attitudes of secondary school students in federal capital territory (FCT), Abuja, Nigeria towards sickle cell disease. Nigerian Journal of Medicine, 20(4), 479–485.
   PubMedGoogle Scholar
• Rosenstock, I. M. (1974). Historical origins of the health belief model. Health Education. Monographs, 2, 1–8.
   Google Scholar
• Royal, C. D., Jonassaint, C. R., Jonassaint, J. C., & De Castro, L. M. (2011). Living with sickle cell disease: Traversing ‘race’ and identity. Ethnicity & Health, 16(4–5), 389–404. doi:10.1080/13557858.2011.563283
   PubMed Web of Science ®Google Scholar
• Sanderson, J. D. (2013). Factors affecting decision making in Hispanics experiencing myocardial infarction. Journal of Transcultural Nursing, 24(2), 117–126. doi:10.1177/1043659612472062
   PubMed Web of Science ®Google Scholar
• Sanger, M., Jordan, L., Pruthi, S., Day, M., Covert, B., Merriweather, B., … Kassim, A. (2016). Cognitive deficits are associated with unemployment in adults with Sickle Cell Anemia. Journal of Clinical & Experimental Neuropsychology, 38(6), 661–671. doi:10.1080/13803395.2016.1149153
   PubMed Web of Science ®Google Scholar
• Smith, M., & Aguirre, R.T.P. (2012). Reproductive attitudes and behaviors in people with sickle cell disease or sickle cell trait: A qualitative interpretive meta-synthesis. Social Work in Health Care, 51(9), 757–779.
   PubMed Web of Science ®Google Scholar
• Stewart, K. A. (2007). An examination of African American college students’ knowledge and attitudes regarding sickle cell disease and sickle cell disease carrier testing: A mixed methods study ( Doctoral Dissertation). Retrieved from ProQuest Dissertations and Theses Database (PQTD). (UMI No 3286404).
   Google Scholar
• Sweeny, K., & Legg, A. M. (2011). Predictors of interest in direct-to-consumer genetic testing. Psychology & Health, 26(10), 1259–1272. doi:10.1080/08870446.2010.514607
   PubMed Web of Science ®Google Scholar
• Tewari, S., & Rees, D. (2013). Morbidity pattern of sickle cell disease in India: A single centre perspective. Indian Journal of Medical Research, 138(3), 288–290.
   PubMed Web of Science ®Google Scholar
• Texas Department of State Health Services. (2012). Universal, selective, and indicated prevention. Retrieved from http://www.dshs.state.tx.us/sa/prevention/classifications.shtm
   Google Scholar
• Treadwell, M. J., McClough, L., & Vichinsky, E. (2006). Using qualitative and quantitative strategies to evaluate knowledge and perceptions about sickle cell disease and sickle cell trait. Journal of the National Medical Association, 98(5), 704–710.
   PubMed Web of Science ®Google Scholar
• Ugwu, N. I. (2016). Pre-marital screening for sickle cell haemoglobin and genetic counseling: Awareness and acceptability among undergraduate students of a Nigerian University. International Journal Of Medicine & Biomedical Research, 5(1), 43–49. doi:10.14194/ijmbr.5.1.6
   Google Scholar
• Van Selm, M., & Jankowski, N. W. (2006). Conducting online survey. Quality & Quantity, 40(3), 435–456. doi:10.1007/s11135-005-8081-8
   Web of Science ®Google Scholar
• Vasava, B., Srivastava, R. K., Chudasama, R. K., & Godara, N. R. (2009). Awareness about various aspects of sickle cell disease among tribal adolescents. Internet Journal of Epidemiology, 6(2), 1–5
   Google Scholar
• Vichinsky, E. P. (2014). Sickle cell trait. Retrieved from http://www.uptodate.com/contents/sickle-cell-trait
   Google Scholar
• Weiner, J. L., Silk, K. J., & Parrott, R. L. (2005). Family communication and genetic health: A research note. Journal of Family Communication, 5(4), 313–324. doi:10.1207/s15327698jfc0504_5
   Google Scholar
• Weinreich, S. S., De Lange-De Klerk, E. S., Rijmen, F., Cornel, M. C., De Kinderen, M., & Plass, A. M. C. (2009). Raising awareness of carrier testing for hereditary haemoglobinopathies in high-risk ethnic groups in the Netherdlands: A pilot study among the general public and primary care providers. BMC Public Health, 9(1), 338–346. doi:10.1186/1471-2458-9-338
   PubMedGoogle Scholar
• Zimmerman, R. K., Tabbarah, M., Nowalk, M. P., Raymund, M., Jewell, I. K., Wilson, S. A., & Ricci, E. M. (2006). Racial differences in beliefs about genetic screening among patients at inner-city neighborhood health centers. Journal of the National Association, 98(3), 370–377.
   PubMed Web of Science ®Google Scholar